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Searching for blogs by colon cancer survivors

plumfairy
Posts: 2
Joined: Apr 2012

Hi all! I'm looking for information and communities from colorectal cancer survivors about post-treatment health care. Could some folks please let me know some blogs I could read?

Thanks!

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

Have you tried doing a Google search? They're are plenty of them out there...

plumfairy
Posts: 2
Joined: Apr 2012

Hi! Thank you so much for your response. I have done a lot of searching, and I can't seem to find many.

danker
Posts: 1256
Joined: Apr 2012

What are you looking for? I had stage 2 tumor at high end of rectum , after radiation with simultaneous chemo thru a pump giving me
1 1/4 mg of 5fu 24/7 for 5 weeks . Had a resection with ileostomy. 6 weeks with bag and then take down. Developed fistula causing 6 more weeks with bag. Fistula healed itself from inside out. Now leading normal life with occasional diarrhea. Soon to be 80 yrs old I don't complain. You too can survive it all. Don't be afraid!!!! This is obviously cursble. My best to you.

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

Depending on where you live, there are programs in many communities for cancer patients after treatment is over. Some of these include people in active treatment too. I was part of a "Living Well With Cancer" group that was mixed about 50/50 with those finished with treatment and those Stage IV that will always be in treatment.

My Colorectal Cancer Nurse Navigator was on a task force here where she wrote a Cancer Survivor Care Plan. Did you receive anything like this at the end of your treatments?

Cancer Survivor Care Plan

Also, I would suggest looking for a CRC support group in your area. They are NOT just for patients in treatment, but for those who have finished too. You can get a lot of good information and support, plus you can be an inspiration to someone else going through treatment right now.

John23's picture
John23
Posts: 2140
Joined: Jan 2007

There are some right here!

For instance: http://csn.cancer.org/user/75969/view/blog

Information is where you look for it!

Best wishes for great health!

John

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