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ADULT Diffuse Intrinsic Pontine Glioma

Sammiesdad

Posts: 9
Joined: Sep 2013

Oct 21, 2013 - 7:28 pm

Hi, anyone out there dealing with this rare insideous monster? Was diagnosed 9 years ago with waitful watching due to location. Looks like it finally woke up.

Would like to swap stories, symptoms, treatments, etc.

Thanks

Sammiesdad

Posts: 9
Joined: Sep 2013

Oct 28, 2013 - 8:19 am

So there is no one in

So there is no one in cyberspace that has this cancer? Would really appreciate some feedback.

Thanks

Trent

Sammiesdad

Posts: 9
Joined: Sep 2013

Oct 28, 2013 - 8:19 am

So there is no one in

So there is no one in cyberspace that has this cancer? Would really appreciate some feedback.

Thanks

Trent

LeslieLand

Posts: 49
Joined: Feb 2012

Oct 31, 2013 - 4:23 pm

Trent, I remember almost 3

Trent,

I remember almost 3 years ago now when my husband was diagnosed...I had a helluva time finding anyone else with DIPG. Are you to start radiation therapy soon?

Leslie

CSN

cancer.org

You are here

ADULT Diffuse Intrinsic Pontine Glioma

So there is no one in

So there is no one in

Trent, I remember almost 3