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Mass in right eye...

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi friends,

  Just thought I'd tell you that I will be having biopsy surgery on my right eye,Tuesday morning at 7:15. First of January a small spot in the corner of my right eye..(tear duct) showed up and has slowly grown to quite a large mass over the last 3 months. It is causing blurred vision, headaches and pressure behind my eye. I went to an eye surgeon/specialist on Friday and after close scrutiny/testing he feels the mass is cancer,(relapsed from my FNHL) and due to the quick growth in size is most likely in an aggressive stage. He will remove as much of the mass as possible and then send it off to Seattle for pathology. Keep me in your prayers and I will let you know the pathology results as soon as I find out. He did say it is localized in the eye and not in my nervous system or brain....so that's good! Sure didn't see this coming, no pun intended.Smile Much love...Sue 

P.S...I have a good picture of what my eye looks like, but can't figure out how to post it?? Frown

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Sue,

  Certainly not the news we want to hear. Let them get the biopsy first and see what it says. I have no idea what else it could be, but we do not know for sure yet. You are certainly in my prayers. I know you have heard this before, but try not to get upset. I know it's just words and it will be very hard not to be upset until you know for sure. It's always in the back of your head. John

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi John,

  Actually I'm not upset, but more anxious to get this mass removed and biopsied so we can learn what we are dealing with. Sure don't want anything to cross into the brain or central nervous system.My thoughts are to get on this sooner than later, which so far is happening. Hope the biopsy results won't take forever! I'll keep everyone posted.

Love...Sue (FNHL-stg3-grd2-typA-dx 6/10-age 63)

illead's picture
illead
Posts: 863
Joined: Aug 2012

We are so very sorry Sue, I know you must be scared to death.  John had some comforting words but know how impossible it is to put it out of your mind.  Lymphoma is such an innocent sounding cancer but it is so sneaky.  I am so shocked and know you and your family are too.  It is not what we were expecting to hear.  These things happen so fast, we know.  You deserve all our prayers, comforrt and support.  We will be anxiousy awaiting more news, but in your own time.

Our love sweet lady, Becky and Bill

Shoopy
Posts: 210
Joined: Jul 2013

Sue,

You continue to be in my thoughts and prayers!

Karl

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Thank you for your kind words Karl,Becky and Bill. I appreciate your concern and prayers. It's something we never want to hear once we are in remission. I'm staying positive.Maybe the mass will be benign. Smile

Love...Sue

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

YES, FINGERS CROSSED !!!!!

Rocquie's picture
Rocquie
Posts: 839
Joined: Mar 2013

Dearest Sue, I'll just bet you didn't see this coming. 

I am glad this (whatever it is) has been caught early and is being dealt with promptly. Maybe, IF it is your lymphoma making another appearance, you can simply jump back on Rituxan. Just remember, in your own words, lymphoma is very treatable even if it does relapse. 

I  hope your biopsy is quick and painless on Tuesday. You will be in my prayers and so will your medical team. I pray that your pathology results come back promptly.  I pray for your peace of mind. 

Sending you many warm hugs and much love,

Rocquie

 

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

I don't have to tell you that we are here for you as you have been for so many for so long sweet lady! 

 

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Jim,

  You couldn't have said it any better and I hope Sue knows we are always here for her. The J"ohn"

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Thanks guys...

  Of course I know you are all here for me...never doubted it for a minute. I'm thinking positive thoughts and not wasting good energy worrying..truely. Yes, I'm anxious, but not stressing. I've been putting one hand over my right eye to see what it feels like, as I've never had my eye patched before. All of my good T.V shows are on tonight so at least I won't have to watch them patched up! Wink I'll let you know how the biopsy surgery goes, and then we will have to wait for pathology results. Getting more packing done today, May 1st will be here before we know it and then we make the big move to the river.Cool Timing sucks for this stupid cancer to rear it's head, but when is it EVER a good time...ya know. Anyways...onward and upward.

Love you all Kiss.... Sue

julz7
Posts: 16
Joined: Feb 2014

Keeping you in my prayers! 

 

Julz :)

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Dearest Sue,

Forgive my delay in responding to your news. As long as I have known you, you have been there for me and I am here for you.

Stay strong and know that all the positive healing energy I can muster is coming your way. Praying that the biopsy comes back benign. I'm holding your hand with lots of love.

If you need to talk anytime, this night owl is always available.

Gentle hugs my dear friend, I'll be waiting to hear how your doing.

Lisha

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3524
Joined: May 2012

Sue,

This news from you makes me sadder than I have been since we heard the news about Bill form Becky.

Thankfully it still might somehow not be cancer, and might not be a terrible strain if it is.

Praying for you,

max

 

Anonymous user (not verified)

All my best wishes for you. You are strong.

i would like to share with you a good friends experience. She had aggressive  large B cell lymphoma And experienced multiple relapses but is now disease free for 5 years. One of her relapses included a fast growing tumor in a tear duct. The tear duct is not CNS and the tumor was treated as any other except that the onc recommended radiating it as a measure of extra caution. I realize you have FNHL but that means it is probably even more responsive to treatment. If it is tranformed to LBCL that tumor may be completely curable!

I am having issues which I haven't shared on here. However my approach is a little different than most of our CSN friends. I choose to assume the worst! That way I only get good news from the Drs.! And instead of being frightened I get aggravated and pissed off. I suppose its my way of coping and feeling in charge, and I simply refuse the role of victim.

All my best! Those salmon are waiting!

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3524
Joined: May 2012

I like your approach described here, GKH.  I can see how it might be very effective, emotionally.

It reminds me a little bit of a classic Seinfeld episode, in which George, the perpetual loser, desides to always say the opposite of what he would otherwise have said. His reasoning is that his usual way of responding has always brought him nothing but trouble, so he will instead try something completely off-the wall.

He tries it out for the first time in the diner.   A georgous blond asks if she can sit with him and Jerry. After she sits down, George does his trial run:  He says, "Hi ! I'm George ! I'm short, fat, unemployed, bald, and live at home with my neurotic parents !"

She lowers her coffee, smiles, and relpies, while extending her hand yto him, "Well hi George !  I'm Victoria...maybe we could go out some time ?"

I sometimes select songs I feel are tailored for a situation; here is one for your approach to the oncologists:

https://www.youtube.com/watch?v=jBUFV2c_vcU

 

Quotes from the Seinfeld episode:   http://www.pkmeco.com/seinfeld/opposite.htm

max

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anliperez915's picture
anliperez915
Posts: 772
Joined: Sep 2011

Oh Nooo!!!

Really sorry to hear these news Sue...and I also apologize for my late response. I will be praying for you and hope your recovery will be a fast one. Have the Dr's  tested you any further for ex:( blood work, another CT scan), just wondering if they're planning on doing that. Please take care of yourself and I will be checking back to see how everything went with you! Sending you a HUGE HUG

Sincerely,

Liz

 

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi.... Lisha, GHK, Max and Liz,

  You guys are just the best...thanks so much for your caring words...it means so much! Smile

Liz...I'm sure further testing will take place as soon as we get the pathology report back. All of my doctors are on top of this, so I'm very happy and content with the care I'm getting.I'll be keeping everyone up-dated as results come in. Much love...Sue Kiss

 

NANCYL1
Posts: 289
Joined: Jun 2012

Sue:

Thank you for your note of a few weeks ago.  I am sorry I could not reply right away, but my computer has been terrible ever since I bought it a year ago, and has not been working off and on.  I think it is finally fixed.

 

Good that you don't need Chemo.   But I am sorry to hear that you must go through all this anxiety.

 

I am really out of the loop.  On top of medical problems you are also moving, I gather.

 

I hope things go well, and of course, keep us all posted.

 

Nancy

 

 

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