Hallwang and Other German Therapies

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renw
renw Member Posts: 282 Member
in Colorectal Cancer #1

My experience with Hallwang and other German therapies has been more brutal than most, but I assume that is due to my high tumour burden. I have been documenting everything on my blog for anyone interested: mcrc4.com

I stopped systemic chemo 6 weeks ago now. I was classed as having stable disease, while on chemo, but that is a deceptive term. A stable disease is anything with less than 25% growth, so although I was officially 'stable' most of my tumours still grew. To continue down the chemo path, for me at least , I knew was a dead end.

Again one of my oncolgists told me that should I stop chemo, I would have maybe 2 months. Well its been 6 weeks now and I am still in relatively good health (my oncologist will be sooo disappointed), so I am hoping that the german therapies are doing something positive. I'll know for sure next month when I get my next MRI.

I still believe that focusing on the immune system and immunotherapies is the way to go.

Comments

  • coloCan
    coloCan CSN Member Posts: 1,944 Member
    #2
    Latest on immune system approach

    http://consumer.healthday.com/Article.asp?AID=676431

    tho who knows when/if actually available for those who need it if it works

  • manwithnoname
    manwithnoname CSN Member Posts: 402
    #3
    coloCan said:

    Latest on immune system approach

    http://consumer.healthday.com/Article.asp?AID=676431

    tho who knows when/if actually available for those who need it if it works

    i know about

    PD-1 from glioma studies, it's a great target.

    On a note about immunotherapy I talked to a mother who's kid was in a coma, this kid had done 21 brain surgeries and 4 spinal for multiple reccurent tumours + several chemo regimes and maximum radiation, she was given Sirolimus which is an immune suppresent, she came out of coma and has stable disease which might even be regressing. 

    Bizarre.

  • coloCan
    coloCan CSN Member Posts: 1,944 Member
    #4
    manwithnoname said:

    i know about

    PD-1 from glioma studies, it's a great target.

    On a note about immunotherapy I talked to a mother who's kid was in a coma, this kid had done 21 brain surgeries and 4 spinal for multiple reccurent tumours + several chemo regimes and maximum radiation, she was given Sirolimus which is an immune suppresent, she came out of coma and has stable disease which might even be regressing. 

    Bizarre.

    There's an ASCO conference coming up May 31 so there

    should be more reports on CRC and other cancers as drug companies and researchers publicize their results thus far

  • renw
    renw Member Posts: 282 Member
    #5
    manwithnoname said:

    i know about

    PD-1 from glioma studies, it's a great target.

    On a note about immunotherapy I talked to a mother who's kid was in a coma, this kid had done 21 brain surgeries and 4 spinal for multiple reccurent tumours + several chemo regimes and maximum radiation, she was given Sirolimus which is an immune suppresent, she came out of coma and has stable disease which might even be regressing. 

    Bizarre.

    some impact on t-reg cells

    some impact on t-reg cells perhaps?

  • renw
    renw Member Posts: 282 Member
    #6
    coloCan said:

    Latest on immune system approach

    http://consumer.healthday.com/Article.asp?AID=676431

    tho who knows when/if actually available for those who need it if it works

    Only 29 out of 140 had a

    Only 29 out of 140 had a partial remission, 26 continued to get a long term benefit, 1 had full remission. 3 died from the treatment. Although it sounds great, you are 3 times as likely to die from the treatment  than to achive full remission. Still better than chemo but.

  • manwithnoname
    manwithnoname CSN Member Posts: 402
    #7
    renw said:

    some impact on t-reg cells

    some impact on t-reg cells perhaps?

    T-reg

    and also TAM's and MDSC's also various cytokines, it also generates memory T-cells in cancer vaccine therapy.

    Our Onc. will prescribe it.

  • traci43
    traci43 CSN Member Posts: 771 Member
    #8
    Your blog is amazing!

    The amount of information you've amassed there is incredible.  You are rational and even in your posts.  I've been fighting colon cancer for 6 years now and have just scratched the surface.   Thanks for sharing!  Traci

  • johnsnowden
    johnsnowden Member Posts: 20
    #9
    very interesting

    I have begun to read your blog and will be folowing your posts. thank you for sharing.

  • Chelsea71
    Chelsea71 CSN Member Posts: 1,169 Member
    #10
    johnsnowden said:

    very interesting

    I have begun to read your blog and will be folowing your posts. thank you for sharing.

    I too have been following
    I too have been following your blog. You write well. I understand what you're talking about. Anxious to know what's going on with the infected port. Looking forward to the next installment.
  • renw
    renw Member Posts: 282 Member
    #11
    traci43 said:

    Your blog is amazing!

    The amount of information you've amassed there is incredible.  You are rational and even in your posts.  I've been fighting colon cancer for 6 years now and have just scratched the surface.   Thanks for sharing!  Traci

    thx. Glad people are finding

    thx. Glad people are finding it useful. That's the main reason that I am documenting everything so that others can learn from my mistakes and hopefully sucesses as well. 

  • renw
    renw Member Posts: 282 Member
    #12
    Chelsea71 said:

    I too have been following
    I too have been following your blog. You write well. I understand what you're talking about. Anxious to know what's going on with the infected port. Looking forward to the next installment.

    Looks like I am loosing the

    Looks like I am loosing the port battle. I am taking a 2 week break so there will not be any  blog updates till i get back into the swing of things again.

  • Chelsea71
    Chelsea71 CSN Member Posts: 1,169 Member
    #13
    renw said:

    Looks like I am loosing the

    Looks like I am loosing the port battle. I am taking a 2 week break so there will not be any  blog updates till i get back into the swing of things again.

    Good luck. Enjoy your break.
    Good luck. Enjoy your break.
  • annalexandria
    annalexandria CSN Member Posts: 2,571 Member
    #14
    renw said:

    Looks like I am loosing the

    Looks like I am loosing the port battle. I am taking a 2 week break so there will not be any  blog updates till i get back into the swing of things again.

    Hoping things can get back on track soon, Ren.

    Pls keep us posted when you can.  We'll be thinking of you.  Hugs~AA

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
    #15
    renw said:

    Looks like I am loosing the

    Looks like I am loosing the port battle. I am taking a 2 week break so there will not be any  blog updates till i get back into the swing of things again.

    Crap!

    Well, hang in there. I read your blog. It's good. Thank you for posting it.

    good luck.,sending happy healing thoughts your way

    karin

  • vinaykumar
    vinaykumar Member Posts: 66 Member
    #16
    i have been following your

    i have been following your posts. i admire your courage and thoughtfulness to write down the treatments and the logic behind them.

     

  • smokeyjoe
    smokeyjoe CSN Member Posts: 1,425 Member
    #17
    annalexandria said:

    Hoping things can get back on track soon, Ren.

    Pls keep us posted when you can.  We'll be thinking of you.  Hugs~AA

    Interesting blog,  wel

    Interesting blog,  well written   ..... hope your port issues clear up soon. 

  • smokeyjoe
    smokeyjoe CSN Member Posts: 1,425 Member
    #18
    coloCan said:

    Latest on immune system approach

    http://consumer.healthday.com/Article.asp?AID=676431

    tho who knows when/if actually available for those who need it if it works

    Interesting,  I went to the

    Interesting,  I went to the site and was happy to see that the place I have gone to for genetic testing was listed amongst the hospitals they have in their network...... 

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