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Had a cancellation, I'm going to sloan tomorrow.

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Good thing because the bleeding is so heavy at this point that I was going to go back to my original surgeon anyway. Slept a lot the last three days, BM every two hours, abdominal cramping and can't sit at all. In this case, timing is everything. So. Dr. Guilleme at MSK it is! I think I'll start a cheer leading squad and our main line will be gooo away cancer! It's fitting . .That's alright, that's okay, we're going to beat you anyway! Gooo away cancer! Thanks for all the nice thoughts from everyone, I'm in such a good mind set for tomorrow's appointment because of them, they're much appreciated.

Lovekitties's picture
Lovekitties
Posts: 3355
Joined: Jan 2010

So sorry to hear that you are having such difficult physical issues, but glad there was an opening at Sloan for you tomorrow.

I suggest you take an over night bag with you. Given your seeming rundown condition (sleeping a lot and bleading a lot) they may want you to stay over night.

Praying that the docs at Sloan give you their best news and treatment.

Safe travels.

Hugs,

Marie who loves kitties

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 508
Joined: May 2012

So glad you got in before the 18th and day before surgery. Now you have time to figure things out and go the best way.
Good luck with appt. and let us know.
Sandy

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

I know Sandy, what is the chance? I got so excited when they called. It's the first appointment of the day too so I don't even have to use a vacation day. The timing is working out again. And by the way, Jessie, the guy from my job, surgery the 19th! I thought that day was some sort of good luck for all of us. Good things come in 3s=)

smokeyjoe
Posts: 1428
Joined: Feb 2011

This sounds like amazing timing for you, great you're getting in there:) Good vibes and happy thoughts coming your way, good luck!!!

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Very glad you got an appt., and hope everything goes as smoothly as possible.
Tommycat

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Good idea! I can't imagine that a growth can bleed that much but someone on here said that it's a heavily circulated area so it's a possibility. At this point I'm going with it's going to be what it's going to be, no point in guessing. I'm just hanging on for the ride.

omrhill
Posts: 125
Joined: May 2012

Helen - I'm so sorry you're having such a rough go of it, but so thankful you are going to Sloan tomorrow. I hope you get a good night's rest. I'll be thinking of you and praying for the best.

Robin

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

I was able to get an appointment at N. Western due to a cancellation. Had to drive my path reports down the Friday before a following Mon. appointment. I think it was meant to be and for you too.

We are all cheering for you and it is best you get earlier care/treatment with your recent changes/condition.

Prayers and positive thoughts for you!

So sorry you are going through this.

Barb

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Thanks, I thought the same thing, this is what is meant to be. I feel so much more confident going in there tomorrow that it even answers my local or MSK choice. As long as I like the atmosphere, I'll stick with MSK. It was even a sign that my job added them to my plan just this past January. Last year people had to pay 50% to go there. Life is telling me, hello, path, in front of you, take it!

dmj101's picture
dmj101
Posts: 527
Joined: Nov 2011

I am so happy for you .. you wanted to go to Sloan and now you are getting to..
Follow your Gut..

So sorry you are feeling so poorly.. you are in my prayers..
<>
Donna

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Thanks. I didn't like the "factory feeling" but the goal is to get well, not worry that I'm a number. In the smaller hospital I was given lots of time to talk but if the Sloan doc is right and the course of treatment is just wrong,then I'll get in line at the factory and get this done right! They even assigned me a patient number that I should use when I fill out forms, I thought that was funny. I told the guy, that's okay I'll just be Helen Smith, you know along with the 10,000 other Helen Smith's. Glad he got the joke.

Annabelle41415's picture
Annabelle41415
Posts: 6652
Joined: Feb 2009

Glad that you are getting in this soon as it seems you are having a more difficult time with that bleeding and you could become anemic from it. Hoping that you find out your answers today and they have a great plan for your healing. You are in my prayers and please keep us informed as to what is going on. This might just be the sign you were looking for as to where to go for treatment.

Km

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Actually I thought about that last night. Probably why I slept three days away. Really have to get a grip on the nutrition aspect as I've changed my diet to very low sugar (I am a sugarholic so it's giving up an addiction of sorts) and drinking habits (I'm doing water with just a splash of juice), giving up alcohol was easy because I don't drink. lol The bleeding doesn't help. It's pretty heavy all the time so I'm going to have to have my iron levels checked. Thanks for the prayers. Definitely the sign I was looking for. Decision is made. Chemo is not what I wanted to hear from Sloan but you can't change what is. Ready for the next phase of healing.

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