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renw
renw Member Posts: 282 Member
in Colorectal Cancer #1

Finally got around to putting up a blog for anyone who may be interested. Still work in progress and lots more info will go up in the coming weeks.

http://www.mcrc4.com

Comments

  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #2
    just fantastic

    i am so jealous, yours looks so good.

    hugs,

    pete

  • wawaju04976
    wawaju04976 Member Posts: 316 Member
    #3
    Blog

    Excellent blog...Thank you!

    Judy

  • janie1
    janie1 CSN Member Posts: 753 Member
    #4
    wawaju04976 said:

    Blog

    Excellent blog...Thank you!

    Judy

    Very clearly written. I
    Very clearly written. I would be interested in hearing your experience with the clinical trial. You may have picked a bad one. Hopefully there are a few good ones currently.
  • annalexandria
    annalexandria CSN Member Posts: 2,571 Member
    #5
    Lots of interesting stuff there...

    and well-writen.  Glad you're sharing your story this way.  AA

  • renw
    renw Member Posts: 282 Member
    #6
    janie1 said:

    Very clearly written. I
    Very clearly written. I would be interested in hearing your experience with the clinical trial. You may have picked a bad one. Hopefully there are a few good ones currently.

    I'll put my experience with

    I'll put my experience with the clinical trial in the next few days. Most clinical trials I believe are detrimental to patients. The main reason is the researchers running the trials are primarily interested in PFS and/or OS and to get objective figures they will discourage you from other treatment options which may influence their results or may mean they have to cross you off the trial. Phase 1 studies can be dangerous, In phase 2 dosage trials u may not get the right dose etc. The main thing is to do a lot of research and weigh up the risks. Some trials are worth the risk most are not.

  • renw
    renw Member Posts: 282 Member
    #7
    janie1 said:

    Very clearly written. I
    Very clearly written. I would be interested in hearing your experience with the clinical trial. You may have picked a bad one. Hopefully there are a few good ones currently.

    FYI: the clinical trial post

    FYI: the clinical trial post is up: http://www.mcrc4.com/?p=113

  • tanstaafl
    tanstaafl CSN Member Posts: 1,312 Member
    #8
    trials, n=1

    Ren, you're doing a great job.   

    Don't know if you've seen this yet links on self driven experimentation, from Ben Williams, PhD, a 17 yr GBM survivior  http://www.virtualtrials.com/williams.cfm

    For techies wanting home cooking and perhaps some extra DIY chances

    Keep up the good work, and just be careful.

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