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Here we go again!

Suekub's picture
Suekub
Posts: 137
Joined: Apr 2013

The waiting begins again. Had CT scan today to check status of current mets. I am hoping for at least stable with nothing new in the mix. I will know results Tuesday. Just hoping this once that I get a good report. If the report is not good not sure what happens next as far as treatment options go.

my best wishes to everyone.

Sue

 

 

thaxter's picture
thaxter
Posts: 124
Joined: Jan 2014

Good luck on the results.  The last couple of scans (post IL-2) that I've gotten have been scheduled in the a.m. with an oncologist visit and his informal read of the scans later in the day.  Far cry from my very first post-op scan in January where I waited 18 days to find out I had lung mets.

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Hi Sue!

You are going through the true process of scanxiety. My good thoughts and prayers are coming your way!

Big hugs,

Jojo

 

APny's picture
APny
Posts: 1984
Joined: Mar 2014

Wishing you the very best results!

aamdsi
Posts: 284
Joined: Apr 2014

And sending you all the good/positive thoughts for fast results that are good

laurie

danbren2's picture
danbren2
Posts: 311
Joined: May 2013

Sue,

     Praying, wishing, hoping, and sending great karma for only good results for you!

                                     Prayers of good health for us all!

                                      Brenda

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Good Karma your way Sue.

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

I'm sending out good vibrations through the universe your direction! Please let us know. I hope you get good news.

Todd

Skagway Jack's picture
Skagway Jack
Posts: 224
Joined: Oct 2013

Very Best of Luck Sue!  I get my scan results tomorrow....I have been waiting for 8 days so I feel your pain.

angec's picture
angec
Posts: 924
Joined: Mar 2012

Hi Sue, i am sending good vibes your way and hoping for stable/shrinkage.  Please let us know when you findout.. I have a good feeling this time for sure!

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

Hi Sue, 

The waiting is hard, paradoxically you are impatient for news; but so fearful of it's arrival. I understand how you feel, I have mine in a couple of weeks. I will be praying deeply for good results on Tuesday, it's time!

 

Djinnie xx

Phredswife's picture
Phredswife
Posts: 162
Joined: Apr 2014

Good luck Sue Smile Hugs Melissa xox

Suekub's picture
Suekub
Posts: 137
Joined: Apr 2013

If good thoughts and wishes from everone has any bearing on the results they should be good!i can't help but think it MUST be time for something good.

Cheers and best wishes

Sue

PS Djinnie I hope you get to go to Lake Como, sounds devine.

Suekub's picture
Suekub
Posts: 137
Joined: Apr 2013

Hi all

scans last week again showed some minor growth in all lesions that are measured except one in the spleen which remains stable. Plan to continue Afinitor for time being but do have a referral to another onc at a different hospital to find a little more about a phase 1 trial I may be a candidate for. Onc is cannot say if the afinitor is helping to slow growth of the lesions.

So there it is! Reasonably good I guess at least nothing new although there is possibly an enlarged lymph node in supraclavicular region which will be checked next CT which will include neck as well as chest abdo and pelvis.

Sue

 

GSRon's picture
GSRon
Posts: 1304
Joined: Jan 2013

Sue, sounds like decent news... hope the Afinitor continues to work for you...!!  Stay vigilant..!

Ron

thaxter's picture
thaxter
Posts: 124
Joined: Jan 2014

Sounds good.  I get scanned tomorrow and we will decide whether the first round of IL-2 was effective and whether we will go for round 2.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

You had been having pretty rapid growth. So, having things substantially slow down is great. Something seems to be working. If it is Karma, I've got more to give. It's sort of like love. It multiplies when shared.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Good luck to you too. There is no fun like Il-2.

Suekub's picture
Suekub
Posts: 137
Joined: Apr 2013

I can't believe it has been nearly 2 months since my original post. This time I had a nuclear bone scan (nothing new on this and spine lesion is OK). CT yesterday not so good. The suspected lymph node in supraclavicular region is larger - 3 cm and there appears to be a lung problem, possible early pneumonitis which is a major side effect of Afinitor. Needless to say Afinitor ceased as of today. Need to have lung function tests.

Search goes on for any suitable trials or nothing there doc will try to get me on Sutent which may be a problem due to Australia's public health system.

Feeling very deflated at the moment. Can't seem to catch a break.

Sue

 

 

APny's picture
APny
Posts: 1984
Joined: Mar 2014

That really sucks and I'm so sorry to hear that. I hope you can get on Sutent. I'm not familiar with Australian health care system; why might that be a problem?

sblairc's picture
sblairc
Posts: 586
Joined: Feb 2014

I'm glad to hear your news. Keeping you and everyone in my thoughts. 

danbren2's picture
danbren2
Posts: 311
Joined: May 2013

Sue,

     Hope the news just gets continues to get better and better!  Sending love and prayers for continued good results!

                                Prayers for good health for all of us!

                                                        Brenda

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Happy to hear that news!!

Big Hugs

Jojo

aamdsi
Posts: 284
Joined: Apr 2014

It doen't seem like you can catch that break. 8-(

I wish that there was some way to help you out, or at least cheer you up a but - even for a moment.  

Please know you're in my thoughts, and I send prayers of "good news" for you.

Laurie

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