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The Rumor Was True - Sundance Was Full of $hit After All. (Updated below)

Sundanceh
Sundanceh Member Posts: 4,392
edited March 2015 in Colorectal Cancer #1

Well, it's yesterday's news now...but I did clear that major impaction.  I never thought I could it was so bad...half a colon full of rock stool.

It took 5 jugs of GoLytely...many chemical and warm water enemas, a couple of mag citrates...manual de-impaction to finally get it....it was a mess and one of the hardest things I've ever done. 

The first scope attempt failed and I was really worried I would fail miserably.  But the 2nd one revealed all clear...not even a polyp...so I'm good for 3 years now.

My 14 day staycation was eventful...

Originally, I was not a fall risk...but that changed.

What happened was I got up quickly and my hand slipped and wham I hit the ground hard like a ton of bricks.  There was blood all over me.  By rule they switched me to yellow gown and a fall risk...though I found a way around it, LOL

What happened was I had a garden hose up my backside and I had to go but the nurse did not pull out quick enough.

Next day I talked my way off the fall risk chart by charming a few nurses and showing them I was ok.  They said I was the first to do that one:). 

No surprise, right?

And my wife had bought me milks from the cafe...we had the nurses print labels and we put them in appointed fridge as instructed.  Long story short...they were stolen...so mad and disappointed they were...they were mine and it cost us $10 so it was not right at all.

Other highlights...they scheduled us a room and then we waited for three hours upon check/in...nobody checked on us during all that time.

I had some good crews and other shifts turned out less than stellar...new place recently opened so it may take some time.

And I still have not healed completely a month later from that fall...many scabs still.

Wish I could write more but hurting real bad...did the best I could.

I worry about another impaction but worries fill my days and nights...I hope that dissipates.  I just don't feel human anymore...just some kind of freak.

Thanks for listening and nice to see you again.

Oh and the endoscopy showed some irritation otherwise it was clear no cancer or obstructions so that was good.

The consensus is that tha pain pills have created all my problems.

I'm trying so desperately to wean down or get off those meds.

At this rate if I don't turn it around soon you won't have to worry about me.

Let us hope for some good news.

Goodnight and love you!

-Craig 

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Comments

  • Trubrit
    Trubrit Member Posts: 5,529 **
    Damn!

    (If you can swear, so can I).

    DAMN! (again)

    If only those pain pills didn't cause the back-up.  You can't live without the pain pills, I'm sure, but living with another impaction, well, thats as hard to swallow as the pills. 

    I wish there were an easy answer, but easy doesn't seem to want to be a part of your life. 

    I am happy to hear that all was clear. One brownie point for that. But it comes at such a cost, such a very high cost. 

    So, I will pray and send all of those good vibes your way, that weaning off your pain meds is a possibility, without causing you too much stress in mind and body. 

    We, obviously, are so happy to have you back. Have your back. I think you know you're loved and cared about here on the forum. 

    Your rally cry 'I am Sundanceh, Hear me Roar'.

    Cyber hugs!

    Sue - Trubrit

  • LivinginNH
    LivinginNH Member Posts: 1,456
     
    Oh dear Craig, you really

     

    Oh dear Craig, you really had a bad time of it during your hospital stay, I cringed at almost every sentence.  :(   I'm glad that the scoping showed an all clear, at least that should provide you with a little less stress.  It's so nice to see you on the board, but I wish that it wasn't so hard to write with all that pain. :'(  I wish you better pain free days ahead my friend. You take care now, and no more falling, ok?  ;)

    Gentle hugs (())

    Cyn

  • Helen321
    Helen321 Member Posts: 1,425
    Hi Craig, Wow, that's sure a

    Hi Craig, Wow, that's sure a lot.  It's amazing the things our bodies will do, I had no idea this could even exist.  It's really good to hear that you were able to type even for a few minutes.  Really sorry you are going through such a hard time and you are totally loved by this group.  Helen

  • thingy45
    thingy45 Member Posts: 632
    Good to hear you Roar

    hi Craig,

    good to hear/read you roar. What else is there to do you would say.

    so to read life is exciting, and you keep them all on their toes.

    all kidding aside, I'm so glad to see you post. You're always in my prayers and thoughts.

    life is running away with me here, daughter very ill, Trigiminal neuralgia is no pickNick either.

    very painfull and no relieve inside ever. 

    Hgs, Marjan

  • Easyflip
    Easyflip Member Posts: 588
    Good

    to see a nice long post from you. That's quite an ordeal you just went through. Get well and best wishes!

    Easyflip/Richard

  • Yolllmbs
    Yolllmbs Member Posts: 360
    Easyflip said:

    Good

    to see a nice long post from you. That's quite an ordeal you just went through. Get well and best wishes!

    Easyflip/Richard

    Happy to hear

    that even in the heat of battle, you're a survivor. Good news as far as being clear. I hate thievery. It's just not right. I hope the hospital settles into the good pace they need. I'm praying the pain becomes lighter. Sending prayers

     

     

    Yolanda

  • LindaK.
    LindaK. Member Posts: 506
    Humor

    Thank goodness you can still share these stories with us.  Would pain relief be easier on your colon through a patch or suppository? 

    I'm sure the nurses would much rather give you freedom to get to the toilet rather than cleaning up time after time.  Once last year when my husband was in the hospital and had c-diff for a 2nd time, they labeled him the "mad sh$tter"  I'm glad that happened during the night while I was not there!

    I'm glad you finally got some relief, but it doesn't sound pleasant.  How could you drink so much of that Golytely crap?  Ugh!  There has to be a better way

    Thinking of you,  Linda

  • Sundanceh
    Sundanceh Member Posts: 4,392
    LindaK. said:

    Humor

    Thank goodness you can still share these stories with us.  Would pain relief be easier on your colon through a patch or suppository? 

    I'm sure the nurses would much rather give you freedom to get to the toilet rather than cleaning up time after time.  Once last year when my husband was in the hospital and had c-diff for a 2nd time, they labeled him the "mad sh$tter"  I'm glad that happened during the night while I was not there!

    I'm glad you finally got some relief, but it doesn't sound pleasant.  How could you drink so much of that Golytely crap?  Ugh!  There has to be a better way

    Thinking of you,  Linda

    Linda

    Im on several patches right now.

    and I could not drink all of that so they inserted an NG tube twice - and second time I was awake...it hurt bad.

    thank you

  • NewHere
    NewHere Member Posts: 1,346 **
    Thoughts With You

    You have gone through a lot and best wishes that things get better ASAP for you. 

  • Annabelle41415
    Annabelle41415 Member Posts: 6,712 **
    Bummer

    Holy Crap - literally.  You have been through so much but glad that you have been relieved and hopefully for awhile.  I'm not sure if you asked but maybe you could take Miralax everyday.  It sure helps a lot of people stay regular.  The medicine can really screw up your digestive system so I'm glad you are trying to get off most, but then you will feel worse pain wise.  Thanks for keeping us updated as I'm sure it took a lot of strength to write what you did. 

    Kim

  • Sundanceh
    Sundanceh Member Posts: 4,392

    Bummer

    Holy Crap - literally.  You have been through so much but glad that you have been relieved and hopefully for awhile.  I'm not sure if you asked but maybe you could take Miralax everyday.  It sure helps a lot of people stay regular.  The medicine can really screw up your digestive system so I'm glad you are trying to get off most, but then you will feel worse pain wise.  Thanks for keeping us updated as I'm sure it took a lot of strength to write what you did. 

    Kim

    Kim

    were doing miralax and about to start LINZESS.

    well see and thanks

  • LindaK.
    LindaK. Member Posts: 506
    Sundanceh said:

    Linda

    Im on several patches right now.

    and I could not drink all of that so they inserted an NG tube twice - and second time I was awake...it hurt bad.

    thank you

    Grrrrr

    Nasty NG tube, my poor husband was awake for every one. 

     

  • TheLadySkye
    TheLadySkye Member Posts: 195
    I'm so sorry about your

    I'm so sorry about your ordeals.  You remain in my thoughts on prayers.

    During chemo, I would get blocked up REALLY bad.  I found that miralax in hot cocoa a couple days before and during helped with the worst of it.  Perhaps that will help until they can reduce the pain meds a bit? 

    On the bright sides, I'm glad all of your scans came back clear!

  • Fight for my love
    Fight for my love Member Posts: 1,522
    OMG, it is too much to go

    OMG, it is too much to go through. My husband hates NG tube, he experienced once when he had blockage. It's good to hear that no cancer found. I hope your pain and many other issues will be under control or resolved soon. You are in my prayers.

  • Sundanceh
    Sundanceh Member Posts: 4,392

    OMG, it is too much to go

    OMG, it is too much to go through. My husband hates NG tube, he experienced once when he had blockage. It's good to hear that no cancer found. I hope your pain and many other issues will be under control or resolved soon. You are in my prayers.

    FFML

    y- no new cancer found.....just the old cancer...

    -c

  • traci43
    traci43 Member Posts: 773
    Wow, what an ordeal!

    Craig  So sorry to hear about your latest adventure.  It's good that there is nothing new.  Wish they could figure out how to get rid of the old stuff and get you off those pain pills.  Take care of yourself.  I'm rooting and praying for you.  Traci

  • Joy1216
    Joy1216 Member Posts: 290
    Strong

    Wow!  You've really been through a lot.  At least you're not full of it any more!  I hope that the Linzess works. You are so strong and such an inspiration.  I pray that your pain will end soon.

    Joy

  • John212
    John212 Member Posts: 116
    I hear...

    that lots and lots of sex is the best cure for these kinds of things. At least that's what I tell my wife.

     

    She rarely listens to me, though. Maybe you'll have better luck.  :)

  • annalexandria
    annalexandria Member Posts: 2,571
    Craig it's so good to *see* you here

    but I just can't tell you how sorry I am that you have had to suffer so much. It's just completely unfair.

    You mention that they didn't find any new cancer, which is awesome...do they have a plan for treatment for the old stuff (hope you don't mind me being nosy, just hoping that they have some thoughts for moving forward once they get you through this rough patch)?

  • Sundanceh
    Sundanceh Member Posts: 4,392

    Craig it's so good to *see* you here

    but I just can't tell you how sorry I am that you have had to suffer so much. It's just completely unfair.

    You mention that they didn't find any new cancer, which is awesome...do they have a plan for treatment for the old stuff (hope you don't mind me being nosy, just hoping that they have some thoughts for moving forward once they get you through this rough patch)?

    Annie

    i dropped out of chemo iin November because of the issues I was having...I literally could not get it done because it took so long and I could not go to restroom

    the rest you know .....

    its all been too much of course...

    Probsbly will be back in hospital soon to get tpn...still can't eat much physically....will have to do ct soon for pump implant and then that surgery hopefully upcoming. Need to this as I'm still bedridden 24/7 except for appts....the drive is so hard on me I can barely make them anymore it hurts so much.

    dont know how this will play out but hope cancer is growing very slowly.

    remarkably last time cea was checked it was down 20 points...more than when I was doing it...strange.

    just don't know Annie...Very scary and difficult times...so much to wade through it seems.

    i saw the pain pump at consult and its big as a hockey puck with a catheter and wire that goes into spine...won't be an easy surgery but I'll try.

    cancer is beating on me on all fronts...hope I still have what it takes...gonna call monday (wife) to see about admittance for tpn...may call hospicd to see if they can help...gotta be off chemo...and I sm right now... can stop if chemo resumes.

    i feel wrong right now...my life ebbing out like sands through the hourglass....

    hugs

    craig

  • Sundanceh
    Sundanceh Member Posts: 4,392
    Hospital

    May be heading to hospital tomorrow if I can get in.

    i need ton as I'm scary skinny now and can't eat...It scares me to look at myself without clothes...just bony and emaciated looking.   May have to get cleaned out while I'm there.

    medical community just moves too slow when you're deathly sick....shaking so bad I can barely type...have to retype over and over.

    im slipping and they better hurry.

    anywsy tpn needed for sure.

    im worried...goodnight.  Hope to talk to you soon.

    craig

  • janderson1964
    janderson1964 Member Posts: 2,215
    Sundanceh said:

    Hospital

    May be heading to hospital tomorrow if I can get in.

    i need ton as I'm scary skinny now and can't eat...It scares me to look at myself without clothes...just bony and emaciated looking.   May have to get cleaned out while I'm there.

    medical community just moves too slow when you're deathly sick....shaking so bad I can barely type...have to retype over and over.

    im slipping and they better hurry.

    anywsy tpn needed for sure.

    im worried...goodnight.  Hope to talk to you soon.

    craig

    This is so absolutely

    This is so absolutely heartbreaking to read all of your post Craig. You know I love you and have always looked up to you and will continue to do so.

  • LivinginNH
    LivinginNH Member Posts: 1,456
    Sundanceh said:

    Hospital

    May be heading to hospital tomorrow if I can get in.

    i need ton as I'm scary skinny now and can't eat...It scares me to look at myself without clothes...just bony and emaciated looking.   May have to get cleaned out while I'm there.

    medical community just moves too slow when you're deathly sick....shaking so bad I can barely type...have to retype over and over.

    im slipping and they better hurry.

    anywsy tpn needed for sure.

    im worried...goodnight.  Hope to talk to you soon.

    craig

     :'( Hang in there!

     

    :'(

    image

    Love ya buddy....gentle hugs.

  • annalexandria
    annalexandria Member Posts: 2,571
    Sundanceh said:

    Hospital

    May be heading to hospital tomorrow if I can get in.

    i need ton as I'm scary skinny now and can't eat...It scares me to look at myself without clothes...just bony and emaciated looking.   May have to get cleaned out while I'm there.

    medical community just moves too slow when you're deathly sick....shaking so bad I can barely type...have to retype over and over.

    im slipping and they better hurry.

    anywsy tpn needed for sure.

    im worried...goodnight.  Hope to talk to you soon.

    craig

    Oh Craig.

    I'm just in tears reading this.  Please keep us in the loop (or ask Kim to update us if she can).  You are an important part of our family, we need our lion to get back on his paws!

    Big hugs coming your way~AA

  • Sundanceh
    Sundanceh Member Posts: 4,392

    Oh Craig.

    I'm just in tears reading this.  Please keep us in the loop (or ask Kim to update us if she can).  You are an important part of our family, we need our lion to get back on his paws!

    Big hugs coming your way~AA

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

  • jen2012
    jen2012 Member Posts: 1,607
    Sundanceh said:

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

    Craig, I haven't posted

    Craig, I haven't posted because I don't know what to say. My heart is breaking for you and Kim...and for all of us.   You are constantly in my thoughts and prayers.  You are never a big baby.  this should be your safe place where you can say anything.   Keep at them until they get your pain under control.   Take care of you.  Love and hugs, Jen

  • Trubrit
    Trubrit Member Posts: 5,529 **
    Sundanceh said:

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

    This is not whining, Craig

    Hope I'm not acting like s big old baby with my whining

    Whining is when you carry on about something that is really quite insignificant in the big scheme of things. Complaining over being treated like a pay check (Yeah, I want a consult first and then we'll see), like you life doesn't matter at all, well, thats not whining, that is stating the facts about your care, the sad facts. 

    I know we all hate the word Hospice, its like 'The End'. But it doesn't have to be, not as long as there is some fight left in you, and I know its spread thin, but I can see it, even in your posts. 

    My long-time best friend over in Wales is a Hospice nurse. She said that sure, people come there when the Doc's can't move forward, but she also sees people there long term as well as those that pass. 

    Hospice will take care of you (I sincerely hope), while you continue to fight. Get that pain pump if you can. Do what you can while  you have that fight, even if its just a spark, in you. 

    We've got your back, and wish we could just jump through the computer and give you more. 

    Sue - Trubrit

  • Fight for my love
    Fight for my love Member Posts: 1,522
    Sundanceh said:

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

    what??? I can't believe it. I

    what??? I can't believe it. I really question why they put you on hospic instead of pain management. Please don't be disencouraged by hospic care, I heard that people can be out of this care when things are under control. Overall I am just as upset as you are with the whole thing, speechless. Take care.

  • LindaK.
    LindaK. Member Posts: 506
    Sundanceh said:

    Hospice has landed...

    could not get into hospital...none of my gi docs were even there today.

    unbelievable can you believe it?  I swear nobody there cares...my onc signed off for hospice today and here they are.

    as long as I'm not in chemo I can do hospice - that's the rule.

    nurse is nice and seems to want to help me...I hope they can.

    i am trying to hang on...it just seems things changed so suddenly...pain intensified and stopped eating etc.

    my wife called pain pump surgeon office....were not even close for surgery...they want a consult - why?

    and then a ct for the surgery to know where to go - I get that one but still....

    thr long trips to and fro are so hard on me I've told them over and over.....and still we drag it out...

    this is how folks die...dragging it out like I've got all the time in the world..my cancer is running unchecked since November while we battle all of this other.

    times like this make me question why I still fight.

    well we'll see what hospice comrs up with.

    over and out....will update when I can.

    Hope I'm not acting like s big old baby with my whining...but I have my wife and my remaining friends on the board here...that's it and I need to talk to you.

    Love, Craig

    &*$#@*!

    I can't print what I really want to say!  Craig, someone must not be telling you something.  This sounds inhumane to dump on a cancer patient who so desperately wants to continue the fight.  I found home hospice in our city not so great.  They would say opposing things depending on who you spoke to.  The night and weekend "emergency" number was often unmanned and I had to call 2 or 3 times to even get the service to get the 1 on-call nurse.  The inpatient facility I took my husband to was fantastic.  Maybe something like that will be better for pain management for you to get it under control.  Hospice does not always mean the end, it means caring for someone with a life threatening illness.  If you could get in patient and get a pain pump, you can go home with it.  We pushed for it and we made them ask the palliative care doctor.  They said it can be done.  My husband then decided he wanted to keep the pain under control with pills.  I didn't think that was such a great idea, but I couldn't argue with him.  The pain pump they used at the facility was called "sub Q" so it wasn't through his port or an IV.  It had to be moved every 3 or 5 days but he never had another pain episode and for that, I am glad.

    Please feel the love and concern from all of us.  We are in your corner.

    Linda

  • Easyflip
    Easyflip Member Posts: 588
    LindaK. said:

    &*$#@*!

    I can't print what I really want to say!  Craig, someone must not be telling you something.  This sounds inhumane to dump on a cancer patient who so desperately wants to continue the fight.  I found home hospice in our city not so great.  They would say opposing things depending on who you spoke to.  The night and weekend "emergency" number was often unmanned and I had to call 2 or 3 times to even get the service to get the 1 on-call nurse.  The inpatient facility I took my husband to was fantastic.  Maybe something like that will be better for pain management for you to get it under control.  Hospice does not always mean the end, it means caring for someone with a life threatening illness.  If you could get in patient and get a pain pump, you can go home with it.  We pushed for it and we made them ask the palliative care doctor.  They said it can be done.  My husband then decided he wanted to keep the pain under control with pills.  I didn't think that was such a great idea, but I couldn't argue with him.  The pain pump they used at the facility was called "sub Q" so it wasn't through his port or an IV.  It had to be moved every 3 or 5 days but he never had another pain episode and for that, I am glad.

    Please feel the love and concern from all of us.  We are in your corner.

    Linda

    Fight

    for the pain control then you can think more clearly. Not telling you what to do here but if you want to keep fighting you should. Next thing, when you're pain free put on some weight. Whatever you decide you have my support. Good luck.

    Easyflip/Richard