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Jul 18, 2012 - 7:34 pm
Got a copy of my pathology report Size: 9cm x 8cm x 4cm Stage: pT2a Grade: IV Type: Renal cell carcinoma, unclassified. ("does not have the typical histopathologic features either of a clear cell, papillary or chromophobe subtype, nor are there sarcomatoid areas".) Necrosis over 30 - 40% of tumor. Possibly invades the renal sinus fat ------ I would be interested in anything anybody knows about "unclassified" RCC. Also, I asked the doc why he didn't remove any lymph nodes, but I'm thinking I must be remembering the answer wrong because it doesn't make sense to me, but it was the day after surgery and I was still pretty doped up. I thought he said he didn't see any. Does that make any sense? Thanks for any help --Kathy |
Joined: Feb 2013
WOOO HOOOO!
Thats what we like to hear!
Joined: Nov 2009
Happy anniversary...
May you and NED spend many, many years together!!!
Joined: Jun 2013
2nd opinion
When I went from Urologist to Oncologist, all my information went wih me, including the slides of my tumor. It re-examined to clarify one or two area of the report. No additional treatment is a great thing, the common response we always hear is "we got it all". With clear margins,that is the catch phrase used, and yes, the feeling of "shouldn't I do more" is the exact thought I had when I heard those words.
Side note, I went to my oncologist looking for a potential trial thinking I was cancer free. My oncogist saw a tumor in the report that my urologist completely overlooked. I believe the trial I was looking into was the Eveest Trial. Even if you do not do a trial, an oncologist that specializes is RCC is a good idea in my opinion. It is a good 2nd set of eyes on the reports, and if you do ever need more treatment, you will already have a doctor you are comfortable with.
I also agree about the lymph nodes. If they were not taken, they were not observed to have evidence of cancer, a good thing.
Here is what google had on the Everst trial, looks like they are still recruiting.
Sep 11, 2012 - PURPOSE: This phase III trial is studying everolimus to see how ... Official Title: EVEREST: EVErolimus for Renal CancerEnsuing Surgical Therapy, A Phase III Study ...
Joined: Nov 2011
Posting dates
Darron, you're already a good contributor but still a newcomer, so a quick heads-up. There's just about nothing you can teach Kathy about any of this. We helped to persuade her, what seems like aeons ago, to seek a further expert opinion (and even more, if necessary) in her very rare pathology and circumstances. (She is an unusually intriguing case of great interest at an academic level as well a a challenging patient when it comes to treatment.)
You've been caught out, like many others of us here, by not noticing the date of a post. The post you've responded to was exactly a year ago! CSN has actually, inadvertently, exacerbated the problem by adopting the presentational feature of repeating, at the head of each new page of a thread, the text of the opening posting - making it extra easy to slip up. (Michael's familiar WOOOOO HOOOOO! message was in response to Kathy's on the previous page.)
Joined: Feb 2013
LOL! Thanks TW! As I said
LOL! Thanks TW!
As I said many times, I'm nothing if I'm not enthusiastic!
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