1-20-12 Update Stage IV, another Brain Met

Dapsterd
Dapsterd Member Posts: 291
Good Morning All!

Well....this week I found out I have a new 2cm tumor on left side of cerebrum this time, Tumor Board is concerned the cancer is very active-it grew to this size in 3 months. I will undergo Gamma Knife next week as well as a full body Pet/Ct---hope cancer is not back and elsewhere because the gamma knife should take care of the brain quite well.

The Board is talking maybe a clinical trial on a chemo pill that will cross the blood/brain barrier and keep future Mets at bay. We finally pulled out of my Onc that she thinks two years of life left for me is about right, that will get me 3.5 years from DX.

At 48 yr old, I feel I will be on the far end of any experience/statistics, and go farther!!!

WBR does looks like a very last alternative as far as I am concerned, too many issues with that.

Keep you posted next week. Life is good !!

Your friend---_Dave
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Comments

  • soccerfreaks
    soccerfreaks Member Posts: 2,788
    Dave
    Sorry to hear the bad news, but glad to read that there is at least some hope and that your spirits are still up. No telling what can happen in the next couple of years, anyway, with all they have going on now in terms of research and discovery.

    Hope and Humor, my friend!

    Take care,

    Joe
  • z
    z Member Posts: 1,411 Member
    Dave
    Dave, I am sorry about the brain met, but very glad that they will zap it with the gamma. Did you ever get a chance to go to inspire and read about G stage4survivor who went through the same issues with brain mets? Very inspiring to me. I am so glad they have a way to treat the brain mets with gamma. I hope that the chemo pill will be the next great trial to prove successful with crossing the blood/brain barrier. I wish you the best and keep us posted. Lori
  • Glenna M
    Glenna M Member Posts: 1,576
    Dave
    You are such an inspiration to me, with everything you have been through and what you are now going to have to go through and you still manage to stay in such good spirits and encourage the rest of us. I know you are stronger than me because I have still never had the nerve to ask the doctors how much longer I have. Part of me wants to know and part of me doesn't :)

    Will be praying that the gamma knife gets all of the cancer and the PET shows no activity anywhere else.

    I am also hoping for a clinical trial but that's a whole new story that I will post later.

    Stay strong,
    Glenna
  • Dapsterd
    Dapsterd Member Posts: 291
    Glenna M said:

    Dave
    You are such an inspiration to me, with everything you have been through and what you are now going to have to go through and you still manage to stay in such good spirits and encourage the rest of us. I know you are stronger than me because I have still never had the nerve to ask the doctors how much longer I have. Part of me wants to know and part of me doesn't :)

    Will be praying that the gamma knife gets all of the cancer and the PET shows no activity anywhere else.

    I am also hoping for a clinical trial but that's a whole new story that I will post later.

    Stay strong,
    Glenna

    Thanx
    Thanx all. you know, life "is what it is", if I go down, I truly believe that no one will say...that Dave, what a ****!...No, I believe I have touched many people to the good and I think all persons close will reflect on their own mortality and ultimately will be better people.

    Florida...here I come!!!!!!

    Dave
  • soccerfreaks
    soccerfreaks Member Posts: 2,788
    Dapsterd said:

    Thanx
    Thanx all. you know, life "is what it is", if I go down, I truly believe that no one will say...that Dave, what a ****!...No, I believe I have touched many people to the good and I think all persons close will reflect on their own mortality and ultimately will be better people.

    Florida...here I come!!!!!!

    Dave

    hmmm
    You might want to rethink that Dave. I am sorta hopeful that my wife and former girlfriends DO say that!

    :)

    Hope and Humor!

    Take care,

    Joe
  • fathersson
    fathersson Member Posts: 121
    Dapsterd said:

    Thanx
    Thanx all. you know, life "is what it is", if I go down, I truly believe that no one will say...that Dave, what a ****!...No, I believe I have touched many people to the good and I think all persons close will reflect on their own mortality and ultimately will be better people.

    Florida...here I come!!!!!!

    Dave

    I think
    Im new around here.. but you know what I think? Well I think you will beat this thing..

    Best
  • mamacita5
    mamacita5 Member Posts: 254

    I think
    Im new around here.. but you know what I think? Well I think you will beat this thing..

    Best

    You're not going anywhere
    You're not going anywhere Dave. They will GAMMA that thing out of your brain, and you will be good as new. Prayers and best wishes are coming your way from all of us.
  • Sandblaster
    Sandblaster Member Posts: 17
    Dapsterd said:

    Thanx
    Thanx all. you know, life "is what it is", if I go down, I truly believe that no one will say...that Dave, what a ****!...No, I believe I have touched many people to the good and I think all persons close will reflect on their own mortality and ultimately will be better people.

    Florida...here I come!!!!!!

    Dave

    You go Dave
    Hey Dave, awesome attitude.....probably why you keep pushing the odds. Sometimes the miracle is not in healing, but the ability to take whatever journey comes your way and touch others with hope the entire time. I, for one, hope you do beat the odds but I can tell all those around you are lucky you are all journeying together........soak up some sun for me in Florida!!!!
  • Sandblaster
    Sandblaster Member Posts: 17
    Dapsterd said:

    Thanx
    Thanx all. you know, life "is what it is", if I go down, I truly believe that no one will say...that Dave, what a ****!...No, I believe I have touched many people to the good and I think all persons close will reflect on their own mortality and ultimately will be better people.

    Florida...here I come!!!!!!

    Dave

    You go Dave
    Hey Dave, awesome attitude.....probably why you keep pushing the odds. Sometimes the miracle is not in healing, but the ability to take whatever journey comes your way and touch others with hope the entire time. I, for one, hope you do beat the odds but I can tell all those around you are lucky you are all journeying together........soak up some sun for me in Florida!!!!
  • NayPaul
    NayPaul Member Posts: 230
    Dapsterd said:

    Thanx
    Thanx all. you know, life "is what it is", if I go down, I truly believe that no one will say...that Dave, what a ****!...No, I believe I have touched many people to the good and I think all persons close will reflect on their own mortality and ultimately will be better people.

    Florida...here I come!!!!!!

    Dave

    cool stuff
    U r right... life is what it is... and u continue to make a difference in peoples lives!
  • grannylove
    grannylove Member Posts: 183
    DRATS......
    So sorry to hear about the brain mets Dave. You are right....life is what it is. But for now life is good and gracious! You have such a great and strong attitude. Bless you! Praying that the gamma will take care of present and PET/CT will show nothing to be concerned about in future. Stay strong Friend and know you are in my prayers. Get plenty of Vit. D while in Florida! Cheryl
  • Dapsterd
    Dapsterd Member Posts: 291

    hmmm
    You might want to rethink that Dave. I am sorta hopeful that my wife and former girlfriends DO say that!

    :)

    Hope and Humor!

    Take care,

    Joe

    Funny
    Joe Soccerfreaks has always added the required humor to this site !!
    Gotta Love It !!

    Dave
  • Dapsterd
    Dapsterd Member Posts: 291

    DRATS......
    So sorry to hear about the brain mets Dave. You are right....life is what it is. But for now life is good and gracious! You have such a great and strong attitude. Bless you! Praying that the gamma will take care of present and PET/CT will show nothing to be concerned about in future. Stay strong Friend and know you are in my prayers. Get plenty of Vit. D while in Florida! Cheryl

    1-24-12 Update
    Hello Family !

    Pet/CT of body turned up NED. Still can see scarred right upper lobe and both lower lobes due to infections and pnuemonia but all is good!
    Got Gamma Knife yet tomorrow on brain for one 1" tumor, but GF is usually quite successful.

    Thanx for all the support!, good for a number of months now!

    Lifes' a Beach !

    Dave
  • NayPaul
    NayPaul Member Posts: 230
    Dapsterd said:

    1-24-12 Update
    Hello Family !

    Pet/CT of body turned up NED. Still can see scarred right upper lobe and both lower lobes due to infections and pnuemonia but all is good!
    Got Gamma Knife yet tomorrow on brain for one 1" tumor, but GF is usually quite successful.

    Thanx for all the support!, good for a number of months now!

    Lifes' a Beach !

    Dave

    f in great to hear....
    :)
  • z
    z Member Posts: 1,411 Member
    Dapsterd said:

    1-24-12 Update
    Hello Family !

    Pet/CT of body turned up NED. Still can see scarred right upper lobe and both lower lobes due to infections and pnuemonia but all is good!
    Got Gamma Knife yet tomorrow on brain for one 1" tumor, but GF is usually quite successful.

    Thanx for all the support!, good for a number of months now!

    Lifes' a Beach !

    Dave

    Dave
    Great News! Now just zap that tumor out and your all NED. I wish you continued great news, and take the time to do the naked happy dance. Lori
  • ColoradoDani
    ColoradoDani Member Posts: 65
    z said:

    Dave
    Great News! Now just zap that tumor out and your all NED. I wish you continued great news, and take the time to do the naked happy dance. Lori

    Excellent news!
    Hooray.
  • mamacita5
    mamacita5 Member Posts: 254

    Excellent news!
    Hooray.

    So happy for you Dave!!

    So happy for you Dave!!
  • Dapsterd
    Dapsterd Member Posts: 291
    mamacita5 said:

    So happy for you Dave!!

    So happy for you Dave!!

    It's All Good !
    Thanx so much Family....Gamma Knife went well, older GF showed great success I found out on the other tumors, and body is NED. On Steroids for a week, but is will be ok.

    I wish the best for all of the "C" people, AND their caretakers.

    So everything is good for now !!!

    Dave
    Stage IV Adenocarcinom LC
  • grannylove
    grannylove Member Posts: 183
    Dapsterd said:

    It's All Good !
    Thanx so much Family....Gamma Knife went well, older GF showed great success I found out on the other tumors, and body is NED. On Steroids for a week, but is will be ok.

    I wish the best for all of the "C" people, AND their caretakers.

    So everything is good for now !!!

    Dave
    Stage IV Adenocarcinom LC

    WAHOO for GF!!
    Blessings to you Dave! NED is music to ones ears. Life is good. So happy for you. Cheryl
  • z
    z Member Posts: 1,411 Member
    Dapsterd said:

    It's All Good !
    Thanx so much Family....Gamma Knife went well, older GF showed great success I found out on the other tumors, and body is NED. On Steroids for a week, but is will be ok.

    I wish the best for all of the "C" people, AND their caretakers.

    So everything is good for now !!!

    Dave
    Stage IV Adenocarcinom LC

    Dave
    Great News! Ned is good. Lori