Brought this to the top for Carol....she needs our support.

April 24, 2012 - 10:03am

Today the onocologist begins.
new
All of my stuff has gotten here from MD Anderson and I will find out what they are going to do to me here for treatment. Sounded gruesome when they spoke of it in Houston. I am battling a rotten bladder infection on top of it all. I feel like throwing in the towel. I am so sick already. I am not going to cry when I get there but it makes me wonder if the treatment kills you too after seeing the post on Dad Passed Away. Soooooooo sorry. I need encouragement. All I feel is fear! Help. cbpgill26


Hi Carol,
I hope you don't mind me bringing your post to the top of discussion, but I was worried it might not get knowticed as well in the other thred. Today is a very scary day for you and I felt you need all of the comfort and feedback we can muster up. Please Carol...try to stay calm and not get too far ahead in your thoughts. There are so many variables to take into account with the various sub-types of Lymphoma. I've been here for almost 2 years now and so far nobody in our group has died from treatment. Age, health and how aggresive the cancer type is, has alot to do with the outcome of treatment. One size doesn't fit all and each one of us is unique. I know how scary this is for you, but I'm sure you are going to be ok and get through this. Let us know what your treatment consists of once you find out, and we will all get back to you with what we know. It's going to be ok. My prayers are with you...Much love...Sue (FNHL-2-3A-6/10)
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Comments

  • jimwins
    jimwins Member Posts: 2,107
    Beginning is hard
    Hi Carol,

    I sent you an email around 2:30pm today in response
    to your post/request earlier today :).

    Sue is giving good advice/information.
    We are here for you. The hardest thing is getting
    started and the "not knowing". Once you've been through
    a couple treatments, you'll know more what to expect.

    Big hugs to you,

    Jim
  • COBRA666
    COBRA666 Member Posts: 2,401
    jimwins said:

    Beginning is hard
    Hi Carol,

    I sent you an email around 2:30pm today in response
    to your post/request earlier today :).

    Sue is giving good advice/information.
    We are here for you. The hardest thing is getting
    started and the "not knowing". Once you've been through
    a couple treatments, you'll know more what to expect.

    Big hugs to you,

    Jim

    We are here
    Carol,
    We are all here for you. We all know what you are going thru. You will be fine as you will see at the finish of the treatments. It is a rough road,but you will do well. John
  • anliperez915
    anliperez915 Member Posts: 770
    Hi Carol
    Hi Carol,
    I just wanted to say that you will be fine Carol, you just have to have faith in God, the Dr's, and the medicine. It's very scary at the beginning and to the unknown but just stay calm like Sue said and be strong and you will be fine OK Sweetie. I'm sending you a (((HUGE HUG)))

    Sincerely,
    Liz
  • forme
    forme Member Posts: 1,161 Member
    another thread
    Hi Carol,

    I posted to you under the thread " anyone hear from Carol"

    Hope you are feeling a little less stressed this evening.

    Hope to talk to you later. I have had a terriable time getting on the site the last few days.

    Take care, Lisha
  • COBRA666
    COBRA666 Member Posts: 2,401
    Other Problems
    Carol,
    Try to remember we do not know other problems and illnesses that people may have. Some are battling other problems we know nothing about.Lymphoma is just one of them. I have read somewhere that in most cases Lymphoma sufferers die from things other than Lymphoma.Yes,you are right about the chemo. It is a poison to all cells to our system,but the body can overcome it and produce new replacement good cells in time. John John
  • COBRA666
    COBRA666 Member Posts: 2,401
    Other Problems
    Carol,
    Try to remember we do not know other problems and illnesses that people may have. Some are battling other problems we know nothing about.Lymphoma is just one of them. I have read somewhere that in most cases Lymphoma sufferers die from things other than Lymphoma.Yes,you are right about the chemo. It is a poison to all cells to our system,but the body can overcome it and produce new replacement good cells in time. John
  • COBRA666
    COBRA666 Member Posts: 2,401
    Other Problems
    Carol,
    Try to remember we do not know other problems and illnesses that people may have. Some are battling other problems we know nothing about.Lymphoma is just one of them. I have read somewhere that in most cases Lymphoma sufferers die from things other than Lymphoma.Yes,you are right about the chemo. It is a poison to all cells to our system,but the body can overcome it and produce new replacement good cells in time. John
  • jimwins
    jimwins Member Posts: 2,107
    I got an email from Carol
    I got an email from Carol at 9:43 this morning.
    I responded with a clickable link to this posting.

    Today: MUGA scan (heart)
    Friday: Port
    Chemo begins Mon. Tues. 6 hr drip Mon. 4hr drip Tues.

    She's anxious/afraid and I'll let her hopefully add more to this post.

    Hugs,

    Jim
  • COBRA666
    COBRA666 Member Posts: 2,401
    jimwins said:

    I got an email from Carol
    I got an email from Carol at 9:43 this morning.
    I responded with a clickable link to this posting.

    Today: MUGA scan (heart)
    Friday: Port
    Chemo begins Mon. Tues. 6 hr drip Mon. 4hr drip Tues.

    She's anxious/afraid and I'll let her hopefully add more to this post.

    Hugs,

    Jim

    Sloooow Drip
    Carol,
    Everyone gets the slow drip at first. They have to make sure your body does not have any reaction. I had a reaction myself of burning in the nose,so they had to slow it down for a few minutes more. After the body got accustomed they speeded it back up, but still took 6/7 hours to finish. John(FNHL-1-4A-5/10)
  • jimwins
    jimwins Member Posts: 2,107
    jimwins said:

    I got an email from Carol
    I got an email from Carol at 9:43 this morning.
    I responded with a clickable link to this posting.

    Today: MUGA scan (heart)
    Friday: Port
    Chemo begins Mon. Tues. 6 hr drip Mon. 4hr drip Tues.

    She's anxious/afraid and I'll let her hopefully add more to this post.

    Hugs,

    Jim

    Advised Carol to use board, etc.
    Also, in my email to Carol I suggested she use
    the boards as much as possible as individuals (like me) may
    not always be around to check mail, etc.

    I explained the posts on the board are public and to
    not share anything she wouldn't want the world to know, etc.

    Thanks

    Jim
  • COBRA666
    COBRA666 Member Posts: 2,401
    jimwins said:

    Advised Carol to use board, etc.
    Also, in my email to Carol I suggested she use
    the boards as much as possible as individuals (like me) may
    not always be around to check mail, etc.

    I explained the posts on the board are public and to
    not share anything she wouldn't want the world to know, etc.

    Thanks

    Jim

    Oh OK
    Well I guess that leaves Facebook out,Huh? LOL
    Just trying to keep it at the top.
  • COBRA666
    COBRA666 Member Posts: 2,401
    COBRA666 said:

    Oh OK
    Well I guess that leaves Facebook out,Huh? LOL
    Just trying to keep it at the top.

    Carol
    Keep us updated. John
  • jimwins
    jimwins Member Posts: 2,107
    Bumping up for Carol
    Bumping this up. Carol emailed me recently.
    and has commented on another post recently.

    Jim
  • allmost60
    allmost60 Member Posts: 3,178
    jimwins said:

    Bumping up for Carol
    Bumping this up. Carol emailed me recently.
    and has commented on another post recently.

    Jim

    Port ...
    Hi Carol,
    Just wanted to drop in and tell you I'm thinking about you. I read Jims list of procedure dates and looks like today is "Port" surgery for you. Hope all goes well. I haven't had any problems with my port since day one. I was a little bit sore for the first week, but from then on, all has been good with it. Take care Carol and let us know how you are doing. Much love...Sue (FNHL-2-3a-6/10)
  • COBRA666
    COBRA666 Member Posts: 2,401
    allmost60 said:

    Port ...
    Hi Carol,
    Just wanted to drop in and tell you I'm thinking about you. I read Jims list of procedure dates and looks like today is "Port" surgery for you. Hope all goes well. I haven't had any problems with my port since day one. I was a little bit sore for the first week, but from then on, all has been good with it. Take care Carol and let us know how you are doing. Much love...Sue (FNHL-2-3a-6/10)

    Checkin' on Ya"
    Carol,
    I guess you are tired right about now. Don't forget to name your new little friend. It will feel like a swollen lump for a few days and then as it heals you will notice the 3 little bumps on top. These are there so the nurse knows exactly where to put the needle for your infusion.It will feel strange at first but will make things a lot easier for you when you go for the infusions. I guess you are an official member of the club now. LOL. You will be fine. John
  • DWS49
    DWS49 Member Posts: 3
    For Carol
    I am hoping you will take time to calm your thoughts. Tackle each day as it comes. Don't try and imagine what may be, but imagine what you can do now, this day, to face the issues you need to attend to.

    I had follicular and diffuse Large B cell non-hodgkins diagnosed in 2002. Since my treatments with CHOP and Retuxin I have beeen in remission and cancer free. There is always hope.
  • jimwins
    jimwins Member Posts: 2,107
    DWS49 said:

    For Carol
    I am hoping you will take time to calm your thoughts. Tackle each day as it comes. Don't try and imagine what may be, but imagine what you can do now, this day, to face the issues you need to attend to.

    I had follicular and diffuse Large B cell non-hodgkins diagnosed in 2002. Since my treatments with CHOP and Retuxin I have beeen in remission and cancer free. There is always hope.

    Congrats !
    Congratulations DWS49 and thank you for giving me hope too ;).
    If you've gone more than 5 years I believe it's considered CURED !

    Hugs and positive thoughts,

    Jim
    DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)
  • allmost60
    allmost60 Member Posts: 3,178
    DWS49 said:

    For Carol
    I am hoping you will take time to calm your thoughts. Tackle each day as it comes. Don't try and imagine what may be, but imagine what you can do now, this day, to face the issues you need to attend to.

    I had follicular and diffuse Large B cell non-hodgkins diagnosed in 2002. Since my treatments with CHOP and Retuxin I have beeen in remission and cancer free. There is always hope.

    Thank you!!
    Hi DWS49,
    Thank you so much for sharing your great response to treatment and how long you have been in remission. It truely gives those of us in our first few years of dealing with our own cancer, a good feeling and added hope that all is going to be ok. May I ask how long you were on Rituxan?...was it a 2 year maint?...and did you have any other form of treatment during this long remission time??? My Rituxan maint will end in Feb 2013 and then I will be doing "watchful waiting"...which kind of scares me, because there is always the possibility my Lymphoma will have a recurrance. This may sound silly, but I'm comforted knowing the Rituxan is in me attacking the cancer...once I'm off of it, I feel like.."oh my...what will keep my cancer at bay, without it"??. Well, no need to worry about that now, I still have 5 more rounds of Rituxan to go. Once again..."thanks" for sharing.
    Best wishes for continued remission. Sue
    (FNHL-stage3-grade2-typeA-diagnosed 6/10) age 61
  • COBRA666
    COBRA666 Member Posts: 2,401
    jimwins said:

    Congrats !
    Congratulations DWS49 and thank you for giving me hope too ;).
    If you've gone more than 5 years I believe it's considered CURED !

    Hugs and positive thoughts,

    Jim
    DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)

    Pics
    Jim,
    Clicked on and saw the new pic and wondered who that was !!! LOL What was the last one you had on here. I saw it so much I can't remember which one it was. LOL John
  • cbpgill26
    cbpgill26 Member Posts: 68
    almost60
    Port is so sore today. Bad nites rest. Glad that is behind me. Just got a phone call from a friend who made it clear her moms cancer came back in four mths. after treatment ended for breast cancer it went to her bones. Heck I had that breast cancer 8 yrs. ago. Now this!She went on to tell me how awful her mother's death was. I have been vomiting every since. I have done better somewhat mentally last two days then this kind of a slammer. She cried wanted things to go back to being the same. etc. etc. I nearly hung up. I will not answer the phone again for anyone but one special friend and close family. I did not need to hear this from her today of all days or any day. I was so elated to see you all out there today. You are all I am hanging onto. I feel blessed to have you. I wish we were all out of the woods forever and well. Shall the sun ever shine again on my face. I swear I wish I had the guts to call it quits myself. I am wracked with agony and fright. I am not as strong as you all are. I am the whimp of the group. I am sorry. Hugs. Diffuse Large B Cell lymphoma noticed first as a lump in the corner of my eye. March of 2012 Stage 1