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Scan results, not good. :-(

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Well folks, things didn't go so well today. We were just informed that folfiri/avastin has stopped working. Doctor gave Rick weeks to a few months. I'm kind of numb right now....

Cynthia

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.

Alex

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.

Alex

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.

Alex

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.

Alex

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.

Alex

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.

Alex

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

i am so sorry to hear this news. please do not give up! check out other places. i live in indiana & around me we have indiana university in indianapolis, university of cincinnati ohio, cleveland clinic & ohio state university in columbus ohio. cleveland & ohio state do alot of clinical trials. i have been to uc & ohio state. i talked on the phone to an oncologist at cleveland. i know this is far from home for you but maybe a phone call could be done. praying for you.
judy

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Omg Cyn I was just looking in on everyone
I was this I'm so sad to read this please don't give up hope .im so sorry hon hugs to you and Rick

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Thank you, Judy,I truly appreciate you trying to help, but yes, Ohio is indeed a bit too far away. But you are very kind in thinking of other options for us.

Take care, hugs,

Cynthia

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

check this site to see if it can help you
http://iuhealth.org/goshen/
it is a cancer center of indiana university located in goshen, in

prayers
judy

Psalm37bl's picture
Psalm37bl
Posts: 25
Joined: Jul 2012

Dear Cynthia,
I am so sorry to hear the news you were given. Psalm 34:18 always helps me," the lord is close to the broken hearted and saves those who are crushed in spirit." God is the Great Physician and holds all our days in his hands. Only He truly knows how many there will be. I will be praying for you and your husband.

steved
Posts: 835
Joined: Apr 2004

As I read the above messages from you I sense a change in some of the ways you are thinking that remind me a lot of myself after I had the conversation with the docs that there is nothing out there likely to offer a cure (last year before they came back with the current surgical option). I think it does trigger a different way of thinking about the situation for some of us. For some people thay want to try and explore every avenue no matter waht to fight this illness but for many of us there comes a stage when that isn't the focus and there is an acceptance of the situation that allows you to think differently. I may be wrong but it sounds like whilst you haven't given up, perhaps your focus is shifting from thinking about exploring every trial and treatment to thinking about how to optimise the quality of the time you have.

I think this is very healthy and reflects an acceptance of the reality of the situation you are facing. It is not about giving up but a more subtle shift in the way you think about the situation. For me it was incredibly sad to make that shift but also brought about a calmness in the acceptance I felt. You talk about it being a turning point for thinking about work and telling family and that again reflects perhaps a shift in how you are thinking it is best to approach your situation. We recently faced having to tell our children stuff we wanted to protect them from and it was one of the hardest things we have done in this whole journey. However, once done and given time to settle it has again brought about a greater cohesiveness in our family that the kids are included in this huge thing in my life and whilst I would give anything to avoid that being so, it has also been a relief that we no onger have to try and hide it from them.

I am sorry the treatment hasn't been more succesful but you wound like you coming to a point of accepting that. I would still encourage you to explore possible treatments if that is what you want but also to continue in this healthy shift to accepting what you are facing and focusing on quality in every moment you have together.

My thoughts are with you,
steve

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