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Waiting and Concerned

firedude21
Posts: 52
Joined: Sep 2014

In 1990 I lost my left kidney to RCC, 2004 partial right kidney at UCLA, 2007 prostate cancer. This August the cancer had returned to what is left of my right kidney and spread to my hip bone. Until yesterday I was able to walk almost normally  but now pain has set in and it is difficult to walk.  Next Tuesday the "team" at UCLA is going to meet and come up with a plan of attack. Between now and then I am to have a biopsy of my adrenal gland to check on a suspicious growth there. What worries me is the fact that when I was first diagnosed I was able to walk normally and now that the pain has set in I am worried that the growth on the hip is progressing. The last doctor that I spoke to said that if they find that there are more mets than just the hip they may put me on Sutent and not do surgery on the kidney. If there are no more mets they may remove the tumor in my kidney and the growth on the hip. This is all depends on what the "team" comes up with next Tuesday. My big concern is the fact that wheels are turning so slowly and the cancer continues to grow. That being said I do have faith in the doctors at UCLA.  Anyway thanks for the opportunity to vent and I wish the best to all. This is a great forum.

firedude21

 

tyjsbtn
Posts: 50
Joined: Sep 2014

I am so sorry for all that you are going through.  I wish that I had words of wisdom to share with you that you give you some peace.  I am sending you positive thoughts your way.

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

You have a lot on your plate, Firedude. I am glad that you have faith in your team - that is half the battle - that along with your great attitude!  I hope they have the optimum results for whatever treatment you receive. Thinking of you.

 

Big Hugs

Jojo

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

firedude- stay strong and think positive.  Sorry to hear about the troubles. 

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Oh dear, I am so sorry for ALL you are enduring and have had to go through. Glad you have a trusting team to help you. I know it must weigh on your mind. Do you have family/friends who support you too?

Know that we'll walk this journey along side you, if you like us to.

You will be in my thoughts and prayers.

Gentle Hugs, Jan

APny's picture
APny
Posts: 1984
Joined: Mar 2014

I'm so sorry you're going through all this. It does sound like you have a top notch teach on your side which is great. You're in my thoughts and prayers.

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

Hi Firedude, I am so sorry you have so much to deal with at the moment. It's a bit of a wait until next Tuesday especially when you are in so much pain, have you some strong meds? It's good that you have faith in your medical team, there is no way that they won't come up with a workable game plan. I am sure after next Tuesday everything will start to roll into action very quickly.

All the very best, we will all be thinking and routing for you. I will be keeping you at the forefront of my prayers. Please keep us updated:)

 

Djinnie xx

firedude21
Posts: 52
Joined: Sep 2014

Thanks all. This isn't an easy journey for any of us but this forum helps so much. There are some wonderful people here. I wish you all the best.

 

firedude21

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

firedude, I am guessing that you are a firefighter?  I have been a volunteer firefighter for 30 years out here in NJ. 

firedude21
Posts: 52
Joined: Sep 2014

A firefighter for 40 + here in California. Stay safe.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I had mets in my hip also. It got to where I couldn't walk either. But I got put on a clinical trial of nivolumab. And that took care of that! Research the clinical trials in your area. There is much optimism in our treatments today.

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

firedude, hopefully you have some of your brother and sister firefighters there for you.  Hoping for the best for you.

APny's picture
APny
Posts: 1984
Joined: Mar 2014

Off topic but thank you for serving our communities as firefighters! God bless you both.

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