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top score on MasterCard ! ouch Pete is back to work

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

So the master declines when you get over 75k.

No more credit sux, no more supplements on order.

Being rigorous on value for money.

Third day back at my business after 2 years off, wife has done a super job running our eight boardinghouses.

Doing lots of cleaning, showing empty Rooms, replacing old leaky gas stoves, New roofs and verandah.

I got my mind off crc akk together. Which is good.

Dear wife described my last 2 years away as a holiday.
I don't agree, but let it slide. Crc is not a good holiday destination

So I am focused on stopping the bank screening the last few bucks out of me!

They charge 20.5%, I do believe they put exec bonuses and shareholders first.

When the going gets tough, the tough to going. So I am going to work.

It means more stress but this is offset by reduced financial stress which is real.

Working means less juices, meditation and home cooking, but I am trying.

The big silver lining here is selecting financially viable alternative Therapies.

My new Book title is silver Pete! I got the title as a start.

I will just document and live one day at a time.

Anyone got within a few thousand of financial ruin?
If you did I salute you!

See my blog for advice on robbing banks for cancer patients! All legal kind of

Hugs,
Pete

Hugs,
Pete

Goldie1's picture
Goldie1
Posts: 264
Joined: Sep 2011

Got a similar problem here. Pat hasn't been able to work for the last year, the bills keep coming in, and his health insurance is going to end in the next 2-3 months. As if we don't have enough worries! So, Pat is also considering going back to work. New worry...can he handle it? He drives a truck, heavy lifting, long days. Waiting for his onc to ok his return to work.

How do you psych yourself up for returning to work? It would solve our money woes but is it worth it regarding his health? Any insights would be a big help!

Thanks!

Ellen

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

my focus while working is to chill, to be peaceful.
today i hoped into an empty room and got a couple of hours sleep.

the strain is tiring in itself.

i felt relaxed, i just wish my wife would sell one of our properties.

my heart is in meditation and alternative therapies not making money.

its also sad to spend my precious days doing what i don't want to.

make a decision and then stick to it, do it joyfully. i am telling this to myslef as i type.
i will have to follow my own advice to you.

hugs,
Pete

Helen321's picture
Helen321
Posts: 1393
Joined: May 2012

I've been finding a few agencies that give grants online to patients. Small grants, one is $350, one is $75. I'm contacting Sloan to see if they know of anymore. Every Christmas my family does Kris Kringles for $25. This year I'm requesting a save a cancer patient fund raiser. I mean you can't save someone with $25 but it's a start. I would like them to donate gift cards to necessities, CVS and supermarkets, even hair salons and nail places because looking good to a point means feeling good. Offset some of the prescription/other items at pharmacies and food. I hope they all want to do it. I may try to recruit others. I'm going to give them directly to people who are struggling rather than a charity. My sister's friend does that with "shootout for cancer". It's a basketball charity event where kids play silly games like roll the ball under your legs. When I feel better, I will run one of those too. I've been managing to do some overtime to make up the loss of pay I'm getting hit with. Thank God I have the option. I'm exhausted but whatever, we're still afloat.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Hey Pete,
I was thinking of how much you're going to bring back with you to your businesses: You've certainly experienced things you never saw coming, been through some major battles, and learned mucho.
All this can only make you stronger, so you are bringing the New Pete back to your businesses.
I too recently went back to work, and have to say----I love it.
Hope you find you do too.
Take care,
Tommycat

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

so glad you love your work!

i do love the work, the problem i love healing more.
i love what i do, and i do what i love.

hugs,
pete

steved
Posts: 835
Joined: Apr 2004

Pete, I know you are keen to have your life full of things that help your recovery and your health and I would propose, done right, work can fall into that category. I have kept working full time as much as possible through this and have found it hugely helpful. It provides the routine, role and normality (strange when I work with seriously mentally ill people) to my day. It stops cancer running my routine, provides distraction and patients at work who know nothing of my illness are the ones who treat me most normally.

Work can be part of the healing too.

steve

janderson1964
Posts: 2215
Joined: Oct 2011

Well out Steve. I haved worked as much as i can. Now that i am done with treatment for the third time i cant wait to get back to work full time.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

here is hoping it is.

alt doc knows about going to work and money problems, off the record i got 5 shots artemisin from an old patient. that $350 just out of the blue, best gift for a crc patient on a budget.

if these alt strategies are going to really work, its getting time for them to put up or shut up. mind you an incredibly slowly rising cea is better then a rocketing cea.

i want a one point fall for my birthday.

its strange but i find routine, role and normality to be my new healing norm, it can hapily spend all day juicing and meditating and studying. its really what i love.

so i goto my work and miss out on my support group, but complaining. but i see the tradeoff in time and where one puts ones priority.

I find working and exisiting in the world kind of fraudulent, i feel like a ghost whose existence will disappear soon and the city will keep on. I feel work for me is the ultimate distraction from my healing efforts, thats why i resisted going back as long as i could. thats why i asked my wife to sell one of our 8 properties last october to put over 1,000,000 in our bank so we could be relaxed as a family.

now we are both working, not seeing the kids as much. my wife is not doing her physical health any favours and her mental health, well you probably know about hoarding and ocd. her decisions and priorities are intreging, a tad frustrating.

i am glad you found work helpful, i am looking at this months work as an interesting experiment. if the markers go down then great.

hugs,
pete

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Pete - You have a few thousand left - can you share!?? LOL! :-D I just finished sewing two pillow cases out of an old flannel sheet in order to save thirty bucks, so yes, I can kind of relate to having money issues. But I did treat myself to an ice cream today! :-)

Wishing you continued success with your health and business ventures.

Hugs,

Cyn

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

was it really good? the icecream!

is n't it crazy, i snuck some of my kids left over chocolate sunday from the freezer today.
it was good as well! so good and i was so bad! its good to be bad sometimes.

so i got no cash, drove up to hunry jacks to get the kids an icecream 50cents here only. but the kids did not want the $2 cheese burger. this was a one off treat for the end of the school holidays. we drove through the drive through ordering nothing, the kids accepting the fact i was not going to buy $1 icecream on the credit card.

so we went home, i cooked up some free range chicken satay stick and veg and then made a delicious pumpkin soup. they had no icecream and i got last weeks left over icecream sunday.

my pumkin soup recipe all organic pumkin about 5 cups, a large potatoe,, an onion. coconut cream, cinammon, some vegetable stock with alkaline water. the puree at end gets rid of the seeds and the skin. thats right i use all the pumpkin. if its organic why not?

health and cheap and i was happy and so were the kids. running low on cash, i have new found empathy for having to choose the alternatives that are affordable. my wheat grass is going great guns.

hugs,
pete

Minnesotagirl
Posts: 141
Joined: Sep 2011

Hey Pete,

Your pumpkin soup sounds great. I am working about 5-7 hours a week only so I to am on a budget... I have been canning fresh tomatoes and dehydrating them as well. Really great to make your own v8 juice or my version...tomatoes, celery, parsley, carrot, sometimes I add beet, onion or fresh garlic...husband hates the onion and garlic in it though...too spicy for him!

Keep your head up Pete...if life throws you lemons...make lemonade. Right???

"Minnesotagirl"

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

"It's not that easy at all."

Well, that's the way that Alan Jackson sang about it.

I tend to agree with your wife, Pete...you fought your initial fight...and then your pursuit for all the other was holiday time....I've fought eight-years and can't get 2 minutes, much less 2 years.

The ladies are being too kind to you, Pete...I can assure you that here in the good ol' USA and especially down South, the women folk here want their men working and getting it done.

There's not a southern honey (or a northern honey either) I know that would be off raising the kids and running businesses - while their husband spent the day meditating and pursuing his pleasures...all day every day for that length of time.

...especially if he was able- bodied and young - which you are.

Believe me.

They'd have you out of here like "$hit through a goose."

So, Welcome Back to the Real World...

I feel trapped with work and don't get the enjoyment or fulfillment out of it anymore - I want more at this stage of my life...but I'm not blessed with the financial floorplan that you have to operate with, so I must work for my insurance and try to build a better life and pay bill down - in case I can earn a chance to enjoy any life that I have left.

Keep in mind, Pete...that there are so many of us not as blessed financially as you are...it's your money to do with as you will...but when you tell folks that you're $75K in credit card debt and that it mostly was spent on your health hobby, there are many of us that are barely able to get by every 2-weeks and they might barely have 75 cents to their name.

Alot of folks are doing without they are so strapped. Why they said "good going" it might actually be hurting a segment of the population who are unable to dig as deeply as you can...or have million dollar homes to trade in for security...that's the "hand to mouth" club...and it's real.

I know of a situation in our community right now who would love to see one another...but they cannot due to financial limitations...I've been trying to save up money for one of them to travel to the other (they don't know about it yet)...I figure it will be about $500, maybe a little more.

If I can save that money out of my paychecks, I've been working on it awhile but am not close to there just yet.

I'm going to buy one of them a plane ticket and make this reunion a reality so they can hug one another - before something happens and that opportunity is lost. That would be really upsetting to me if this did not happen.

My sacrifice will also cost my wife, but she agrees with me and says we should do it if and when we can. This will come at the expense of anything I want or need - it means that the trip I wanted to take this year probably won't be happening....but this just seems so much more important.

You see, Pete?

I'm trying to pay it forward - cancer teaches us to look outside of our selves and our own selfish interests - and try to see a need and fill that niche for someone else - if we are ever in a position to do that.

You're not at the stage of your cancer journey where you see other people - you are still walking the path of self-interests and you find yourself absorbed at that level with you. It is my hopes that one day you will see what a difference you could make in someone else's life and help to make a dream come true for someone else.

That's the small grass roots movement that I like to practice...

I just wanted to offer another perspective for you.

-Craig

janderson1964
Posts: 2215
Joined: Oct 2011

Craig I would like to donate some to the person that you mentioned plane ticket to see her daughter.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

You sure hit the nail on the head with that. I've been thinking along the same lines, but wasn't sure how to word it.
I couldn't get the words that his wife said his vacation was over and he did not consider fighting crc a vacation off my mind. I thought he too, had a wonderful vacation while using the excuse of non-active crc to it's very best limits possible. Drinking wheat grass or whatever you call it, isn't a do or die thing in my mind. If a man can make it to all these retreats and conferences and travel around looking for the latest "cure all", then by golly he could get his sweet arse to work and quit making his woman take care of it all.
I do silently fume when I see him using money that could be paying bills or making his wife's life a bit easier.
And as for the kids, yep no ice cream today, cause Dad needs to buy the latest scam. Sure kids don't need ice cream but if dad hadn't been wasting all that money away in his pursuits, they could have had an ice cream treat. I swear, the money would have been better spent on counseling to figure out why Pete was trying to run away from the devil so dang hard, and why he feels the devil is on his heels breathing down his neck.
I go to school full time (hey, I need those scholarships that help pay my deductible, mind you help pay, because I sure as heck can' pay it all, I struggle)I watch my grandsons, one of which I've been watching since the dx of Stage IV colon cancer, he was born after, he is now two, if that isn't a heck of a job I don't know what is. And in an attempt to help pay bills, I also work a part time job 4 days a week keeping score for softball games. You do what you gotta do. That of course along with cleaning house, mowing our yard, tending the garden, washing and drying clothes, shopping and everything else.
I was particular in awe that Pete thought going back to work meant no more homemade meals??? What???? Women have been working full time days and cooking homemade meals everyday as well, as well as the mirade of other things we have to do, I was one of them when I was raising my children. Heck, I did chemo and within hours was cleaning house and doing what I needed to do, I even babysat my grandson while I was GETTING the chemo at the hospital. I just can't boo hoo over Pete's problem of going back to work.
The only stress free life is one that has ended Pete, so as Craig said, welcome back to the real world, I hope you can handle it
Hooray for your wife, about time she got around to demanding you quit babying the heck out of yourself and take on the responsibility for your household once again.
Winter Marie

manwithnoname
Posts: 404
Joined: Jun 2012

"cause Dad needs to buy the latest scam"

"your health hobby"

Pete how dare you use your own money for trying to healing yourself...you should be working your *** off cos that's why we were put on this Earth.

Now stop with all this hippy crap and sort your self out...

Lovekitties's picture
Lovekitties
Posts: 3332
Joined: Jan 2010

I think you are giving a bit TMI (too much information) about your finances and how you spend it.

How you spend your money is certainly your choice, but I can't find sympathy for your situation.

The pictures you paint of the wife working very hard to save your assets and your children doing without the small treat of an ice cream cone while lamenting you have to go back to work does not show you in a good light.

The insight you give us here is that you are running scared from cancer trying to find a cure at the expense of all else.

Life has to be more than our fear that cancer may eventually kill us.

Fear of what might be will bring us down far faster than any disease can.

We all must find a balance to do what we must for our health while building good memories, for those we love, to cherish when we are gone.

I hope you can find that balance.

Marie who loves kitties

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

Yes Pete, I have been in debt, NOT because of myself, but because of an overspending husband, I had to sell assets, my own home,investment homes, cars boat etc etc.
I have lost thousands but have repaid everything by working my sweet 'a...sh " off.
I was a realtor and worked 24/7

It was 5 times as much as you owe at the moment!!!!!!

I worked, had a house, dogs, kids and I cooked everyday a nutricious meal and cleaned and did laundry,tended to the yard and entertained on the weekends, PLUS I was crippled by Arthritus, which I still am.

YOU made the debt, so not more then logic that you go back to work and repay what you created. ADVICE>>> call the creditcard comp. and make a deal.

working is good for you, it keeps your mind of your cancer. I tel myself everyday, I AM CANCER FREE and guess what... right now I am ned,ONC told me I should be dead, I believe in the power of the mind. Laughter and loving.
It costs nothing to think you are as healthy as you can be. I still juice twice a day,take my vitamins but I do now wallo in alternatives, I just take what I think I should take to stay as healthy for as long as I can, because I am to busy living a life.
We all have to die one day, we do not know when our time is up. I could die of cancer, but I can also be hit by a car, I try not to think about it to much.

So go out and work and have a normal healthy life Pete, this might be the best thing that ever happened to you, I know you can do it and you might even enjoy the chanlenges of every day. Meeting people who do not have cancer and talk to you about everyday things.

Love your wife and kids with all that is in you. I will be your personal cheerleader.
Go Pete Go!!!
hugs, Marjan

janderson1964
Posts: 2215
Joined: Oct 2011

I hate to jump on the bashing Pete band wagon but you know i an into the alternatives but in a responsible manner. I never live beyond my means an have always worked for insurance and an income. We have a business as well that my wife runs. We could live off of that income alone but that would be selfish. BTW i do the laudry and dishes when i can as well as making my own lunch and dinner.

Annabelle41415's picture
Annabelle41415
Posts: 6249
Joined: Feb 2009

After reading your blog about how many supplements you take that is a lot. Surely don't know how you could keep track of that many pills and see why you are having a big credit card bill. Hopefully you getting back to work you can pay that down and give your mind and body some new type of exercise and free yourself from all this worry. Sometimes, with especially as many pills as you take, that can keep reminding yourself of why you are doing it. It's good to be proactive though but golly that seems so confusing. Know you did a lot of research though. Hope you enjoy getting back to work, think it will be good for a change of pace.

Kim

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

Praise and bash away,

the challenge of our cancer and our situations are all unique.

Over the last 18 months i have shared mostly my alternative treatments, now some call them scams and others worthwhile treatments. Well i will just say I have "faith" in my alternatives and fully respect others with different opinions.

Whats really caused the financial problem is not the supplements and the alternative therapies but my decision to see if my wife could run our business while i looked after the kids and focused on my healing. That meant alot business pressure was moved to her shoulders while I coped with kids and cancer pressures. At least on a day to day level. Of course background cancer pressure is with my wife and kids.

I love my hippee alternative lifestyle, i could afford it if we disposed of assets, but we don't have agreement on that yet!. The hippee life, is just on hold! until I can do some business magic, If I still have it in me.

My focus has been healing myself and caring for family, thats cooking the meals, buying the food, picking kids up, taking them to sport. i have been juggling that and my lifestyle treatments and my rising CEA is potentially stable at 47. It may or may not be active disease. Winter i hope you are correct, but from my extensive research cea get over 10 are due to crc. Thats why I am trying so dam hard to fight this illness early on with a range of alternatives when nothing is offered by conventional medicine.

I am glad i have my meditation skills, my peaceful and joyful approach to cancer, to our potential short term financial hardship are all managable.

The extensive range of well selected supplements have all been advised by my team of alternative doctors. that was the best advice i had at the time. I also researched their suggestions and went ahead.

Maximum my supplements are costing $500 a week and that includes doctor consults, 3 lots of iv C and a massive load load "essential" supplements as i see it.

So the budget for the year is only $60K.

Whats really done us in is the financial downturn and our business and i guess my wife ability to cope with it.

So I am doing my business in a very peaceful meditiative style, much different to the old days. My wife and I are working together peacefully, except she still wants things done her way, which i simply explain my reasons on the spot.

We will be fine even if the business goes under, in someways it will be a relief.

But my business was something i built up, that suits my skills and unfortunately not my wifes.

Its a lovelly day, i have to dash peacefully to get my IV C, get into the city and then get back to pickup the kids.

hugs,
Pete

Lovekitties's picture
Lovekitties
Posts: 3332
Joined: Jan 2010

OK Pete, I know I should probably just leave this alone but I want to be sure I understand your thinking about your current situation:

You wrote: “Whats really caused the financial problem is not the supplements and the alternative therapies but my decision to see if my wife could run our business while i looked after the kids and focused on my healing…
Whats really done us in is the financial downturn and our business and i guess my wife ability to cope with it….
But my business was something i built up, that suits my skills and unfortunately not my wifes…”

Do you mean to say that your current financial situation is due to the fact that your wife has been running your business and has not been able to handle it adequately? Or is it possible you could not have done any better under the same circumstances? Or is it possible that you could have offered guidance to help her be more successful? Cash flow has become a problem for all in the world’s poor economic condition.

You wrote: “Maximum my supplements are costing $500 a week and that includes doctor consults, 3 lots of iv C and a massive load load "essential" supplements as i see it.
So the budget for the year is only $60K.”

I take it that you mean this is your weekly cost NOW. Did the travel and expenses of the conferences you attended (one in Atlanta, GA, USA), retreats, specialized therapies, etc. over the last 18 months not contribute to your current debt? $500 per week for a year is only $26K…is the remaining $34K what you have allotted for these other activities? Or is your actual weekly cost $1,154 which would then equal the $60K per year?

You wrote: “my rising CEA is potentially stable at 47. It may or may not be active disease. Winter i hope you are correct, but from my extensive research cea get over 10 are due to crc. Thats why I am trying so dam hard to fight this illness early on with a range of alternatives when nothing is offered by conventional medicine.”

I understand that conventional medicine has not found any active cancer to explain the rise in CEA. I am uncertain if you have had full body scans or bone scans, but have to assume you have had the works to look for active disease. So, it isn’t that conventional medicine doesn’t have anything to offer…just that nothing has been found to treat. Have you considered that your CEA is rising while you are doing all the alts? It would seem to me that those are the things which are failing you, if as you say a CEA over 10 means CRC. Or is it possible that your body is reacting to an overload of alts, therefore causing the rise…which can also be attributed to infections and other things which are not CRC? There is truth to the adage that too much of a good thing can be bad for you. You have to admit that you have had numerous physical complaints while doing the various alts.

I am really trying to understand what appears on the surface to be conflicting info.

Annabelle41415's picture
Annabelle41415
Posts: 6249
Joined: Feb 2009

If you haven't read his blog then you should. The many supplements would boggle the mind - sorry buddy. I'm thinking that all the stuff that he is on is just making his kidneys, heart, liver, pancreas, gallblader, etc work EXTRA EXTRA hard to try and process all of these 75 at least supplements a day and still costing a fortune. If I'm going to die, then that is what God chooses, I'm not giving up my life style and then let this disease take over my life. I'm not wanting to live to a suggested supplement regime that is not studied, however he has studied this, but what someone says isn't always approved so you can go to whoever when you want to make your point. What is good about my life now is that I've not designed my whole life around a disease. Sorry buddy but you have to start living life, not living to stop "what might happen."

Kim

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

ok its a few supplements, i admit.

I just thought i would give the alternatives a good run for their money before i considered other treatment options if they become necessary. taking the supplments is not to difficult in itself. but yes the juicing, making the tcm teas and the entire regime i have is demanding which is why going to work is challenging.

For me I am living to try to stop "what is happening", that is a rising CEA.

If it was normal i would be back to diving and business.

I appreciate the concerns for the supp load on all the organs.

Just for the record, the supplement regime is pretty close to whats recommended by life extension. Most of my blood results are pretty good, the only dodgy one have been my lympocytes which has been attributed to heavy metal poisoning.

now most of the supplements have specific targets like milkthistle the liver, vit d or fish oil. the supplement load is nothing compared to that of most chemo's , but regular blood tests.
One test done recently said i had the blood quality of an olympic athlete, i kid you not!

I have tried to back off the supplements and replace many with diet, not successfully at present.

hugs,
Pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

Answers in BOLD. The whole issue of estate planning was in the back of my mind when i handed the business to my wife two years ago. We have very different approaches, I have always advised her.

You wrote: “Whats really caused the financial problem is not the supplements and the alternative therapies but my decision to see if my wife could run our business while i looked after the kids and focused on my healing…
Whats really done us in is the financial downturn and our business and i guess my wife ability to cope with it….
But my business was something i built up, that suits my skills and unfortunately not my wifes…”

Do you mean to say that your current financial situation is due to the fact that your wife has been running your business and has not been able to handle it adequately? YES Or is it possible you could not have done any better under the same circumstances? I WOULD HAVE DONE MUCH BETTER Or is it possible that you could have offered guidance to help her be more successful? NOT REALLY, ALL THE GUIDANCE REJECTED Cash flow has become a problem for all in the world’s poor economic condition. NOT REALLY, we just have to meet the market, so we drop the price of a room from $350 per week to $290 per week and gets filled. Leaving the price at $350 and it stays empty for months. the specific examples are interesting, but what counts is the annual net profit, because thats what we run our lifestyle on. My decision based on advice to relax and meditate my cancer away necessitated putting the business out of my mind, at least at a day to day and week to week level. I was aware of the deteriorating state of our finances, but kind of left it to the last minute to get involved. In my mind giving myself the maximum time to heal using alternative methods.

You wrote: “Maximum my supplements are costing $500 a week and that includes doctor consults, 3 lots of iv C and a massive load load "essential" supplements as i see it.
So the budget for the year is only $60K.” The $500 a week is now and the product mix changes incrementally as different therapies are tried. Its current treatment spend on therapies and supplement like yoga, qigong, weightlifting ( free), supplements. It does not include food which is really an integral part of the treatment plan, like organic veg etc which is for the whole family.

I take it that you mean this is your weekly cost NOW. Did the travel and expenses of the conferences you attended (one in Atlanta, GA, USA), retreats, specialized therapies, etc. over the last 18 months not contribute to your current debt? $500 per week for a year is only $26K… CORRECT is the remaining $34K what you have allotted for these other activities? YES like conferences, courses, seminars, books, educational! Or is your actual weekly cost $1,154 which would then equal the $60K per year? THE 60K is an annual estimate total treatment related expenses, I have not split up conventional and alternative costs but for the last 8 months the conventional out of pocket is minimal say $2000.

You wrote: “my rising CEA is potentially stable at 47. It may or may not be active disease. Winter i hope you are correct, but from my extensive research cea get over 10 are due to crc. Thats why I am trying so dam hard to fight this illness early on with a range of alternatives when nothing is offered by conventional medicine.”

I understand that conventional medicine has not found any active cancer to explain the rise in CEA. CORRECT I am uncertain if you have had full body scans 2 x PETS or bone scans NOT YET, BUT I ASKED FOR ONE, but have to assume you have had the works to look for active disease. So, it isn’t that conventional medicine doesn’t have anything to offer…just that nothing has been found to treat. Have you considered that your CEA is rising while you are doing all the alts? NOT REALLY BECAUSE THE COMPREHENSIVE LIST OF ALTS ONLY STARTED GETTING ADVISED AFTER THE RISING TREND CONTINUED, I EVEN BACKED OFF THE VIT C AND SUPPLMENTS RECENTLY AND HAD COINCIDENTALLY THE LARGEST RISE IN MY CEA! NOT THAT PROVES ANYTHING, BUT I AM STICKING TO MY VIT C FOR THE TIME BEING. It would seem to me that those are the things which are failing you, if as you say a CEA over 10 means CRC. Or is it possible that your body is reacting to an overload of alts, therefore causing the rise…which can also be attributed to infections and other things which are not CRC? There is truth to the adage that too much of a good thing can be bad for you. You have to admit that you have had numerous physical complaints while doing the various alts. MY BLOODS, URINE, WEIGHT, FSAT RATIO ARE CAREFULLY CHECKED ALMOST WEEKLY the latest was my fatty acid levels, so now i take 2000 5ml fish oil breakfast and dinner. An increase of 50% to get optimum levels in my fatty acid analysis test, even though my result was in the top 90% my alt doctor wants better. Now Zinc is and all the minerals are tested and checked. Some weeks its iodine levels, other weeks its dysbios markers. the test results come so fast i have trouble keeping up with them

I am really trying to understand what appears on the surface to be conflicting info.
ANSWER
Sorry for the confusion Marie. I have had one complaint recently which was fecal incontinence at night, which seems to have resolved itself in the last week. No more colonics for me for along time, maybe never again. I cannot say thats what caused it, but I suspect it was! the dietary modifactions and probiotics and time to heal seem to have cleared that problem. And not a night to soon.

Just to be clear, from where my current understanding is based on all experiences so far in my treatments peace of mind is the key! I hangon to it loosely, it has not deserted me. I don't think the supplements and the meditation I am missing out on will see me keel over tomorrow but i do believe they represent for me the best chance of surviving this illness.

devotion10's picture
devotion10
Posts: 631
Joined: Jan 2010

Hello Pete,

I hope that you do not take my comments as either a "praise or bash" as you mentioned in your previous post -- but, I have some comments about this thread and your response to what folks have said here.

I do think you may have missed the point a bit on some of the comments of the posters. Perhaps what may be causing the critical responses in this thread has to do with you simply providing too much information regarding your personal finances and your criticism of your wife.

It isn't really about how you spend your money, conventional or alternative treatments, that is your private business. But, what I think is bothersome, at least for me and possibly for others, is when you talk about the specifics of the amount of money you spend ... it just seems out of place. Even though some are more fortunate financially than others, as you seem to be, maybe if you discussed your financial concerns in a more general fashion your concerns would be more well-recieved.

Pete, think about it for a minute. You are stating that you have thousands of dollars surplus cash a year to spend on alternative treatments. This is a great deal of money to many people; possibly more money than their entire budget for all their life expenses for a year.

It comes across as rather insensitive to discuss the specifics of how much money you spend. There are people who come to this site who are struggling financially to maintain their jobs so they can keep their insurance as they endure their treatments, or have lost their jobs entirely because their disease simply prevents them from continuing to work, or they are trying to manage on disability insurance, or in the worse case scenario they have no insurance at all to provide for even their basic medical care.

One last point, you have implied that your wife's inability to run your family business, not your alternative treatments costs, is the reason for your financial instability. Perhaps, this also is just too much information Pete, even if you feel it is true. I can't help but feel that if your wife knew that you have been critical of her here that it might hurt and embarrass her deeply.

You speak a great deal about living peacefully and meditating ... I don't know what your mediation focus is, but as an old hippie myself, I always focused on Buddhist compassion meditation techniques. Being compassionate, being mindful, of how your comments might make others feel uncomfortable seems like a worthy ideal -- not always attainable of course -- just something to think about.

Respectfully,

Cynthia

PhillieG's picture
PhillieG
Posts: 4891
Joined: May 2005

I usually stay out of your threads but it does seem that putting the financial distress you are currently in on your wife seems uncalled for and really seems like a frustrated vent at best. Doesn't it go against what many forms of meditation practice? Perhaps you need to accept your situation instead of looking to point fingers. Perhaps you don't...what do I know.
Many of us just get by and live check to check. Not complaining, just saying... Same planet, different worlds.

It's also TMI which is also part of why I don't read many threads - and what bugged Blake too. I can't decipher them!
Try Chrome or Firefox! Something with spellcheck :-)
Or maybe I don't understand Australian, except Fosters (I prefer Coopers Ale)

No one wants to see others suffer, either physically or financially.
I hope things work out.
-phil

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

of course i accept responsibility for the financial mess we are in, i gave the business to my wife, i picked my alternatives based on science and recommendations not on budget. Now budget is a factor.

my post is probably a partly a vent that my wife will not sell one property which would fund my current alternatives for a decade and give her a considerable reduction in pressure.
i can see a few positives in the situation and my next cancer markers will be interesting.

things will workout, life has a way of sorting itself out. even today my accountant friend had a few suggestions that would help.

hugs,
pete

PhillieG's picture
PhillieG
Posts: 4891
Joined: May 2005

I don't mean to be critical of you. Every situation is different. I REALLY admire your quest for health and I know your family means the world to you which quite probably is the driving force behind your trying to stay healthy at any cost.

My family means the world to me too, luckily I'm in this semi-stable Living With Cancer mode. At times I wonder what I'd do when/if things change for he worse... I'll cross the bridge when I get there, hopefully I can stay the course and try to keep working a healthier lifestyle into the mix.

I think we ALL need to vent, even our caregivers need to too.
I agree Pete, life has a way of sorting things out...
Hugs Back!
-p

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

maybe more general would have been better or not at all.

its just i am compelled by finances to drop my number one alternative therapy meditation and go back into the stressful real world, something i would have preferred to do when my cea marker was normal.

is what i spend on alternatives that different to some here going to the best class treatment centers while others get the best service offered by the local hospitals they have access to. I believed sharing the real cost of a comprehensive alternative treatment regime would be of interest and not make others feel bad.

Its late, my melatonin is kicking in and i better go and contemplate compassion.

The intention of my sharing this post is that alternatives do cost real money, but that the most costly aspect for me is deliberately avoiding stress.

I love my wife, thats why I have gone back to work to help achieve her goals and also to keep a roof over our heads. My preference on the 21st November 2011 was to dispose of some assets to fund my treatments. That was the day my CEA rise was documented, the day my moderate alternative supplement regime changed to become an increasingly extreme alternative supplement regime. With interesting results thus far.

I also wonder about making others here uncomfortable here. I have contemplated this before, as my treatment choices are in the minority. But if some meditation, some wheatgrass and supplements and all my alternative treatments give me a better quality and quantity of life then i will be happy. If its gets a few thinking about their treatment choices well i guess thats why we share our journeys.

hugs,
pete

Annabelle41415's picture
Annabelle41415
Posts: 6249
Joined: Feb 2009

Please don't make your family Vegan because you want to - you seem to impress on them, including us that is the way to go. Let your family eat what they want. Life is to short to have to eat tofu and blended greens.

Kim

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hi kim,

its just because life is to short that they eat tofu and blended greens.

if i don't make it through this challenging illness i am keen that my family has the benefit of what i have learnt. with what i have learned to feed my family the western diet would be negligent.

my kids love my homemade organic potatoe hash browns with a little coconut oil.

now the you feed your family your way and I will feed my kids my way.

Some days are vegan for the family, somedays are not.

For me almost all days are vegan.

I put up a post about three months ago i was starting a vegan experiment based on a doctors guarantee it could help reduce my markers. Now that has not happened yet! its gotten my nutritional knowledge to another level entirely. Experiment is the key word. I don't advocate anything, ok maybe that exercise is good for us.

I never said, thats the way we should go here, i have shared that i have been told vegan is a healthy choice by some. the anti cancer diet, whatever that is depends on which alternative doctor you are talking to or seminar you are attending. they all have different perspectives on it which i find really interesting. what i eat what i have access to and what i believe is in the interests of my long term health. My wife and i went out to dinner with about 40 vegans on friday night which was a great night out. Not one unhealthy looking person on the table.

so my family is mostly eating organic, i still given them meat a few times a week. my six year old loves mixed beans and raw broccoli. not eaten together. he also likes the rare fastfood burger and icecream.

hugs,
Pete

WinneyPooh's picture
WinneyPooh
Posts: 318
Joined: Jul 2009

Pete ,
i think it is great you have the opportunity to take trips and try alternative to treatment, it encouraged me to say What the hell and try some things new, I recently became a vegetarian and i try my best to only eat super foods or at least three a day. and i take suppliments and I try and enjoy my art and my kids, I even took a 8 week break from chemo.
I work even though I should not, It is very hard for me because I have to be really close to the toilet most of the time.
Right now I have to buy a dryer and it is driving me crazy because my kids have to kick in their hard earned money and my college bound daughter can't buy a needed computer because we need a dryer.

I recently applyed for public assistance and i never thought i would. I can't stand cancer and i am so broke and in so much debt. it makes me scared at night. my husband fears our cars will be taken away even though we make our payments ( mostly on time.) We almost lost our home back in August 2011 and by the grace of God and my parents we saved it.

I don't fault you for the way you treat your cancer and your life, Keep it up. I just wish i had time and money for vacations, and such. By the way i thought your photos on your web site were fantastic, but where is this blog you talk about?

That my crazy vent.
Penny

steved
Posts: 835
Joined: Apr 2004

I would like to suggest it is left there. I am not sure that this discussion is contributing to any positive outcome and is diverting energies away from the role of this site- to share knowledge and support each other.

I don't entirely agree with a lot of what Pete writes about his treatments, lifestyle choices and family dynamics but it is not the place for me to judge or criticise. I don't think anything he has said is pushing his beliefs onto others here and in fact I worry that others (whom I agree with more about many other things they say) are trying to push their beliefs on how a family/ marriage/ person should function and behave onto Pete.

My own feelings would be we should move on and focus once again on what is valuable in this site. We all bring diverse views and knowledge that at times conflicts with others and that can run the risk of railroading discussions into unhealthy territory.

Everyone has had a chance to put their point across- lets get back to the business of supporting one another.

steve

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

and worthy of further discussion and thinking.
I think it's extremely important that others see what can happen when a person lets cancer take over their lives, that when they seek treatments that go way out there, way past just a few supplements to a life consumed around any supplement that the person hears about, past to where your living in the real world around your family and friends because you are in pursuit of the latest supplement,or the newest meditation technique, the need to do IV vitamin C on a daily basis (really, how much vit C does one need in a day? Drink some ORANGE JUICE!!)
My husband's co-worker became desperate; he was dying of cancer, he was dying, there was no doubt about it. So he flew to the Philippines, went to a "hospital" where they stick their hand "into" your stomach and pull the cancer out and showed him. Naturally he was cured. OF COURSE HE WASN'T, this is something that is touted to people that are desperate, that are dying of cancer, and they grab a hold of it, latch on to it with all their being. Just so you know, his co-worker came back and died from his cancer the next week (pancreatic).
And I think it's important for people to see how far overboard Pete has gone, Pete's scans show no cancerous tumors, things come back clean, yet his CEA is rising, and as it rises, he takes more supplements and tries more things, which will probably make his CEA rise even more, causing him to go more overboard (now if it rises though, he's going to blame his wife for MAKING him do the dreaded thing above all else, and that is work)in an attempt to bring the CEA down.
Whereas I think if he dropped at least half if not 3/4's of the $500.00 a week supplements (including the free ones) he might actually see a decline in his CEA. I'm not a doctor, but heck if my CEA was rising and my scans were clear and the only thing different I was doing was going nuts on supplements, then by golly, I'd start looking at those supplements and NOT MY SPOUSE as the problem.
Hopefully through this discussion, others can see that going a bit crazy about the cancer isn't good for either the pocketbook or the family or even their own health.
That I think is a good reason for this discussion to be here and commented on.
Winter Marie

PhillieG's picture
PhillieG
Posts: 4891
Joined: May 2005

"And I think it's important for people to see how far overboard Pete has gone"
Do you think using the word "overboard" is going a little...overboard? I'm pretty sure many on here see our use of Western Medicine and countless rounds of chemo and surgery as going overboard.

I think we all want to stay alive as long as we can and find a cure that works for us. I do agree with some things you say like the OJ thing. Just drink a glass or two. It's tasty juice. And people will go to extremes like the Witch Doctor type "procedure" that's done in the Philippines and elsewhere. That gives Which Doctors a bad name! Too many supplements? Perhaps...

While I don't agree with Pete's venting at his spouse, they seem to be in a better financial situation than most of us so that gives him more leeway with the treatments he seeks.

I agree it's an important discussion but there's an awful lot of judgement going on. I am guilty of it too. I tried to explain my thoughts better to Pete in his response to me. The discussion is as unique as cancer is, one size doesn't fit all here either.
I'm not by any means telling you what to say, I'm just continuing the dialog...
I hope you're feeling and doing well.
-phil

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

That overboard isn't too harsh a word in Pete's particular case. If you read his posts, he's got into some pretty "overboard" ideas and things that one should step back from on occasion and say to themselves, really, is this safe or sane to do?
And health wise, it may be my heart gets me before cancer does,(thank goodness for nitro) go figure!!! LOL.
Winter Marie

PhillieG's picture
PhillieG
Posts: 4891
Joined: May 2005

Just when I thought it was safe to go back in the ocean, I read about ocean enemas (and I don't mean Sea Anemones).
I agree one may need to step back and reassess things from time to time. I doubt that if I had the resources I'd take the same route but again, it falls under what's comfortable for the individual.
-p

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

Arghhh if only we could legally rob banks, but they rob us ha lol. I hope you ease back into work with less stress.

Helen321's picture
Helen321
Posts: 1393
Joined: May 2012

My ex tried that Sonia, he got 10 in the penn! lol I'd say open a lemonade stand instead, it's safer. Borrow a cute kid or two.

relaxoutdoors08
Posts: 520
Joined: May 2011

Wall Street and the Banks ......caused the downturn in the World Economy ......we all were hurt.

Meditation and anti cancer diet recommended by Mayo clinic....use food not supplements.

Pete, We are here to support you and many wonderful members are trying to say what works for them and they care about you. We are saying find Balance in your life. Do not let cancer win over finding Balance as you meditate.
Sending positive, relaxing thoughts for you.
NB

here4lfe
Posts: 306
Joined: Jan 2010

If I were 'Down Under' I'd help you with those repairs. I only work on my own house, but for you I'd make an exception.

Best

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Have him go back to work. Quit after he has benefits usually 30!days for a new hire and get COBRA. He can't go longer then 62 days without insurance because he then falls under pre existing. I worked so many years just for medical benefits. Then I get sick. Go on cobra to only have it last 18 months. There is something wrong with that picture. Just when we need it.

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Pete. You do what you need to do. You can't take that money with you. Healing is all about the immune system and although supplements haven't proven to heal, they can help your immune system. You going back to work is good. Use the strength that you now have to get your finances in check then heck take two more years.

Take care. It's not your fault that you have the means. It may be what is saving you. My husband would not give a damm if I used all our money for a cure. And, I always pay it forward every day.

I almost lost my house when my husband and I both lost our jobs but I stayed positive and great jobs came our way. It works.

All, please leave him alone..... Basing him is his wife's job.

I would also like to contribute to mom and daughter. Let me know how.

And Pete, I know you are using us as a sound board, but you aren't going to get positive feedback when others are in hurting status, but I will listen.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i loved your comments, a big thanks, and an even bigger smile!!!!!!!

even some of the challenging comments are strangley the most positive. They made me deeply consider my motivations.

i am so stubborn and pigheaded. i know what i am doing is the best i could find for me within the environment i live in. I clear see that solving the financial issue, is the number one task on my healing journey. getting well needs time and money. all that happened is i got so focused on healing, i avoided worrying about money.

the wife bash's and then hugs, just like this board. although some people tend to bash more and hug less, other hug more and bash less.

i did get off my chest my frustration about having my cancer healing focus forcefully directed back to the real world, when i know deep meditation and my alternatives including tcm are the way for me at present.

My nack for making money is still with me, I had not realised how swamped my wife was, that she would not ask for help. she is as stubborn as me in some ways. i still have a good business, but its profitability relies on me, so i need to restructure it to suit all our needs, the wife and the families needs going forward and to give me the funds for my treatment if they are needed. did you see the post about the german clinics.

much like my healing focus, its clear to me now that my financial focus maybe as importsnt to my long term survival as any of my alternatives. So i have to add the financial management back to my current list of tasks.

its crazy but cashflow is king, i thought i was safe because i was blessed with many good assets, but when the credit declines, it declines. when you cannot borrow more money, you have to earn it. i have learned so much out of this financial challenge about keeping a close eye on credit and lines of credit and funding treatment and lifestyle.

I know how to rob the banks legally and i will do it with a smile, i am seeing three private bankers on thursday morning. i will have a shave and put on my suit with the goal of setting facilities that will look after my wife, my kids and myself so we don't have to have this problem again. What I have to do is not illegal, its technically legal and it involves working with the banks by their rules, but also out smarting them. every task has to get a result, time is precious.

off to meditate in the bath, i had such a productive weekend the business losses has stopped, we are making a managable profit now and can pay down the debt.

I will still do my 3 sessions of vit c a week and my qigong, i have fitted my cancer therapies around the work.

thanks for listening, i know many are hurting, our cancer causes such pain.

hugs,
pete

PhillieG's picture
PhillieG
Posts: 4891
Joined: May 2005

LOVE IT!
I tend to do things that are "technically illegal"
:-)
I think if you can separate your finances so the family is A-OK and you have the freedom to pursue your journey it becomes a win-win.
Best of luck!
-p

luvinlife2
Posts: 172
Joined: Jul 2012

with Raquel's post. It's not up to any of us to judge how someone deals with their cancer, raises their family or spends their own money. I LOVE that you are stubborn Pete!!! Thank you for sharing all your research and ideas and keep em coming please!!!

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