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MDCinSC

NewDay said:

NED 1 year and counting!

Just sharing the good news that my scans were normal!

WOOO HOOOO!

Thats what we like to hear!

Darron

NewDay said:

How to get further opinion
Thanks Tex,

How do you get another opinion on the pathology?

2nd opinion

When I went from Urologist to Oncologist, all my information went wih me, including the slides of my tumor. It re-examined to clarify one or two area of the report. No additional treatment is a great thing, the common response we always hear is "we got it all". With clear margins,that is the catch phrase used, and yes, the feeling of "shouldn't I do more" is the exact thought I had when I heard those words. 

Side note, I went to my oncologist looking for a potential trial thinking I was cancer free. My oncogist saw a tumor in the report that my urologist completely overlooked. I believe the trial I was looking into was the Eveest Trial. Even if you do not do a trial, an oncologist that specializes is RCC is a good idea in my opinion. It is a good 2nd set of eyes on the reports, and if you do ever need more treatment, you will already have a doctor you are comfortable with.

I also agree about the lymph nodes. If they were not taken, they were not observed to have evidence of cancer, a good thing.

Here is what google had on the Everst trial, looks like they are still recruiting.

clinicaltrials.gov/show/NCT01120249

 

Sep 11, 2012 - PURPOSE: This phase III trial is studying everolimus to see how ... Official Title: EVEREST: EVErolimus for Renal CancerEnsuing Surgical Therapy, A Phase III Study ...

 

Texas_wedge

Darron said:

2nd opinion

When I went from Urologist to Oncologist, all my information went wih me, including the slides of my tumor. It re-examined to clarify one or two area of the report. No additional treatment is a great thing, the common response we always hear is "we got it all". With clear margins,that is the catch phrase used, and yes, the feeling of "shouldn't I do more" is the exact thought I had when I heard those words. 

Side note, I went to my oncologist looking for a potential trial thinking I was cancer free. My oncogist saw a tumor in the report that my urologist completely overlooked. I believe the trial I was looking into was the Eveest Trial. Even if you do not do a trial, an oncologist that specializes is RCC is a good idea in my opinion. It is a good 2nd set of eyes on the reports, and if you do ever need more treatment, you will already have a doctor you are comfortable with.

I also agree about the lymph nodes. If they were not taken, they were not observed to have evidence of cancer, a good thing.

Here is what google had on the Everst trial, looks like they are still recruiting.

clinicaltrials.gov/show/NCT01120249

 

Sep 11, 2012 - PURPOSE: This phase III trial is studying everolimus to see how ... Official Title: EVEREST: EVErolimus for Renal CancerEnsuing Surgical Therapy, A Phase III Study ...

 

Posting dates

Darron, you're already a good contributor but still a newcomer, so a quick heads-up. There's just about nothing you can teach Kathy about any of this.  We helped to persuade her, what seems like aeons ago, to seek a further expert opinion (and even more, if necessary) in her very rare pathology and circumstances.  (She is an unusually intriguing case of great interest at an academic level as well a a challenging patient when it comes to treatment.)

You've been caught out, like many others of us here, by not noticing the date of a post. The post you've responded to was exactly a year ago!  CSN has actually, inadvertently, exacerbated the problem by adopting the presentational feature of repeating, at the head of each new page of a thread, the text of the opening posting - making it extra easy to slip up. (Michael's familiar WOOOOO  HOOOOO! message was in response to Kathy's on the previous page.)

MDCinSC

Texas_wedge said:

Posting dates

Darron, you're already a good contributor but still a newcomer, so a quick heads-up. There's just about nothing you can teach Kathy about any of this.  We helped to persuade her, what seems like aeons ago, to seek a further expert opinion (and even more, if necessary) in her very rare pathology and circumstances.  (She is an unusually intriguing case of great interest at an academic level as well a a challenging patient when it comes to treatment.)

You've been caught out, like many others of us here, by not noticing the date of a post. The post you've responded to was exactly a year ago!  CSN has actually, inadvertently, exacerbated the problem by adopting the presentational feature of repeating, at the head of each new page of a thread, the text of the opening posting - making it extra easy to slip up. (Michael's familiar WOOOOO  HOOOOO! message was in response to Kathy's on the previous page.)

LOL!  Thanks TW!
As I said

LOL!  Thanks TW!

As I said many times, I'm nothing if I'm not enthusiastic!

 

garym

NewDay said:

NED 1 year and counting!

Just sharing the good news that my scans were normal!

Happy anniversary...

May you and NED spend many, many years together!!!