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I’m now a Bagger!!

just4Brooks
just4Brooks CSN Member Posts: 980 Member
in Colorectal Cancer #1
Hello my friends. I know it’s been a long time since my posting but I’ve had a lot going on a lot of changes with my fight. After 2 years to pooping problems (as most of us Colorectal Cancer patients have) my Ostomy bag was put in last month and so far so good. Last week I took my 6 year old son to see a movie. I haven’t been to a movie in over a year! I hope to do other things like camping, going to the state fair and so on. So, in a way my life has restarted and I’m no longer locked within 10 feet of a bathroom. LOL and so far I’m still NED!!


Brooks
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Comments

  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,744 Member
    #2
    Awesome
    I've been wondering how things were going with you. So glad to hear that you are starting to do things again. Yesterday it was probably close to 25 times, but it was mainly confined to a period of two hours and that amount of times is unusual, but when I'm going through days like that, I've often thought about getting it re-reversed. So glad you are posting and thanks for the update. Congratulations on the NED too. Live Life!!!

    Kim
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  • coloCan
    coloCan CSN Member Posts: 1,944 Member
    #3
    Annabelle41415 said:

    Awesome
    I've been wondering how things were going with you. So glad to hear that you are starting to do things again. Yesterday it was probably close to 25 times, but it was mainly confined to a period of two hours and that amount of times is unusual, but when I'm going through days like that, I've often thought about getting it re-reversed. So glad you are posting and thanks for the update. Congratulations on the NED too. Live Life!!!

    Kim

    Welcome to the club........
    Rather ironic that way back you were six months ahead of me.......steve
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  • just4Brooks
    just4Brooks CSN Member Posts: 980 Member
    #4
    coloCan said:

    Welcome to the club........
    Rather ironic that way back you were six months ahead of me.......steve

    Steve, I agree, and now I'm
    Steve, I agree, and now I'm a bagger too
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  • Lovekitties
    Lovekitties CSN Member Posts: 3,364 Member
    #5
    Congrats Brooks
    I know you were really limited before, so go enjoy life now!

    Hugs

    Maire who loves kitties
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  • Sundanceh
    Sundanceh CSN Member Posts: 4,392 Member
    #6
    Sounds Good...
    It's been a long two years for you - seems like a lifetime I'm sure.

    Here's to your newfound freedom and continued good luck with your clear status.

    -Craig
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  • danker
    danker CSN Member Posts: 1,276 Member
    #7
    bagger
    Good news always welcome here. Hope there is more of it. Good luck to you.
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  • PhillieG
    PhillieG CSN Member Posts: 4,866 Member
    #8
    A Brown Bagger?
    Hi Brooks,
    I'm happy to hear you are still NED and that you've resolved the bathroom issues.
    It's tough to have to worry about bathroom issues. I'm glad you popped in again.
    -Phil
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  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #9
    Brooks
    I'm just so darned happy to see you back and doing well!!!!!
    Winter Marie
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  • steved
    steved CSN Member Posts: 834 Member
    #10
    Great news
    It is a brave step to make the decision to go from something that in our minds is 'normal' to a something that is 'abnormal' but clearly it was the right decision and is already having a huge impact on your quality of life. I am soon destined to become a double bagger (urostomy as well) and have to say after having had an ileostomy for a year back in 2004 that part of the process doesn't worry me too much. It quickly becomes so normal and is quite liberating compared to unpredictable bowel habits.

    Congrats on the right decision,

    steve
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  • johnnybegood
    johnnybegood CSN Member Posts: 1,117 Member
    #11
    steved said:

    Great news
    It is a brave step to make the decision to go from something that in our minds is 'normal' to a something that is 'abnormal' but clearly it was the right decision and is already having a huge impact on your quality of life. I am soon destined to become a double bagger (urostomy as well) and have to say after having had an ileostomy for a year back in 2004 that part of the process doesn't worry me too much. It quickly becomes so normal and is quite liberating compared to unpredictable bowel habits.

    Congrats on the right decision,

    steve

    so glad
    to see you my friend i think of you often.im sorry you had to become a bagger but if it works for you thats all that matters.still fighting my stage 4 just in my lungs now but having platelet issues.hope to see more updates from you...Godbless...johnnybegood
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  • Kenny H.
    Kenny H. CSN Member Posts: 502 Member
    #12
    johnnybegood said:

    so glad
    to see you my friend i think of you often.im sorry you had to become a bagger but if it works for you thats all that matters.still fighting my stage 4 just in my lungs now but having platelet issues.hope to see more updates from you...Godbless...johnnybegood

    Welcome to the club.
    You'll
    Welcome to the club.
    You'll adapt to it well. I dont miss all the toilet runs at all. Quality of life is much greater with a bag in my opinion.
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  • abmb
    abmb CSN Member Posts: 311
    #13
    great news
    That's great to hear. I hope that you are able to do more now that you aren't tied to the bathroom:) Take care & God bless. Margaret
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  • fatbob2010
    fatbob2010 CSN Member Posts: 467 Member
    #14
    Good Decision
    Sounds like you made a good decision and that it has dramatically improved your quality of life. Congratulations on being NED; must feel good. Best wishes Art
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  • luvinlife2
    luvinlife2 CSN Member Posts: 172 Member
    #15
    Happy for you!!
    I'm really very happy for you Brooks!! Now go enjoy life again!!

    Kathy :)

    ps. Lovin the NED!!!!
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  • karguy
    karguy CSN Member Posts: 1,020 Member
    #16
    Welcome
    Welcome to the club,I'm glad you are doing better.It's not so bad,but keep a few supplies handy.
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  • maglets
    maglets CSN Member Posts: 2,576 Member
    #17
    karguy said:

    Welcome
    Welcome to the club,I'm glad you are doing better.It's not so bad,but keep a few supplies handy.

    hello Brooks
    ahhh that is great Brooks.....so happy for you and NED too

    good stuff....hope you really start to get out and enjoy yourself

    mags
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  • Maxiecat
    Maxiecat CSN Member Posts: 544 Member
    #18
    Cokgrats on NED! I agree
    Cokgrats on NED! I agree quality of life is so important...enjoy your time with your son.

    Alex
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  • Kathleen808
    Kathleen808 CSN Member Posts: 2,342 Member
    #19
    Brooks
    Brooks,

    It is great to hear from you!! So glad you are getting some freedom back!! Enjoy all of it.

    Aloha,
    Kathleen
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  • RickMurtagh
    RickMurtagh CSN Member Posts: 587 Member
    #20
    congratulations!
    Brooks, so glad to hear you have gotten your life back. Best news today! I had to have my reversal reversed also. What a game changer. Until last week I worked in a bank wearing a white shirt. The year before that never could have happened.

    Watch your nutrition. I did not know this for a while, but the last 19" or so of your small intestine is responsible for absorbing fat soluble vitamins. Since yours is busy being tied up being a worthless jpouch (or did you have your jpouch removed entirely?) you need to make sure you are not deficient in all the goodies you need to keep a healthy immune system.

    best wishes & peace

    Rick
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