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Acities tapping. Update

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009


They took out 1.5 gallons of fluid Yesterday, I feel so much better; however for about 10 minutes (seemed longer,)  I had the worst back ache. They think it's because my liver shifted causing pain in the lesion areas. After trying 4 pain meds through IV, they found one that worked. Pain was so bad, I was calling God to take the pain away, and I have a very high threshold for pain. Wowza!! 
Bad news, my trial didn't come through after all, the lady in charge messed up big time and fed me lies and more lies, then tried to cover up, I uncovered!  I hope others don't go through what I did, the waiting, the double pet scans, the lack of feedback, and not telling me I had cancer cells on outer stomach walls. I'm making sure they don't go through what I did at Stanford.   
I leave for Mexico on Wednesday, checking into the Northern Baja Centerfor 3 weeks.  I am following my gut feeling, and going holistic, come what may. I'm in the Lord's hands. 
I will update on return around 2/10/2015. I'll spend my birthday there. :) 
Fight for my love
Posts: 1530
Joined: Jun 2009

It is good to see your post again. I am sorry about your trial, but good luck to you with Mexico trip, and Happy birthday! Pray for a good result. Take care.

geotina's picture
Posts: 2122
Joined: Oct 2009

My heart aches for the difficulties you are experiencing.   I will keep you in my thoughts and prayers as you travel to Mexico for treatment.

Take care my friend.

Hugs - Tina

Posts: 2215
Joined: Oct 2011

I am sorry for the disappointment. I will keep you in my prayers that Mexico works for you.

Posts: 1607
Joined: Aug 2012

I love your new photo nana.

good luck on your trip.  Prayers and best wishes.

Posts: 1019
Joined: Aug 2013

I'm sorry that the trial fell through. I wish you lots of luck in Mexico.


Cathleen Mary
Posts: 827
Joined: May 2011

Oh, Nana! I am so disappointed for you. You are amazing to brush yourself off and move forward.

Prayers that Mexico works for you. 

Peace, strength, and hugs,


Trubrit's picture
Posts: 5375
Joined: Jan 2013

I am so, so sorry you are hurting so much. I'm glad that the draining gave you relief, eventually, and I hope you can keep that pain at bay.

I will be praying for you, and hoping Gerson hold the key for your recovery.

Sending hugs and much love. 

Sue - Trubirt

Akroger's picture
Posts: 88
Joined: Mar 2013

Nana B, I'm so sorry for your recent troubles. The pains of cancer might be harder to control, but administrative mistakes like the one that interfered with your chances for the trial are especially infuriating to deal with now. I'm glad that they were able to reduce your discomfort by draining the ascites and finding an effective pain med. My mom's liver is starting to fail, and her oncologist prescribed spironolactone to try to flush out some of the extra water that's been giving her a lot of trouble with her feet.


I hope you have a great trip to Mexico, and I sincerely hope that going holistic works. Keep positive and be strong, there is always hope as long as you don't give up.

Easyflip's picture
Posts: 588
Joined: May 2013

Nana. Best wishes, best of luck, best of everything. Keep us posted while you're in Mexico. Thinking of you a lot.


Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

My feet and legs are often swollen, however last night I was in so much pain that I elevated my feet way above my ahead. I have an adjustable bed, but this can be done by putting feet up the headboard. Layed there for 3/4 hours trying to sleep, come morning, my feet and thighs were back down in size. 


My thighs have hard lumps that are painful and appear to be liquid, I had read that you have many lymph nodes in the upper thighs and if you massage in circular motion and up towards the heart, it gets the blood back to your heart and the fluid to your bladder. 


I Was amazed, it worked. 


Thank you all. 

Akroger's picture
Posts: 88
Joined: Mar 2013

Thank you so much Nana B! I will definitely be sure to let my mom know your suggestion! Smile

herdizziness's picture
Posts: 3642
Joined: Apr 2010

That they messed up on your trial and you were lied to, that sucks big time!!!

Safe travels to you on your trip, I think of you quite often especially when I'm feeling bad and snuggled up with my Nubs (chihuahua)and the Gund bear you gave me, my little Boo, it gives me a lot of comfort, thank you so much for that, you are such a caring, wonderful person.

My heart remains with you on your trip and treatment in Mexico.

Winter Marie

Kathleen808's picture
Posts: 2361
Joined: Jan 2009



My love follows you to Mexico.  I hope that you get some help and some answers.

Regarding the swollen legs.  Dick got lymphedema in August 2013.  The thing about it is you can stop if from getting worse if you do certain therapy and massages.  Onc docs should be up on this but don't appear to be.  Dick finally got with a physical therapist who specialist in lymphedema and we learned how to massage and then wrap his legs.  Also, he got special order tights that helped.  

Sendign you aloha my friend.



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