Status Check Call
Hey, I have an idea. Wouldn't it be nice to see everyone's status in a single list? If we post a Status Call on a monthly basis we can each comment on it with a short summary of our status...
Our status should include Name, Stage, Current Status, Current Hopes
It would make tracking and sending out positive thoughts / prayers a lot easier for me. I'll post my status as a start and we'll see who all thinks this is a good idea. Maybe we could post an update for those who can't get online as well.
Comments
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Phil64
Phil64, Stage IV.
Status: Had a second liver resection done on 2/7. I'm back to work and waiting for a 3/20 appointment with my onc. My last CEA (on 2/27) was 1.0
Hopes: I hope to continue healing from surgery and hope my CEA remains low and NO MORE RECURRANCES. If I have to do chemo, I hope it WORKS and I can stay NED for a long time.
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status
FatBob2010, Stage IV.
Status: Had a second liver surgery done on 2/13. I'm planning to go back to work 3/17 and waiting for a 3/31 appointment with my onc.
Hopes: I hope to continue healing from surgery with NO MORE RECURRANCES. If I have to do chemo, I hope it WORKS and I can stay NED for a long time.
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Status of the german branch...
Name: Petra (aka Semira)
Stage: Caregiver to husband (Thorsten) with Stage IV since Nov 2011
Current Status: NED, last CT in Dec 2013
Current Hopes: if the next bloodwork in 3 weeks is ok and the CEA stays low we will be off for travel and vacation to India again0 -
Laz Stage 2-3
Was diagnosed with rectal cancer 5/13. Radiation, chemo, surgery 10/13. There was no cancer in the specimen or the lymph nodes. Finished chemo 2 weeks ago, organs look clear, but there is some abnormality in my right seminal vesicle(a gland next to the prostate). Will have PET scan and hope everything is ok.
Laz
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Great idea Phil64
Lisa2012, Stage IV diagonosed 3/12
Current: treating with eurbuitux every Tuesday since the first week of January this year. Irinotacan every other Tuesday. Today was only eurbuitux. Scheduled for a PET on 3/10.
Hopes: praying this course of action is successful and that I continue to feel as well as I have throughout. I have so much to do this year!
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Nice idea
Name: marbleotis
Stage 3b / signet cell
Current Status: 2 years , 2 months NED
Current Hopes:
(1) remain NED and use what I went through to help someone else.
(2) I will be attending my younger daughter's college graduation in May (with highest honors) - there was a time I thought I may not see that day.
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Good idea!
Ann Alexandria
Metastatic carcinosarcoma of the colon (not enough cases, so no official staging; essentially stage 4)
NED since 2011
Hoping to stay that way for as long as possible!
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great!annalexandria said:Good idea!
Ann Alexandria
Metastatic carcinosarcoma of the colon (not enough cases, so no official staging; essentially stage 4)
NED since 2011
Hoping to stay that way for as long as possible!
Mukamom, caregiver to Robert
Stage IV cc, dx 12/2008
Currently receiving trial drug TRC 105/ Avastin....cycle 23. Spike in CEA last lab. CT scan tomorrow. Results in a week.
Keeping positive b/c worrying about the what ifs won't help Robert.
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Status
Name: TheLadySkye
Stage: Stage 2b Small Intestine Cancer
Current Status: Surgery at the end of August. T4N0M0. Currently undergoing FOLFOX chemotherapy 8 of 12 so far. Just had the 5FU bolus removed because my labs kept tanking. Currently NED.
Current Hopes: That the doctors are correct when they say that the statistics regarding this rare cancer don't apply to me at age 39 and that my prognosis is better than what the literature would suggest. That the surgery was successful and that the NED means that they got it all, that nothing escaped, and that no stray cells went elsewhere to propagate. That the chemotherapy will wipe out anything that remains, and that by some miracle this will constitute a cure for a type of cancer that doesn't seem to have many of those. That some day this pain and fear will be a distant memory as I grow old and live a healthy, happy life.
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Status
Current
3 1/2 years since dx. bowel with mets to lungs. Successful bowel surgery Chemo consistently. Had recently shrunk thanks to erbitux. Now larger of three tumors grown back to 62mm. No more erbitux No lung surgery yet. Have to get under control
Hopes
seeing dr re microwave targeted surgery. Perth do cyber knife. Don't know if candidate. Not sure which direction to go. Still praying for a miracle
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Status from Idaho
Carol, caregiver to husband Jim, who was diagnosed with Stage 3 colorectal cancer on August 30, 2013. Partially resected tumor, just finished eight rounds of 5/FU chemo. CT scan on Wednesday morning, March 5, of Jim's chest, abdomen, and pelvis to see if the chemo slowed things down. This is palliative care only -- the cancer was present in all eleven of the lymph nodes that the surgeon removed.
My goal is to enjoy all the time we have left together, and to not have my sweetheart be in any more pain. We've grown very close over the last six months of trying to get Jim recovered from his surgery. He still has an open abdominal wound after all these months, because the chemo, of course, pretty much stopped his ability to heal. CRUMB! We've only had ten years together, but he was well worth the wait. We married in our fifties.
You guys are going to be a great help to me as my husband gets sicker. He's not much of a talker, so I have to get support from other people.
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Status check - Top idea Phil
Roddy2 (Ian)
Stage4 MCRC - Dx June 2012 - mets to bowel, liver & lungs.
current staus - 8 sessions of Folfox - 33 sessions of Avaistin, leucovorin & Flouroucaracil (ongoing fortnightly). Participated in "Congo" trial for 16 months.
Future - stay as healthy as I am at the moment with fortunately very few side effects. Hopefully get involved in further trial involving DNA. Keep promoting early testing through work places and local community groups through Bowel Cancer Australia
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Status
Momof2plusteentwins - diagnosed April 2012 Stage IV-Rectal cancer with single met to liver and 12/23 positive nodes. Chemoradiation for 4 weeks, surgery June 2012 to remove rectal tumor, liver tumor, and gallbladder. 6 months of Folfox with no delays. NED since.
CT scan March 12th, I hope to remain NED.
My daughter is pregnant with twin girls, due in May and my twin boys are Juniors in High School. There is so much that I have to live for!
Sandy0 -
STATUSMomof2plusteentwins said:Status
Momof2plusteentwins - diagnosed April 2012 Stage IV-Rectal cancer with single met to liver and 12/23 positive nodes. Chemoradiation for 4 weeks, surgery June 2012 to remove rectal tumor, liver tumor, and gallbladder. 6 months of Folfox with no delays. NED since.
CT scan March 12th, I hope to remain NED.
My daughter is pregnant with twin girls, due in May and my twin boys are Juniors in High School. There is so much that I have to live for!
SandyHad bowel resection September 2011. 2 months ago was told cancer had spread to peritoneum, stomach and a lymph node in chest area. Am receiving palliative chemo as i am stage V1 advanced. Just had chemo #3.
My hopes for the future are to have a good response to treatment and be able to bear the side effects.
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HI All!
Stage IV, 3cHI All!
Stage IV, 3c Colon Cancer, Peitoneal Cancer, and Rectal Cancer - Round 3 of Chemo about to start - Round 6 of Surgeries to follow. I just got my hydroponc system to work. It is a small pump and gravity fed after that. I will not stop living life or growing as an individual. Cancer is just an inconvient fact for me. Eating real food, showing others how to cook, and grow real food is my current life mission. Food is our medicine.
Best Always, mike
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Winter
Stage IV dx 02/06/2010
Colon/ureter/liver resection Dec. 2010
liver resection 05/2013
sigmoid colon resection 09/2013
have been on chemo's since diagnosis, only break from chemo's was before and after surgeries, those were nice vacations. Most chemo's have stopped working, so getting a tad worried as currently have 7 Mets in the liver again. Also have tumors in my lungs 3 on each side, but we don't call them cancer since I was advised it wasn't smart to get a biopsy and be sure it's cancer because then surgeons would be less likely to do any surgeries if they were cancer tumors. So I just say I have spots in my lungs, that are being observed.
Winter Marie
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My status
Name: P. Adams
Stage: Now Stage IVa
Current Status: NED with PET/CT in April. Normal CEA (Highest ever was 6.4 when I had the liver met but studies have shown CEA to be more indicative of liver activity than activity in other areas.)
Current Hopes: I PRAY that my liver resection two years ago was curative and that the cancer never returns. It's been over 5 years since my original dx and I've had only the one tiny met. I am KRAS Mutant which newer studies hint might mean better odds.
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