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arm pain

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Hi ,

I have been really lost in my family's crisis lately and have not been able to stay connected with you all . I have actually been very overwhelmed.  

I was able to finish my third treatment last week and now I'm having muscle or vein pain for the last two hours. Left arm above the sight the nurse had to use the last half hour of my infusion.With in a half hour I can't straiten arm completly eather. It is  sore to touch and my aunt and best friend don't think it's heart. I just don't know what to do.  I don't want to call anyone.  I feel the nurses at the cancer center will probably think I am just being paranoid because my anxiety is obvious at treatment day. Yep I feel pretty stupid. 

Has anyone ever had problems with infusion sight ?

~GG~

 

NANCYL1
Posts: 289
Joined: Jun 2012

GG:

Lots of us are anxious and we all have a right to be.  I think you should call to ask their advice and describe your symptoms.    I had Rituxan infusions for two years, but didn't have anything like what you describe.  

Don't let it go.   I would call if it happened to me.   I would not call you "paranoid."  Just a person with  unusual, painful symptoms who should call the nurses.  If they are not helpful, call a doctor.

 

Nancy

 

 

 

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

So I realized my friend who is a retired Physicians Asst. He came right over and ruled out some things and told me to do heat. There is no redness or infection but my sence is he is probably spot on. It feels like muscle. He will look again tomorrow and I will call my oncologist center tomorrow if I haven't got any relief. I also did sleep really messed up last night too.

Thankyou Nancy I have been so stressed I really need to chill out a little. I'm so glad that you reminded me that some anxiety is normal. I'm also glad you guys and gals are here. What a rollercoaster huh.

 

~GG~

 

Rocquie's picture
Rocquie
Posts: 836
Joined: Mar 2013

GG,

I have not experienced the pain you describe but I have had all my infusions through a port in my chest, never in an arm vein. 

I encourage you to call your oncologist's office to report your symptoms. You are not being paranoid and shouldn't feel stupid. Anxiety is normal and no one will think less of you because of it. Your care team will take all your symptoms seriously, so please don't suffer unnecessarily.

Love,

Rocquie

 

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Thanks Rocquie, 

I agree and I will. 

I had such an easier time my first time on Rituxin but now Neulasta and Bendamustine are part of the treatment so it's been harder. 

I will call in morning. Unless it gets worse. I think the heating pad helped .

Always greatful for the support. 

 

~GG~

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3323
Joined: May 2012

GG,

IVs do at times leak. Depending on what drugs you are getting, this can be a serious situation. I would call someone at the first opportunity if I were you.
max

Sten's picture
Sten
Posts: 162
Joined: Apr 2013

Hi GG,

Of course you can call the doctor if you are in pain.

Sten

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Ok I woke up this morning after doing heat last night and my are is 90% better . I did call and report my pain so they know.  Thanks everyone !

 

~GG~

amanda_christy's picture
amanda_christy
Posts: 60
Joined: Aug 2014

I never wanted to 'bother' the nurses but they kept telling me that thats what they were there for!!! :-) most of us feel like that but chemo is extremely toxic and we, as lay ppl,  can sometimes trivialize it. The drs and nurses know how seriously it should be taken at all times. better safe than sorry huh?

I hope ur doing better, emotionally! :-D

hang in there xoxo

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Thanks Amanda. I think you hit it on the nail with the nurses and our minds over thinking about it. 

I'm sure I'm going to be fine emotionally it's just gonna take time. I've always been very self sufficient and go out of my way to help others but after my car accident life is very dependant and unfortunately my youngest son is in a heap of trouble and my heart is just so sad and angry. I just want to sell my belongings and move out of town in my not purchase yet 5th wheel and be closer to nature. With me and my little doxiepoo.  

Time will tell. I'm just happy I got something done today. Depression can be very dark but...i opened my curtains and fought threw my physical and mental issues.  :^)

~GG~

 

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3323
Joined: May 2012

GG,
When I had my wreck in 1986 I had a severe concussion and extremely low oxygen for many hours (collapsed lung and caved-in chest cavity), and then went on a ventilator for 16 days. I was blind the first night, but could see the next day. No one has ever expIained that to me. Some of the docs told my mom "he will most likely have serious to severe organic brain damage." I stuttered for about a year and had no memory for longer than that. About a month after that my ear itched, and when I scratched it I pulled out a piece of windshield glass, so I must have head impact at some point. It is not clear, because I do not remember being ejected, but was found about 10 feet from the car. I do recall the initial impact, and was awake all the way to the ER. I have had two serious wrecks since.

My point is that accident recovery can take a long time, but the brain can recover and reestablish neurological circuits. This can take years, but I know it happens. I went back to college and esrned an B.A. and went to grad school, and learned German and some Yiddish, and can read a minimal amount of Dutch now. Head injury with chemo fog has got to be bad, but chemo fog clears faster than trauma, so you might get clear-headed faster than you think.

I leaned back and fell out of a computer chair an hour ago, and almost couldn't get up, my back arthritis is so bad. Several meds I am on cause dizziness, so I almost feel like I am back in that foggy time. You will think clearly soon !
max

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Holy smokes!!! I think it's amazing that your even alive. I can't thank you enough for sharing that. I have to remember that I've got to give myself a break and this healing thing is not gonna happen overnight. After I was hit from behind. I was stopped at a light this other driver hit me going 50 to 60 mph. I remember standing in the intersection with my hands on the back of my head screaming oh my God my head , Oh my God ! Because it was swelling up like a water ballon.Then I passed out (again) and hit the asphalt and hit my head again!  The first hit was the head rest that isn't that soft when you hit it that hard then where the metal strip and glass come together. I never heard the helicopter they put me in until I saw the blades. So then the trauma center I was taken to didn't keep me over night and actually sent me home with a bleeding head. I bled threw the night. That night I had seizure activitie and was in ER next morning. The story continues but I'll spare you.  Unfortunately the driver was possibly under the influence .  I won't know for a while my attorney is just on phase one of a long process.  She has a history DUI. she didn't have insurance eather. It's a real mess. I to shouldn't have walked away. I still wander how my neck didn't snap. God once again was with me.

Thanks Max....your so full of compact , great information. 

 

~GG~

amanda_christy's picture
amanda_christy
Posts: 60
Joined: Aug 2014

Its so hard to do wat makes u happy, isnt it? it isnt selfish u know! Stop trying to fix or save everyone and know that u deserve saving 2. :-) I think uve more than earned the right to grab happiness with both hands :-D

U cant undo the bad decisions of others. it isnt fair on u to bear the burden of urs son's mistakes. All u can do is love him but dont let it eat at u or destroy u.

Uve been through so much! Never forget that u matter 2! ur somebody's kid too :-D

too preachy huh? lolz

:-) wishing u sunny days GG

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Thanks Amanda, 

My son obviously needed to go down a hard path for a reason.i just hope it all sinks in he is only 18 so I would rather him learn now then when he's much older.

I don't own his mistakes but it just makes me sad.

I think in the near future I will be doing  RV life and I'll be in a town we used to go to for vacation so it will be a new chapter  I can't wait to start. 

NANCYL1
Posts: 289
Joined: Jun 2012

GG:

 

Nice to have a phys. assistant for a friend.  Glad to hear that heat improved the arm 90%, and you called the nurses yesterday.  Good work.

Keep in touch.

 

Nancy

 

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

I actually didn't realize that he was a phys.asistant until a few months ago. I just know him as "Loyde".

But my stupid head took me three hours of freak out until I realized to call him. My memory and quick thinking is shot. Lol. Between head injury, chemotherapy and stress I'm lucky I even know my name ! Lol. :^)

Jeff148's picture
Jeff148
Posts: 183
Joined: Apr 2014

You are much tougher than I. My Dr. made the mistake of giving me his personal email which was connected to his cell phone. I was such a baby that I would email him all the time until he told me to contact the nurse station. :) They were always helpful! Don't be afraid to call anytime you feel there could be an issue. They get paid to keep us going. After going through this, I'm no longer a believer in "no pain, no gain." My new slogan is, "No pain is gain." Or  "Pain, call the dr."

amanda_christy's picture
amanda_christy
Posts: 60
Joined: Aug 2014

....ur babbling Jeff *giggle*

made u smile :-D

Jeff148's picture
Jeff148
Posts: 183
Joined: Apr 2014

I like to babble. By the way Giving Grace, when you get through this, will you be going fishing to celebrate? I know Sue also likes to fish. I sure hope her eye is getting better. (more babbling). Oh, I want to brag for a second too. After I received the good news, I signed up for a bass tournament to fish with my dad. He and I have fished 3 bass tournaments over the years and have done ok, but never won. This year we took first. It wasn't a big tourney, but it was against some really good fishermen. It was almost like it was meant to be. IT was surreal. Here is a link to the picture of my dad and I.

www.puyallup-hawg-hunters.com/2014/2014_Mickelsen_Open/Mickelsen_2014_Results.html

If you look close you can see the outline of my port. Just so you know, all the fish were released alive after the tournament. My pops and I didn't really fit in with the crew of overall wearing guys. However, it inspired me to do no shave November.

illead's picture
illead
Posts: 846
Joined: Aug 2012

Those are fish only a guy could love WinkLaughing.

So glad you continue to do so well,

B&B

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Ya'll are a hoot!

Thanks for the laughter I got.

Jim .....Wow! That's great ! What an experience ! I have actually never fished for bass. I might just look into that. Don't you have to keep in a boat like your troling?

Where I'm at its mostly trout. I have fished for some catfish . I actually caught a turtle the size of a serving plate and a 23 lb channel catfish.  That was fun. I would like to go to Alaska before I'm 65 and fish for salmon. 

About being a baby....I get really nervous during my infusions I actually pulled my iv out of my hand because the nurse flushed it before she pulled it out  because I was finished and I felt the temperature change as she started flushing and I pulled the sucker right out.

 

Lifeisbeautiful's picture
Lifeisbeautiful
Posts: 50
Joined: Jul 2014

Hi GG,

i agree with what Amanda is saying but I also know how hard is to learn how to think of yourself first. Family is so important and anything affecting it, good or bad, it affects us more than we want to. I don't know what's worse chemo treatment or a car accident but you survived your accident and now you'll survive your cancer as well. As long as you have a second chance just hang in there. And I hope you see or talk to someone about your depression because it could become very serious. I suffered from it about 5 years ago after a bad break up and being afraid of my ex and when I sarted getting a glimpse of depression few weeks ago I decided to at least talk to my husband and tell him how I was feeling. I stayed strong for as long as I could but now I'm too tired and I cry from time to time when pain and fatigue are too much to handle but this is nothing compared to what you and Max and I'm sure many others went through. Just remember, it's time for happy days and they always come after the bad once. Your son is only 18 and even tough that doesn't give him the right to make all the mistakes he wants, we all know how is it to be 18 and think you're right and ignore what adults advise you to do. I have a little brother who is 18 years younger than me and he's done some things that shocked me, hurt me and upset me to a point that I went from feeling sorry for him and wanting to help, to being so angry with him that I didn want to see him again. Unfortunately nothing I said or anyone else helped until he decided to help himself (I'm talking about drug use). It took him several years but he is on the right path now and I couldn't be happier. 

I'm glad your arm is better and it was nothing serious. How many more treatments do you have left? 

Stay strong GG and happy days are just around the corner! :)

Natasha

 

 

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Thankyou Natasha, 

I'm praying and trying to stay out of the way so God can do his thing. 

My arm pain is actually back. It came back yesterday and they just told me to keep doing heat.pain has moved to various other spots so they told me I may need to think about a port.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3323
Joined: May 2012

GG,

I would not do any type of chemo without a port, even the least  toxic drugs .  If the doctors think a port might fix the arm pain, I would have it done immediatley.  It is a very minor proceedure; some centers even do it in a doctor's office. I did not have general anesthesia, but do not recall it being installed or removed.  I do not like getting stuck constantly, especially to have an IV threaded.  And, compared to the cost of the drugs, the cost is  insignificant.  Most centers will not administer some drugs without a port. My center will not give the abvd without it, for instance.  Just my opinion on the subject.

max

illead's picture
illead
Posts: 846
Joined: Aug 2012

Just wanted to say hi.  I am sorry for what you are going through.  Love your new picture, is that the infamous 18 year old?  I sure hope his problems are like what others have said, related to age and immaturity.  In this day and age, they seem a lot more fearless and sometimes make mistakes that aren't as simple as waiting for time to straighten out.  My thoughts are with you.  Try to take care of yourself first.  I think of the instructions in flight for oxygen masks, "put the mask on yourself first before assisting a child."  The wreck sounds horrific, now the big C.  Just try to take one day at a time, the Bible says "so never be anxious about the next day, for the next day will have its own anxieties.  Each day has enough of its own troubles."  I know, it easier said than done, but we are always here for you.  About the arm pain, I didn't think about this until now.  Bill did not have a port because his blood counts were so low when he started, the doc was afraid he wouldn't even make it through that surgery, so everything was through his veins too.  Now although he still has veins nurses love, they have gotten tough, and now it's hard for them to get a needle in.  He doesn't have any pain though, so I don't know if that could be something worth asking about.

Just my thoughts, of which you are in them too,

Becky

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

I changed my picture because I'm smiling really big in this one and it was taken In 2007 when I had a lot of joy in my life . No its not the infamous 18 year old this son is actually my 20 year old who is a medical Corpsman now. I was trying to post a link of a tattoo my infamous 18 year old he had it done right after my car accident. I'll try and put it as a link. I'm struggling learning how to do it with my smartphone because I'm not as smart....lol.

I actually find alot of comfort in that scripture. Thanks for reminding. I know things will get better . Just happy I'm being part of the forum again. ,I also say sometimes "Thank God we only have to do 24 hrs at a time.  " 

I'm so happy for everyone's inputs, it helps a ton.

The only reason I didn't was I was afraid of infection but this pain isn't worth it. 

Much hugs :)

~GG~

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3323
Joined: May 2012

GG,

Which branch of the military is he in ? I know the Navy calls its medics corpsmen.  In the Navy it is a great job, with many opportunities for relatively independent duty. On subs, for instance, there is only one corpsman on the ship, and they have tremendous responsibility, as you can imagine.  I have been told that the corpsman on a sub has roughly the same training as a Nurse Practicioner in the civilian world.

A cousin's husband was a medic in the Army.  He joined as an E-1, and retired twenty years later as a Captian (0-3 rank). He is a Physician's Assistant in Iowa now, and runs two small town medical clinics by himself.

 

max

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Hi Max,

He is Navy. Been in for 3 years and has already served a years tour in Afghanistan. My new son in law just left for boot camp two weeks ago. My daughter was Executive Officer of ROTC and was headed to go in but stalled and took a different career but is now going to spend her life as a military wife and mom in future. He is going Army and also qualified for Ranger School I think. My infamous 18 year old was also going in but had difficulty with asvab test. He gave up too early and went into landscaping and then made a bad bad choice so it was sad because he too was very much military bound. He was armed drill team instructor in ROTC .He was very very good. He will be ok in time, no matter what his future will be i will love and support him and his assets. I'm so proud of all my kids. They sure keep me going. So yes I have alot military  family besides my kids.

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3323
Joined: May 2012

GG,

The war zone time will help your son advance in rank quickly.  I noticed the camo pants, and of course Navy corpsmen provide for the Marine Corps also (all Marine medical care comes from the Navy). My ortho surgeon when I had my wreck in 1986 was a Naval officer, but assigned to the Marines, and he used to come to see me in the hospital (a civilian facility) in his full field (camo) uniform.   I did submarine weapons system electronics and operation, first as Navy and then briefly as a civilian contractor.   Tell him that Corpsman Duty as a submariner is independent and a very fast-track toward becoming a chief (E-7 and above).  No watches or duty time; just sit around eating prime rib or pizza, hoping no one gets hurt. The corpsman also runs RADCON, or radiological controls, monitoring dose limits for radiation among all crewmen, so there is a fair amount of administrative stuff to maintain.  The average sub sailor receives less radiation on a patrol than a civilian gets walking around outside in the sunlight. 

Rangers would be awesome for your son-in-law. We used to carry a SEAL team occasionally, but I never had the honor of working with Rangers. The average SEAL is amazing: multi-lingual, all are specialized in something, and they too have a dedicated corpsman with each team. ASVAB scores up around Venus somewhere.  All are brilliant.  If Rangers are anything similiar, it is something to strive for.  For readers unfamiliar with the military, I will explain that the "ASVAB" (Armed Services Vocational Aptitude Battery) is a military admissions test quite similiar to the SAT.  The nuclear power guys on my boat had ASVABS that, when converted to an equivalent SAT, would get them into schools like Stanford.

Bless your son and son-in-law on their new careers. It seems you have much to be proud and happy about, despite whatever serious worries and problems remain,

max

.

givingrace's picture
givingrace
Posts: 161
Joined: Nov 2012

Hi Max,

He signeed for 5 yrs but he is going to school to be a P.A.  so not sure if he is going to sign for more. He is very very very loyal to his marines, in fact I posted a picture of him and I, and he had a baseball cap on with Navy on it and he commented and said "what the hell is that on my head? " My response back was don't forget who signs your checks in a private message of course.I was a bit upset but he was just funning...i think.

Yes I'm very proud of all my kids and have a big respect for all military veterans. By the way,...thank you for your service and sacrifice for our country Max.

My best friend was 101st Screaming Eagles back in the early 70s. Much respect for all you brave men & women.

My son in law will be doing small arms and artillery aswell.

Yep I guess my kids really do keep me going.

What is a ortho surgeon? 

So what was the longest you were under water in the submarine. My daughter was actually going to go in and one of their trips they got to go to San Diego and she went into one of the submarines they had there and well within a few months she ended up deciding not to go in ( little did we realize she actually had a new boyfriend when she backed out. Fast forward 4 years and she just Married him ♡)and that was fine she had a different career in mind. But I will never forget her telling me how the reality of being in a submarine underwater for long periods of time could really mess with her head. 

So my arm hurt so bad about an hour ago I did high heat and I'm not moving for a while. 

~GG~

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3323
Joined: May 2012

GG, I meant "orthopedic" surgeon, the guy who put my knee cap back on, and then a rod in my femur to reconnect it (broken in two near the thigh, and again at the hip socket). Submarine guys are called either "squids" or "bubble heads" by the surface fleet. I don't know our longest submerged period, maybe 80 days. Some boats doing odd stuff have gone three or four months, but that is fairly uncommon. I have heard of boats being gone for five months, but as I said, that was never typical.  The year before I arrived, my boat was underway for 276 days out of 365. Not consecutive days: Out a month, in port for a weekend; out for three months, in for a few weeks -- a routine like that. Totally irregular.

The only limitation on underway time is how much food you can cram on board. We used to have canned goods all throughout the ship in the passage ways. We covered the cans with cardboard and had to walk on the cans for the first month or so while on deployments. Eggs and milk ran out first, then veggies. Eggs are not refrigerated on a sub, European-style, but on a "Northern run" under the Arctic circle, the temp inside the boat never gets up to 60 anyway. Everyone wearing coats to bed, etc.  Most guys "up North" slept fully dressed, some with shoes on.

Sub volunteers (all sub personnel ask for it; the Navy never forces anyone into sub duty) undergo lengthy, severe tests for claustrophobia as soon as they get to Sub School in Groton, CT.  That, and a test for equalizing ears: put in a compression chamber, and they jack the pressure way up.  Failing either tests sends guys packing.  Personality is screened also.  Anyone very irritable or whiny is prohibited. You just have to shut up and deal with the life to remain.  A guy could not be real fastedious either: If the water-making equipment failed, a guy might not be able to shower or wash his clothes for weeks.....

Most guys were just like me: very quiet and easy-going.  All of the subs in a squadron have nick-names. My last boat was the Grayling, and she was referred to by others as the "Gray-Thing."

A photo of the boat:  https://www.flickr.com/photos/12150610@N08/1377517048/

 max

 

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