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Post liver surgery CT Scan & CEA results - UPDATE Jun 12th 2014

Trubrit's picture
Trubrit
Posts: 5504
Joined: Jan 2013

Today I had appointemnts with my liver surgeon and Oncologist. 

CEA is down to 8 and CT Scan was clear. Surgeon said not to worry about the CEA, Oncologist said he still didn't like my CEA. 

My Oncologist has decided to NOT put me back on chemo but to watch me closely, so I will have my CEA checked every month, visit with him in two months, and have another CT Scan in three months and we will go from there. 

Obviously if the CEA goes down, it will be good, good, good. If it goes up, then I'll be back on the chemo for life. 

I'm feeling good, looking good and plan on continue doing good. 

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

I hate to hear that........I will continue to pray for you CEA to drop!

lp1964's picture
lp1964
Posts: 1240
Joined: Jun 2013

...could be worse. Let's hope it keeps dropping. 

Take care and stay strong.

Laz

UncleBuddy
Posts: 1019
Joined: Aug 2013

but glad you're feeling good! Keep that positive attitude.

Lin

Trubrit's picture
Trubrit
Posts: 5504
Joined: Jan 2013

No, Lin, Doc is holding off on the chemo to see if my CEA drops into the acceptable range. It still leaves me hanging, but all-in-all, I think its good news. 

UncleBuddy
Posts: 1019
Joined: Aug 2013

Don't you hate when they leave you hanging?

Yes, it sounds like good news. I'm glad you're feeling well!! Smile

Lin

Trubrit's picture
Trubrit
Posts: 5504
Joined: Jan 2013

Its the hugest waiting game ever. 

 

LindaK.
Posts: 506
Joined: Apr 2013

That all sounds like good news to me!!  Congrats and keep up the good work...

Linda

janderson1964
Posts: 2215
Joined: Oct 2011

I wouldnt worry about the cea level. Enjoy feeling good and living life to its fullest.

Trubrit's picture
Trubrit
Posts: 5504
Joined: Jan 2013

Oh, I'm loving life. I feel great. I did ask the Onc if I could book my trip to England for September, but he said to wait on the results of next weeks CEA test. Gah! I hate waiting. 

janderson1964
Posts: 2215
Joined: Oct 2011

Yea, waiting is the hardest part. I am going through that now with the Y90. but I am only doing Xeloda in the mean time, no infusions so I am really loving life. I feel like I am loving life too much lately if that's possible.

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

I'm thinking a chemo break might be much appreciated at this point!  As for the CEA, can't surgery cause that to be higher for awhile?

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Well, here's to a drop in the CEA in a months time so that you can plan your trip!!!

I raise this cup of java I have in my hands to a toast that the word NED arrives soonest!!

Winter Marie

Trubrit's picture
Trubrit
Posts: 5504
Joined: Jan 2013

Is that you in the picture? I wish it were bigger, so I could see it better. I also wish I was that slim. 

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Me

Here is another pic close up I just had my husband take a few minutes ago :)

Trubrit's picture
Trubrit
Posts: 5504
Joined: Jan 2013

What a superb picture. You look really good, and I'm hoping that you're feeling really good too. 

Thank you for posting. 

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Last night I was curled in a ball on the floor crying, waiting for the pain pills to give me relief from the stomach pain. Hopefully it will get better soon!!!  The slim look is due to that wrong prescription from CVS Pharmacy which messed up my stomach royally.  I just found out Friday that the past three hospitalizations (3 in 30 days) due to my stomach was all possible fallout from those wrong meds.  YIKES!!!

Any rate on a bunch of pills that are supposed to make it all better at some point, looking forward to that point :)

Winter Marie

Trubrit's picture
Trubrit
Posts: 5504
Joined: Jan 2013

That is not the way to keep your body trim and slim. 

I am so sorry for the trials of this past month. You really have been through the ringer. How long will it take to get your body back to normal? I sure hope its soon. 

I want to look as good as you, but I don't want to go through what you did. 

tufi000's picture
tufi000
Posts: 755
Joined: Jun 2005

I still think about you and your garden.  There is a fix for the chatroom posted in the tech discussion board below our boards. Sash. Tasha, soul=mate and I have been popping in and out as people try to get it on .  While it is not the answer for some, many have been successful and I would LOVE to talk to you again!

Never far from my thougts

Sherry

lilacbrroller's picture
lilacbrroller
Posts: 412
Joined: Jun 2012

Hi Winter - I was reading your post, and I think the same thing happened to me. Since I got the adrenal mets, I've had to take painkillers, and three different ones made me sick. Over the course of three months, I took ativan, vicodin (with an NSAID), and Nucynta (all at different times), and all three kept me from eating. I got this gag reflex and would projectile vomit a lot. I couldn't keep food down; I think I also had no appetite. Altogether I was probably living on 300-500 calories a day. It was only when I switched to oxycodone that the vomiting stopped and I had an "aha" moment.

Meantime I had a stomach scope from a gastroenterologist, and saw several doctors.  none of them attributed the problem to painkiller - they gave me antacids as I showed signs of gastritis, and anti vomiting meds (which didn't work).  I ended up losing 40 lbs; I joke around with my friends about how very American it is for me  to be happy about this (but I am and I look really good. Sigh).  Taking pics is a good idea!

Is this what happened to you? What meds made you sick?

I asked the docs if it the painkillers could have caused all of my problems, and they couldn't say for sure.   I would like to know the cause , but at this point I don't care because I can eat again.  I'm not entirely back to normal but at least the puking has stopped. It was pretty awful.

glad you're better; take good care.  

Karin

 

 

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Beautiful!  :).   I hope that you soon feel as great as you look!  :)

Meowycat
Posts: 66
Joined: May 2013

Dear Trubrit,

Crossing fingers and toes that your CEA continues to go down. You have such a great spirit. Keep on Keeping on.

Huggies,

Nellie

 

Cathleen Mary
Posts: 827
Joined: May 2011

 

My CEA has been hovering between 8 - 10 the last 8 mos. Two clear Pet scans.  You have such a great attitude...enjoy the clear scans.  A trip home to England just has to happen. Prayers that all will be well    and you can celebrate with a plane ticket. 

Hugs,

CM

Trubrit's picture
Trubrit
Posts: 5504
Joined: Jan 2013

I really am itching to book my ticket. Doc doesn't want me to, at least until after next weeks CEA blood work.

The best thing is. my ticket is free. 

thxmiker's picture
thxmiker
Posts: 1282
Joined: Oct 2010

We love our garden also.  It keeps me in a happy place.  Every time We or I work on the garden I find inner peace.

 

There was just a good news article from a doctor stating that we are on to many meds.  He stated that after 5 meds the interactios can be so great that most Doctors can not tell the patient if they are reacting to the meds, or the interactions.  Perscribing additional meds to reduce symptoms, and therefore posibly reducing meds effectiveness, and the spiral in our health.

 

We are sending our thoughts and prayers for continued strength.

Best Always, 

mike

CammieS
Posts: 43
Joined: May 2014

I hope the CEA levels drop and you heal quickly. A trip home sounds like a great way to celebrate.

Phil64's picture
Phil64
Posts: 838
Joined: Apr 2012

In my case CT Scans showed a normal liver. MRI showed the tumors on the liver. Thank goodness my onc ordered the MRI due to rising CEA as it likely saved my life. 

 

I will continue to share this with you all because I truly do believe that the doctors have to use all scans to try and mitigate the fact that they are NOT perfect technologies and the combination of them sometimes makes a big difference. 

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I was 3 months on folfox, then liver resection planned. Surgeon didn't want to do surgery because chemo got rid of mets, ONC told him to do surgery. Surgeon said he would do his own scan.  He did an MRI and he found another met that the pet and CT didn't. When he did surgery he found  the mets in the liver.   He couldn't find the third one. He decided to take 10% more to try and find it.  He would not do more or I could die on the table. There was the met. The only thing he wasn't sure of was a clear margin.  I finished with 3 more months of mop up chemo. CEA was at 2.  

 6 years later I have a met again to the liver And two in the lungs.  Trying different chemos now. My CEA is up past 400.  It jumped fast.  I would be sure you are having your CEA checked in those 3 months. 

 

Take care and stay strong.  

 

 

Trubrit's picture
Trubrit
Posts: 5504
Joined: Jan 2013

I am sorry to hear of your continued struggle, Nana. 

I am having my CEA checked every month. I had my last one done on Thursday, so should get the results Monday or Tuesday. 

Good luck with your new chemo regime. 

Trubrit's picture
Trubrit
Posts: 5504
Joined: Jan 2013

I have just picked up my CEA results and it has gone down from my post surgery 8.1 to 6.7.

I know its not a big drop, and I fear my Oncologist will not think it has dropped enough, but its dropped and so I am happy. 

I will call the Oncologist office now and make sure the results are there (they never are), and then I will make sure my Dr. gets them and reads them. 

My next test is in three weeks. 

Happy day!

danker
Posts: 1282
Joined: Apr 2012

With your CEA going down, i'm sure you will be back in "Merry old England" before long.  Have a great trip.

lilacbrroller's picture
lilacbrroller
Posts: 412
Joined: Jun 2012

Yay! Wonderful news!  At least it's not going up. Drops and plateaus are what we want

cheers

Karin

UncleBuddy
Posts: 1019
Joined: Aug 2013

Any decrease in your CEA is good news! I hope it keeps going down! Keep us up to date!

Lin

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