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HIPEC Surgery

thxmiker's picture
thxmiker
Posts: 1282
Joined: Oct 2010

HI All!

Our adventure started with us having a BBQ with a lot of friends in Vetura County. The BBQ was a lot of fun!

 

Then we went to San Diego, Ca.  The Van broke down about 4 miles short of our destination.  It overheated in the Hot weather.  Our friend in SD knows a mechanic whom fixed the broken hose for a reasonable rate.  Our friend got up at 5a to drive us the hospital since we had no transportation. 

 

I had the Colon resection surgery.  Unfortunately the mass was behind the stomach and never showed on the CT. (It makes sense the stomach is always glowing from the contrast for the CT.)  The tumor was the size of the surgeon's open fist. (Really Large)  The colon was nearly blocked at the ostimosis and that is why I was having abdominal pain. I had to many mets for HIPEC.  One needs a certain amount of mets for HIPEC to be considered, and to many mets gets one incosidered.  Dr. Lowy did a good surgery and I was able to get up soon after I woke.  2 days later, I am walking around, waiting to pass gas so I can eat food.  lol

 

UCSD is doing a lot of genetic studies on chemo and whih meds are effective on which cancers. My tumors are getting tested through the genetic testing trials to see if UCSD has anything for me. There are about 200 current trials and several look promissing.

 

Laurie is with me and she is able to work at the extended stay hotel.  UCSD also allows her to spend the night if she desires. The staff here is friendly and helpful. I do not need a lot of attention, since I get no food, and Laurie helps me clean up and walk. She also nags at me to use the spirometer. lol  Dr. Lowy told me since the surgery was not very sever, I probably will get out of here in a week.

 

It is not the news we wanted. At the same time, things could always be worse. As long as the Doc is positive, that makes me feel better.  The Docs at MD Anderson were not positive, and I would never recomend them nor go back.

 

Best Always,  mike

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

for letting us know the update.sounds like you are doing good.just keep walking and you will be out of there in no time.keep thinking those positive thoughts and i will be praying for you...Godbless...johnnybegood

Chelsea71
Posts: 1170
Joined: Sep 2012

You're right, Mike, things can always be worse. Sorry it didn't play out the way you were hoping. Wishing you a speedy recovery. Your positive attitude is commendable. You set a good example for us all.

Chelsea

Trubrit's picture
Trubrit
Posts: 4898
Joined: Jan 2013

Sorry it wasn't better news, but like the rest of us, you're a fighter. 

You must be in good health ( cancer aside) with your juicing.

your in our prayers as always. 

Cathleen Mary
Posts: 827
Joined: May 2011

Mike,

You have such an amazing attitude!  I am sorry the HIPEC isn't an option but remain hopeful there are other viable options.  

Prayers for an easy recovery, a good treatment plan, and that your hopeful attitude is contagious!

Best,

Cathleen Mary

 

 

lp1964's picture
lp1964
Posts: 1238
Joined: Jun 2013

I wish you a fast recovery and the best possible outcome. Thank you for showing us that in even dire circumstances good attidude and optimism can be maintained. It's very inspirational. I wish your wife the best as well and applaud her for being there for you.

Where are the metastases located?

Laz

Dyanclark's picture
Dyanclark
Posts: 296
Joined: Apr 2012

I was wondering how your surgery Turned out.   Well Dr. Lentz wanted my husband to go to San Diego and to see if he was a good candidate for HIPEC.  Sorry it didn't work out for you.   We have decided not to even look into it, so my George will keep up his fight for now Without the HIPEC.  

We will just see how things go.  For now we have a break and will be @ Lake Lopez fishing Tues.  You get out of that hospital soon.  Maybe when you get out you can enjoy a few days in San Diego.  I never miss a trip to Anthony's for dinner when I am in San Diego.   

Lots of Hugs to you & your Mrs.  George & dyan

smokeyjoe
Posts: 1428
Joined: Feb 2011

Sorry HIPEC didn't work out for you.... I too went for genetic testing about two months ago, haven't heard anything from them yet ..... they said it would take a couple of months for the results to come in.      I would really like to get into an immune therapy clinical trial.  there seems to be some recruiting in the States but not here in Canada.  

wolfen's picture
wolfen
Posts: 1321
Joined: Apr 2009

So sorry it was "no go" on the HIPEC. I'm hoping they'll reach a new option for you. Here's to a speedy recovery from this leg of the journey and that you'll soon be on your way home.

Luv,

Wolfen

hippiechicks
Posts: 509
Joined: Sep 2012

If no HIPEC then something better is coming for you!  Best of luck on your recovery .. walk, walk, walk .. Wink.   Good luck to you on getting into a good trial/treatment. Speedy recovery to you!!

thxmiker's picture
thxmiker
Posts: 1282
Joined: Oct 2010

Woo Hoo I got food today.  Well, that is if one believes broth and jello is food.  lol  Tomorrow I should get soft food and progress from their. 

 

My intestines and colon came back to functioning this morning.  I walked about a mile today, while dragging an IV pole.  My IVs are limited to the basic Potasium Dextrose mixture, and the pain management pump.  Most likely I will lose the pain management pump tomorrow. 

 

We have several of the nurses jazzed about visiting the AZ.  We show them our pictures, and they told us I did not know AZ was that pretty.  lol 

 

Thanks for all of the well wishes, and positive words.  Keeping positive is half the battle in cancer. 

Best Always,  mike

 

 

thxmiker's picture
thxmiker
Posts: 1282
Joined: Oct 2010

I woke up shivering at midnight.  They doubled up the blankets up the thermostat, out heat pack on my spine.   I got poled and prodded until 6am.  Hopefully we can find an easy solution for this fever.

 

Best Always,  mike

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Doctor's orders:)

Thanks for reading my post when you're not feeling up to speed...now, you probably gotta take a nap after reading that:)

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

Things rarely seem to go easy when it comes to cancer.  It's really disappointing that the HIPEC isn't an option, but I'm glad to hear your docs are still offering some options.  Let us know how that fever is doing.  Hugs and strength~AA

thxmiker's picture
thxmiker
Posts: 1282
Joined: Oct 2010

I ended back in ICU care. (I was on a floor that could rotate between ICU, Metrology, and Better then regular care.) My Temp went up to 103.5, BP 89/47, hr 88 my body was in panick mode. I had an infection, peritonitis. This caused me to have shortness of breath, the hickups, and the temp.

 

After 12 hours of my body in stress they gave me a muscle relaxer, and then antibiotics. I bounced right back. The entre episode was about 36 hours. They kept me in metrology status until this morning and then I got released. We will stay in San Diego until Wednesday early monring, and then road trip home.

 

I have a poast op meeting with Dr. Lowy at UCSD on Tuesday. Then I will find out all the stuff that happened. I know I had cyto reduction and several mets removed. There was to mmany mets to preform HIPEC. It is ironic, that in 2010 I was not sick enough to have HIPEC, and now I am to sick to have HIPEC. We live in a crazy world.

 

We did get to see family, friends, and have a good surgery for me. Over all, not a bad trip. 

Thanks All Again for the support. It does help not to feel alone. 

Best ALways,  mike

Cathleen Mary
Posts: 827
Joined: May 2011

 

Good grief, Mike!  What a whirlwind.  So glad that you seem to be passed that trauma.  Be gentle with yourself.  Rest and safe home.

Cathleen Mary

lp1964's picture
lp1964
Posts: 1238
Joined: Jun 2013

I'm glad you are doing better. Take it easy and rest a lot. Sometimes our mind and positive attitude (even though essential) makes us do more than our body can handle.

Wish you all the best and let us know how it goes.

Laz

 

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

Mike...I am so sorry they were not able to do the HIPEC .  I hope you are recovering well from your cytoreduction.  Are they talking chemo now as an option?

 

i go in on Monday for a laparoscopic to evaluate wether or not I am a good candidate for HIPEC.  I am just hoping for some answers and some sort of a direction on what is next.

 

alex

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