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9 months NED

CivilMatt's picture
Posts: 4336
Joined: May 2012

Fellow H&Ners,

I am happy (ecstatic) to say after a call this evening from my radiation oncologist I am officially “NED in the head” . She said my PET/CT scan results were beautiful and it was all good. To be doubly sure I had an exam by my ENT (throat and lower tongue scope, tongue pull to gag and neck feel all-a-round) and he said all clear, your good (except for dry mouth and fibrosis, but even that is ok).

If I was a drinking man I would have a belt, instead I will just be happy and put the scanxiety to rest for 3 more months.

Your Oregon warrior,


Pam M's picture
Pam M
Posts: 2196
Joined: Nov 2009

Get down with your beautiful self!

Skiffin16's picture
Posts: 8286
Joined: Sep 2009

I knew you had it in you Matt...

Now you don't...


Billie67's picture
Posts: 843
Joined: Jul 2012

You were the first person to introduce yourself to me when I first came on and I remember thinking to myself "this guy is so positive and upbeat, I can't wait to feel like that again"
Now I can't wait to be even more like you! Way to go.......now time to celebrate.
enjoy this NED, you've worked hard for it.

wolfen's picture
Posts: 1313
Joined: Apr 2009

Congrats on meeting that guy NED! Relax and enjoy the holidays.



cureitall66's picture
Posts: 912
Joined: Aug 2012


Happy to hear your results. I know you will continue to get those NED's.. now get your jolly hat on and have a Merry Christmas!


Tim6003's picture
Posts: 1511
Joined: Nov 2011

Question if I may..you had a 9month PET/CT? or just CT? I've only had the one PET/CT 3 months after my last tx and all the rest have been CT/ w contrast other than the initial stageing PET/CT.....I always wonder why some get the PET/CT and others don't. :)

All the same....one state over in Idaho I'm happy for your Christmas gift NED!



CivilMatt's picture
Posts: 4336
Joined: May 2012


At 6 months I was told I did not need any scans (just visual pokes and prods). I was upset and by the time I got things straightened out it was 7 months. I was persuaded to wait until 9 months (which I did) and then had the PET/CT scan.

First I talked with my insurance and they were ok for a scan I just had to get a doctor to order one (I also mentioned my concerns for reoccurrence, from what I’ve read). I lined up (in my mind) all four of my doctors and picked the one who liked me the best (rad onc) and asked her for a scan, she agreed and I was on for a 9 month PET/CT scan.

I’ve had a lot of trouble getting past the idea that stage IVa , scc, bot, hpv+ is no big deal. I’ve learned a tremendous amount from this forum about being proactive and your own best advocate.

Thanks Tim,


Posts: 134
Joined: May 2012

Guess he knew you had been more nice than naughty this year and deserved the gift of NED.

Congratulations and Merry Christmas!!


blackswampboy's picture
Posts: 341
Joined: Jul 2012

whoa, that's terrific.
here's a virtual shot of whiskey, to your continued health.
best wishes, douglas

lts's picture
Posts: 75
Joined: Nov 2012

Lotta NED talk on here lately. I like it.

Happy for you Matt.


Tonsil Dad's picture
Tonsil Dad
Posts: 489
Joined: Dec 2011

Congrats Matt on receiving the best three letters in the alphabet,
enjoy the Christmas holidays..." and may all your Christmas's be NED "

God bless
Tonsil dad,


jtl's picture
Posts: 455
Joined: Sep 2011

And to everyone else who has NED. I don't post much but when I do login on I always see new names so it is encouraging to the NED. Keep them coming. I am a little over a year post and so far I am pleased with the results. I have had 2 PET/CT scans sinced I finish Rads with another scheduled next March. So basically, I am getting 2 per year along with bi-monthly exams by both my ENT and Rad Onc.

I think the reason for CT vs PET or PET/CT is all about $$$$$. I prefer to get a PET but that is because my original CT did not spot my cancer as it turns out I end up getting both for comparative reasons. I did not have a lump or mass but rather an irreguar area on the lower oropharynx that only the PET picked up.

osmotar's picture
Posts: 1005
Joined: Jul 2011

Another warrior joins the NED ranks!!!. Yeah....congrats..wahoooooo!!!

NJShore's picture
Posts: 423
Joined: Nov 2012


I am so excited for you! Congratulations! I am doing the NED dance for you.

What a wonderful day it is.. Now. :)

You go warrior,


ooo's picture
Posts: 107
Joined: Mar 2012

Fabulous! :)

phrannie51's picture
Posts: 4674
Joined: Mar 2012

It"s nerve wracking isn't it? I love good news.


hwt's picture
Posts: 2330
Joined: Jun 2012

That's wonderful Matt...you are so deserving. Happy way to celebrate the holidays!

luv4lacrosse's picture
Posts: 1410
Joined: Jul 2010

Matt, I am so happy for you. This makes my day, and here's to many more.

What a gift to receive before Christmas.

I am hapy for you and your famliy.

Best Christmas wishes for you and your family.



Posts: 62
Joined: Jul 2012

Very glad to hear the words NED they are always a delight. Keep up the strong spirits and hope for many, many, many more NEDs..

Mrs. Sarge
Posts: 206
Joined: Apr 2012

No one really understands like a CA survivor! So glad for you Matt and all the other NEDS!! Terrific work!!!!!

josh r.
Posts: 251
Joined: Oct 2010

Hi Matt,
Great news and here's to ya! Let's cheers again in three! josh r.

Posts: 1914
Joined: May 2012

I am so terribly pleased for you....NED meets MATT for a christmas celebration ! Hurray and continued NED forever and a day ! Katie

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