Thank you, I will as soon as I get home. CEA check every 6 months, but it went up last time to 6, so now every 3 months. Scan if it continues to go up. scans every 6 months but was heading to yearly
Good news on the tube, cancer deaths have decreased 25% for men and, and 16% for women. Men were higher because of decrease in lung cancer due to quitting smoking. That is a million lives a year being saved today vs when they started tracking - mid 80"s
Kim, we have had a great week celebrating so much, that we were tired, we stayed home that night! But we had some nice dinners, movies and excitement. My Mom's birthday on New Years Eve.
We had a water leak in the house, pipe broke so we are taking this opportunity to remodel the kitchen before the new floor is put in.
Up to 11.7. Almost doubled. Scans next week and if they see something I go on Avastim I pull to for 3 months and maybe some radiation. We shall see. It's his rxperience something is there. Pete. Here we go
I am so sorry to hear about the increase in CEA. Maybe something else is causing the rise. If it is cancer you will beat it down again. You are in my prayers.
Hugs Nana. I still can have hope the scan finds nothing! I know u r gearing up for them to find something though. I'm definitely sorry to hear this- I'll be praying for you. Hugs!
Not the news I wanted to log on and see. The number is still low, but it is there, hopefully if anything is going on it sounds like your doc is on top of it and will act quickly.
Thanks all. I appreciate your kind words. I can see that my CEA started its up swing since I went back to work. I have started to go in an hour later and just that has helped my spiritually, it so much nicer going to work in daylight hours. If my CEA does not improve by the time I have to start nights and work 7 days a week, I will not be working. I already did my time of company devotion and all they did was toss me and my colon out! No thank you! :). I plan to take care if my body.
Happy Anniversary to you and your husband. That is quite an accomplishment!
I am sorry your CEA is on the rise. I hope it's from some inflammation or something else. You are definitely in my prayers. We were diagnosed at the same time...
I guess you must have had your scan today- I'm praying for your mind to eased and that you can get a restful sleep tonight. Waiting on pins and needles with you for those results...
Hugs my friend,
Called the ONC for scan results. His MA said he wants to see you in person. Nothing major but he wants to explain the scans to you GREAT!!!! I have to make an appointment..
Ok. Dr appt over. I have some cancer activity on my liver that got picked up on my pet scan but not on the ct. That means that it's too small to be picked up on the CT scan. I can do chemo now in pill form or wait and check my blood level monthly (CEA) for 3 months I have decided to wait 3 months. Either way it looks like chemo for 6 months is the plan. It's not as rough as before but still has side affects. The activity has always been there it's just now growing a bit....so, it must be cancer. Hubby wants me to start chemo. I have to think about it. Summer and long hours start in August. Onc said March and a 30 day break is what he recommends. Starting now I would be pooped right on time for my busy season....by August. It's Avastin, and i can't remember the other chemo pill. I should have wrote it down! He sad I could do 6 pill a day, morning and night, or two pills every day, or a #? pill for five days, and five days off.
My husband asked what are the benefits of waiting for the chemo...Ah, I don't know! ONC said 3 months on, one off, then three on, that would allow me a month to build some strength for my busy summer months (work 12/7). I really think that he is not sure it's chemo, I mean why would he wait?!?!?!
Gosh, what was that chemo name! I think Xeloda Big Mind dump
I have been waiting for your update. So sorry that it has reared it's ugly head again. I certainly hope that whatever chemo regimen you choose will not have terribly bad side effects and it will wipe this little bugger out and you will become NED again soon.
i havent posted on this thread yet as i was waiting for your results and what your findings where after your onc appt.so sorry that this is happening maybe the pill wont be as bad.that is what i am supposed to go on if i can ever get things going right for me.i will be on xeloda.hugs to you and fight on....Godbless....johnnybegood
You'll probably do 3000-4000 mgs a day...pills are 500mg each...so you divide that by morning and evening...most of the time it is 2 weeks on - 1 week off....toxicity will build up rather quickly and you'll notice it in your feet, Raquel...start creaming your feet early, or you won't be moving around the plant like you are accustomed to doing...can make your feet peel and blister horribly...and over time can be hard to even stand or wear shoes.
If things get really bad, you should be able to switch to a 7-day on - 7-day off program...this will help...and you'll get a full bottle out of the month - thereby using only 1 bottle instead of popping for the 2nd...Xeloda is considered a Rx and thus is subject to out of pocket cashola...when I was doing it, that was about $150 a bottle for me - the actual cost was $2000 a bottle....so if you can save a bottle a month, that can add up. It will just depend on what you can tolerate....the key thing to remember is there is some FLEXIBILITY in the way it is administered.
A little hard on the stomach, but about like the IV version...flouracil is just nasty stuff too.
A 3 month wait is certainly not against the grain...you might finally see the growth in the CT...I've done many PETs and there are alot of false/positives with those...CT and PET combined gives a better comfort feeling before heading back into this.
Avastin is good for most people, but can cause congestive heart failure...I read that in the manufacturer's "white paper" that they give with the drug...doesn't say how long for this to occur...I developed a heart arrythmia from it....I took it about 8-9 months.
I know you've tried to lead a healthy lifestyle and all of that...your case is another reminder to all of us that recurrence is prevalent with our disease and and can find us, despite our best efforts to stave it off.
I'm wishing you luck with your new approach...the combo you are on sounds workable as far as maintaining employement - so, you've got that going for you.
I took it with my reoccurrance to my lung, did surgery, then 8 months of Xeloda, it was hard taking the pills knowing it was going to make me sick, but for me it was so much better than the IV chemo. Not sure if liver mets are treated differently, but I didnt take anything but the Xeloda for the lung met, and I have been clear going on almost 4 years. I will keep you in my prayers..
I'm sorry to hear of your recurrence. I hope the best plan of action finds you soon. I have no experience with Avastin,so can't comment. My experience with xeloda was mild. The only side effect I got from the xeloda was hand and foot syndrome. I had some peeling of my hands and feet. (not too bad) I had no other side effects. I did pretty good. I pray that you do good, as well.
Karen
Sorry for the lousy news. I don't have any advise members have not already posted. Waiting to start chemo, not waiting, that decision is yours to make. Recurrence is always tough, so many decisions to make. I wish I had a majic wand to point you in the right direction.
Any posibility of getting that spot out with radiation like with lung mets? Just a thought.
We are waiting on the chemo. We will do the CEA check every month for 3 months, meanwhile I am back on supplements Juicing my greens and just staying away from eat, star white rice, white bread, white pasta. Fruits, nuts, veggies, salmon, & greens. I love fruit and veggies so don't miss the food and white stuff. I eat a cup of frozen pommergranite seeds each night, while in season. Wild berries, red grapes, tangerines, kumquat, aloe juice. Just going back to what I was doing earlier. We shall see if it makes a difference.
que sera sera.... It s, way it is. Not meaning that I'm giving up. I mean don't fret. Keep on living. We can't see the future, but I am here today!
CEA up 2 now at 13. Next check end of February. I will have a talk with the ONC about starting CHEMO. He wants to do another PET scan end of March, but why go through that!
Hi Nana B
I have been following your journey and I just started juicing so thank you for sharing your nutrition plan. Prayers for a good response to chemo.
NB
Joined: Aug 2011
Please post your results
Please post your results when you get them, okay?
Joined: Jul 2008
I'm thinking "down"...
Hi Raquel,
Let us know when you know the CEA results.
I'm thinking "go down" & hope that will be the case this time.
Hugs,
Lisa
Joined: Feb 2008
Praying for GREAT results!
Praying for GREAT results!
Joined: Feb 2011
How often do you get your
How often do you get your CEA checked and how often do you have scans now? Wishing you great results :)
Joined: Sep 2010
Praying
Praying its got down you and jorge got it the same day I'm praying for you both
Joined: Feb 2009
Test
Hoping that all goes well for you. Happy Anniversary, did you do anything special?
Kim
Joined: May 2009
Thank you, I will as soon as
Thank you, I will as soon as I get home. CEA check every 6 months, but it went up last time to 6, so now every 3 months. Scan if it continues to go up. scans every 6 months but was heading to yearly
Good news on the tube, cancer deaths have decreased 25% for men and, and 16% for women. Men were higher because of decrease in lung cancer due to quitting smoking. That is a million lives a year being saved today vs when they started tracking - mid 80"s
Kim, we have had a great week celebrating so much, that we were tired, we stayed home that night! But we had some nice dinners, movies and excitement. My Mom's birthday on New Years Eve.
We had a water leak in the house, pipe broke so we are taking this opportunity to remodel the kitchen before the new floor is put in.
Joined: Oct 2010
Good results to you buddy,
Good results to you buddy, good friend, beautiful person!
love ya, gail
Joined: Aug 2011
Thinking of you today while
Thinking of you today while you wait for your results.
Sending light.
Laura
Joined: Apr 2011
Thinking
I'm also thinking of you and hoping for good results.
Linda
Joined: Jun 2010
Stable or down
Those are my hopes for you, Raquel.
Congrats on the AV as well! At 27 years you should know every fine line in your partnership. Here's to the next 27!
Blake
Joined: May 2009
Up to 11.7. Almost doubled.
Up to 11.7. Almost doubled. Scans next week and if they see something I go on Avastim I pull to for 3 months and maybe some radiation. We shall see. It's his rxperience something is there. Pete. Here we go
Joined: Aug 2011
This is not what I was
This is not what I was hoping to hear for you. This new year is bringing many battles for many people. Here's to you winning your battle!
Brenda
Joined: Jul 2010
Sorry to hear this
Raquel,
I am so sorry to hear about the increase in CEA. Maybe something else is causing the rise. If it is cancer you will beat it down again. You are in my prayers.
Hugs,
Sara
Joined: Mar 2011
Raquel, I am so sorry to
Raquel, I am so sorry to hear this. Sending prayers you way.
judy
Joined: Jul 2008
Hugs
Hugs Nana. I still can have hope the scan finds nothing! I know u r gearing up for them to find something though. I'm definitely sorry to hear this- I'll be praying for you. Hugs!
Joined: Jun 2010
I am sorry and will be
I am sorry and will be praying for you.
Joined: Aug 2011
Not the news I'd been hoping
Not the news I'd been hoping to hear from you.
Keep us posted on the scan results.
Sending light and prayers.
Laura
Joined: Oct 2010
I'm sorry Raquel...I hate
I'm sorry Raquel...I hate this dam cancer so much!
love ya, Gail
Joined: Oct 2011
So sorry...
to hear your news. I hope the scans will show that all is well. And congratulations on your anniversary-that's quite an achievement.
Joined: May 2011
Congratulations and Prayers
Congratulations on your 27th. Prayers for good results on the scans.
NB
Joined: Sep 2010
sorry
I'm so sorry I'm sending paryers now hugs
Joined: Oct 2009
Nana:
Not the news I wanted to log on and see. The number is still low, but it is there, hopefully if anything is going on it sounds like your doc is on top of it and will act quickly.
Take care - Tina
Joined: Feb 2011
This is disappointing for
This is disappointing for both you and Pete, hope the scans find it's not cancer but something else going on that's causing this spike.
Joined: Aug 2011
Nana
I'm sorry to hear about your CEA rising. Hoping for the best possible outcome on your scan.Your in my prayers.
Karen
Joined: Dec 2011
Sorry to Hear
Sorry it wasn't what you hoped - even though I'm new new here you have given me so good advice.
Joined: Aug 2010
Feel so sorry Raquel
Hope is something easy to cure , praying for that!
Joined: May 2009
Thanks all. I appreciate
Thanks all. I appreciate your kind words. I can see that my CEA started its up swing since I went back to work. I have started to go in an hour later and just that has helped my spiritually, it so much nicer going to work in daylight hours. If my CEA does not improve by the time I have to start nights and work 7 days a week, I will not be working. I already did my time of company devotion and all they did was toss me and my colon out! No thank you! :). I plan to take care if my body.
I remain positive and optimistic!
Raquel.
Joined: Nov 2008
Happy Anniversary
Happy Anniversary to you and your husband. That is quite an accomplishment!
I am sorry your CEA is on the rise. I hope it's from some inflammation or something else. You are definitely in my prayers. We were diagnosed at the same time...
Amy
Joined: May 2009
January 18, 2012I get
January 18, 2012
I get rescanned tomorrow morning! Hate scans!! ONC is thinking Avastin in pill form if tbey find something!
I just got over eye, ear and upper respiratory infections. I hope that was the problem in the rise in CEA.
Joined: Apr 2010
Wishing you good results
Wishing you good results tomorrow...and will send a prayer or two as well.
All my best,
Cyn
Joined: Jul 2008
your scan today
Hi Raquel,
I guess you must have had your scan today- I'm praying for your mind to eased and that you can get a restful sleep tonight. Waiting on pins and needles with you for those results...
Hugs my friend,
Lisa
Joined: May 2011
Prayers for Good Results & Scans
Nana B,
Wishing you the best on your tests. You have our prayers.
NB
Joined: May 2009
Nothing major. Hmmmmm
Called the ONC for scan results. His MA said he wants to see you in person. Nothing major but he wants to explain the scans to you GREAT!!!! I have to make an appointment..
Joined: Feb 2011
Don't ya just hate the
Don't ya just hate the wait? Now you're wondering what is there to explain!!!! Hopefully it's nothing.
Joined: Nov 2010
sorry sweety,
Dear raquel,
I hope you find some peace of mind during this stressful phase.
sorry we are in similar boats. hoping for the best for you.
hugs,
pete
Joined: May 2009
Chemo time
Ok. Dr appt over. I have some cancer activity on my liver that got picked up on my pet scan but not on the ct. That means that it's too small to be picked up on the CT scan. I can do chemo now in pill form or wait and check my blood level monthly (CEA) for 3 months I have decided to wait 3 months. Either way it looks like chemo for 6 months is the plan. It's not as rough as before but still has side affects. The activity has always been there it's just now growing a bit....so, it must be cancer. Hubby wants me to start chemo. I have to think about it. Summer and long hours start in August. Onc said March and a 30 day break is what he recommends. Starting now I would be pooped right on time for my busy season....by August. It's Avastin, and i can't remember the other chemo pill. I should have wrote it down! He sad I could do 6 pill a day, morning and night, or two pills every day, or a #? pill for five days, and five days off.
My husband asked what are the benefits of waiting for the chemo...Ah, I don't know! ONC said 3 months on, one off, then three on, that would allow me a month to build some strength for my busy summer months (work 12/7). I really think that he is not sure it's chemo, I mean why would he wait?!?!?!
Gosh, what was that chemo name! I think Xeloda Big Mind dump
Joined: Apr 2009
Raquel
I have been waiting for your update. So sorry that it has reared it's ugly head again. I certainly hope that whatever chemo regimen you choose will not have terribly bad side effects and it will wipe this little bugger out and you will become NED again soon.
Take Care,
Wolfen
Joined: Jul 2008
Here you go again
I'm so sorry Raquel! Hugs to you- this is lousy!
I will be thinking of you and praying for you.
Lisa
Joined: Oct 2008
hey Raquel
i havent posted on this thread yet as i was waiting for your results and what your findings where after your onc appt.so sorry that this is happening maybe the pill wont be as bad.that is what i am supposed to go on if i can ever get things going right for me.i will be on xeloda.hugs to you and fight on....Godbless....johnnybegood
Joined: Jun 2009
Xeloda is Correct...
You'll probably do 3000-4000 mgs a day...pills are 500mg each...so you divide that by morning and evening...most of the time it is 2 weeks on - 1 week off....toxicity will build up rather quickly and you'll notice it in your feet, Raquel...start creaming your feet early, or you won't be moving around the plant like you are accustomed to doing...can make your feet peel and blister horribly...and over time can be hard to even stand or wear shoes.
If things get really bad, you should be able to switch to a 7-day on - 7-day off program...this will help...and you'll get a full bottle out of the month - thereby using only 1 bottle instead of popping for the 2nd...Xeloda is considered a Rx and thus is subject to out of pocket cashola...when I was doing it, that was about $150 a bottle for me - the actual cost was $2000 a bottle....so if you can save a bottle a month, that can add up. It will just depend on what you can tolerate....the key thing to remember is there is some FLEXIBILITY in the way it is administered.
A little hard on the stomach, but about like the IV version...flouracil is just nasty stuff too.
A 3 month wait is certainly not against the grain...you might finally see the growth in the CT...I've done many PETs and there are alot of false/positives with those...CT and PET combined gives a better comfort feeling before heading back into this.
Avastin is good for most people, but can cause congestive heart failure...I read that in the manufacturer's "white paper" that they give with the drug...doesn't say how long for this to occur...I developed a heart arrythmia from it....I took it about 8-9 months.
I know you've tried to lead a healthy lifestyle and all of that...your case is another reminder to all of us that recurrence is prevalent with our disease and and can find us, despite our best efforts to stave it off.
I'm wishing you luck with your new approach...the combo you are on sounds workable as far as maintaining employement - so, you've got that going for you.
I hope that you do well.
-Craig
Joined: Jul 2007
Xeloda is right
I took it with my reoccurrance to my lung, did surgery, then 8 months of Xeloda, it was hard taking the pills knowing it was going to make me sick, but for me it was so much better than the IV chemo. Not sure if liver mets are treated differently, but I didnt take anything but the Xeloda for the lung met, and I have been clear going on almost 4 years. I will keep you in my prayers..
HUGS
Beth
Joined: Aug 2011
Hi Raquel
I'm sorry to hear of your recurrence. I hope the best plan of action finds you soon. I have no experience with Avastin,so can't comment. My experience with xeloda was mild. The only side effect I got from the xeloda was hand and foot syndrome. I had some peeling of my hands and feet. (not too bad) I had no other side effects. I did pretty good. I pray that you do good, as well.
Karen
Joined: Nov 2010
re chemo time
dear raquel,
it is what it is. thats a meaningless comment.
i wish you were clear, but alas you are not.
some days i want my chemo start without a target, other days i don't think i want chemo again.
i am on an emotional rollercoaster. are you ?
all i can send you is peace, prayers and wishes for good health.
hugs,
Pete
ps my pets has come back clear again, which is fantastic, my cea is stable between 16-17.
Joined: Oct 2009
Rachael:
Sorry for the lousy news. I don't have any advise members have not already posted. Waiting to start chemo, not waiting, that decision is yours to make. Recurrence is always tough, so many decisions to make. I wish I had a majic wand to point you in the right direction.
Any posibility of getting that spot out with radiation like with lung mets? Just a thought.
Take care - Hugs - Tina
Joined: Jan 2009
Raquel
Raquel,
Thinking about you as you process this new information. I'm so sorry you have to go through this again. You're in m prayers.
Aloha
Kathleen
Joined: May 2009
Thanks!
We are waiting on the chemo. We will do the CEA check every month for 3 months, meanwhile I am back on supplements Juicing my greens and just staying away from eat, star white rice, white bread, white pasta. Fruits, nuts, veggies, salmon, & greens. I love fruit and veggies so don't miss the food and white stuff. I eat a cup of frozen pommergranite seeds each night, while in season. Wild berries, red grapes, tangerines, kumquat, aloe juice. Just going back to what I was doing earlier. We shall see if it makes a difference.
que sera sera.... It s, way it is. Not meaning that I'm giving up. I mean don't fret. Keep on living. We can't see the future, but I am here today!
Joined: May 2009
Quick update
CEA up 2 now at 13. Next check end of February. I will have a talk with the ONC about starting CHEMO. He wants to do another PET scan end of March, but why go through that!
Joined: May 2011
Thanks for the Juicing Information
Hi Nana B
I have been following your journey and I just started juicing so thank you for sharing your nutrition plan. Prayers for a good response to chemo.
NB
Joined: Feb 2011
Oh, this must be so
Oh, this must be so frustrating for you :(
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