Status Check Call

Phil64
Phil64 Member Posts: 838

Hey, I have an idea.  Wouldn't it be nice to see everyone's status in a single list?  If we post a Status Call on a monthly basis we can each comment on it with a short summary of our status... 

 

Our status should include Name, Stage, Current Status, Current Hopes

 

It would make tracking and sending out positive thoughts / prayers a lot easier for me.  I'll post my status as a start and we'll see who all thinks this is a good idea.  Maybe we could post an update for those who can't get online as well.

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Comments

  • Phil64
    Phil64 Member Posts: 838
    Phil64

    Phil64, Stage IV.

    Status: Had a second liver resection done on 2/7.  I'm back to work and waiting for a 3/20 appointment with my onc. My last CEA (on 2/27) was 1.0

    Hopes: I hope to continue healing from surgery and hope my CEA remains low and NO MORE RECURRANCES.  If I have to do chemo, I hope it WORKS and I can stay NED for a long time.

     

  • fatbob2010
    fatbob2010 Member Posts: 467
    status

    FatBob2010, Stage IV.

    Status: Had a second liver surgery done on 2/13.  I'm planning to go back to work 3/17 and waiting for a 3/31 appointment with my onc. 

    Hopes: I hope to continue healing from surgery with NO MORE RECURRANCES.  If I have to do chemo, I hope it WORKS and I can stay NED for a long time.

  • abrub
    abrub Member Posts: 2,174 Member
    Status

    Abrub - Appendix Cancer Stage IV

    Remission since treatment ended in April, 2008.  Hoping to stay that way!

  • Semira
    Semira Member Posts: 381 Member
    Status of the german branch...

    Name:  Petra (aka Semira)

    Stage: Caregiver to husband (Thorsten) with Stage IV since Nov 2011

    Current Status: NED, last CT in Dec 2013

    Current Hopes: if the next bloodwork in 3 weeks is ok and the CEA stays low we will be off for travel and vacation to India again 

  • biglaur
    biglaur Member Posts: 72
    Biglaur

    Stage: Stage IV,  diagnosed 11/06 completed ALL treatment 08/09  Just had biannual blood tests/scans...STILL NED!!!!!

     

    Hopes: Staying NED...Cool

     

  • lp1964
    lp1964 Member Posts: 1,239 Member
    Laz Stage 2-3

    Was diagnosed with rectal cancer 5/13. Radiation, chemo, surgery 10/13. There was no cancer in the specimen or the lymph nodes. Finished chemo 2 weeks ago, organs look clear, but there is some abnormality in my right seminal vesicle(a gland next to the prostate). Will have PET scan and hope everything is ok.

    Laz

  • Lisa2012
    Lisa2012 Member Posts: 142
    Great idea Phil64

    Lisa2012, Stage IV diagonosed 3/12

    Current:  treating with eurbuitux every Tuesday since the first week of January this year.  Irinotacan every other Tuesday.  Today was only eurbuitux.  Scheduled for a PET on 3/10.

    Hopes:  praying this course of action is successful and that I continue to feel as well as I have throughout.  I have so much to do this year!

  • marbleotis
    marbleotis Member Posts: 720 Member
    Nice idea

    Name: marbleotis

    Stage 3b / signet cell

    Current Status: 2 years , 2 months NED

    Current Hopes:

    (1) remain NED and use what I went through to help someone else. 

    (2) I will be attending my younger daughter's college graduation in May (with highest honors) - there was a time I thought I may not see that day.

  • annalexandria
    annalexandria Member Posts: 2,571
    Good idea!

    Ann Alexandria

    Metastatic carcinosarcoma of the colon (not enough cases, so no official staging; essentially stage 4)

    NED since 2011

    Hoping to stay that way for as long as possible!

  • mukamom
    mukamom Member Posts: 402

    Good idea!

    Ann Alexandria

    Metastatic carcinosarcoma of the colon (not enough cases, so no official staging; essentially stage 4)

    NED since 2011

    Hoping to stay that way for as long as possible!

    great!

    Mukamom, caregiver to Robert

    Stage IV cc, dx 12/2008

    Currently receiving trial drug TRC 105/ Avastin....cycle 23.  Spike in CEA last lab. CT scan tomorrow. Results in a week.

    Keeping positive b/c worrying about the what ifs won't help Robert.

     

  • TheLadySkye
    TheLadySkye Member Posts: 203 Member
    Status

    Name: TheLadySkye

    Stage: Stage 2b Small Intestine Cancer

    Current Status: Surgery at the end of August.  T4N0M0.  Currently undergoing FOLFOX chemotherapy 8 of 12 so far.  Just had the 5FU bolus removed because my labs kept tanking.  Currently NED.

    Current Hopes: That the doctors are correct when they say that the statistics regarding this rare cancer don't apply to me at age 39 and that my prognosis is better than what the literature would suggest.  That the surgery was successful and that the NED means that they got it all, that nothing escaped, and that no stray cells went elsewhere to propagate.  That the chemotherapy will wipe out anything that remains, and that by some miracle this will constitute a cure for a type of cancer that doesn't seem to have many of those.  That some day this pain and fear will be a distant memory as I grow old and live a healthy, happy life.

  • karguy
    karguy Member Posts: 1,020
    Status

    I was stage 3 on3/2008,then NED untill 4/2012 at which time I became stage 4.Now i'm having another recurance. Tumers have been in colon,liver, spine.It was colorectal cancer in the beginning.I am now testing to find out where this one is.

  • Hooley
    Hooley Member Posts: 156
    Status

    Current

    3 1/2 years since dx.  bowel with mets to lungs. Successful bowel surgery  Chemo consistently.  Had recently shrunk thanks to erbitux. Now larger of three tumors grown back to 62mm.  No more erbitux No lung surgery yet.  Have to get under control

    Hopes

    seeing dr re microwave targeted surgery. Perth do cyber knife.  Don't know if candidate.  Not sure which direction to go.  Still praying for a miracle

  • bakerwoman
    bakerwoman Member Posts: 2
    Status from Idaho

    Carol, caregiver to husband Jim, who was diagnosed with Stage 3 colorectal cancer on August 30, 2013. Partially resected tumor, just finished eight rounds of 5/FU chemo. CT scan on Wednesday morning, March 5, of Jim's chest, abdomen, and pelvis to see if the chemo slowed things down. This is palliative care only -- the cancer was present in all eleven of the lymph nodes that the surgeon removed.

    My goal is to enjoy all the time we have left together, and to not have my sweetheart be in any more pain. We've grown very close over the last six months of trying to get Jim recovered from his surgery. He still has an open abdominal wound after all these months, because the chemo, of course, pretty much stopped his ability to heal. CRUMB! We've only had ten years together, but he was well worth the wait. We married in our fifties.

    You guys are going to be a great help to me as my husband gets sicker. He's not much of a talker, so I have to get support from other people.

  • Roddy2
    Roddy2 Member Posts: 21
    Status check - Top idea Phil

    Roddy2 (Ian)

    Stage4 MCRC - Dx June 2012 - mets to bowel, liver & lungs.

    current staus - 8 sessions of Folfox - 33 sessions of Avaistin, leucovorin & Flouroucaracil (ongoing fortnightly). Participated in "Congo" trial for 16 months. 

    Future - stay as healthy as I am at the moment with fortunately very few side effects. Hopefully get involved in further trial involving DNA. Keep promoting early testing through work places and local community groups through Bowel Cancer Australia

  • Momof2plusteentwins
    Momof2plusteentwins Member Posts: 508
    Status
    Momof2plusteentwins - diagnosed April 2012 Stage IV-Rectal cancer with single met to liver and 12/23 positive nodes. Chemoradiation for 4 weeks, surgery June 2012 to remove rectal tumor, liver tumor, and gallbladder. 6 months of Folfox with no delays. NED since.

    CT scan March 12th, I hope to remain NED.
    My daughter is pregnant with twin girls, due in May and my twin boys are Juniors in High School. There is so much that I have to live for!

    Sandy
  • suekell
    suekell Member Posts: 11

    Status
    Momof2plusteentwins - diagnosed April 2012 Stage IV-Rectal cancer with single met to liver and 12/23 positive nodes. Chemoradiation for 4 weeks, surgery June 2012 to remove rectal tumor, liver tumor, and gallbladder. 6 months of Folfox with no delays. NED since.

    CT scan March 12th, I hope to remain NED.
    My daughter is pregnant with twin girls, due in May and my twin boys are Juniors in High School. There is so much that I have to live for!

    Sandy

    STATUS

    Had bowel resection September 2011. 2 months ago was told cancer had spread to peritoneum, stomach and a lymph node in chest area. Am receiving palliative chemo as i am stage V1 advanced. Just had chemo #3.

    My hopes for the future are to have a good response to treatment and be able to bear the side effects. 

  • thxmiker
    thxmiker Member Posts: 1,278
    HI All!
     
    Stage IV, 3c  

    HI All!

     

    Stage IV, 3c   Colon Cancer, Peitoneal Cancer, and Rectal Cancer   - Round 3 of Chemo about to start - Round 6 of Surgeries to follow.  I just got my hydroponc system to work.   It is a small pump and gravity fed after that.  I will not stop living life or growing as an individual. Cancer is just an inconvient fact for me. Eating real food, showing others how to cook, and grow real food is my current life mission.  Food is our medicine.

     

    Best Always,  mike

     

  • herdizziness
    herdizziness Member Posts: 3,624
    Winter

    Stage IV dx 02/06/2010

    Colon/ureter/liver resection Dec. 2010

    liver resection 05/2013

    sigmoid colon resection 09/2013

    have been on chemo's since diagnosis, only break from chemo's was before and after surgeries, those were nice vacations.  Most chemo's have stopped working, so getting a tad worried as currently have 7 Mets in the liver again.  Also have tumors in my lungs 3 on each side, but we don't call them cancer since I was advised it wasn't smart to get a biopsy and be sure it's cancer because then surgeons would be less likely to do any surgeries if they were cancer tumors.  So I just say I have spots in my lungs, that are being observed.

    Winter Marie

  • PatchAdams
    PatchAdams Member Posts: 271
    My status

    Name:  P. Adams

    Stage: Now Stage IVa 

    Current Status: NED with PET/CT in April.  Normal CEA (Highest ever was 6.4 when I had the liver met but studies have shown CEA to be more indicative of liver activity than activity in other areas.) 

    Current Hopes: I PRAY that my liver resection two years ago was curative and that the cancer never returns. It's been over 5 years since my original dx and I've had only the one tiny met.  I am KRAS Mutant which newer studies hint might mean better odds.