Waiting and Concerned

firedude21
firedude21 Member Posts: 52

In 1990 I lost my left kidney to RCC, 2004 partial right kidney at UCLA, 2007 prostate cancer. This August the cancer had returned to what is left of my right kidney and spread to my hip bone. Until yesterday I was able to walk almost normally  but now pain has set in and it is difficult to walk.  Next Tuesday the "team" at UCLA is going to meet and come up with a plan of attack. Between now and then I am to have a biopsy of my adrenal gland to check on a suspicious growth there. What worries me is the fact that when I was first diagnosed I was able to walk normally and now that the pain has set in I am worried that the growth on the hip is progressing. The last doctor that I spoke to said that if they find that there are more mets than just the hip they may put me on Sutent and not do surgery on the kidney. If there are no more mets they may remove the tumor in my kidney and the growth on the hip. This is all depends on what the "team" comes up with next Tuesday. My big concern is the fact that wheels are turning so slowly and the cancer continues to grow. That being said I do have faith in the doctors at UCLA.  Anyway thanks for the opportunity to vent and I wish the best to all. This is a great forum.

firedude21

 

Comments

  • tyjsbtn
    tyjsbtn Member Posts: 50
    I am so sorry for all that

    I am so sorry for all that you are going through.  I wish that I had words of wisdom to share with you that you give you some peace.  I am sending you positive thoughts your way.

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    You have a lot on your plate,

    You have a lot on your plate, Firedude. I am glad that you have faith in your team - that is half the battle - that along with your great attitude!  I hope they have the optimum results for whatever treatment you receive. Thinking of you.

     

    Big Hugs

    Jojo

  • firedude- stay strong and

    firedude- stay strong and think positive.  Sorry to hear about the troubles. 

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    Oh dear, I am so sorry for

    Oh dear, I am so sorry for ALL you are enduring and have had to go through. Glad you have a trusting team to help you. I know it must weigh on your mind. Do you have family/friends who support you too?

    Know that we'll walk this journey along side you, if you like us to.

    You will be in my thoughts and prayers.

    Gentle Hugs, Jan

  • APny
    APny Member Posts: 1,995 Member
    Jan4you said:

    Oh dear, I am so sorry for

    Oh dear, I am so sorry for ALL you are enduring and have had to go through. Glad you have a trusting team to help you. I know it must weigh on your mind. Do you have family/friends who support you too?

    Know that we'll walk this journey along side you, if you like us to.

    You will be in my thoughts and prayers.

    Gentle Hugs, Jan

    I'm so sorry you're going

    I'm so sorry you're going through all this. It does sound like you have a top notch teach on your side which is great. You're in my thoughts and prayers.

  • Djinnie
    Djinnie Member Posts: 945
    Hope all goes well Tuesday!

    Hi Firedude, I am so sorry you have so much to deal with at the moment. It's a bit of a wait until next Tuesday especially when you are in so much pain, have you some strong meds? It's good that you have faith in your medical team, there is no way that they won't come up with a workable game plan. I am sure after next Tuesday everything will start to roll into action very quickly.

    All the very best, we will all be thinking and routing for you. I will be keeping you at the forefront of my prayers. Please keep us updated:)

     

    Djinnie xx

  • firedude21
    firedude21 Member Posts: 52
    Thanks everyone

    Thanks all. This isn't an easy journey for any of us but this forum helps so much. There are some wonderful people here. I wish you all the best.

     

    firedude21

  • Thanks everyone

    Thanks all. This isn't an easy journey for any of us but this forum helps so much. There are some wonderful people here. I wish you all the best.

     

    firedude21

    firedude, I am guessing that

    firedude, I am guessing that you are a firefighter?  I have been a volunteer firefighter for 30 years out here in NJ. 

  • firedude21
    firedude21 Member Posts: 52

    firedude, I am guessing that

    firedude, I am guessing that you are a firefighter?  I have been a volunteer firefighter for 30 years out here in NJ. 

    Yes sir

    A firefighter for 40 + here in California. Stay safe.

  • foxhd
    foxhd Member Posts: 3,181

    Yes sir

    A firefighter for 40 + here in California. Stay safe.

    You'll be fine

    I had mets in my hip also. It got to where I couldn't walk either. But I got put on a clinical trial of nivolumab. And that took care of that! Research the clinical trials in your area. There is much optimism in our treatments today.

  • Yes sir

    A firefighter for 40 + here in California. Stay safe.

    firedude, hopefully you have

    firedude, hopefully you have some of your brother and sister firefighters there for you.  Hoping for the best for you.

  • APny
    APny Member Posts: 1,995 Member

    firedude, hopefully you have

    firedude, hopefully you have some of your brother and sister firefighters there for you.  Hoping for the best for you.

    Off topic but thank you for

    Off topic but thank you for serving our communities as firefighters! God bless you both.