Blog
Finally got around to putting up a blog for anyone who may be interested. Still work in progress and lots more info will go up in the coming weeks.
Comments
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just fantastic
i am so jealous, yours looks so good.
hugs,
pete
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Blog
Excellent blog...Thank you!
Judy
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Very clearly written. Iwawaju04976 said:Blog
Excellent blog...Thank you!
Judy
Very clearly written. I would be interested in hearing your experience with the clinical trial. You may have picked a bad one. Hopefully there are a few good ones currently.0 -
Lots of interesting stuff there...
and well-writen. Glad you're sharing your story this way. AA
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I'll put my experience withjanie1 said:Very clearly written. I
Very clearly written. I would be interested in hearing your experience with the clinical trial. You may have picked a bad one. Hopefully there are a few good ones currently.I'll put my experience with the clinical trial in the next few days. Most clinical trials I believe are detrimental to patients. The main reason is the researchers running the trials are primarily interested in PFS and/or OS and to get objective figures they will discourage you from other treatment options which may influence their results or may mean they have to cross you off the trial. Phase 1 studies can be dangerous, In phase 2 dosage trials u may not get the right dose etc. The main thing is to do a lot of research and weigh up the risks. Some trials are worth the risk most are not.
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FYI: the clinical trial postjanie1 said:Very clearly written. I
Very clearly written. I would be interested in hearing your experience with the clinical trial. You may have picked a bad one. Hopefully there are a few good ones currently.FYI: the clinical trial post is up: http://www.mcrc4.com/?p=113
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trials, n=1
Ren, you're doing a great job.
Don't know if you've seen this yet links on self driven experimentation, from Ben Williams, PhD, a 17 yr GBM survivior http://www.virtualtrials.com/williams.cfm
For techies wanting home cooking and perhaps some extra DIY chances
Keep up the good work, and just be careful.
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