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CEA check time. January Ck - Up 2.

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I had my 27 wedding anniversary and my CEA CHECKED YESTERDAY. BITTERSWEET. I FIND OUT the results Thursday evening,

To a healthier 2012,

January 18, 2012
I get rescanned tomorrow morning! Hate scans!!

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Please post your results when you get them, okay?

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Raquel,

Let us know when you know the CEA results.
I'm thinking "go down" & hope that will be the case this time.

Hugs,
Lisa

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Praying for GREAT results!

smokeyjoe
Posts: 1428
Joined: Feb 2011

How often do you get your CEA checked and how often do you have scans now? Wishing you great results :)

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Praying its got down you and jorge got it the same day I'm praying for you both

Annabelle41415's picture
Annabelle41415
Posts: 6510
Joined: Feb 2009

Hoping that all goes well for you. Happy Anniversary, did you do anything special?

Kim

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Thank you, I will as soon as I get home. CEA check every 6 months, but it went up last time to 6, so now every 3 months. Scan if it continues to go up. scans every 6 months but was heading to yearly

Good news on the tube, cancer deaths have decreased 25% for men and, and 16% for women. Men were higher because of decrease in lung cancer due to quitting smoking. That is a million lives a year being saved today vs when they started tracking - mid 80"s

Kim, we have had a great week celebrating so much, that we were tired, we stayed home that night! But we had some nice dinners, movies and excitement. My Mom's birthday on New Years Eve.

We had a water leak in the house, pipe broke so we are taking this opportunity to remodel the kitchen before the new floor is put in.

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Good results to you buddy, good friend, beautiful person!

love ya, gail

lauragb
Posts: 370
Joined: Aug 2011

Thinking of you today while you wait for your results.

Sending light.
Laura

toyfox's picture
toyfox
Posts: 158
Joined: Apr 2011

I'm also thinking of you and hoping for good results.
Linda

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

Those are my hopes for you, Raquel.

Congrats on the AV as well! At 27 years you should know every fine line in your partnership. Here's to the next 27!

Blake

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Up to 11.7. Almost doubled. Scans next week and if they see something I go on Avastim I pull to for 3 months and maybe some radiation. We shall see. It's his rxperience something is there. Pete. Here we go

Brenda Bricco
Posts: 579
Joined: Aug 2011

This is not what I was hoping to hear for you. This new year is bringing many battles for many people. Here's to you winning your battle!
Brenda

sasjourney
Posts: 395
Joined: Jul 2010

Raquel,

I am so sorry to hear about the increase in CEA. Maybe something else is causing the rise. If it is cancer you will beat it down again. You are in my prayers.

Hugs,
Sara

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Raquel, I am so sorry to hear this. Sending prayers you way.
judy

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hugs Nana. I still can have hope the scan finds nothing! I know u r gearing up for them to find something though. I'm definitely sorry to hear this- I'll be praying for you. Hugs!

ketziah35
Posts: 1154
Joined: Jun 2010

I am sorry and will be praying for you.

lauragb
Posts: 370
Joined: Aug 2011

Not the news I'd been hoping to hear from you.
Keep us posted on the scan results.

Sending light and prayers.
Laura

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I'm sorry Raquel...I hate this dam cancer so much!

love ya, Gail

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

to hear your news. I hope the scans will show that all is well. And congratulations on your anniversary-that's quite an achievement.

relaxoutdoors08
Posts: 520
Joined: May 2011

Congratulations on your 27th. Prayers for good results on the scans.
NB

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

I'm so sorry I'm sending paryers now hugs

geotina's picture
geotina
Posts: 2118
Joined: Oct 2009

Not the news I wanted to log on and see. The number is still low, but it is there, hopefully if anything is going on it sounds like your doc is on top of it and will act quickly.

Take care - Tina

smokeyjoe
Posts: 1428
Joined: Feb 2011

This is disappointing for both you and Pete, hope the scans find it's not cancer but something else going on that's causing this spike.

karen40's picture
karen40
Posts: 211
Joined: Aug 2011

I'm sorry to hear about your CEA rising. Hoping for the best possible outcome on your scan.Your in my prayers.
Karen

GoBucks
Posts: 28
Joined: Dec 2011

Sorry it wasn't what you hoped - even though I'm new new here you have given me so good advice.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Hope is something easy to cure , praying for that!

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Thanks all. I appreciate your kind words. I can see that my CEA started its up swing since I went back to work. I have started to go in an hour later and just that has helped my spiritually, it so much nicer going to work in daylight hours. If my CEA does not improve by the time I have to start nights and work 7 days a week, I will not be working. I already did my time of company devotion and all they did was toss me and my colon out! No thank you! :). I plan to take care if my body.

I remain positive and optimistic!

Raquel.

mom_2_3
Posts: 965
Joined: Nov 2008

Happy Anniversary to you and your husband. That is quite an accomplishment!

I am sorry your CEA is on the rise. I hope it's from some inflammation or something else. You are definitely in my prayers. We were diagnosed at the same time...

Amy

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

January 18, 2012
I get rescanned tomorrow morning! Hate scans!! ONC is thinking Avastin in pill form if tbey find something!

I just got over eye, ear and upper respiratory infections. I hope that was the problem in the rise in CEA.

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Wishing you good results tomorrow...and will send a prayer or two as well.

All my best,

Cyn

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Raquel,

I guess you must have had your scan today- I'm praying for your mind to eased and that you can get a restful sleep tonight. Waiting on pins and needles with you for those results...
Hugs my friend,

Lisa

relaxoutdoors08
Posts: 520
Joined: May 2011

Nana B,
Wishing you the best on your tests. You have our prayers.
NB

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Called the ONC for scan results. His MA said he wants to see you in person. Nothing major but he wants to explain the scans to you GREAT!!!! I have to make an appointment..

smokeyjoe
Posts: 1428
Joined: Feb 2011

Don't ya just hate the wait? Now you're wondering what is there to explain!!!! Hopefully it's nothing.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

Dear raquel,

I hope you find some peace of mind during this stressful phase.
sorry we are in similar boats. hoping for the best for you.

hugs,
pete

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Ok. Dr appt over. I have some cancer activity on my liver that got picked up on my pet scan but not on the ct. That means that it's too small to be picked up on the CT scan. I can do chemo now in pill form or wait and check my blood level monthly (CEA) for 3 months I have decided to wait 3 months. Either way it looks like chemo for 6 months is the plan. It's not as rough as before but still has side affects. The activity has always been there it's just now growing a bit....so, it must be cancer. Hubby wants me to start chemo. I have to think about it. Summer and long hours start in August. Onc said March and a 30 day break is what he recommends. Starting now I would be pooped right on time for my busy season....by August. It's Avastin, and i can't remember the other chemo pill. I should have wrote it down! He sad I could do 6 pill a day, morning and night, or two pills every day, or a #? pill for five days, and five days off.

My husband asked what are the benefits of waiting for the chemo...Ah, I don't know! ONC said 3 months on, one off, then three on, that would allow me a month to build some strength for my busy summer months (work 12/7). I really think that he is not sure it's chemo, I mean why would he wait?!?!?!

Gosh, what was that chemo name! I think Xeloda Big Mind dump

wolfen's picture
wolfen
Posts: 1325
Joined: Apr 2009

I have been waiting for your update. So sorry that it has reared it's ugly head again. I certainly hope that whatever chemo regimen you choose will not have terribly bad side effects and it will wipe this little bugger out and you will become NED again soon.

Take Care,

Wolfen

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

I'm so sorry Raquel! Hugs to you- this is lousy!
I will be thinking of you and praying for you.

Lisa

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

i havent posted on this thread yet as i was waiting for your results and what your findings where after your onc appt.so sorry that this is happening maybe the pill wont be as bad.that is what i am supposed to go on if i can ever get things going right for me.i will be on xeloda.hugs to you and fight on....Godbless....johnnybegood

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

You'll probably do 3000-4000 mgs a day...pills are 500mg each...so you divide that by morning and evening...most of the time it is 2 weeks on - 1 week off....toxicity will build up rather quickly and you'll notice it in your feet, Raquel...start creaming your feet early, or you won't be moving around the plant like you are accustomed to doing...can make your feet peel and blister horribly...and over time can be hard to even stand or wear shoes.

If things get really bad, you should be able to switch to a 7-day on - 7-day off program...this will help...and you'll get a full bottle out of the month - thereby using only 1 bottle instead of popping for the 2nd...Xeloda is considered a Rx and thus is subject to out of pocket cashola...when I was doing it, that was about $150 a bottle for me - the actual cost was $2000 a bottle....so if you can save a bottle a month, that can add up. It will just depend on what you can tolerate....the key thing to remember is there is some FLEXIBILITY in the way it is administered.

A little hard on the stomach, but about like the IV version...flouracil is just nasty stuff too.

A 3 month wait is certainly not against the grain...you might finally see the growth in the CT...I've done many PETs and there are alot of false/positives with those...CT and PET combined gives a better comfort feeling before heading back into this.

Avastin is good for most people, but can cause congestive heart failure...I read that in the manufacturer's "white paper" that they give with the drug...doesn't say how long for this to occur...I developed a heart arrythmia from it....I took it about 8-9 months.

I know you've tried to lead a healthy lifestyle and all of that...your case is another reminder to all of us that recurrence is prevalent with our disease and and can find us, despite our best efforts to stave it off.

I'm wishing you luck with your new approach...the combo you are on sounds workable as far as maintaining employement - so, you've got that going for you.

I hope that you do well.

-Craig

dorookie
Posts: 1736
Joined: Jul 2007

I took it with my reoccurrance to my lung, did surgery, then 8 months of Xeloda, it was hard taking the pills knowing it was going to make me sick, but for me it was so much better than the IV chemo. Not sure if liver mets are treated differently, but I didnt take anything but the Xeloda for the lung met, and I have been clear going on almost 4 years. I will keep you in my prayers..

HUGS
Beth

karen40's picture
karen40
Posts: 211
Joined: Aug 2011

I'm sorry to hear of your recurrence. I hope the best plan of action finds you soon. I have no experience with Avastin,so can't comment. My experience with xeloda was mild. The only side effect I got from the xeloda was hand and foot syndrome. I had some peeling of my hands and feet. (not too bad) I had no other side effects. I did pretty good. I pray that you do good, as well.
Karen

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

dear raquel,
it is what it is. thats a meaningless comment.
i wish you were clear, but alas you are not.

some days i want my chemo start without a target, other days i don't think i want chemo again.

i am on an emotional rollercoaster. are you ?

all i can send you is peace, prayers and wishes for good health.

hugs,
Pete

ps my pets has come back clear again, which is fantastic, my cea is stable between 16-17.

geotina's picture
geotina
Posts: 2118
Joined: Oct 2009

Sorry for the lousy news. I don't have any advise members have not already posted. Waiting to start chemo, not waiting, that decision is yours to make. Recurrence is always tough, so many decisions to make. I wish I had a majic wand to point you in the right direction.

Any posibility of getting that spot out with radiation like with lung mets? Just a thought.

Take care - Hugs - Tina

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Raquel,
Thinking about you as you process this new information. I'm so sorry you have to go through this again. You're in m prayers.

Aloha
Kathleen

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

We are waiting on the chemo. We will do the CEA check every month for 3 months, meanwhile I am back on supplements Juicing my greens and just staying away from eat, star white rice, white bread, white pasta. Fruits, nuts, veggies, salmon, & greens. I love fruit and veggies so don't miss the food and white stuff. I eat a cup of frozen pommergranite seeds each night, while in season. Wild berries, red grapes, tangerines, kumquat, aloe juice. Just going back to what I was doing earlier. We shall see if it makes a difference.

que sera sera.... It s, way it is. Not meaning that I'm giving up. I mean don't fret. Keep on living. We can't see the future, but I am here today!

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

CEA up 2 now at 13. Next check end of February. I will have a talk with the ONC about starting CHEMO. He wants to do another PET scan end of March, but why go through that!

relaxoutdoors08
Posts: 520
Joined: May 2011

Hi Nana B
I have been following your journey and I just started juicing so thank you for sharing your nutrition plan. Prayers for a good response to chemo.
NB

smokeyjoe
Posts: 1428
Joined: Feb 2011

Oh, this must be so frustrating for you :(

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