Dapsterd update !!!

Dapsterd
Dapsterd Member Posts: 291
I wish all of you so well!!! This is a scary disease, as all cancer is. My sister in law is going through hell with her rare melanona of the brain and head. Its good to see Dennycee and Soccerfreaks as well as others.... We have all had our battles. It has taken two years to accept mortality for me. I keep saying 'After the scans".....but the scans are all the time!!!!!

I am in Fla. for a couple more days but will be coming back to Michigan for scans, etc...no medication here, but complimentary stuff (which is Homeopathic stuff) and doing what the doc's say (mostly !). curious what these scans indicate cause I am doing so well !!!!!

Dec 16 blood test
Dec 17 CT of body
Dec 19 Mri of head
Dec 19 See Onc
Dec 20 See Radialologist
Jan 4 See General practioner


Take Care
Dave--49 years old stage iv with brain mets

Comments

  • AlanRinHBG
    AlanRinHBG Member Posts: 121
    update
    Good luck with all the tests, I hope nothing is found so you can celebrate happily. I have a group of tests and a scan during the same week, 3 1/2 years,it still gets to me.
  • Dapsterd
    Dapsterd Member Posts: 291

    update
    Good luck with all the tests, I hope nothing is found so you can celebrate happily. I have a group of tests and a scan during the same week, 3 1/2 years,it still gets to me.

    Thanx!
    Thanx! so much, we have both absorbed much. "It is what it is" though as we both know.

    We will be fine as long as our minds are in the right place!

    Dave
  • Ex_Rock_n_Roller
    Ex_Rock_n_Roller Member Posts: 281
    Dave!
    Hang in there, man! You are the man with the attitude! Sorry to hear about the SIL's problems. We have some "other family member" stuff going on here as well.

    Me, I'm just planning my next bucket list trip, assuming they let me leave town.
  • dennycee
    dennycee Member Posts: 842
    Glad you checked in
    Sorry you have to leave Florida! You seem to be doing very well. Sorry about your SIL. Is she here in MI? I'm on a six month schedule now. Like to think I'm doing pretty well for someone who was supposed to be a corpse a year ago. (My weird sense of humor). I've even manager to put back 70 of the 50 lbs I lost.

    Its cool that you see your onc on the same day that you have the MRI. No waiting weeks for results. I had a bx of esophagus, when I called for results the doc was on two week vacation. Kicked and hollered until another doc read report for me. I refuse to wait three weeks for a report I know can be ready in three days. Barrett's esophagus, original plan was to stretch the esophagus out. This is easier.

    Wishing you a clean scan and great reports for the holidays.
  • Ex_Rock_n_Roller
    Ex_Rock_n_Roller Member Posts: 281
    dennycee said:

    Glad you checked in
    Sorry you have to leave Florida! You seem to be doing very well. Sorry about your SIL. Is she here in MI? I'm on a six month schedule now. Like to think I'm doing pretty well for someone who was supposed to be a corpse a year ago. (My weird sense of humor). I've even manager to put back 70 of the 50 lbs I lost.

    Its cool that you see your onc on the same day that you have the MRI. No waiting weeks for results. I had a bx of esophagus, when I called for results the doc was on two week vacation. Kicked and hollered until another doc read report for me. I refuse to wait three weeks for a report I know can be ready in three days. Barrett's esophagus, original plan was to stretch the esophagus out. This is easier.

    Wishing you a clean scan and great reports for the holidays.

    "I've even manager to put back 70 of the 50 lbs I lost."
    OK, that gets my vote for post of the day, hee-hee! I myself have put on 30 of the 10 pounds I lost!
  • Dapsterd
    Dapsterd Member Posts: 291

    "I've even manager to put back 70 of the 50 lbs I lost."
    OK, that gets my vote for post of the day, hee-hee! I myself have put on 30 of the 10 pounds I lost!

    Funny!
    Thats funny guys!,...I am about the weight b4 all of this!
    I might drive to Fl. in March, I have quite a few contacts so it should be cheap, I like cheap- I mean in-expensive, depends on the scans, I should be good for surgery and rads., but the Chemo takes awhile, I hope thats not the case though.

    The latest is they try to do the scans and see the Docs right after, at the minimum I get a call in a couple days good or bad.
    Keep the chin up and look straight out !!

    Though I am getting Scanxiety !!

    Love ....dave
  • dennycee
    dennycee Member Posts: 842
    Dapsterd said:

    Funny!
    Thats funny guys!,...I am about the weight b4 all of this!
    I might drive to Fl. in March, I have quite a few contacts so it should be cheap, I like cheap- I mean in-expensive, depends on the scans, I should be good for surgery and rads., but the Chemo takes awhile, I hope thats not the case though.

    The latest is they try to do the scans and see the Docs right after, at the minimum I get a call in a couple days good or bad.
    Keep the chin up and look straight out !!

    Though I am getting Scanxiety !!

    Love ....dave

    Advisory board, scanxiety whatever else I think of
    Scanxiety can eat you up. I understand why you get it. One thing to think about if you are looking for things to occupy your mind would be to sign up for a treatment advisory board U Mich is putting together. Need to be able to go there once a year and participate on line a few times a year. Time and mileage compensated. I'm doing it. I have some ideas about chemo I am happy to share with them.
  • dennycee
    dennycee Member Posts: 842
    Dapsterd said:

    Funny!
    Thats funny guys!,...I am about the weight b4 all of this!
    I might drive to Fl. in March, I have quite a few contacts so it should be cheap, I like cheap- I mean in-expensive, depends on the scans, I should be good for surgery and rads., but the Chemo takes awhile, I hope thats not the case though.

    The latest is they try to do the scans and see the Docs right after, at the minimum I get a call in a couple days good or bad.
    Keep the chin up and look straight out !!

    Though I am getting Scanxiety !!

    Love ....dave

    So?

    What news, O Traveling Man?  (Really bad MI Rock reference. Sorry almost). 

  • Dapsterd
    Dapsterd Member Posts: 291
    dennycee said:

    Advisory board, scanxiety whatever else I think of
    Scanxiety can eat you up. I understand why you get it. One thing to think about if you are looking for things to occupy your mind would be to sign up for a treatment advisory board U Mich is putting together. Need to be able to go there once a year and participate on line a few times a year. Time and mileage compensated. I'm doing it. I have some ideas about chemo I am happy to share with them.

    Update!!!!

    I am still here!, I waiting for all the scans and doc appts.

     

    Well, MRI reveiled 30% growth on right side, could be cancer or scar tissue from past surgery and/or radiation, until they do an biopsy they dont know. They don't want to do anything, they said wait till next scan in April (ct of the body and mri of the head). I have to think, after seeing MRI,  the room is slowly running out on the right side cerebellum !

    They said the left side is doing what the radiation is supposed to do.  I am going to FLA form Feb 16 through April 2nd !

    No symptoms and feeling alright !!

    Hope everybody is serene !!

    Thanx so much dave !!

  • Dapsterd
    Dapsterd Member Posts: 291
    dennycee said:

    Advisory board, scanxiety whatever else I think of
    Scanxiety can eat you up. I understand why you get it. One thing to think about if you are looking for things to occupy your mind would be to sign up for a treatment advisory board U Mich is putting together. Need to be able to go there once a year and participate on line a few times a year. Time and mileage compensated. I'm doing it. I have some ideas about chemo I am happy to share with them.

    Update!!!!

    I am still here!, I was waiting for all the scans and doc appts.

     

    Well, MRI reveiled 30% growth on right side, could be cancer or scar tissue from past surgery and/or radiation, until they do an biopsy they dont know. They don't want to do anything, they said wait till next scan in April (ct of the body and mri of the head). I have to think, after seeing MRI,  the room is slowly running out on the right side cerebellum !

    They said the left side is doing what the radiation is supposed to do.  I am going to FLA form Feb 16 through April 2nd !

    No symptoms and feeling alright !!

    Hope everybody is serene !!

     

    Thanx so much dave !!

  • Dapsterd
    Dapsterd Member Posts: 291
    dennycee said:

    So?

    What news, O Traveling Man?  (Really bad MI Rock reference. Sorry almost). 

    Stage VI--not bad !! dapsterd update

    Thanx Dennycee ....and others.  i am good and in Fl. as we as i write....Chest and lymphs are good!....latest MRI showed 30% growth in cerebellum, Doc's say it could be cancer or scar tissue from previous gammaknife and/or surgery.  They said enjoy your time in Fl. and we will scan again in April.  so they are doing watching and waiting.

    it 's all good though....My sister in not doing as good.. as the melonoma in in her brain came back again and lungs and liver now, waiting to see the plan of attack from the docs.

     

    cancerthereishope.org       is my story

     

    Love you guys and understand your thoughts and concerns

     

    Dave

  • Raven_Amethyst
    Raven_Amethyst Member Posts: 2
    Dapsterd said:

    Stage VI--not bad !! dapsterd update

    Thanx Dennycee ....and others.  i am good and in Fl. as we as i write....Chest and lymphs are good!....latest MRI showed 30% growth in cerebellum, Doc's say it could be cancer or scar tissue from previous gammaknife and/or surgery.  They said enjoy your time in Fl. and we will scan again in April.  so they are doing watching and waiting.

    it 's all good though....My sister in not doing as good.. as the melonoma in in her brain came back again and lungs and liver now, waiting to see the plan of attack from the docs.

     

    cancerthereishope.org       is my story

     

    Love you guys and understand your thoughts and concerns

     

    Dave

    Tried contacting you on your blog

    My mom is 59, diagnosed last march with stage 2-3 sclc. It was on her broncial and could not be removed. She did radiation and chemo and her last scans showed her cancer on her broncial was gone. During that apt she complained about a lump in her butt. They took biopsy...cancer spread...a week later her stomach hurt and they took scans and those showed a mass in the lining of her stomach and masses in her lung again. Her doctors are stunned that everything came back so quickly after treatment. She starts chemo again tomorrow.

     

    mom swans to live and is fighting...she won't give up. I am pregnant with my first baby. I need mom. She has so much to live for...I know your cancer is non small cell but you seem to be a miracle. Maybe you can give insight. 

  • Raven_Amethyst
    Raven_Amethyst Member Posts: 2
    Dapsterd said:

    Stage VI--not bad !! dapsterd update

    Thanx Dennycee ....and others.  i am good and in Fl. as we as i write....Chest and lymphs are good!....latest MRI showed 30% growth in cerebellum, Doc's say it could be cancer or scar tissue from previous gammaknife and/or surgery.  They said enjoy your time in Fl. and we will scan again in April.  so they are doing watching and waiting.

    it 's all good though....My sister in not doing as good.. as the melonoma in in her brain came back again and lungs and liver now, waiting to see the plan of attack from the docs.

     

    cancerthereishope.org       is my story

     

    Love you guys and understand your thoughts and concerns

     

    Dave

    Tried contacting you on your blog

    My mom is 59, diagnosed last march with stage 2-3 sclc. It was on her broncial and could not be removed. She did radiation and chemo and her last scans showed her cancer on her broncial was gone. During that apt she complained about a lump in her butt. They took biopsy...cancer spread...a week later her stomach hurt and they took scans and those showed a mass in the lining of her stomach and masses in her lung again. Her doctors are stunned that everything came back so quickly after treatment. She starts chemo again tomorrow.

     

    mom swans to live and is fighting...she won't give up. I am pregnant with my first baby. I need mom. She has so much to live for...I know your cancer is non small cell but you seem to be a miracle. Maybe you can give insight. 

  • Dapsterd
    Dapsterd Member Posts: 291

    Tried contacting you on your blog

    My mom is 59, diagnosed last march with stage 2-3 sclc. It was on her broncial and could not be removed. She did radiation and chemo and her last scans showed her cancer on her broncial was gone. During that apt she complained about a lump in her butt. They took biopsy...cancer spread...a week later her stomach hurt and they took scans and those showed a mass in the lining of her stomach and masses in her lung again. Her doctors are stunned that everything came back so quickly after treatment. She starts chemo again tomorrow.

     

    mom swans to live and is fighting...she won't give up. I am pregnant with my first baby. I need mom. She has so much to live for...I know your cancer is non small cell but you seem to be a miracle. Maybe you can give insight. 

    Hey raven

    Hello Raven,  tell your mom its all additude, (easier said than done!) let the docs do their thing, i am doing complimentary stuff too, ...then live !...its all she can do....luckly im not discontened with my life.  The biggistest thing is know "what you can control and what you can not", then let it go.  Chances that you cant control about 90% of any situation. For anyone...being disgruntled, discontented, argumentative and opionated...is no place to be.  It just rents space in the head for other good things!

    I hope she (and you)..Live well!

    Dave

    Stage  VI LC

  • Dapsterd
    Dapsterd Member Posts: 291

    Tried contacting you on your blog

    My mom is 59, diagnosed last march with stage 2-3 sclc. It was on her broncial and could not be removed. She did radiation and chemo and her last scans showed her cancer on her broncial was gone. During that apt she complained about a lump in her butt. They took biopsy...cancer spread...a week later her stomach hurt and they took scans and those showed a mass in the lining of her stomach and masses in her lung again. Her doctors are stunned that everything came back so quickly after treatment. She starts chemo again tomorrow.

     

    mom swans to live and is fighting...she won't give up. I am pregnant with my first baby. I need mom. She has so much to live for...I know your cancer is non small cell but you seem to be a miracle. Maybe you can give insight. 

    Hey raven

    Hello Raven,  tell your mom its all additude, (easier said than done!) let the docs do their thing, i am doing complimentary stuff too, ...then live !...its all she can do....luckly im not discontened with my life.  The biggistest thing is know "what you can control and what you can not", then let it go.  Chances that you cant control about 90% of any situation. For anyone...being disgruntled, discontented, argumentative and opionated...is no place to be.  It just rents space in the head for other good things!

    I hope she (and you)..Live well!

    Dave

    Stage  VI LC

  • Dapsterd
    Dapsterd Member Posts: 291
    dennycee said:

    Advisory board, scanxiety whatever else I think of
    Scanxiety can eat you up. I understand why you get it. One thing to think about if you are looking for things to occupy your mind would be to sign up for a treatment advisory board U Mich is putting together. Need to be able to go there once a year and participate on line a few times a year. Time and mileage compensated. I'm doing it. I have some ideas about chemo I am happy to share with them.

    Dennycee

    hey bro...tell me more about u/m .

  • Dapsterd
    Dapsterd Member Posts: 291
    dennycee said:

    Advisory board, scanxiety whatever else I think of
    Scanxiety can eat you up. I understand why you get it. One thing to think about if you are looking for things to occupy your mind would be to sign up for a treatment advisory board U Mich is putting together. Need to be able to go there once a year and participate on line a few times a year. Time and mileage compensated. I'm doing it. I have some ideas about chemo I am happy to share with them.

    Dennycee

    hey bro...tell me more about u/m .