Very clearly written. I would be interested in hearing your experience with the clinical trial. You may have picked a bad one. Hopefully there are a few good ones currently.
I'll put my experience with the clinical trial in the next few days. Most clinical trials I believe are detrimental to patients. The main reason is the researchers running the trials are primarily interested in PFS and/or OS and to get objective figures they will discourage you from other treatment options which may influence their results or may mean they have to cross you off the trial. Phase 1 studies can be dangerous, In phase 2 dosage trials u may not get the right dose etc. The main thing is to do a lot of research and weigh up the risks. Some trials are worth the risk most are not.
Don't know if you've seen this yet links on self driven experimentation, from Ben Williams, PhD, a 17 yr GBM survivior http://www.virtualtrials.com/williams.cfm
For techies wanting home cooking and perhaps some extra DIY chances
Joined: Nov 2010
just fantastic
i am so jealous, yours looks so good.
hugs,
pete
Joined: Dec 2012
Blog
Excellent blog...Thank you!
Judy
Joined: Apr 2011
Very clearly written. I
Very clearly written. I would be interested in hearing your experience with the clinical trial. You may have picked a bad one. Hopefully there are a few good ones currently.
Joined: Jan 2013
I'll put my experience with
I'll put my experience with the clinical trial in the next few days. Most clinical trials I believe are detrimental to patients. The main reason is the researchers running the trials are primarily interested in PFS and/or OS and to get objective figures they will discourage you from other treatment options which may influence their results or may mean they have to cross you off the trial. Phase 1 studies can be dangerous, In phase 2 dosage trials u may not get the right dose etc. The main thing is to do a lot of research and weigh up the risks. Some trials are worth the risk most are not.
Joined: Jan 2013
FYI: the clinical trial post
FYI: the clinical trial post is up: http://www.mcrc4.com/?p=113
Joined: Oct 2011
Lots of interesting stuff there...
and well-writen. Glad you're sharing your story this way. AA
Joined: Oct 2010
trials, n=1
Ren, you're doing a great job.
Don't know if you've seen this yet links on self driven experimentation, from Ben Williams, PhD, a 17 yr GBM survivior http://www.virtualtrials.com/williams.cfm
For techies wanting home cooking and perhaps some extra DIY chances
Keep up the good work, and just be careful.