Cycle 2, Day 1 Clinical trial TRC 105

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mukamom
mukamom Member Posts: 402
in Colorectal Cancer #1
Saw head doc today, in charge of the trial...So far everything looks good. Blood work is a bit low in areas, but stable. Best news yet, CEA down from 14.4 to 12.3. YESSSSS! It had been steadily rising since May, like every week. Scan scheduled for Aug 22 and that's when we will know the whole story.

Side effects have been minimal..headaches 2-3 days after infusion but Imitrex takes care of that. There has been an Erbitux-like rash that has popped up and doc says that they have been noticing this with other patients on the trial as well.

Infusion time has dropped dramatically. On days when both the study drug and Avastin are given, 6-7 hrs. Today with both drugs,3hrs. I was asking the nurse if she was sure Robert got everything he was supposed to. Yes, he did. Are you SURE??? Nurse said we were scaring her and making her double check everything.

All and all, good day!

Angela

Comments

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #2
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    Ang/Rob
    I'm so glad - especially to see you smile.

    I see you:)

    Great news...you and Robert are getting it done.

    -Mr. Lion
  • janie1
    janie1 Member Posts: 753 Member
    #3
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    Sundanceh said:

    Ang/Rob
    I'm so glad - especially to see you smile.

    I see you:)

    Great news...you and Robert are getting it done.

    -Mr. Lion

    Angela, that sounds
    Angela, that sounds excellent. Robert is a trooper. 6-hour infusions are so long. Glad it's at least down to 3.
    The lower CEA - thank goodness. Gotta feel good to hear that. And, that the labs are holding steady......we'll take that.

    Are u staying in touch with that woman who started the trial before Robert? Have you met any others?

    A big hug to you, and I'll let you do the honors for giving Robert a BIG HUG.
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #4
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    Good news
    That's great news, Angela!

    *hugs*
    Gail
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #5
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    Angela
    So glad to hear that his CEA is going down!!!
    You might scare the nurse, but you know that things are being done right when their double checked!! Good job!!
    Winter Marie
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #6
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    herdizziness said:

    Angela
    So glad to hear that his CEA is going down!!!
    You might scare the nurse, but you know that things are being done right when their double checked!! Good job!!
    Winter Marie

    Wow, sounds like this drug
    Wow, sounds like this drug is already doing it's job. Sounds like good news. Does this drug cause Robert any fatigue, or nausea?? Keep us posted.
  • tommycat
    tommycat Member Posts: 790 Member
    #7
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    Thanks not only for sharing,
    Thanks not only for sharing, but for being trailblazers! Am watching your story closely.
    Take Care,
    Tommycat
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #8
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    tommycat said:

    Thanks not only for sharing,
    Thanks not only for sharing, but for being trailblazers! Am watching your story closely.
    Take Care,
    Tommycat

    It sounds like the trial is working, so awesome news!
    Big hugs to both!
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #9
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    Great News...
    Thanks for the update Angela, sounds like Robert's off to a very good start.
    My thoughts are with you both...
    -phil

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