as arnie said I'M BACK, another postcard from duderstadt

pete43lost_at_sea
pete43lost_at_sea Member Posts: 3,900
edited June 2013 in Colorectal Cancer #1

the meter is running, stepped out of first class onto frankfurt tarmac with 10k worth avastin as my secret weapin, 

its time to start swinging. starting gamma delta today. 

gym and ketogenic  and saunas, back into old simple effective healing routine.

atarting albendazike today, i this is the last post, see you in first class lounge in the sky

hugs,

pete

ps and as the eagles sang.

take it too the xxx xxx xxx xxx

pps a touch cryptic and short, the way i like it, less is more sonetimes, smilei am. why not, what elses do we have really

Comments

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    they suck 340ml blood in 34 vials

    so 120 ml for dc therapy, which i get back in 6 days.

    and 200 ml for gamma delta cell therapy in 9 days.

    had a sauna with ren, he looks great.

    doing full body hyperthermia 4 hours today.

    this is the worlds best medicine in my opinion, well the best i can find.

    pm me if you got any questions.

    hugs,

    pete

    ps my systemic inflamation just fell from 7 to 0.3 in week, these therapies are working, i cannot wait to see tumour markers this week, to see if the 50% fall continues

  • renw
    renw Member Posts: 282

    they suck 340ml blood in 34 vials

    so 120 ml for dc therapy, which i get back in 6 days.

    and 200 ml for gamma delta cell therapy in 9 days.

    had a sauna with ren, he looks great.

    doing full body hyperthermia 4 hours today.

    this is the worlds best medicine in my opinion, well the best i can find.

    pm me if you got any questions.

    hugs,

    pete

    ps my systemic inflamation just fell from 7 to 0.3 in week, these therapies are working, i cannot wait to see tumour markers this week, to see if the 50% fall continues

    Good to know that I look

    Good to know that I look great. :)  Actually feel quite good as well. Its very odd considering how little healthy liver I have left. Must be all the liver detox therapies. Working hard to stay this way. Its a full time job.

  • thxmiker
    thxmiker Member Posts: 1,278

    they suck 340ml blood in 34 vials

    so 120 ml for dc therapy, which i get back in 6 days.

    and 200 ml for gamma delta cell therapy in 9 days.

    had a sauna with ren, he looks great.

    doing full body hyperthermia 4 hours today.

    this is the worlds best medicine in my opinion, well the best i can find.

    pm me if you got any questions.

    hugs,

    pete

    ps my systemic inflamation just fell from 7 to 0.3 in week, these therapies are working, i cannot wait to see tumour markers this week, to see if the 50% fall continues

    We are glad things are going

    We are glad things are going well for you Pete!   I love reading the updates.   

     

    We leave tonight for California.  Tuesday is preop and all tests.  Friday is surgery and HIPEC, from the best medical in the USA,  UCSD Moore's Cancer Center.  Because they are a research hospital they can do treatments not available in other hospitals. I am with you, the standard treatments are not good enough.

     

    Best Always,  mike 

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    renw said:

    Good to know that I look

    Good to know that I look great. :)  Actually feel quite good as well. Its very odd considering how little healthy liver I have left. Must be all the liver detox therapies. Working hard to stay this way. Its a full time job.

    its a shame I am straight

    we cannot take this cancer battle to seriously, laughter an smiling is good for us per bruce lipton.

    hugs,

    Pete

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    thxmiker said:

    We are glad things are going

    We are glad things are going well for you Pete!   I love reading the updates.   

     

    We leave tonight for California.  Tuesday is preop and all tests.  Friday is surgery and HIPEC, from the best medical in the USA,  UCSD Moore's Cancer Center.  Because they are a research hospital they can do treatments not available in other hospitals. I am with you, the standard treatments are not good enough.

     

    Best Always,  mike 

    goodluck mike

    your on the prayer list, mate.

    are you doing preop cimetidine, heaps of coriolous, shitake.

    for what its worth ask the surgeon to cut an save tumour samples for doctor chang in new york, get some shiiit hot vaccines made out of the surgery.

    alas I may do hipec if my recurrence 2 does not respond to the german kitchen sink approach.

    do some coffee enemas in the hospital, teach the nurses a few tricks, its should get a few smiles.

    consider the retention enemas with probiotics a good one. the surgery decimates your gut bacteria. alot of preop planning for hipec. the lastest hipec trial is being done out of a german hospital, some about the style of hipec delivery post surgery.

    I would seriously look at strategies to boost liver detox post surgery, google our standard lef supplements, I think you already have done this.

    a heavy mushroom program is an equally good liver detox, than even good old milk thistle.

    hang in their trooper, see you on the other side, hopefully in the 23rd century.

    hugs always,

    pete

    ps thanks for replying, its fun being the csn outcast

     

     

  • renw
    renw Member Posts: 282

    goodluck mike

    your on the prayer list, mate.

    are you doing preop cimetidine, heaps of coriolous, shitake.

    for what its worth ask the surgeon to cut an save tumour samples for doctor chang in new york, get some shiiit hot vaccines made out of the surgery.

    alas I may do hipec if my recurrence 2 does not respond to the german kitchen sink approach.

    do some coffee enemas in the hospital, teach the nurses a few tricks, its should get a few smiles.

    consider the retention enemas with probiotics a good one. the surgery decimates your gut bacteria. alot of preop planning for hipec. the lastest hipec trial is being done out of a german hospital, some about the style of hipec delivery post surgery.

    I would seriously look at strategies to boost liver detox post surgery, google our standard lef supplements, I think you already have done this.

    a heavy mushroom program is an equally good liver detox, than even good old milk thistle.

    hang in their trooper, see you on the other side, hopefully in the 23rd century.

    hugs always,

    pete

    ps thanks for replying, its fun being the csn outcast

     

     

    Keeping a big enough sample

    Keeping a big enough sample is a very good idea. You need about 1cm3 for a single dendritic cell priming. It may give you another option down the road.

    One thing to watch out for. Typically samples are put into parafin. This is ok for doing generic testing etc., but its useless for immunotherapy. For this you need the cells to be kept alive, eg: frozen.

  • emma_s
    emma_s Member Posts: 22

    they suck 340ml blood in 34 vials

    so 120 ml for dc therapy, which i get back in 6 days.

    and 200 ml for gamma delta cell therapy in 9 days.

    had a sauna with ren, he looks great.

    doing full body hyperthermia 4 hours today.

    this is the worlds best medicine in my opinion, well the best i can find.

    pm me if you got any questions.

    hugs,

    pete

    ps my systemic inflamation just fell from 7 to 0.3 in week, these therapies are working, i cannot wait to see tumour markers this week, to see if the 50% fall continues

    Local hyperthermia vs to full body hyperthermia

    Pete,

    Are there any benefit of doing local hyperthermia? My husband has multiple mets in liver, lungs and a few in bones. I think he wouldn't be able to tolerate whole - body hyperthermia.

    He is on Folfiri, Avastin & Zometa treatment now and I've heard that hyperthermia inhances the chemo unti-tumor kill.

    Cheers,

    Emma

     

     

  • renw
    renw Member Posts: 282
    emma_s said:

    Local hyperthermia vs to full body hyperthermia

    Pete,

    Are there any benefit of doing local hyperthermia? My husband has multiple mets in liver, lungs and a few in bones. I think he wouldn't be able to tolerate whole - body hyperthermia.

    He is on Folfiri, Avastin & Zometa treatment now and I've heard that hyperthermia inhances the chemo unti-tumor kill.

    Cheers,

    Emma

     

     

    Local hyperthermia is used

    Local hyperthermia is used when you have say mets in one location like the liver or lungs etc. Whole body is preferrable if there are mets in multiple locations.

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    emma_s said:

    Local hyperthermia vs to full body hyperthermia

    Pete,

    Are there any benefit of doing local hyperthermia? My husband has multiple mets in liver, lungs and a few in bones. I think he wouldn't be able to tolerate whole - body hyperthermia.

    He is on Folfiri, Avastin & Zometa treatment now and I've heard that hyperthermia inhances the chemo unti-tumor kill.

    Cheers,

    Emma

     

     

    dear emma i sincerely hope so

    i have done 30 locals and 8 full bodies, its worth a consult with a doctor exoetienced with ht. using ht with chemo, immunothetapies delivers the best benefit i believe doing both beneficial. the higher temp from local radiowaves at 46 degrees for an hour with ozone or ndv is good. the other week i did fullbody with oxaliplatin. time will tell for me.

    goodluck. i found sauna therapy a good intro to full body ht, i cope ok many dont, itsnot a one off miracle, i plan on some form of ht every week, but i am obsessive in the extreme and a touuch  focused or desperate, these thetapies have to work or i am up the creek without a paddle.

    i have faith in these therapies, so few use them, in fact australias first heckel

    sits largely unused in hobart, i was the first patient, an achievement i am proud of, it could treat 10 patients a week, potentialy offering reduced tumour burden, increased immune function, i am so frustrated by waste oppotunity, of wasted life

    hugs,

    pete

  • thingy45
    thingy45 Member Posts: 632

    dear emma i sincerely hope so

    i have done 30 locals and 8 full bodies, its worth a consult with a doctor exoetienced with ht. using ht with chemo, immunothetapies delivers the best benefit i believe doing both beneficial. the higher temp from local radiowaves at 46 degrees for an hour with ozone or ndv is good. the other week i did fullbody with oxaliplatin. time will tell for me.

    goodluck. i found sauna therapy a good intro to full body ht, i cope ok many dont, itsnot a one off miracle, i plan on some form of ht every week, but i am obsessive in the extreme and a touuch  focused or desperate, these thetapies have to work or i am up the creek without a paddle.

    i have faith in these therapies, so few use them, in fact australias first heckel

    sits largely unused in hobart, i was the first patient, an achievement i am proud of, it could treat 10 patients a week, potentialy offering reduced tumour burden, increased immune function, i am so frustrated by waste oppotunity, of wasted life

    hugs,

    pete

    As always in awe

    Hi Pete, 

    as always in awe of all what you do and your energy. I so wish for you that it al works out ok. It is interesting for me to read the approach from the German specialist and if it all works, more power to you.

    I am glad you stil post for the people among us who like to read and hear you progress.

    great you got to meet with Ren we need all the support we can get, does not matter in what state we are of this decease.

    when we are NED we worry and when we are reoccurring we worry, support is a big help.

    take care friend, keep us posted,

    hugs Marjan

  • emma_s
    emma_s Member Posts: 22

    dear emma i sincerely hope so

    i have done 30 locals and 8 full bodies, its worth a consult with a doctor exoetienced with ht. using ht with chemo, immunothetapies delivers the best benefit i believe doing both beneficial. the higher temp from local radiowaves at 46 degrees for an hour with ozone or ndv is good. the other week i did fullbody with oxaliplatin. time will tell for me.

    goodluck. i found sauna therapy a good intro to full body ht, i cope ok many dont, itsnot a one off miracle, i plan on some form of ht every week, but i am obsessive in the extreme and a touuch  focused or desperate, these thetapies have to work or i am up the creek without a paddle.

    i have faith in these therapies, so few use them, in fact australias first heckel

    sits largely unused in hobart, i was the first patient, an achievement i am proud of, it could treat 10 patients a week, potentialy offering reduced tumour burden, increased immune function, i am so frustrated by waste oppotunity, of wasted life

    hugs,

    pete

    Thank you Ren & Pete for a quick response!

    My husband and I've been following your tough journey for a month or so and amazed by your courage and energy. Hope those therapies will work for you eventually, our thoughts with you guys!

    As to ht, It's a good idea to start with sauna therapy first to see how my husband tolerates it.

    Much love,

    Emma

  • renw
    renw Member Posts: 282
    emma_s said:

    Thank you Ren & Pete for a quick response!

    My husband and I've been following your tough journey for a month or so and amazed by your courage and energy. Hope those therapies will work for you eventually, our thoughts with you guys!

    As to ht, It's a good idea to start with sauna therapy first to see how my husband tolerates it.

    Much love,

    Emma

    I personally think that hot

    I personally think that hot baths when fully submerged in hot water is a much better preparation for hyperthermia. I find typical saunas harder to tolerate than the hypertherma treatment itself.

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    renw said:

    I personally think that hot

    I personally think that hot baths when fully submerged in hot water is a much better preparation for hyperthermia. I find typical saunas harder to tolerate than the hypertherma treatment itself.

    got to agree with ren on super hot baths

    you need to watch vaso dilation, do some googling on hot bath therapy, maybe ren can write it up.

    i got my core to 39.3 in a super hot unoleasant  bath, could barely get from bath to heckel test without nurses support.

    i suspect it possible to nobilise lymphocytes from spleen and bone marrow, but need to confirm somehow, no net here, just phone. 

    be careful, watch  pulse, bp, core temp. 38 is high enoufh and safer to boost immune.

    with professional ht, they do the full  ecg which i think essential unless you are really well and experienced.

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    emma_s said:

    Local hyperthermia vs to full body hyperthermia

    Pete,

    Are there any benefit of doing local hyperthermia? My husband has multiple mets in liver, lungs and a few in bones. I think he wouldn't be able to tolerate whole - body hyperthermia.

    He is on Folfiri, Avastin & Zometa treatment now and I've heard that hyperthermia inhances the chemo unti-tumor kill.

    Cheers,

    Emma

     

     

    Please see this site for more info

    http://www.cancer.gov/cancertopics/factsheet/Therapy/hyperthermia