CSN Login
Members Online: 1

You are here

Scan results, not good. :-(

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Well folks, things didn't go so well today. We were just informed that folfiri/avastin has stopped working. Doctor gave Rick weeks to a few months. I'm kind of numb right now....

Cynthia

Brenda Bricco
Posts: 579
Joined: Aug 2011

I am so sorry Cynthia... thinking and praying for you and Rick.
Brenda

Lovekitties's picture
Lovekitties
Posts: 3323
Joined: Jan 2010

I am so very sorry for this news.

Praying for you both. I wish there was more that I could do.

Hugs and love to you both.

Marie who loves kitties

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Numb with you hearing this news, Cyn:(

I'm not sure what to say at this moment...just stunned.

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 507
Joined: May 2012

So sorry :(

marbleotis's picture
marbleotis
Posts: 696
Joined: Mar 2012

My heart and prayers go out to you both!

Semira's picture
Semira
Posts: 378
Joined: Mar 2012

... and so sorry to read this. Sending you a tender hug from germany
Petra

danker's picture
danker
Posts: 1179
Joined: Apr 2012

Sorry to hear your sad news. Doctors cannot predict the future any better than I can. Good luck to you both.

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

I'm speechless I will pray that it it isn't so. I hats it when the Dr says there isn't anything else to do. Jeff

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

For both Rick and you at this news. I will pray for you both.

Hugs,

Ray/Doc

abrub's picture
abrub
Posts: 2088
Joined: Mar 2010

Sending hugs,
Alice

PhillieG's picture
PhillieG
Posts: 4885
Joined: May 2005

Well that sucks! Where are Rick's tumors? What about that new drug Zaltrap that was just approved?
I certainly do not want to give false hope but I think we always have to have some hope. People defy the odds every day.
{{{HUGS}}}
-phil

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Hi Phil, thank you, he'll ask his local oncologist on about Zaltrap on Monday. Rick asked if he could go back on Folfox, but the doctor stated that it didn't work last time since the cancer came back only six weeks after he went off of it post liver resection. So, Rick will ask about trial up here in NH, but the Dana Faber doctor didn't think it would buy him any time. (What I dislike about her is that she's always smiling when she tells us this unsettling news - that drives my crazy.) All in all this was a miserable day. Oh, and I haven't mentioned yet, my own doctor called me when we were at D.F. to tell me that I have high grade abnormal cervical cells, although still pre-cancerous, but she wants to schedule an operation for me in the next few weeks to remove them. :-( Ah well, we just keep trudging along...

All my best,

Cynthia

here4lfe
Posts: 306
Joined: Jan 2010

Best to you and your husband.

toyfox's picture
toyfox
Posts: 158
Joined: Apr 2011

I am so sorry for you and Rick. Since I lost a 4 year
old son from cancer, it hurts to read posts like this.
Linda

Annabelle41415's picture
Annabelle41415
Posts: 6154
Joined: Feb 2009

Sorry to hear of this news. Maybe another drug or trial. You are both being thought of.

Kim

mom_2_3
Posts: 964
Joined: Nov 2008

I am sorry that you didn't get positive results from the scan. Have you discussed going back to another first-line chemo? I keep you both in my thoughts and prayers.

Amy

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Thank you everyone for your kind words and prayers. It's been a hard day here.

Take care,

Cyn

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

Words don't really do justice in this kind of situation. Hugs, Ann

ketziah35
Posts: 1154
Joined: Jun 2010

I am so sorry. I will be keeping you both in my prayers.

Luckygirl2
Posts: 308
Joined: Mar 2012

will be thinking of you both and sending prayers and hugs.

smokeyjoe
Posts: 1428
Joined: Feb 2011

Just curious have you looked into any clinical trials at all. Something that's not mainstream may help him, some drug your oncologist doesn't know about. I'm going to tip toe into supplements that supposedly sensitize cancer cells to chemo. drugs. One I can think of off hand was one that was posted recently ursolic acid and xeloda....

omrhill
Posts: 125
Joined: May 2012

Words fail us at times like this. Sending thoughts and prayers for you and Rick.

Love,

Robin

geotina's picture
geotina
Posts: 2117
Joined: Oct 2009

I am speechless and numb, I just can't believe what I am reading. I'm so very sorry for the news you received.

Love and Hugs - Tina

Cathleen Mary
Posts: 827
Joined: May 2011

Cynthia, I can only imagine how difficult a day this has been for you and Rick. Please know that you are in my heart and prayer. This forum is a testament to how many times doctors have been wrong. They are often wonderful and human. Hope belongs to you; no one has the right to take it away....especially with a smile on their face. Strength and peace.

Hugs,
Cathleen Mary

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

I am so sorry to hear this news about Rick. I will keep both of you in my thoughts and prayers. I am hoping that your doctors can find something that will work for him....maybe they can try that new drug.

(((Gentle hugs)))

Alex

wolfen's picture
wolfen
Posts: 1318
Joined: Apr 2009

This is just so hard to read and understand. My thoughts are with you and Rick.

Luv,

Wolfen

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

D@amn it, I hate hearing this. Let's hope that zaltrap gives a bit of hope?!
I'm going to keep hoping dear, I know this has to be mind numbing, my thoughts will be constantly with you both. Just heart sickening news to hear. Holding you tight in my heart.
Winter Marie

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

Tomorrow will still be a precious day for you, for Rick for us all.

I hope you find some joy in your days, in all your days.

No one knows how many.

Big, tender hugs,
Pete

janderson1964
Posts: 2215
Joined: Oct 2011

I an soooooo sorry to hear that.

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

am sorry about this news.i think we all fear or at least i do fear hearing those words some day.keep hanging in there and remember the Lord is with you by your side everyday...Godbless...johnnybegood

janie1
Posts: 753
Joined: Apr 2011

I will be in NH next week resting at a friends home after having radiation in nyc. Never been to NH, but you both will be on my mind the entire time.
XOXO

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

New drugs like Phil said, Zaltrap, regorafenib, also they discover recently that Avastn mixed with any other chemo works again !
I been in any drug available but now they mixed xeloda with Avastin and is working very well!
I was in both previously but not together! Also got ciberknife and RFA! Did they ever offered any if this possibilities?
Why don't you try with a different Oncologist?.
Well cyn I will be praying for you Both!
Hugs my dear Cyn!

janie1
Posts: 753
Joined: Apr 2011

I just want to throw this out there.......since you are going to see the onc on monday.
I think this needs to be clarified for you. The one onc said folfox didnt work because tumors came back six weeks after liver resection.
But, prior to liver resection, i assume from the scans that the tumors SHRUNK from chemo which is why he was eligible for resection.
If there is just one cancer cell left in the liver, a tumor can grow from that. So being off chemo for surgery would be enough time for a tumor to grow from one or more cells. That's why many times a person needs more than one surgery. Maybe i'm misunderstanding, but the onc's explanation doesnt add up.

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

I like your reasoning. I'm going to send Rick this post as well as the others about Zaltrap and Regorafenib. His local NH onc. told him that he would put him back on Folfox if the Folfiri failed. So even though the Dana Faber told him that she didn't believe it will work, I'm sure that Rick will try Folfox again if our local doctor wants to give it a try. Heck, at this point, I think he'd put on feathers and dance around a fire if they thought it would help. I wish you all could have gotten to know him, he's such an optimistic, wonderful, caring Dad and partner. I've never known another man like him, he's just perfect for me....

:'-(

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Really hoping that with all this good advice/info, that a way will be found to put him back on the road to health.
Thinking of you........
Tommycat

coloCan
Posts: 1956
Joined: Oct 2009

at:www.demandcurestoday.org/cancer-research
or

http://newsblaze.com/story/2012070615043500001.bw/topstory.html

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

if have emailed them to what possible alternative therapies i am missing out on.

one of my alt doc's is a leader in stem cell work here.

i have not seen you post for a while, so i figure their must have been a lull in the colorectal news.

did you see the very obscure study i put up here on sfn ie broccoli powder to kill cancer stem cells.

funny the most active ingredients at our door step, but most want venture into the garden and juice or grow. these hardcore drug may help alot, i real hope so, but why not try kinder, far cheaper natural and herbal options first.

i am as passionate as ever about natural health, but this is cythia post and i am getting carried away.

hugs,
pete

ps a real good news story for colorectal, doctor lin the onc who designed the trial, well his dad had colorectal so he has dedicated his professional life to helping crc patients.

http://www.youtube.com/watch?v=bH25jd0vXz0&feature=youtu.be

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Thank you , I'm guess I'm looking for a miracle at this point. He'll speak to his onc on Monday morning, so we'll wait on his advice before making any plans. That will be the deciding factor on a lot of things, like quitting his job or telling his kids - that's goIng to be a very difficult discussion. He daughter is 10 and simply adores her daddy. I'd also like to spend a few days with him on the Cape or in RI if he's up to a drive. I fell in love with him on a beach in RI, so yes, I think that might be a possible destination. :-)

Quality time together. That's what I'm striving for now.

Hugs to everyone! (((())))

Cyn

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

:-)

dmj101's picture
dmj101
Posts: 527
Joined: Nov 2011

+prayers for the miracle you so seek
I don't really know what to say. This must be a very difficult time for you Rick and your daughter.
My wish for you is peace.
Take care of yourself too.. at this time the stress makes everything worse i am sure.
You haven't spoken much of how Rick is doing with this news..
I hope you will have the ability to enjoy and relax some of this time.

SharonVegas's picture
SharonVegas
Posts: 189
Joined: Feb 2012

Hi Cynthia,
I'm sorry you got this news. We feel your pain. We got to the point where we did not look forward to meeting with our oncologist to hear the latest results of scans. My husband has been on and off chemo for the last year and a half since he was diagnosed with non-operable stage 4 colon cancer. We have heard more than once, this or that combination of chemo drugs has stopped working,including your husband's combo of folfiri/avastin. This stopped working for us last year. Our oncologist is very creative and is heavy into research. We have an arsenal of back ups so when one stops working we try something else. We just started a phase II clinical trial (today) of Morab 4. Currently, the back up drug choices are Regorafenib or Nexxavar. Although he is not as physcially active as he was pre-cancer, his (our)quality of life is very good. In fact, he just said he feels really great right now. I hope your oncologist will consider giving you other drug options or recommending a faciity that is better suited to help your husband.
Our thoughts are with you and your husband,
SharonVegas

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Cynthia,
I am just reading this news. I am so sorry that the DF doc wasn't offering much. I think others have given you and Rick some good information. I just want you to know you are both in my prayers.
I hope the onc has a plan on Monday.

Aloha,
Kathleen

jr2012's picture
jr2012
Posts: 67
Joined: Aug 2012

I would like u to know that its no harm trying ozone therapy - it causes aerobic atmosphere for cancer cells which kills the cells as the cancer cells can only survive in anaerobic environment - google ozone therapy and cancer - You can purchase an ozonator which is about 60 bucks on ebay and amazon.com and purify the water and let him drink the water (usually in empty stomach four times a day) - in Germany and Japan and Spain and Argentina and India people use it as an alternative medical therapy and it works in many cases -

there is also hydrogen peroxide which does almost the same thing cuz of the extra oxygen - and u can consult with naturopathic doctors of hydrogen peroxide and vitamin c treatment -
my friend's neighbor was given few weeks by doctors in houston for her stage IV colon cancer and it was 3 yrs back and she is very much okay now thanks to vitamin c therapy.

Hope this info helps and Rick becomes one of the brave ones who survived with alternative therapy after chemo stopped.

May God shower you two with his blessings and miracles.
Best wishes,
Trisha!

jr2012's picture
jr2012
Posts: 67
Joined: Aug 2012

Hey Cynthia -

hope u get this message - look I found this link while looking up Graviola which i read online is an anticancer treatment

http://www.cancercompass.com/message-board/message/all,672,0.htm

check this page and hope it helps Rick

Best and hugs <3

jr2012's picture
jr2012
Posts: 67
Joined: Aug 2012

Hey Cynthia -

hope u get this message - look I found this link while looking up Graviola which i read online is an anticancer treatment

http://www.cancercompass.com/message-board/message/all,672,0.htm

check this page and hope it helps Rick

Best and hugs <3

Aud's picture
Aud
Posts: 480
Joined: Oct 2009

I am so sorry to hear this news. I am not on here much but I read your post and want to let you know that you and Rick are in my prayers. I hope there is a treatment that will help him regardless of what this onc says. In the meantime, let us all embrace the time we have with the ones we love.
In the Light,
Aud

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Thank you all for your kind words and suggestions for treatment options, it has been very much appreciated. You have all been so very kind and supportive.

As an update, Rick went to our local oncologist this morning, and the onc. agreed with Dana Faber, there's no other drug left. He told Rick about a Phase I drug trial, but there's only a slim chance that the drugs would increase his time. As the saying goes, "Live only for today, since you might not see tomorrow."

All my best,

Cynthia

jr2012's picture
jr2012
Posts: 67
Joined: Aug 2012

Cynthia -

I found the following links for you - hope it helps - they have cured people in the past and
its never too late - at least there is no harm trying ... really want Rick to have a long life - this is soo unfair ... I wish this helps and he is with you always

http://www.healthsalon.org/58/cancer-cured-twice-with-ozone-therapy/

http://www.ebay.com/itm/600-mg-h-Ozone-Generator-Air-Water-Oil-Ozonator-/320814437846?pt=LH_DefaultDomain_0&hash=item4ab207d5d6#ht_6921wt_1031

http://www.cancertutor.com/Cancer/Ozone.html

http://en.wikipedia.org/wiki/Essiac

http://www.nhnatural.com/services/infusiontherapies.html

Prayers -

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.

Alex

Maxiecat's picture
Maxiecat
Posts: 544
Joined: Jul 2012

Cynthia, i will continue to keep both of you in my prayers. Hopefully the trial will be an option for Rick. How are his children doing? I worry about my two that are a 10 & 11... so far they are doing okay... we have been keeping them busy.

Alex

Pages

Subscribe to Comments for "Scan results, not good. :-("