Dumb question: If my cancerous (presumably diseased) kidney is gone, do I have kidney disease?

anmazon
anmazon Member Posts: 144

Hello All.  Someone asked me today if I had checked the kidney disease warning label on my deodorant.  Of course, my response was, "huh?"  So I got home, and sure enough, there is a statement that I should check with my physician before using this particular brand of deodorant if I have kidney disease.

I know this seems completely picayune, but is it safe to use deodorant?

(In New Mexico, during the summer, this is not a small issue)

If nothing else, I'm looking forward to hearing some highly amusing responses to my panicked question.

Warm regards.

Anne

«1345

Comments

  • icemantoo
    icemantoo Member Posts: 3,359 Member
    Yes and no

    Ann,

    I am going to try and answer your question seriously without discussing body odor.

    A lot of things cause Kidney Disease which is measured by your GFR.

    These include high blood preassure, smoking, diabities, medications, your age among others each of which reduce your Kidney function. A lower Kidney function effects heart issues and can also lead to dialysis.

     Having 1 kidney is also a cause of lower Kidney function.

     

    All of us with 1 kidney are more likely to have kidnry disease than the general public and that is why we have to watch our medications diet and blood pressure more than the general public.

     

    Kidney disease is also a spectrum disease. Those of us with perfect kidneys have a GFR of 100 or more. At 90 we are classified as having Stage 1 CKD- Chroic Kidney Disease (minor kidney function loss). At a GFR of 60 to 90 we have Stage 2 CKD (mild kidney function loss. Between 30 and 60 we have Stage 3 CKD which is loss of some Kidney function. Between  a GFR of 16 and 29  is serious loss of Kidney function and Stage 4 CKD . At 15 and below you have Stage 5 CKD and at that point you are put on dialysis. Those with Stage 3 and 4 CKD have a higher risk of heart attack or stroke.

    This is why many of us also see a Nephrologist. After my surgery 11 years ago my GFR was 60. A few years ago as a result of High Blood pressure and getting older it went down to 41. As a result of  keeping my blood pressure lower it is back up to 47.

    In conclusion having one lidney can be a factor in Kidney disease and heart issues and for those reasons we have to watch our kidney health and as to whether we use a deoderant that may have a Kidney warning first ask your  GP and if you have one ask your Nephrologist. 

    I hope this gives you food for thought on a subject (CKD) which needs more dicussion on this forum.

     Icemantoo

     

     

  • GSRon
    GSRon Member Posts: 1,303
    icemantoo said:

    Yes and no

    Ann,

    I am going to try and answer your question seriously without discussing body odor.

    A lot of things cause Kidney Disease which is measured by your GFR.

    These include high blood preassure, smoking, diabities, medications, your age among others each of which reduce your Kidney function. A lower Kidney function effects heart issues and can also lead to dialysis.

     Having 1 kidney is also a cause of lower Kidney function.

     

    All of us with 1 kidney are more likely to have kidnry disease than the general public and that is why we have to watch our medications diet and blood pressure more than the general public.

     

    Kidney disease is also a spectrum disease. Those of us with perfect kidneys have a GFR of 100 or more. At 90 we are classified as having Stage 1 CKD- Chroic Kidney Disease (minor kidney function loss). At a GFR of 60 to 90 we have Stage 2 CKD (mild kidney function loss. Between 30 and 60 we have Stage 3 CKD which is loss of some Kidney function. Between  a GFR of 16 and 29  is serious loss of Kidney function and Stage 4 CKD . At 15 and below you have Stage 5 CKD and at that point you are put on dialysis. Those with Stage 3 and 4 CKD have a higher risk of heart attack or stroke.

    This is why many of us also see a Nephrologist. After my surgery 11 years ago my GFR was 60. A few years ago as a result of High Blood pressure and getting older it went down to 41. As a result of  keeping my blood pressure lower it is back up to 47.

    In conclusion having one lidney can be a factor in Kidney disease and heart issues and for those reasons we have to watch our kidney health and as to whether we use a deoderant that may have a Kidney warning first ask your  GP and if you have one ask your Nephrologist. 

    I hope this gives you food for thought on a subject (CKD) which needs more dicussion on this forum.

     Icemantoo

     

     

    Iceberg speaks

    Yes, I agree with Icemantoo..  and for more morsels to nosh on...  last year right after my surgery I did a Google search and found a Healthy Kidney diet..  Hope this helps the discussion...

    Ron

  • anmazon
    anmazon Member Posts: 144
    icemantoo said:

    Yes and no

    Ann,

    I am going to try and answer your question seriously without discussing body odor.

    A lot of things cause Kidney Disease which is measured by your GFR.

    These include high blood preassure, smoking, diabities, medications, your age among others each of which reduce your Kidney function. A lower Kidney function effects heart issues and can also lead to dialysis.

     Having 1 kidney is also a cause of lower Kidney function.

     

    All of us with 1 kidney are more likely to have kidnry disease than the general public and that is why we have to watch our medications diet and blood pressure more than the general public.

     

    Kidney disease is also a spectrum disease. Those of us with perfect kidneys have a GFR of 100 or more. At 90 we are classified as having Stage 1 CKD- Chroic Kidney Disease (minor kidney function loss). At a GFR of 60 to 90 we have Stage 2 CKD (mild kidney function loss. Between 30 and 60 we have Stage 3 CKD which is loss of some Kidney function. Between  a GFR of 16 and 29  is serious loss of Kidney function and Stage 4 CKD . At 15 and below you have Stage 5 CKD and at that point you are put on dialysis. Those with Stage 3 and 4 CKD have a higher risk of heart attack or stroke.

    This is why many of us also see a Nephrologist. After my surgery 11 years ago my GFR was 60. A few years ago as a result of High Blood pressure and getting older it went down to 41. As a result of  keeping my blood pressure lower it is back up to 47.

    In conclusion having one lidney can be a factor in Kidney disease and heart issues and for those reasons we have to watch our kidney health and as to whether we use a deoderant that may have a Kidney warning first ask your  GP and if you have one ask your Nephrologist. 

    I hope this gives you food for thought on a subject (CKD) which needs more dicussion on this forum.

     Icemantoo

     

     

    Thank you, Iceman

    Thank you for a reasonable and sensible response that made sense to someone who is still adjusting to life with one kidney and learning that her life is suddenly a whole lot more complex than it used to be.

    I never really considered that there were warning labels on deodorant, of all things, especially a warning label that might pertain to me.

    I'll definitely talk to my GP about this. I've got a nephrologist waiting on the sidelines as well (they're concerned about my post-surgical creatinine level of 1.4).   Though I've known both of them and most of the docs at my hospital for years, this forum seemed like a much safer place for what seemed like a ridiculous question. 

    I'm 50, I don't smoke, my meds seem to be in order (synthetic thyroid and an estrogen patch) and I am adhering to a pretty strict quasi-renal diet per my urologist's instructions ("watch your protein and sodium").

    It seems like it might not be unreasonable to throw out my old deodorant, and shop for something WITHOUT a warning label on it tomorrow.

    Thank you again, Iceman

     

  • anmazon
    anmazon Member Posts: 144
    GSRon said:

    Iceberg speaks

    Yes, I agree with Icemantoo..  and for more morsels to nosh on...  last year right after my surgery I did a Google search and found a Healthy Kidney diet..  Hope this helps the discussion...

    Ron

    mmmmm, noshing

    Thank you, Ron.  I found a really good renal diet cookbok online , which includes some really delicious recipes as well as good dietary guidelines (including a renal food pyramid of all things).  

    Thank you, Ron (and Iceman) for your great answers to what has turned out to be a not-so-dumb question.

    You are all the best and I truly appreciate your wisdom, friendship and support.  The jokes around here aren't half bad either--which is a nearly incalculable value-added bonus.

    Warmest regards from the desert.

    Anne

  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    icemantoo said:

    Yes and no

    Ann,

    I am going to try and answer your question seriously without discussing body odor.

    A lot of things cause Kidney Disease which is measured by your GFR.

    These include high blood preassure, smoking, diabities, medications, your age among others each of which reduce your Kidney function. A lower Kidney function effects heart issues and can also lead to dialysis.

     Having 1 kidney is also a cause of lower Kidney function.

     

    All of us with 1 kidney are more likely to have kidnry disease than the general public and that is why we have to watch our medications diet and blood pressure more than the general public.

     

    Kidney disease is also a spectrum disease. Those of us with perfect kidneys have a GFR of 100 or more. At 90 we are classified as having Stage 1 CKD- Chroic Kidney Disease (minor kidney function loss). At a GFR of 60 to 90 we have Stage 2 CKD (mild kidney function loss. Between 30 and 60 we have Stage 3 CKD which is loss of some Kidney function. Between  a GFR of 16 and 29  is serious loss of Kidney function and Stage 4 CKD . At 15 and below you have Stage 5 CKD and at that point you are put on dialysis. Those with Stage 3 and 4 CKD have a higher risk of heart attack or stroke.

    This is why many of us also see a Nephrologist. After my surgery 11 years ago my GFR was 60. A few years ago as a result of High Blood pressure and getting older it went down to 41. As a result of  keeping my blood pressure lower it is back up to 47.

    In conclusion having one lidney can be a factor in Kidney disease and heart issues and for those reasons we have to watch our kidney health and as to whether we use a deoderant that may have a Kidney warning first ask your  GP and if you have one ask your Nephrologist. 

    I hope this gives you food for thought on a subject (CKD) which needs more dicussion on this forum.

     Icemantoo

     

     

    Kidney "disease"

    Anne, you've had a comprehensive reply from iceman which covers the salient points with clarity and in helpful detail, so I hope a few extra comments won't go amiss. For the reasons he's already given, and others I'll add below, I agree with iceman that "CKD" is a topic "which needs more dicussion on this forum".

    I reckon you'll have appreciated why the answer 'Yes and no'  is a very good answer.  It's a sad fact of life that the fields of medicine and nutrition are littered with misleading terminology that give rise to gratuitous misunderstandings on important issues.  This is a good case in point.  The simple answer to your question - in the particular circumstances in which you've asked it - is: No (at least, not until anything more is discovered about your remaining kidney)  - the surgery has removed your kidney disease.

    Your question is anything but dumb and it gets regularly visited here, often in the context of 'diet for someone with only one kidney'.  There are no special dietary requirements for those of us who have one kidney, or less than one.  The same, sensible, diet is needed as for someone with two fully functional kidneys - the only difference is that with the reduced capacity (no 'spare' ) it becomes more important to stick to the healthy diet.

    The confusion arises from the silly use of the term CKD (chronic kidney disease) in a situation  of no disease.   Doctors have vast amounts to learn (and to try to keep learning) and medical rubrics are glaringly inadequate on crucial topics like mental illness, followed by nutrition, ehtics, and others, and there is no time for them to study philosophical abstractions, such as the relationships among structure, function and process.  So, we end up with positions like having a group of tests labelled LFTs (liver function tests) which is a misnomer - they are a mixture of tests of function and tests of damage, with important ones being damage tests misdescribd as tests of function.

    iceman has listed major factors affecting kidney function and mentioned that GFR (Glomerular Filtration Rate) is a measure of function and he's given the ranges that dictate what measures may need to be taken.   These are misleadingly referred to as 'stages of kidney disease' when they're no such thing.  Most of us here have only one kidney and many of us are past the first blush of youth.  As iceman says, age is a significant factor and his GFR, in the 40s, mostly represents his having entered middle age :)  and not that he has any disease of his lone kidney.  We need to take extra care of the kidney function we have left, BUT we don't need to be concerned about warnings for people with kidney disease, since we, generally, don't have kidney disease!

  • GSRon
    GSRon Member Posts: 1,303
    anmazon said:

    mmmmm, noshing

    Thank you, Ron.  I found a really good renal diet cookbok online , which includes some really delicious recipes as well as good dietary guidelines (including a renal food pyramid of all things).  

    Thank you, Ron (and Iceman) for your great answers to what has turned out to be a not-so-dumb question.

    You are all the best and I truly appreciate your wisdom, friendship and support.  The jokes around here aren't half bad either--which is a nearly incalculable value-added bonus.

    Warmest regards from the desert.

    Anne

    oh yea..?

    Well, I prefer having  a dessert to being in the desert....  :)

    Ron

  • anmazon
    anmazon Member Posts: 144

    Kidney "disease"

    Anne, you've had a comprehensive reply from iceman which covers the salient points with clarity and in helpful detail, so I hope a few extra comments won't go amiss. For the reasons he's already given, and others I'll add below, I agree with iceman that "CKD" is a topic "which needs more dicussion on this forum".

    I reckon you'll have appreciated why the answer 'Yes and no'  is a very good answer.  It's a sad fact of life that the fields of medicine and nutrition are littered with misleading terminology that give rise to gratuitous misunderstandings on important issues.  This is a good case in point.  The simple answer to your question - in the particular circumstances in which you've asked it - is: No (at least, not until anything more is discovered about your remaining kidney)  - the surgery has removed your kidney disease.

    Your question is anything but dumb and it gets regularly visited here, often in the context of 'diet for someone with only one kidney'.  There are no special dietary requirements for those of us who have one kidney, or less than one.  The same, sensible, diet is needed as for someone with two fully functional kidneys - the only difference is that with the reduced capacity (no 'spare' ) it becomes more important to stick to the healthy diet.

    The confusion arises from the silly use of the term CKD (chronic kidney disease) in a situation  of no disease.   Doctors have vast amounts to learn (and to try to keep learning) and medical rubrics are glaringly inadequate on crucial topics like mental illness, followed by nutrition, ehtics, and others, and there is no time for them to study philosophical abstractions, such as the relationships among structure, function and process.  So, we end up with positions like having a group of tests labelled LFTs (liver function tests) which is a misnomer - they are a mixture of tests of function and tests of damage, with important ones being damage tests misdescribd as tests of function.

    iceman has listed major factors affecting kidney function and mentioned that GFR (Glomerular Filtration Rate) is a measure of function and he's given the ranges that dictate what measures may need to be taken.   These are misleadingly referred to as 'stages of kidney disease' when they're no such thing.  Most of us here have only one kidney and many of us are past the first blush of youth.  As iceman says, age is a significant factor and his GFR, in the 40s, mostly represents his having entered middle age :)  and not that he has any disease of his lone kidney.  We need to take extra care of the kidney function we have left, BUT we don't need to be concerned about warnings for people with kidney disease, since we, generally, don't have kidney disease!

    Wow! Thanks Mr. Wedge!

    Except for the unfortunate decision to celebrate national hot dog day by eating a chile dog with my brother, I've been very well behaved in terms of my diet. And it was a really good chile dog....

    Oh, um....  Except for a hot dog, I've been really good about my diet, and I'm nervous as hell about everything else (can you tell?).

    Thanks for your kind advice, Mr. Wedge.

    I so appreciate that all of you are here for my Chicken Little moments.

    Warm regards.

    Anne

  • anmazon
    anmazon Member Posts: 144
    GSRon said:

    oh yea..?

    Well, I prefer having  a dessert to being in the desert....  :)

    Ron

    Desert vs. dessert

    Ron, I'll take a good dessert any day over a day in the desert.

    Though monsoon season started last night and my desert is delightfully WET!

    A

  • NanoSecond
    NanoSecond Member Posts: 653

    Kidney "disease"

    Anne, you've had a comprehensive reply from iceman which covers the salient points with clarity and in helpful detail, so I hope a few extra comments won't go amiss. For the reasons he's already given, and others I'll add below, I agree with iceman that "CKD" is a topic "which needs more dicussion on this forum".

    I reckon you'll have appreciated why the answer 'Yes and no'  is a very good answer.  It's a sad fact of life that the fields of medicine and nutrition are littered with misleading terminology that give rise to gratuitous misunderstandings on important issues.  This is a good case in point.  The simple answer to your question - in the particular circumstances in which you've asked it - is: No (at least, not until anything more is discovered about your remaining kidney)  - the surgery has removed your kidney disease.

    Your question is anything but dumb and it gets regularly visited here, often in the context of 'diet for someone with only one kidney'.  There are no special dietary requirements for those of us who have one kidney, or less than one.  The same, sensible, diet is needed as for someone with two fully functional kidneys - the only difference is that with the reduced capacity (no 'spare' ) it becomes more important to stick to the healthy diet.

    The confusion arises from the silly use of the term CKD (chronic kidney disease) in a situation  of no disease.   Doctors have vast amounts to learn (and to try to keep learning) and medical rubrics are glaringly inadequate on crucial topics like mental illness, followed by nutrition, ehtics, and others, and there is no time for them to study philosophical abstractions, such as the relationships among structure, function and process.  So, we end up with positions like having a group of tests labelled LFTs (liver function tests) which is a misnomer - they are a mixture of tests of function and tests of damage, with important ones being damage tests misdescribd as tests of function.

    iceman has listed major factors affecting kidney function and mentioned that GFR (Glomerular Filtration Rate) is a measure of function and he's given the ranges that dictate what measures may need to be taken.   These are misleadingly referred to as 'stages of kidney disease' when they're no such thing.  Most of us here have only one kidney and many of us are past the first blush of youth.  As iceman says, age is a significant factor and his GFR, in the 40s, mostly represents his having entered middle age :)  and not that he has any disease of his lone kidney.  We need to take extra care of the kidney function we have left, BUT we don't need to be concerned about warnings for people with kidney disease, since we, generally, don't have kidney disease!

    Agreed

    This is one where you and I are in full agreement Tex.  I could not have put it any better myself.

    I am tired of being told that I have some sort of "kidney disease". NO, I don't.  I have one very healthy kidney and I intend to do everything possible to keep it that way.

  • MDCinSC
    MDCinSC Member Posts: 574
    anmazon said:

    Wow! Thanks Mr. Wedge!

    Except for the unfortunate decision to celebrate national hot dog day by eating a chile dog with my brother, I've been very well behaved in terms of my diet. And it was a really good chile dog....

    Oh, um....  Except for a hot dog, I've been really good about my diet, and I'm nervous as hell about everything else (can you tell?).

    Thanks for your kind advice, Mr. Wedge.

    I so appreciate that all of you are here for my Chicken Little moments.

    Warm regards.

    Anne

    Chicken Little Moments

    Are regular occurences around my house! I'm sure we all have them.  Never apologize for them because we all know what they are like.

    I hope your diet has not significantly reduced your capacity for chile with an E! Laughing There are some things that require risk!  LOL

    This was a great question. Its one I should have considered myself.  You see I've proceeded with my normal diet with the exception of reducing my protein intake, waiting to see the results of my first bloodwork post nephrectomy before I make more serious adjustments to my diet. I am reviewing Nanosecond's (Neils) dietary paper for insights.

    I had already improved my diet significantly before DX by eliminating sugar, and certain very starchy foods, adding large quantities of fresh fruit and fresh vegetables prepared simply.

    Hopefully, even if I am off base, the bloodwork will provide me with more specifics as to which direction to take.

    Hang in!

    I envy your New Mexico Thunderstorms!  They are quite unlike other storms anywhere else I have ever been! A friend sent pictures of the lightning!  

    https://www.facebook.com/photo.php?fbid=10152064096768082&set=a.10150831631733082.512879.98691658081&type=1&relevant_count=1

    Impressive!

    Michael

     

  • anmazon
    anmazon Member Posts: 144

    Agreed

    This is one where you and I are in full agreement Tex.  I could not have put it any better myself.

    I am tired of being told that I have some sort of "kidney disease". NO, I don't.  I have one very healthy kidney and I intend to do everything possible to keep it that way.

    Thank you, Nano

    it seems as though it is easier to lump us into the category of "kidney disease" than "cancer survivor."

    They seem so disappointed that it was taken care of surgically, rather than chemo and radiation--like it was too easy to be "real" cancer.

    Not easy by a long shot, folks.

    Anne

  • MDCinSC
    MDCinSC Member Posts: 574
    anmazon said:

    Thank you, Nano

    it seems as though it is easier to lump us into the category of "kidney disease" than "cancer survivor."

    They seem so disappointed that it was taken care of surgically, rather than chemo and radiation--like it was too easy to be "real" cancer.

    Not easy by a long shot, folks.

    Anne

    Taken care of by surgery, for

    Taken care of by surgery, for many of us I'd say. 

    Obviously there are numbers of RCC survivors facing the chamber of horrors that is Chemo, and other treatments.  Those numbers MAY include any of the rest of us who have a "cure" through surgery.

    I believe/hope mine is cured by surgery. I'm latching on to that, BUT the small pragmatic voice in the back of my head says "for now."

    Is that a downer?  No, I don't think so.  It is a reality that keeps me on my toes, keeps me keeping my appointments, keeps me doing the things I need to do.

    Undecided

    Pax y'all!

    Michael

     

     

  • anmazon
    anmazon Member Posts: 144
    MDCinSC said:

    Chicken Little Moments

    Are regular occurences around my house! I'm sure we all have them.  Never apologize for them because we all know what they are like.

    I hope your diet has not significantly reduced your capacity for chile with an E! Laughing There are some things that require risk!  LOL

    This was a great question. Its one I should have considered myself.  You see I've proceeded with my normal diet with the exception of reducing my protein intake, waiting to see the results of my first bloodwork post nephrectomy before I make more serious adjustments to my diet. I am reviewing Nanosecond's (Neils) dietary paper for insights.

    I had already improved my diet significantly before DX by eliminating sugar, and certain very starchy foods, adding large quantities of fresh fruit and fresh vegetables prepared simply.

    Hopefully, even if I am off base, the bloodwork will provide me with more specifics as to which direction to take.

    Hang in!

    I envy your New Mexico Thunderstorms!  They are quite unlike other storms anywhere else I have ever been! A friend sent pictures of the lightning!  

    https://www.facebook.com/photo.php?fbid=10152064096768082&set=a.10150831631733082.512879.98691658081&type=1&relevant_count=1

    Impressive!

    Michael

     

    chile with an e

    Hey, Michael,

    I've had to give up my dear friend table salt, but my chile is what is keeping me going (once a week, my brother and I go to Sadie's for a bean burrito--I get my chile fix without too much "bad" protein).  Thankfully my cast iron stomach is still intact and I can eat lots of their delicious salsa.

    I'm watching the protein (urologist says 100-120 grams per day should be fine), struggling to stay below 2,000 mg of sodium per day, and keep lots of fresh fruit and veggies on hand (frozen green grapes are my favorite).

    I'm watching the sugar and the carbs and drinking 4 to 5 liters of water a day.

    Per the chile dog incident, I do slip up (or deliberately deviate, if we're going to be perfectly honest) from time to time, but these incidents are few and far between. 

    It is a struggle, but it gets easier every day.

    The thunderstorms have been spectacular, and the rain has been lovely.  Apparently a bridge washed out right after we crossed it on the train last night--NOT lovely, but pretty exciting.

    Let me know if you need me to FedEx you some chile, Michael.  It's almost roasting time!

    Warm regards.

    Anne

  • anmazon
    anmazon Member Posts: 144
    MDCinSC said:

    Taken care of by surgery, for

    Taken care of by surgery, for many of us I'd say. 

    Obviously there are numbers of RCC survivors facing the chamber of horrors that is Chemo, and other treatments.  Those numbers MAY include any of the rest of us who have a "cure" through surgery.

    I believe/hope mine is cured by surgery. I'm latching on to that, BUT the small pragmatic voice in the back of my head says "for now."

    Is that a downer?  No, I don't think so.  It is a reality that keeps me on my toes, keeps me keeping my appointments, keeps me doing the things I need to do.

    Undecided

    Pax y'all!

    Michael

     

     

    will you be my mouthpiece, Michael?

    You said it much better than I ever could.

    Pax.

    Anne

  • MDCinSC
    MDCinSC Member Posts: 574
    anmazon said:

    chile with an e

    Hey, Michael,

    I've had to give up my dear friend table salt, but my chile is what is keeping me going (once a week, my brother and I go to Sadie's for a bean burrito--I get my chile fix without too much "bad" protein).  Thankfully my cast iron stomach is still intact and I can eat lots of their delicious salsa.

    I'm watching the protein (urologist says 100-120 grams per day should be fine), struggling to stay below 2,000 mg of sodium per day, and keep lots of fresh fruit and veggies on hand (frozen green grapes are my favorite).

    I'm watching the sugar and the carbs and drinking 4 to 5 liters of water a day.

    Per the chile dog incident, I do slip up (or deliberately deviate, if we're going to be perfectly honest) from time to time, but these incidents are few and far between. 

    It is a struggle, but it gets easier every day.

    The thunderstorms have been spectacular, and the rain has been lovely.  Apparently a bridge washed out right after we crossed it on the train last night--NOT lovely, but pretty exciting.

    Let me know if you need me to FedEx you some chile, Michael.  It's almost roasting time!

    Warm regards.

    Anne

    That is the best offer

    I've had in YEARS!  I can smell the Chiles even now! 

    I'm trying to raise some here in South Carolina, but my success is limited. I bought Big Jim seeds online and the plants are just  now starting to bloom!  I still have til mid October before first danger of frost, but I'm having my doubts!

    Frown

    I'll keep your offer in mind! Cool

    Thanks!

  • MDCinSC
    MDCinSC Member Posts: 574
    anmazon said:

    will you be my mouthpiece, Michael?

    You said it much better than I ever could.

    Pax.

    Anne

    You do very well on your

    You do very well on your own! 

    You don't need a mouthpiece!

    Laughing

  • GSRon
    GSRon Member Posts: 1,303
    anmazon said:

    chile with an e

    Hey, Michael,

    I've had to give up my dear friend table salt, but my chile is what is keeping me going (once a week, my brother and I go to Sadie's for a bean burrito--I get my chile fix without too much "bad" protein).  Thankfully my cast iron stomach is still intact and I can eat lots of their delicious salsa.

    I'm watching the protein (urologist says 100-120 grams per day should be fine), struggling to stay below 2,000 mg of sodium per day, and keep lots of fresh fruit and veggies on hand (frozen green grapes are my favorite).

    I'm watching the sugar and the carbs and drinking 4 to 5 liters of water a day.

    Per the chile dog incident, I do slip up (or deliberately deviate, if we're going to be perfectly honest) from time to time, but these incidents are few and far between. 

    It is a struggle, but it gets easier every day.

    The thunderstorms have been spectacular, and the rain has been lovely.  Apparently a bridge washed out right after we crossed it on the train last night--NOT lovely, but pretty exciting.

    Let me know if you need me to FedEx you some chile, Michael.  It's almost roasting time!

    Warm regards.

    Anne

    No slip up

    Hi Anne..  What I do.. is give myself an "allowance" of sorts.   I allow myself to have one bit of read meat per month... that way I am not cheating or slipping up.   However I have not had that one piece of "dead red" this year..   But having that allowance is cool..!   So when one of my pals does decide for us to go to a steak house.. no guilt... wonder when that will happen..??  Hmm...

    On salt.. I do not miss it at all...!!   There is plenty of salt in almost everything.. you have to read every label..  It seems all the health food stores are stupid or think I am stupid..  many labels say "No Preservatives" yet they have plenty of salt... Salt is the original preservative..!  So even most frozen veggies have salt..  I use a lot of garlic and pepper for seasoning... and there are plenty of seasonings that can sway your tasted buds... time to experiment a bit..!

    Ron

  • icemantoo
    icemantoo Member Posts: 3,359 Member
    Cured by surgey

    For many of us including myself our Kidney Cancer is and was cured by surgery. This however is not a free pass to our Kidney health and Kidney disease which may arise over the years. Having only 1 kidney we must keep it in shape and if nothing ekse we must keep any high blood pressure under control.

     

     

    Icemantoo

  • MDCinSC
    MDCinSC Member Posts: 574
    icemantoo said:

    Cured by surgey

    For many of us including myself our Kidney Cancer is and was cured by surgery. This however is not a free pass to our Kidney health and Kidney disease which may arise over the years. Having only 1 kidney we must keep it in shape and if nothing ekse we must keep any high blood pressure under control.

     

     

    Icemantoo

    No Argument from me Iceman!

    I'll take the cure as long as it lasts!

  • anmazon
    anmazon Member Posts: 144
    GSRon said:

    No slip up

    Hi Anne..  What I do.. is give myself an "allowance" of sorts.   I allow myself to have one bit of read meat per month... that way I am not cheating or slipping up.   However I have not had that one piece of "dead red" this year..   But having that allowance is cool..!   So when one of my pals does decide for us to go to a steak house.. no guilt... wonder when that will happen..??  Hmm...

    On salt.. I do not miss it at all...!!   There is plenty of salt in almost everything.. you have to read every label..  It seems all the health food stores are stupid or think I am stupid..  many labels say "No Preservatives" yet they have plenty of salt... Salt is the original preservative..!  So even most frozen veggies have salt..  I use a lot of garlic and pepper for seasoning... and there are plenty of seasonings that can sway your tasted buds... time to experiment a bit..!

    Ron

    I like the idea of an allowance, Ron.

    And I'll definitely try that.  Maybe just stay away from the weiners in the future--i don't think I could have possibly chosen a worse red meat.  :)

    The salt issue... I'm realizing now how much salt there is in EVERYTHING, and have adjusted my eating habits accordingly.  However, I've been addicted to table salt since I was a child. Salt, salt, salt on everything imaginable.  The last several months before my diagnosis, I had a sea salt grinder in my desk drawer at work.  Five or six times a day, I would take it out, grind up a nice little mound and pop it in my mouth. I was craving it so badly.

    I didn't dare tell my doc about THAT, but it was probably a pretty good indicator that something was desperately wrong.

    There are no longer any salt shakers in Casa Kircher, and the sea salt grinder has been disposed of.  And I am learning to like Mrs. Dash, and am experimenting with other spices.  If there was ever any doubt that I have willpower, this should prove it--I haven't touched salt since my diagnosis.

    It's funny, it was easier to quit drinking almost 20 years ago than it has been to give up salt.

    Thank you for your kind support, Ron