Ca 125 raised, again

Ro10
Ro10 CSN Member Posts: 1,561 Member
in Uterine/Endometrial Cancer #1
Went to the doctor today. My ca 125went from 344 to 1140 !!!!!!!! Because I am feeling good and have no symptoms, and the CAT scan 6 weeks was okay I will remain in observation. Hooray. I will have a repeat lab and CAT scan the middle of January. Because it will more than 6 months since my last chemo I can go back on taxol/cisplatin. When that no longer works,we'll talk about what will be next.

By waiting my body can continue to recover from the last sessions of chemo. I asked about the " film" spreading in the abdomen. He said " yes" it does happen. He said eventually it would show on the CAT scan, or cause symptoms. He said unfortunately the symptoms of recurrence are "no symptoms".

So far the next 6 weeks I will "live large" and enjoy each day. My husband and I are going on a15 day cruise through the Panama Canal leaving Dec 6.
We are looking forward to the cruise. I am feeling good, so it should be a fun time. Seeing more places that I never thought I would see.

All of my "sisters" on this board remain in my prayers. In peace and caring.

Comments

  • Kaleena
    Kaleena CSN Member Posts: 2,088 Member
    #2
    Ro:
    I will be praying and
    Ro:

    I will be praying and thinking of you and I am glad that you have "no symptoms". I am sending comforting thoughts your way.

    Anyway, enjoy your Panama Canal trip. The cruise sounds wonderful and it will be good to "get away". Be safe and let us know all the details of your wonderful trip when you get back!

    Kathy
  • TiggersDoBounce
    TiggersDoBounce CSN Member Posts: 408
    #3
    Ro
    Ro,

    Sorry to hear about the rise in the CA125...BUT happy you are getting to go on such an amazing adventure...I hear the way the ship backs into the canal is awesome!

    Take lots of pics, and enjoy every moment !

    Try to forget the world back here and deal with the medical crap when you return.

    Keeping you close in thoughts and prayers...

    Laurie
  • snowbird_11
    snowbird_11 Member Posts: 160
    #4
    Oh, Ro, I am sorry you had
    Oh, Ro, I am sorry you had to get this news before the holidays - but that cruise sounds awesome. So live large, symptom-free, and ENJOY!

    My ca 125 was over a thousand back in June, it dropped into 300s after radiation to some of issues, not sure where it is at right now. I will be doing lab and scans in January as well to see what is happening. With no significant issues to deal with i am putting off any treatment until January so I can enjoy as well.

    It sounds like you have been having some wonderful adventures this year!
    Here's to a delightful cruise!
    Annie
  • Double Whammy
    Double Whammy CSN Member Posts: 2,832 Member
    #5
    snowbird_11 said:

    Oh, Ro, I am sorry you had
    Oh, Ro, I am sorry you had to get this news before the holidays - but that cruise sounds awesome. So live large, symptom-free, and ENJOY!

    My ca 125 was over a thousand back in June, it dropped into 300s after radiation to some of issues, not sure where it is at right now. I will be doing lab and scans in January as well to see what is happening. With no significant issues to deal with i am putting off any treatment until January so I can enjoy as well.

    It sounds like you have been having some wonderful adventures this year!
    Here's to a delightful cruise!
    Annie

    Doggone it!
    Ro-
    So sorry your numbers are on the rise again. Have a lovely cruise and enjoy your adventure. You can take care of business when you return.

    Suzanne
  • jazzy1
    jazzy1 CSN Member Posts: 1,379
    #6
    Double Whammy said:

    Doggone it!
    Ro-
    So sorry your numbers are on the rise again. Have a lovely cruise and enjoy your adventure. You can take care of business when you return.

    Suzanne

    Darn it~
    But...enjoy the cruise as those trips seem to help move our minds into "good things" in life.

    Hugs and you're in my prayers~
    Jan
  • HellieC
    HellieC CSN Member Posts: 524 Member
    #7
    Sorry to hear, Ro
    Sorry to hear your news about your rising C125 levels, Ro. But so pleased that you have no symptoms. But it's "good" news (if there is such a thing for chemo!) that you are platinum sensitive and therefore the cisplatin/taxol combo is still open to you - it's powerful stuff and I'm sure it will send those numbers tumbling down!
    The cruise sounds wonderful - I have always wanted to go through the Panama canal (and I will do it, one day!). I do hope you both have a fantastic time.
    You're in my thoughts and prayers
    Helen
  • norma2
    norma2 CSN Member Posts: 479
    #8
    Have a great cruise, RO
    I am so glad you will have 6 wonderful weeks of "living large"....enjoy!!! Keeping you and all the other ladies here in my prayers.
  • Songflower
    Songflower CSN Member Posts: 608
    #9
    norma2 said:

    Have a great cruise, RO
    I am so glad you will have 6 wonderful weeks of "living large"....enjoy!!! Keeping you and all the other ladies here in my prayers.

    Damn Numbers
    I think the numbers are hard for us. You have always moved forward. There is an article in Science Magazine for recurrence and they use a platinum drug and gemzar with good results. I've had good results with gemzar. Love your cruise. Remember there are other options. There is also another test that helps identify which chemo does best for you, it is called Caris. It is very expensive but sometimes the company does for free for advertisement.
    Love,Diane
  • Cynthia Rose
    Cynthia Rose Member Posts: 35
    #10
    How many have had reccurances?
    Mom went to the Gyno he felt some thing.He spoke with her oncologist re looked at her scan she just had,Now Mom had a Appointment with radiology on the 12th.She just got done with Chemo in Aug.I know this is aggressive but we really were not ready for it to come back so soon.I need to find a good therapist because I need some help coping with this cancer.I hate it that my Mom has it.
  • daisy366
    daisy366 CSN Member Posts: 1,458 Member
    #11
    Cynthia Rose said:

    How many have had reccurances?
    Mom went to the Gyno he felt some thing.He spoke with her oncologist re looked at her scan she just had,Now Mom had a Appointment with radiology on the 12th.She just got done with Chemo in Aug.I know this is aggressive but we really were not ready for it to come back so soon.I need to find a good therapist because I need some help coping with this cancer.I hate it that my Mom has it.

    Ro and Cynthia Rose
    Ro - unhappy about the rise in number but so happy for you and that cruise which is on my bucket list!

    Cynthia Rose, I have had recurrence as others here have had. I just continue to march on each day with total appreciation for life, my friends, and loved ones. I would encourage you and your mom to do your very best to not get too far ahead of yourselves with worry - it sure doesn't do anything to help us and makes us miserable in the meantime. I think seeking counseling for yourself is a great idea. There is so much stress that we deal with. I hope the holidays bring you and your family happy distractions.

    All my best. Mary Ann
  • Cynthia Rose
    Cynthia Rose Member Posts: 35
    #12
    daisy366 said:

    Ro and Cynthia Rose
    Ro - unhappy about the rise in number but so happy for you and that cruise which is on my bucket list!

    Cynthia Rose, I have had recurrence as others here have had. I just continue to march on each day with total appreciation for life, my friends, and loved ones. I would encourage you and your mom to do your very best to not get too far ahead of yourselves with worry - it sure doesn't do anything to help us and makes us miserable in the meantime. I think seeking counseling for yourself is a great idea. There is so much stress that we deal with. I hope the holidays bring you and your family happy distractions.

    All my best. Mary Ann

    Thank You Mary Ann!
    Could I get Your Private email So when I get Scared I can Email You.I had Lindas. I woulds appreciate yours.
  • Cynthia Rose
    Cynthia Rose Member Posts: 35
    #13
    daisy366 said:

    Ro and Cynthia Rose
    Ro - unhappy about the rise in number but so happy for you and that cruise which is on my bucket list!

    Cynthia Rose, I have had recurrence as others here have had. I just continue to march on each day with total appreciation for life, my friends, and loved ones. I would encourage you and your mom to do your very best to not get too far ahead of yourselves with worry - it sure doesn't do anything to help us and makes us miserable in the meantime. I think seeking counseling for yourself is a great idea. There is so much stress that we deal with. I hope the holidays bring you and your family happy distractions.

    All my best. Mary Ann

    Thank You Mary Ann!
    Could I get Your Private email So when I get Scared I can Email You.I had Lindas. I woulds appreciate yours.
  • daisy366
    daisy366 CSN Member Posts: 1,458 Member
    #14
    Cynthia Rose said:

    Thank You Mary Ann!
    Could I get Your Private email So when I get Scared I can Email You.I had Lindas. I woulds appreciate yours.

    Sure. Check your private
    Sure. Check your private email here. Mary Ann
  • Ro10
    Ro10 CSN Member Posts: 1,561 Member
    #15
    daisy366 said:

    Sure. Check your private
    Sure. Check your private email here. Mary Ann

    Thanks for all the positive thoughts
    I appreciate everyone's thoughts and support. Diane I tried to look up Caris, but could not find any information. Is there something else to look under?
    We leave tomorrow for our cruise, so I will be gone for a while. Hope everyone does well while I am gone. In peace and caring.
  • HellieC
    HellieC CSN Member Posts: 524 Member
    #16
    Ro10 said:

    Thanks for all the positive thoughts
    I appreciate everyone's thoughts and support. Diane I tried to look up Caris, but could not find any information. Is there something else to look under?
    We leave tomorrow for our cruise, so I will be gone for a while. Hope everyone does well while I am gone. In peace and caring.

    Enjoy every second, Ro
    You must be so excited with the cruise so close. I do hope you enjoy every second of it and come back feeling refreshed.
    Helen xx
  • RoseyR
    RoseyR CSN Member Posts: 471 Member
    #17
    Ro10 said:

    Thanks for all the positive thoughts
    I appreciate everyone's thoughts and support. Diane I tried to look up Caris, but could not find any information. Is there something else to look under?
    We leave tomorrow for our cruise, so I will be gone for a while. Hope everyone does well while I am gone. In peace and caring.

    YOU GO, RO!


    Ro,

    So sorry to hear your CA125 is up again; but maybe it's a response to some inflammation or some other phenomenon in your body rather than sign of recurrence.

    I agree with the others: Go off and enjoy yourself to the HILT!

    Love,
    Rosey R
  • nempark
    nempark CSN Member Posts: 681
    #18
    Enjoy!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    May God Bless you and your Hubby. May you enjoy every moment of this trip. when you get back you will deal with this beast and you will be NED again. Love you. June

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