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ADULT Diffuse Intrinsic Pontine Glioma

Sammiesdad

Posts: 9
Joined: Sep 2013

Oct 21, 2013 - 7:28 pm

Hi, anyone out there dealing with this rare insideous monster? Was diagnosed 9 years ago with waitful watching due to location. Looks like it finally woke up.

Would like to swap stories, symptoms, treatments, etc.

Thanks

Sammiesdad

Posts: 9
Joined: Sep 2013

Oct 28, 2013 - 8:19 am

So there is no one in

So there is no one in cyberspace that has this cancer? Would really appreciate some feedback.

Thanks

Trent

Sammiesdad

Posts: 9
Joined: Sep 2013

Oct 28, 2013 - 8:19 am

So there is no one in

So there is no one in cyberspace that has this cancer? Would really appreciate some feedback.

Thanks

Trent

LeslieLand

Posts: 49
Joined: Feb 2012

Oct 31, 2013 - 4:23 pm

Trent, I remember almost 3

Trent,

I remember almost 3 years ago now when my husband was diagnosed...I had a helluva time finding anyone else with DIPG. Are you to start radiation therapy soon?

Leslie

CSN

cancer.org

You are here

Coronavirus/COVID-19

ADULT Diffuse Intrinsic Pontine Glioma

So there is no one in

So there is no one in

Trent, I remember almost 3