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Stage 4, 3 years NED

Randy33
Posts: 69
Joined: Jan 2011

I just got the results from my last CT scan and x-ray and they were both clear. I have now been NED for 3 years since I was diagnosed July 07 as Stage 4 CCR with met. in my liver. I have posted before with the program I have been following, but thought I should do it again for those new to the board. I am not saying that this is the answer but so far it has been working for me.
1. Exercise 3 hrs/day (walking, yoga, weightlifting,and running)
2.Mediterranian diet ( no red meat, lots of fruit, vegetables,whole grains, green tea
and tumeric)
3. Supplements(asprin, resveratrol,grape seed extract, fish oil, Co-Q-10, multi-vitamin
and Vit. D3)
4. Avoid stress
5. Visulize my anti-bodies attacking cancer cells
6. Prayer
7. Wear a lucky Livestrong bracelet given to me by a cancer survivor.
As you can see I try to cover all the bases. My only complaint is that I still have some numbness in my feet from the Chemo ( 10 rounds Folfox/Avastin). Anyway it seems like there has been a lot of bad news posted lately so I thought a little good news would be nice. Best wishes to all of you.
Randy

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

Thanks Randy,
I am doing most of the program you are following. A positief outlook also helps and meditation. Lots of juicing. I do not know where to find a bracelet like you have.
I am a relative newby. DX last year stage IIIB on April 2011. so far still NED.
I wish you good health for 2012,
hugs, Marjan

Lovekitties's picture
Lovekitties
Posts: 3372
Joined: Jan 2010

Try this web site

http://www.livestrong.org/Shop

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

Awesome, thanks, just as I said I cannot find it a booth appeared in my mall and now I am wearing one. Works great for my Arthritus as well.
Hugs, Marjan

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Awesome thanks Randy for posting I have a question when and how to you take tumeric again thank you

Randy33
Posts: 69
Joined: Jan 2011

I just buy tumeric at the grocery store then mix it with black pepper and garlic powder in equal proportions. I then sprinkle it on about everything- eggs, soup, pizza, spagetti,etc. I try to have some every day.
Randy

toyfox's picture
toyfox
Posts: 158
Joined: Apr 2011

Thanks for the good news it's really needed here.
My husband and I are pretty much following everything you have listed.
The one exception would be not quite that much exercise.
We go to the YMCA almost every day....my husband really enjoys the sauna.
Wish you the best....Linda

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Nice! Congrats on being NED, that's really great news! Thanks for sharing. :-)

relaxoutdoors08
Posts: 520
Joined: May 2011

Thank you for the information. I too am trying to stay NED after being told I am in the group most likely to have a recurrence. I use Tai Chi instead of Yoga but I continue to use visualization and meditation which I used during Folfox to control nausea. You are an inspiration.
NB

smokeyjoe
Posts: 1428
Joined: Feb 2011

Thanks for posting...we need this type of re-inforcement :)

janie1
Posts: 753
Joined: Apr 2011

Thank you Randy33!!!!

jasminsaba
Posts: 157
Joined: Jul 2011

for your post ... there has been a lot of sad news on this and other forums I visit lately so it's nice to hear your uplifting story.

cynthiapi40
Posts: 36
Joined: Sep 2011

Thanks for your post. My husband was dx with stage 4. I thought at one time, it was never possible to be NED with stage 4. But thanks to this network of great people I know it is possible.

lightchaser777
Posts: 4
Joined: Mar 2011

I was wondering if you began the vitamin supplement regiment while you were on chemo or after? If you were taking it during chemo, what did the onc say about the onc say about interactions with the chemo drugs?

I admire you. Seems like I try to get myself up and running with exercise and nutrtion thing but get knocked down again from the side effects of the drugs. Right now, eating is a challenge..although, to look at me, I am far from malnourished!

Randy33
Posts: 69
Joined: Jan 2011

The only supplement I took during chemo was the multi-vitamin. I didn't find out about all the other supplements until I was NED and searching for things to do to prevent recurrance. I don't think my doctor would let me take anything but a multi-vitamin when I was on chemo. He did encourage me to exercise as much as possible and eat a balance diet. In the last few weeks of chemo all I could do was walk an hour in the morning and do some yoga. By 3 pm I was dead tired.As far as eating goes I think my doctor had me on steroids to keep up my appetite.Good luck in your fight.
Randy

tootsie1's picture
tootsie1
Posts: 5065
Joined: Feb 2008

I don't know if it would be the magic solution for everyone, but it sure seems to be working for you. Awesome!

*hugs*
Gail

janderson1964
Posts: 2215
Joined: Oct 2011

I too am a stage IV survivor who is NED for the 3rd. time. Congradulations on the good news. You do alot of the same things I do. Keep up the good work.

Jeff

Randy33
Posts: 69
Joined: Jan 2011

Jeff,

Congrats on being NED!. I have a question. How long did you go between recurrances?
The one thing I can't seem to get any info on is when recurrances happen. Like what percentage of recurrances happen within 1 year, 2 years, 3 years. etc. after being NED.
I hope the 3d time being NED is lucky for you.
Randy

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I was basically on the same plan as you all through chemo and for about 2 years. Then I stopped the supplements about six months ago, gained 10 pounds and here I am with my CEA up again. I am going to go back and do my supplements and walk and see if I can get it back down again. Thanks for sharing.

druidshadow's picture
druidshadow
Posts: 85
Joined: Feb 2012

i am new to all this what does NED mean?

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Hi,

It means: "No Evidence of Disease" - Welcome to the Board, sorry you have to be here. Take care, Cyn

relaxoutdoors08
Posts: 520
Joined: May 2011

NED No Evidence of Disease much like the previous term being "in remission".
NB

Thanks LIving in NH -- you beat me to the post. Have a nice day.

druidshadow's picture
druidshadow
Posts: 85
Joined: Feb 2012

i wanted to thank yo both for letting me know i am only been at this a couple months and this is the first time i have talked to anyone on boards like this, i tried the chat room but can't seem to get in. john

smokeyjoe
Posts: 1428
Joined: Feb 2011

Randy, I'm curious, have you been off chemo. for a while and if so how long. Was your liver met dealt with by surgery? Thanks

Randy33
Posts: 69
Joined: Jan 2011

I completed 10 rounds Folfox/Avastin in Dec. 08. My doctor wanted me to do 12 rounds, but the neuropathy got too bad and I had to stop. I still have some numbness in my feet. The original plan was to do surgery after chemo but the PET scan showed that my liver met had disappeared. My doc told me that I had a 95% chance of recurrance, but so far I have managed to stay NED.
Randy

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I finished Folfox / Avastin Oct 2009. My CEA starting going up about December 2011. Slight tumor activity in pet but not CT, January 2012.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

As for getting into chat I can't seem to either, but I think I could using explorer and not foxfire, I can't remember, but I believe that is what I had to do.
Winter Marie

menright's picture
menright
Posts: 258
Joined: Oct 2008

Glad to hear your encouraging story. I too am Stage IV with mets to liver and lung. Liver resection took care of that. Now a lung surgery will hopefully do the same. Enjoy the NED!

Mike

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

What wonderful news, thank you so much for sharing.
Keep up the diet and exercise and anything else you are doing, because it seems to be working GREAT for you!!!
I'm really, really trying to get into the exercise thing. I discovered I'm not the type of person to do the gym etc.(I've tried and failed so many times), but lately since I got an IPod, I rediscovered the music I used to dance to so many years ago, and am getting a nightly work out under the moon and the stars in my back yard, now that's exercise I discovered I can hang with.
Keep up the good work and healthy life style!!!
Winter Marie

seek@light
Posts: 26
Joined: Dec 2011

Hi Randy,

What an encouraging story in such a special day. I visited the website yesterday and ended up with tears in my eyes for Lisa's case. I was a little bit scared to be back today.

Thanks a lot!

Gary

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