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3 years since nephrectomy

strongmind
Posts: 34
Joined: May 2012

Yesterday it was 3 years since my husband had left nephrectomy. He was diagnosed on March 22nd, 2012 with stage IV RCC, mets to lungs , brain and spine at young age of 32.

Today he is doing great after full nephrectomy, 4 rounds of HDIL-2, 4 times cyber knife for multiple brain mets and 3 weeks of radiation for spine met. Hardest part was to wean off from Decadron, evil steroid..After his diagnosis, I became hypochondriac But I feel this forum is great. Got couragement to deal with this monster.

Good luck and many wishes.

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

That is wonderful news! Very inspiring too! Thank you for sharing with us.

Here's to continued good health!

Hugs

Jojo

strongmind
Posts: 34
Joined: May 2012

Wishing you also best of health.

Although in January's 6 month scan, there was one 2 mm spot on his lungs but it was too small to say anything. Now they are doing Lungs scan next week to see its status. otherwise he is on  6months scan. I am nervous...

donna_lee's picture
donna_lee
Posts: 901
Joined: Feb 2009

keep up the tests and the positive attitude.

Donna

Jan4you's picture
Jan4you
Posts: 1322
Joined: Oct 2013

WOW What a journey you both have been going through. Glad you came here to get information and support!

Keep us posted. I cannot imagine what you both are going through, but know that we'll walk along side you both if you want us to.

Gentle hugs and healing thoughts!

Jan

Allochka's picture
Allochka
Posts: 874
Joined: Nov 2014

I fully understand your nerves about coming scans ( as we all do). But lots of people here have benign lung lesions, so lets hope for the best.

And I also know how hard it is to be a hypochondriac. Please do your best to fight it, it can kill all the joy in life. I had it 4 years ago after first miscarriage and suspected multiple sclerosis, but I got muuuch better. Unfortunately fiance's diagnosis brought some of anxiety back. Sometimes health anxiety can be as destructive as serious disease. Are you fighting it somehow?

 

strongmind
Posts: 34
Joined: May 2012

Thank you Jan and Allochka..

I think its normal to get anxious when your loved one or you get diagnosed with something serious but it should not let control your mind and body. I was kind of depressed thoughout 2012 but then realised that my worries are not solution. We have 8 years old twins ( then they were 5), I had to take care of them too. I started Yoga, deep breathing excercises, and NOT to google anything...I think more than anything Google made me depressed..LOL...

I have seen many inspiring people here....It gives you strength..Best wishes to all..

strongmind
Posts: 34
Joined: May 2012

Actually more than me, my husband's attitude is positive..you know we both get strength from each other.

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