9 months NED

CivilMatt
CivilMatt Member Posts: 4,724 Member
in Head and Neck Cancer #1
Fellow H&Ners,

I am happy (ecstatic) to say after a call this evening from my radiation oncologist I am officially “NED in the head” . She said my PET/CT scan results were beautiful and it was all good. To be doubly sure I had an exam by my ENT (throat and lower tongue scope, tongue pull to gag and neck feel all-a-round) and he said all clear, your good (except for dry mouth and fibrosis, but even that is ok).

If I was a drinking man I would have a belt, instead I will just be happy and put the scanxiety to rest for 3 more months.

Your Oregon warrior,

Matt
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Comments

  • Pam M
    Pam M Member Posts: 2,196
    #2
    Woo Hoo!
    Get down with your beautiful self!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #3
    NedHead..
    I knew you had it in you Matt...

    Now you don't...

    Congrats,
    John
  • Billie67
    Billie67 Member Posts: 898
    #4
    Skiffin16 said:

    NedHead..
    I knew you had it in you Matt...

    Now you don't...

    Congrats,
    John

    I'm so happy for you!
    You were the first person to introduce yourself to me when I first came on and I remember thinking to myself "this guy is so positive and upbeat, I can't wait to feel like that again"
    Now I can't wait to be even more like you! Way to go.......now time to celebrate.
    enjoy this NED, you've worked hard for it.
    Billie
  • wolfen
    wolfen Member Posts: 1,324 Member
    #5
    Billie67 said:

    I'm so happy for you!
    You were the first person to introduce yourself to me when I first came on and I remember thinking to myself "this guy is so positive and upbeat, I can't wait to feel like that again"
    Now I can't wait to be even more like you! Way to go.......now time to celebrate.
    enjoy this NED, you've worked hard for it.
    Billie

    Matt
    Congrats on meeting that guy NED! Relax and enjoy the holidays.

    Luv,

    Wolfen
  • cureitall66
    cureitall66 Member Posts: 913
    #6
    Cool Beans!
    Matt,

    Happy to hear your results. I know you will continue to get those NED's.. now get your jolly hat on and have a Merry Christmas!

    Cris
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #7
    cureitall66 said:

    Cool Beans!
    Matt,

    Happy to hear your results. I know you will continue to get those NED's.. now get your jolly hat on and have a Merry Christmas!

    Cris

    Great news Matt
    Question if I may..you had a 9month PET/CT? or just CT? I've only had the one PET/CT 3 months after my last tx and all the rest have been CT/ w contrast other than the initial stageing PET/CT.....I always wonder why some get the PET/CT and others don't. :)

    All the same....one state over in Idaho I'm happy for your Christmas gift NED!

    Best,


    Tim
  • NoDuck
    NoDuck Member Posts: 134
    #8
    Santa Came Early
    Guess he knew you had been more nice than naughty this year and deserved the gift of NED.

    Congratulations and Merry Christmas!!

    Deb
  • blackswampboy
    blackswampboy Member Posts: 341
    #9
    congrats!
    whoa, that's terrific.
    here's a virtual shot of whiskey, to your continued health.
    best wishes, douglas
  • lts
    lts Member Posts: 75
    #10
    Lotta
    Lotta NED talk on here lately. I like it.

    Happy for you Matt.

    Luke
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #11
    lts said:

    Lotta
    Lotta NED talk on here lately. I like it.

    Happy for you Matt.

    Luke

    Awesome!!
    Congrats Matt on receiving the best three letters in the alphabet,
    enjoy the Christmas holidays..." and may all your Christmas's be NED "

    God bless
    Tonsil dad,

    Dan.
  • jtl
    jtl Member Posts: 456
    #12
    Tonsil Dad said:

    Awesome!!
    Congrats Matt on receiving the best three letters in the alphabet,
    enjoy the Christmas holidays..." and may all your Christmas's be NED "

    God bless
    Tonsil dad,

    Dan.

    Congrats Matt
    And to everyone else who has NED. I don't post much but when I do login on I always see new names so it is encouraging to the NED. Keep them coming. I am a little over a year post and so far I am pleased with the results. I have had 2 PET/CT scans sinced I finish Rads with another scheduled next March. So basically, I am getting 2 per year along with bi-monthly exams by both my ENT and Rad Onc.

    Tim,
    I think the reason for CT vs PET or PET/CT is all about $$$$$. I prefer to get a PET but that is because my original CT did not spot my cancer as it turns out I end up getting both for comparative reasons. I did not have a lump or mass but rather an irreguar area on the lower oropharynx that only the PET picked up.
  • osmotar
    osmotar Member Posts: 1,006
    #13
    :)
    Another warrior joins the NED ranks!!!. Yeah....congrats..wahoooooo!!!
  • NJShore
    NJShore Member Posts: 429 Member
    #14
    Very Nice!
    Matt,

    I am so excited for you! Congratulations! I am doing the NED dance for you.

    What a wonderful day it is.. Now. :)

    You go warrior,

    Kari
  • ooo
    ooo Member Posts: 105
    #15
    Fabulous! :)

    Fabulous! :)
  • phrannie51
    phrannie51 Member Posts: 4,716
    #16
    Wonderful Matt!!!
    It"s nerve wracking isn't it? I love good news.

    P
  • hwt
    hwt Member Posts: 2,328 Member
    #17
    phrannie51 said:

    Wonderful Matt!!!
    It"s nerve wracking isn't it? I love good news.

    P

    Fantastic
    That's wonderful Matt...you are so deserving. Happy way to celebrate the holidays!
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #18
    WHAT A GIFT TO US ALL
    Matt, I am so happy for you. This makes my day, and here's to many more.

    What a gift to receive before Christmas.

    I am hapy for you and your famliy.

    Best Christmas wishes for you and your family.

    Best!!

    Mike
  • Vikeman10
    Vikeman10 Member Posts: 62
    #19
    Awesome news
    Very glad to hear the words NED they are always a delight. Keep up the strong spirits and hope for many, many, many more NEDs..
    Randy
  • Mrs. Sarge
    Mrs. Sarge Member Posts: 206 Member
    #20
    Vikeman10 said:

    Awesome news
    Very glad to hear the words NED they are always a delight. Keep up the strong spirits and hope for many, many, many more NEDs..
    Randy

    No one really understands
    No one really understands like a CA survivor! So glad for you Matt and all the other NEDS!! Terrific work!!!!!
  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #21
    Tim6003 said:

    Great news Matt
    Question if I may..you had a 9month PET/CT? or just CT? I've only had the one PET/CT 3 months after my last tx and all the rest have been CT/ w contrast other than the initial stageing PET/CT.....I always wonder why some get the PET/CT and others don't. :)

    All the same....one state over in Idaho I'm happy for your Christmas gift NED!

    Best,


    Tim

    detail of my scan journey
    Tim,

    At 6 months I was told I did not need any scans (just visual pokes and prods). I was upset and by the time I got things straightened out it was 7 months. I was persuaded to wait until 9 months (which I did) and then had the PET/CT scan.

    First I talked with my insurance and they were ok for a scan I just had to get a doctor to order one (I also mentioned my concerns for reoccurrence, from what I’ve read). I lined up (in my mind) all four of my doctors and picked the one who liked me the best (rad onc) and asked her for a scan, she agreed and I was on for a 9 month PET/CT scan.

    I’ve had a lot of trouble getting past the idea that stage IVa , scc, bot, hpv+ is no big deal. I’ve learned a tremendous amount from this forum about being proactive and your own best advocate.

    Thanks Tim,

    Matt

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