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latest scan

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Well here we go. I had my follow up scan yesterday. The IL-2 is doing it's job! My tumors are stable or shrinking. What else can I ask for? Next scan is in 6 weeks. There was a time a couple years back when scans showed tumors everywhere. Now only down to a couple soft tissue mets and a couple bone mets. And they are little. I feel great. I'm painless. And I just finished a good workout. Life is good!  Everyone who sees me finds it hard to believe that I'm stage 4 for short of 3 years now. Keep the faith everyone. We can do this.

nephrectomy 3/11......20ish tumors and much pain by late 2011......nivolumab trial (MDX-1106) for 18 months with excellent results except 2 or 3 new small growths which eliminated me from trial.....IL-2 treatments in July and Oct. ....no oral meds.....Zometa infusions for bones....

srbelle1
Posts: 123
Joined: Jul 2013

Fox:

i have been waiting for your results; after the hell you went through, these results are well-earned!!!! 

So very glad to start my day with your good news!

Sarah

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

The IL-2 was tough but I think that I've had it easy. After expecting to have been dead a couple years ago, I am fortunate. No rhyme or reason why I got lucky. But I am thankful. I've too much to look forward too.

srbelle1
Posts: 123
Joined: Jul 2013

your attitude is amazing and very inspiring to me as I walk along my husband's path.

so far, his attitude has been really good but it hurts like hell to watch and it makes me feel involved to research as much as I can; he doesn't do that but he appreciates it. 

As for you, the results so far are most encouraging; I thank you for walking ahead of a path we may find ourselves on.

sarah

Jan4you's picture
Jan4you
Posts: 1320
Joined: Oct 2013

WOWWEEEEE!!!! You give so many HOPE!

You have been to "hell" and back it seems.

May you continue to inspire~

Be well my friend,

 

Jan

donna_lee's picture
donna_lee
Posts: 900
Joined: Feb 2009

What great news, Fox!!!  As I've been made aware, IL2 is truly nasty stuff; but it works.  So glad to hear your results are truly marvelous.

Love from the other coast.

Donna

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I wore my Kuwait shirt today when I went for my zometa infusion. Another woman had a Harley shirt and we talked about it. Then I showed her mine. She said it was the best one she has seen. I told her , "I know." I think she had a better day.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I've worked in health care for over 35 years. Motivation is so important. I think that is why I continue to post. We can do this. With luck and determination we then hope for the best. Don't ever give up.

brea588's picture
brea588
Posts: 240
Joined: Jul 2012

So good to hear how well you are doing.  What an inspiration you are to everyone.  Keep up the good fight!!!!

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Such great news, Fox!! You are amazing and a true example of never give up!!

 

Jojo

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

of one tough lady. Here you are reaching out while you can hardly even fart yet. Take care of yourself during your recovery. I don't see you as one who conceeds either.

mrs_blkjak's picture
mrs_blkjak
Posts: 103
Joined: Apr 2013

I have also been waiting to hear good results from your IL2 and a, so glad to hear a positive report for you!

Skagway Jack's picture
Skagway Jack
Posts: 221
Joined: Oct 2013

You the Man!  You set the example and give us all confidence in our own battles.  Battle on Fox....good one on ya!!!

 

DMike's picture
DMike
Posts: 259
Joined: Nov 2011

I'm so very happy for you Fox! That's great news. 

David

Alexandra's picture
Alexandra
Posts: 1310
Joined: Jul 2012

Foxy name graphics  Foxy name graphics  Foxy name graphics  Foxy name graphics  Foxy name graphics   

Foxy name graphicsFOX IS AWESOMEFoxy name graphics

Foxy name graphics  Foxy name graphics  Foxy name graphics  Foxy name graphics  Foxy name graphics   

Darron's picture
Darron
Posts: 303
Joined: Jun 2013

Wow, words can't explain how happy I was to read that. As a fellow MDX'er, it is good to see there is another fork in the road.
Quick question, were you on MDX only, or in combination with another drug?

keep blazing that trail!
Darron

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Darron, MDX only. I don't think they were doing combos back then.

BDS's picture
BDS
Posts: 172
Joined: Aug 2012

 

Yeah!!!!!!    

 

PS -  I love Alexandra's post

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I appreciate everyones support. I'll probably never see the cure but stable and no new growth is success. I care about getting fit and strong again. Then my lifestyle will remain just as it has been. I can do this for years to come. Alex, I don't think I'm a poster boy anymore. But I'll take it. Thanks. Love you. Soon I'll be entering the world of new treatments. I don't know what that will be. Sutent? votrient? cherry pick the tumors? My doctor wants to keep an eye on my progress. she doesn't see the need for any new intervention yet. I've been through enough. I don't mind waiting awhile. I am very interested in continued improvements without being on any new drugs. Is it a pipe dream? Don't care. I'll wait. 6 more weeks for the next scan.

Frank302's picture
Frank302
Posts: 71
Joined: Feb 2013

I'm so glad for your results Fox. You are inspireing and your attitude is uplifting . Your untireing willingness to come out swinging in every round serves as an example for us all .

TillieSOK's picture
TillieSOK
Posts: 252
Joined: Jul 2013

This is the absolute best news ever!

NewDay's picture
NewDay
Posts: 273
Joined: May 2012

You made my day!  

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Tillie, it's not that awesome. Good news for sure. Best news ever would be ALL of us doing well. Thanks.

Good to hear from you Kathy.

Someone asked me about my avatar. That was taken on the observation deck of the Mt. Washington observatory. We have ridden up Mt. Washington about a dozen times in the last 15 years. Fun ride. I know I'm due for a picture change but I don't have anything else. I also don't know how I did this one. I'm not nearly as savey as Alex with this computer. I was going to draw a picture and use a sticky. But I guess you guys wouldn't be able to see it if I stuck it on my computer. Tex never believed it when I told him of my limited computer talent. That is what happens when there are no teenagers in the house.

angec's picture
angec
Posts: 923
Joined: Mar 2012

Fox, So glad to hear there is a response. That is good news! After all you have been through, this makes it worth while! My son is ten, he knows the computer better than I do!  Keep up the good job! More good things happening down the pike! :)

Suekub's picture
Suekub
Posts: 137
Joined: Apr 2013

Great result. Contratulations and I hope the treatment itself is only a bad memory. If only IL2 was available here in Australia I think I am desperate enough to give it a shot! Onwards I go to the next available study for which I am presently undergoing screening for, yet another CT last Friday with bone scan on Wednesday before being able to be randomized on the Meteor study (cabonzantib vs everolimus). 

Sue

 

 

 

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

Hey Fox, I am just catching up with the news, and what GREAT news! I am so pleased to hear that awful ordeal was fruitful, what a fantastic result! You have a strong Life Force Fox, that coupled with a tenacious spirit, you can't help but be inspirational to all of us :)

 

Djinnie xx

Limelife50's picture
Limelife50
Posts: 476
Joined: Nov 2011

Great report Fox

alice124's picture
alice124
Posts: 898
Joined: Mar 2012

Thrilled for you Fox! Made my evening. . .

I am alive
Posts: 316
Joined: Jul 2012

I am happy and excited for you. Now enjoy the heck out of the holidays!!

danbren2's picture
danbren2
Posts: 311
Joined: May 2013

Fox,

     I am so happy for you! You have given me so much strenght and insight into this awful disease.  I am really thankful for you and others that have taken treatments to help all of us along! Thanks for being there for me, and I wish nothing but good health for you!

                                                  Love and many prayers for good health!

                                                   Brenda

cran1's picture
cran1
Posts: 139
Joined: Mar 2013

Great news Fox!

rae_rae's picture
rae_rae
Posts: 300
Joined: Oct 2010

Exciting news! Have a wonderful Christmas Fox!

Eims's picture
Eims
Posts: 423
Joined: Feb 2013

oh i have been away for a bit but oh my goodness what fabulous news to come back to......delighted fox i really am....

 

eims x

Galrim's picture
Galrim
Posts: 305
Joined: Apr 2013

But who cares when the gifts are this good :-)

 

/G

Eims's picture
Eims
Posts: 423
Joined: Feb 2013

Foxy that is wonderful and you are wonderful too x

NanaLou
Posts: 71
Joined: Oct 2011

Glad to hear this. You just made my Christmas a little brighter!!! Lets keep it up.

tonib's picture
tonib
Posts: 33
Joined: Nov 2013

So glad for you!!

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