ADULT Diffuse Intrinsic Pontine Glioma

Sammiesdad
Sammiesdad Member Posts: 9
in Brain Cancer #1

Hi, anyone out there dealing with this rare insideous monster?  Was diagnosed 9 years ago with waitful watching due to location.  Looks like it finally woke up.

Would like to swap stories, symptoms, treatments, etc. 

Thanks

Comments

  • Sammiesdad
    Sammiesdad Member Posts: 9
    #2
    So there is no one in

    So there is no one in cyberspace that has this cancer?   Would really appreciate some feedback.

     

    Thanks

    Trent

  • Sammiesdad
    Sammiesdad Member Posts: 9
    #3
    So there is no one in

    So there is no one in cyberspace that has this cancer?   Would really appreciate some feedback.

     

    Thanks

    Trent

  • LeslieLand
    LeslieLand Member Posts: 49
    #4
    Sammiesdad said:

    So there is no one in

    So there is no one in cyberspace that has this cancer?   Would really appreciate some feedback.

     

    Thanks

    Trent

    Trent,
    I remember almost 3

    Trent,

    I remember almost 3 years ago now when my husband was diagnosed...I had a helluva time finding anyone else with DIPG. Are you to start radiation therapy soon?

     

    Leslie

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