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waiting for pet scan results- update

jen2012
Posts: 1607
Joined: Aug 2012

And the anxiety is killing me.  This never gets easier does it?  We have a couple of important family events in the next two weeks and bad news would suck, but I guess there is no good time for bad news.  I wish we had put the scan off for a couple of weeks.

 

 

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

there ought to be some kind of law that they have to give you the report within 24 hours.  This kind of waiting is so, so stressful.

janderson1964
Posts: 2215
Joined: Oct 2011

I understand your anxiety and timing issues. I find myself rushing to see family and vacation before a scan so bad results doesn't ruin it. It's a hard way to live but that is all we have. I will keep your husband in my prayers.

zx10guy
Posts: 266
Joined: Dec 2013

Have you gone to the imaging facility and asked for the radiologist's report?  You may not have to wait till you see your oncologist to get the results of your scan.  I did this with an ultrasound I had done to check my liver for any possible metastisis after my liver enzymes were creeping up.  I didn't want to wait till I met/heard from my oncologist.  I went to the imaging facility the day after (could have been 2 days after) and requested the report.  The radiology department didn't even give me any issues in getting it.  I just had to sign a piece of paper acknowledging I was getting a copy of the report after I showed them my driver's license.

I would never tolerate a 2 week or even a 1 week wait to get my scan results.

Brenda Bricco
Posts: 579
Joined: Aug 2011

The longest we have waited for scan results is the next day... I think it's horrible that you have to wait so long. Frown

jen2012
Posts: 1607
Joined: Aug 2012

Sorry I wasn't clear.  The scan was friday and appt on Tuesday.  I just meant that the next two weeks is busy and bad news would make those events difficult.

 

So as usual, good news and (maybe) bad news. Bone lesions are dark.  None of them are lighting up now.   However, there is an area in the presacral fat that she wants to get biopsied.  She is concerned it is a recurrence.  She called last night though to give results of yesterday's blood work and CEA is 1.2, and that has been a good indicator.  There was also a thyroid issue but she doesn't think that is cancer related, but he has an U/S coming up.

 

Thanks for the support.

janderson1964
Posts: 2215
Joined: Oct 2011

That doesn't sound too bad. I hope you can take that as positive at least to not let it interfere with your upcoming plans. How is your husbands pain. Is it getting better/more manageable.

jen2012
Posts: 1607
Joined: Aug 2012

Thanks Jeff - I hope you are right.  

The pain is much better.   He's down to 175 on Fentanyl - from 275.  Gets a little achy, but not too bad.   I think he's still on way too high of a dose, but we are reducing slowly.  

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Jen,

"Just another day! One day at a time."

i tell myself this and sometimes it's harder to practice than other days.

Blessings to you.

Phil

jen2012
Posts: 1607
Joined: Aug 2012

Thanks Phil - it is hard to take a day at a time after being such a planner for the future.  It kinda sucks actually, but it is the only way to get through this.  My husband, like you and Jeff has great faith, which helps him cope.

Biopsy is next Wed.  Prayers and positive thoughts are appreciated. 

janderson1964
Posts: 2215
Joined: Oct 2011

You can count on prayers from me.

Cathleen Mary
Posts: 827
Joined: May 2011

Prayers, Jen.  Everyone should be blessed with a caregiver like you....amazing!

hugs,

CM

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

all the best:) 

Glad you are able to reduce the Fentanyl dose; that's a good thing that he is still managing the pain ok as a result.  Good luck with the rest of that program. 

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