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May 16, 2013 - 5:55 am
My experience with Hallwang and other German therapies has been more brutal than most, but I assume that is due to my high tumour burden. I have been documenting everything on my blog for anyone interested: mcrc4.com I stopped systemic chemo 6 weeks ago now. I was classed as having stable disease, while on chemo, but that is a deceptive term. A stable disease is anything with less than 25% growth, so although I was officially 'stable' most of my tumours still grew. To continue down the chemo path, for me at least , I knew was a dead end. Again one of my oncolgists told me that should I stop chemo, I would have maybe 2 months. Well its been 6 weeks now and I am still in relatively good health (my oncologist will be sooo disappointed), so I am hoping that the german therapies are doing something positive. I'll know for sure next month when I get my next MRI. I still believe that focusing on the immune system and immunotherapies is the way to go. |
Joined: Oct 2009
Latest on immune system approach
http://consumer.healthday.com/Article.asp?AID=676431
tho who knows when/if actually available for those who need it if it works
Joined: Jun 2012
i know about
PD-1 from glioma studies, it's a great target.
On a note about immunotherapy I talked to a mother who's kid was in a coma, this kid had done 21 brain surgeries and 4 spinal for multiple reccurent tumours + several chemo regimes and maximum radiation, she was given Sirolimus which is an immune suppresent, she came out of coma and has stable disease which might even be regressing.
Bizarre.
Joined: Oct 2009
There's an ASCO conference coming up May 31 so there
should be more reports on CRC and other cancers as drug companies and researchers publicize their results thus far
Joined: Jan 2013
some impact on t-reg cells
some impact on t-reg cells perhaps?
Joined: Jun 2012
T-reg
and also TAM's and MDSC's also various cytokines, it also generates memory T-cells in cancer vaccine therapy.
Our Onc. will prescribe it.
Joined: Jan 2013
Only 29 out of 140 had a
Only 29 out of 140 had a partial remission, 26 continued to get a long term benefit, 1 had full remission. 3 died from the treatment. Although it sounds great, you are 3 times as likely to die from the treatment than to achive full remission. Still better than chemo but.
Joined: Feb 2011
Interesting, I went to the
Interesting, I went to the site and was happy to see that the place I have gone to for genetic testing was listed amongst the hospitals they have in their network......
Joined: Jul 2007
Your blog is amazing!
The amount of information you've amassed there is incredible. You are rational and even in your posts. I've been fighting colon cancer for 6 years now and have just scratched the surface. Thanks for sharing! Traci
Joined: Jan 2013
thx. Glad people are finding
thx. Glad people are finding it useful. That's the main reason that I am documenting everything so that others can learn from my mistakes and hopefully sucesses as well.
Joined: May 2013
very interesting
I have begun to read your blog and will be folowing your posts. thank you for sharing.
Joined: Sep 2012
I too have been following
I too have been following your blog. You write well. I understand what you're talking about. Anxious to know what's going on with the infected port. Looking forward to the next installment.
Joined: Jan 2013
Looks like I am loosing the
Looks like I am loosing the port battle. I am taking a 2 week break so there will not be any blog updates till i get back into the swing of things again.
Joined: Sep 2012
Good luck. Enjoy your break.
Good luck. Enjoy your break.
Joined: Oct 2011
Hoping things can get back on track soon, Ren.
Pls keep us posted when you can. We'll be thinking of you. Hugs~AA
Joined: Feb 2011
Interesting blog, wel
Interesting blog, well written ..... hope your port issues clear up soon.
Joined: Jun 2012
Crap!
Well, hang in there. I read your blog. It's good. Thank you for posting it.
good luck.,sending happy healing thoughts your way
karin
Joined: Dec 2012
i have been following your
i have been following your posts. i admire your courage and thoughtfulness to write down the treatments and the logic behind them.