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mjohn811
mjohn811 CSN Member Posts: 2
in Breast Cancer #1
Hello everyone I am new to this website. I was diagnosed with stage 2 to 3 breast cancer in April since then I have 8 rounds of Chemo then on 9/28/12 I had a Bilatteral double mascetomy with reconstructive surgery. I have expanders in right now then after radiation they will fill them and stretch my skin then after that they will take those out and put in my implants then hopefully will be all finished. The only thing now that has me worried is before surgery they told me that I only had cancer in my left breast so they took out 7 lymphnoids and they all came back negative. But I ended up having cancer in my right breast as well and now they might want to go back in and take some lymphnoids from my right side all my tests that I had done before surgery showed no cancer in my right breast even my pet scan has this happened to anyone else? And if so what did you end up doing?

Thank-you
MJ
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Comments

  • rallendorfer
    rallendorfer CSN Member Posts: 244
    #2
    There was a post from Jessiesmom1 on
    the thread about triple negative breast cancer that sounded similar to what you experienced with the lymph nodes, but I am not sure. Just wanted to help you out. Wish I could help more. How frustrating for them to come back at you with the other side after the tests showed nothing. It sounds like you have come through a lot already!

    I hope someone else can give you some insight. You deserve some rest.
    Kay
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  • mom62
    mom62 CSN Member Posts: 604 Member
    #3
    Welcome
    MJ,

    I haven't had this experience but wanted to welcome you to the boards. I'm sure there has to be someone out there who has had this experience. I hope the rest of your treatment goes well.

    Terry
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  • mjohn811
    mjohn811 CSN Member Posts: 2
    #4
    rallendorfer said:

    There was a post from Jessiesmom1 on
    the thread about triple negative breast cancer that sounded similar to what you experienced with the lymph nodes, but I am not sure. Just wanted to help you out. Wish I could help more. How frustrating for them to come back at you with the other side after the tests showed nothing. It sounds like you have come through a lot already!

    I hope someone else can give you some insight. You deserve some rest.
    Kay

    Thank-You
    Thank-You for your replys. I go to my Oncologist today so hopefully she will be able to give me some insight on what we need to do next. I'm just trying to stay strong and get through all of this. I will keep you updated.

    MJ
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  • Kat11
    Kat11 CSN Member Posts: 1,931 Member
    #5
    mom62 said:

    Welcome
    MJ,

    I haven't had this experience but wanted to welcome you to the boards. I'm sure there has to be someone out there who has had this experience. I hope the rest of your treatment goes well.

    Terry

    Just wanted to welcome you !

    Just wanted to welcome you !
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  • disneyfan2008
    disneyfan2008 CSN Member Posts: 6,583 Member
    #6
    MJ:
    welcome...
    Denise

    MJ:

    welcome...

    Denise
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  • Gabe N Abby Mom
    Gabe N Abby Mom CSN Member Posts: 2,413
    #7
    Welcome. This is not where
    Welcome. This is not where any of us want to be, but you will find this to be a wonderful group. I get so much support and love here, I hope you find it to be the same.

    We're all different, so your docs may recommend a completely different treatment even if your dx and story is the same as someone else...I would consider/ask for an ultrasound and/or biopsy of those right lypmh nodes if your doc hasn't already done it. BTW, my doc doesn't do PET scans (except in conjunction with other tests) because they are so notoriously inaccurate...false positives, etc.

    I also think it's better to know if anything is going on with those right lymph nodes...it will allow you and your docs to put together a treatment plan that will better allow you to beat this nasty disease. And you can always get a second opinion too.

    Best wishes with this decision, and I hope there is nothing in those right nodes!

    Hugs,

    Linda
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  • Angie2U
    Angie2U CSN Member Posts: 2,991
    #8
    mjohn811 said:

    Thank-You
    Thank-You for your replys. I go to my Oncologist today so hopefully she will be able to give me some insight on what we need to do next. I'm just trying to stay strong and get through all of this. I will keep you updated.

    MJ

    Welcoming you to the board
    Welcoming you to the board too. When do you see your onco? I really don't know what to tell you, but, your doctor will be able to answer your questions. Write down what you want to know, so, you don't forget to ask anything. Come back and let us know.


    hugs, angie
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