Gliomatosis Cerebri

jameshaan
jameshaan Member Posts: 2

I am a 31 year old male and was diagnosed with Grade III gliomatosis cerebri in Oct 2013 and miraculously doing fine now with minimal symptoms.  I did 6 weeks of radiation and temodar followed by 12 months of "maintenace" temodar.  I'm off of all treatments and getting bi-monthly scans that show a stable, not growing tumor. 

 

I'd like to connect with other patients or families of patients.  God bless

 

Jim

Comments

  • Patricia_Franse
    Patricia_Franse Member Posts: 2
    Gliomatosis Cerebri

    Hi Jim,

     

    I was diagnosed with GMC 4 weeks ago and desperatly looking for fellow patients as I do not know what to expect.

    Hope you are still out there!

     

    Regards,

     

    P.

  • Fayard
    Fayard Member Posts: 438
    Hello Jim,
    Ho are you doing?

    Hello Jim,

    Ho are you doing?

  • Fayard
    Fayard Member Posts: 438

    Gliomatosis Cerebri

    Hi Jim,

     

    I was diagnosed with GMC 4 weeks ago and desperatly looking for fellow patients as I do not know what to expect.

    Hope you are still out there!

     

    Regards,

     

    P.

    Hello,
    I have a friend who

    Hello,

    I have a friend who has just been diagnosed with this beast.

    I am from the Uterine Cancer board, survivor thank to my dear GOD!

    I am doing some research online and came accross this. I though you may want to read it http://www.virtualtrials.com/

    I am sorry you have to go through this.

  • gmacc1956
    gmacc1956 Member Posts: 2
    GMC

    Jim, my daughter is on a similar path as you.  She is finishing up her maintenace temodar. Would like know what to expect after that. Any information would be appreciated. Thanks for your time.

  • bighead
    bighead Member Posts: 1
    maintenance temodar

    Is the maintenance temodar the 5/23 treatment?