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Dancing with NED, except for having osteoporosis...

GrandmaJ's picture
Posts: 209
Joined: Nov 2009

Although I am extremely happy to report NED on my 3rd year mammogram, chest x-ray and blood work, I am now diagnosed as having osteoporosis.

Dr. is quick to suggest IV infusion of Reclast or monthly Actonel pills. Since I have about every side effect that Femara can offer, I am of course reluctant to try these drugs and experience even more side effects.

Anyone out there on these drugs ???


ladyg's picture
Posts: 1577
Joined: Apr 2010

I have not had the Reclast yet but I am going to. It is for the same reason, a side effect of Femera.
I was doing the weekly treatment for bones for 2 years and they have gotten worse. My MO said I really need to have the infusion. I am going to have it done in Sept. One thing I can tell you is that my mother (age 87) has had Reclast twice so far and has had no problems at all. That is one reason I am more than willing to have the infusion myself.

Congrats on dancing with NED!


GrandmaJ's picture
Posts: 209
Joined: Nov 2009

Thanks, Please let me know how it goes.

DianeBC's picture
Posts: 3886
Joined: Jun 2009

Big congrats on NED!

SIROD's picture
Posts: 2199
Joined: Jun 2010

What you don't want is a broken bone and aromatase inhibitor (Femara) can cause fractures.

I didn't use these specific drugs but I certainly would consider trying them since you are on Femara and you do have osteoporosis.

I had a minor fall on ice when I was using Arimidex back in the days they were not aware that AI's caused fractures. That minor fall caused 3 vertebra fractures.

You truly need to be on a bisphosphonates for your osteoporosis and the fact that you are on an aromatase inhibitor.



jnl's picture
Posts: 3873
Joined: May 2009

Great news about NED!

epark's picture
Posts: 339
Joined: Aug 2011

My doctor also recommended the Reclast since I'm on Femara and Boniva gave me horrible side effects.....it took about 15 min....imh side effects were bad joints pain and it felt like I had the flu..it only lasted about 24 hours ...

Good luck

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009


Angie2U's picture
Posts: 2992
Joined: Sep 2009

Congratulations Judy on NED! I am sorry about the osteoporosis. I don't have it yet, so, I don't know anything about any meds for it. I do wish you well and hope that whatever you take helps you.

Hugs, Angie

Posts: 191
Joined: Jun 2012

I've been on Fosamax for several years-since menopause for oseopenia. I've been on arimidex for 10 months and my last bone density test actually showed an improvement! So I really recommend being on some type of bone builder while on AI.


RE's picture
Posts: 4644
Joined: Feb 2004

Yeah for NED!!!!! Very, very happy for you! Wishing you the best on your new meds.



Kylez's picture
Posts: 3765
Joined: May 2009

Lots of congrats for NED! Good luck!

VickiSam's picture
Posts: 9085
Joined: Aug 2009

YOU! Congratulations, and strength for getting thru the side efforts
of drugs ..

Strength, Courage and HOPE for a Cure.

Vicki Sam

Angie2U's picture
Posts: 2992
Joined: Sep 2009

NED is wonderful! Congrats!

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