Dancing with NED, except for having osteoporosis...

GrandmaJ
GrandmaJ Member Posts: 209
in Breast Cancer #1
Although I am extremely happy to report NED on my 3rd year mammogram, chest x-ray and blood work, I am now diagnosed as having osteoporosis.

Dr. is quick to suggest IV infusion of Reclast or monthly Actonel pills. Since I have about every side effect that Femara can offer, I am of course reluctant to try these drugs and experience even more side effects.

Anyone out there on these drugs ???

Judy

Comments

  • ladyg
    ladyg Member Posts: 1,577
    #2
    Judy
    I have not had the Reclast yet but I am going to. It is for the same reason, a side effect of Femera.
    I was doing the weekly treatment for bones for 2 years and they have gotten worse. My MO said I really need to have the infusion. I am going to have it done in Sept. One thing I can tell you is that my mother (age 87) has had Reclast twice so far and has had no problems at all. That is one reason I am more than willing to have the infusion myself.

    Congrats on dancing with NED!

    Hugs,
    Georgia
  • GrandmaJ
    GrandmaJ Member Posts: 209
    #3
    ladyg said:

    Judy
    I have not had the Reclast yet but I am going to. It is for the same reason, a side effect of Femera.
    I was doing the weekly treatment for bones for 2 years and they have gotten worse. My MO said I really need to have the infusion. I am going to have it done in Sept. One thing I can tell you is that my mother (age 87) has had Reclast twice so far and has had no problems at all. That is one reason I am more than willing to have the infusion myself.

    Congrats on dancing with NED!

    Hugs,
    Georgia

    Thanks, Please let me know how it goes.
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #4
    ladyg said:

    Judy
    I have not had the Reclast yet but I am going to. It is for the same reason, a side effect of Femera.
    I was doing the weekly treatment for bones for 2 years and they have gotten worse. My MO said I really need to have the infusion. I am going to have it done in Sept. One thing I can tell you is that my mother (age 87) has had Reclast twice so far and has had no problems at all. That is one reason I am more than willing to have the infusion myself.

    Congrats on dancing with NED!

    Hugs,
    Georgia

    Big congrats on NED!

    Big congrats on NED!
  • SIROD
    SIROD Member Posts: 2,194 Member
    #5
    You Need to be using a Bisphosphonate!
    What you don't want is a broken bone and aromatase inhibitor (Femara) can cause fractures.

    I didn't use these specific drugs but I certainly would consider trying them since you are on Femara and you do have osteoporosis.

    I had a minor fall on ice when I was using Arimidex back in the days they were not aware that AI's caused fractures. That minor fall caused 3 vertebra fractures.

    You truly need to be on a bisphosphonates for your osteoporosis and the fact that you are on an aromatase inhibitor.

    Best,

    Doris
  • jnl
    jnl Member Posts: 3,869 Member
    #6
    SIROD said:

    You Need to be using a Bisphosphonate!
    What you don't want is a broken bone and aromatase inhibitor (Femara) can cause fractures.

    I didn't use these specific drugs but I certainly would consider trying them since you are on Femara and you do have osteoporosis.

    I had a minor fall on ice when I was using Arimidex back in the days they were not aware that AI's caused fractures. That minor fall caused 3 vertebra fractures.

    You truly need to be on a bisphosphonates for your osteoporosis and the fact that you are on an aromatase inhibitor.

    Best,

    Doris

    Congrats!
    Great news about NED!
  • epark
    epark Member Posts: 339
    #7
    jnl said:

    Congrats!
    Great news about NED!

    My doctor also recommended
    My doctor also recommended the Reclast since I'm on Femara and Boniva gave me horrible side effects.....it took about 15 min....imh side effects were bad joints pain and it felt like I had the flu..it only lasted about 24 hours ...

    Good luck
    Eva
  • Kristin N
    Kristin N Member Posts: 1,968 Member
    #8
    epark said:

    My doctor also recommended
    My doctor also recommended the Reclast since I'm on Femara and Boniva gave me horrible side effects.....it took about 15 min....imh side effects were bad joints pain and it felt like I had the flu..it only lasted about 24 hours ...

    Good luck
    Eva

    Congrats!

    Congrats!
  • Angie2U
    Angie2U Member Posts: 2,991
    #9
    Congratulations Judy on NED!
    Congratulations Judy on NED! I am sorry about the osteoporosis. I don't have it yet, so, I don't know anything about any meds for it. I do wish you well and hope that whatever you take helps you.

    Hugs, Angie
  • RE
    RE Member Posts: 4,591 Member
    #10
    :-)
    Yeah for NED!!!!! Very, very happy for you! Wishing you the best on your new meds.

    Hugs,

    RE
  • debsweb18
    debsweb18 Member Posts: 191 Member
    #11
    Fosamax
    I've been on Fosamax for several years-since menopause for oseopenia. I've been on arimidex for 10 months and my last bone density test actually showed an improvement! So I really recommend being on some type of bone builder while on AI.

    Deb
  • Kylez
    Kylez Member Posts: 3,761 Member
    #12
    RE said:

    :-)
    Yeah for NED!!!!! Very, very happy for you! Wishing you the best on your new meds.

    Hugs,

    RE

    Lots of congrats for NED!
    Lots of congrats for NED! Good luck!
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #13
    Kylez said:

    Lots of congrats for NED!
    Lots of congrats for NED! Good luck!

    Doing my Hap Hap happy Dance for
    YOU! Congratulations, and strength for getting thru the side efforts
    of drugs ..

    Strength, Courage and HOPE for a Cure.

    Vicki Sam
  • Angie2U
    Angie2U Member Posts: 2,991
    #14
    VickiSam said:

    Doing my Hap Hap happy Dance for
    YOU! Congratulations, and strength for getting thru the side efforts
    of drugs ..

    Strength, Courage and HOPE for a Cure.

    Vicki Sam

    NED is wonderful! Congrats!
    NED is wonderful! Congrats!

Discussion Boards