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Scan results

janderson1964
Posts: 2215
Joined: Oct 2011

I am a 6 year stage IV survivor. Everytime I have a scan done I have to bug the hell out of the doctors office to get my results. One time a few years ago I went down there in person and read them myself. I had a scan yesterday and I can't evan leave a message with the oncology nurses. It has to go through the triage nurse. Said told me only the doctor can give me the results and he won't be in until Monday. I had a big arguement with her telling her that it was almost always the nurses who gave me the results. I am outraged. It is my life and I am the one that is paying for all of this. I am border line on going ther in person and raising Hell.

janie1
Posts: 753
Joined: Apr 2011

I think you'll be fine. Don't raise "Hell"....it's not worth it. Personally, i never want to talk about scans or the like with anyone BUT the doc. There has just been too many misunderstandings with people pretending they are experts. Really, a wednesday scan, and consult on monday isn't too bad of a wait, compared to what many say their wait has been. I want to congratulate you on 6 yrs. Where have you been? We like to hear all the success stories we can. Enoy the weekend, and do not worry!!

janderson1964
Posts: 2215
Joined: Oct 2011

THanks for the support. I have trough 2 liver resections and 22 rounds of chemo. Once I get the scan results I will officaly be NED for over 4 years. I am heavily into exercise and nutrition. I have also been very involved in the Colon Cancer Alliance for the past 5 1/2 years but this is a great forum. I am sorry it took me this long to find it.

relaxoutdoors08
Posts: 520
Joined: May 2011

Wow, we love to hear good news. You are an inspiration for all of us who are just starting our journey. I know the stress of waiting for those scans. Prayers for your continued good health.
NB

janderson1964
Posts: 2215
Joined: Oct 2011

Unfortunately it looks like I will be starting the jouney for the 3rd. time. I got a call from the doctor last night and they found another spot on the right lobe of my liver after 4 years. That pesky right lobe has been giving me heartaches for 6 years now. But I will beat it again.

relaxoutdoors08
Posts: 520
Joined: May 2011

I am so sorry to hear you are on the journey again. Prayers for a good response to treatment and prayers for you .... once again direct that fighting spirit, exercise and nutrition at the beast.
NB

fatmomma's picture
fatmomma
Posts: 95
Joined: May 2011

Yes you will BEAT IT AGAIN!!!
FM

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tanstaafl
Posts: 1292
Joined: Oct 2010

We always get the radiologist's report, CT films, and digital CD copy directly at our scan center, and carry them around to the surgeons, oncologists, 2nd radiologist, etc of our choice. We get the CT referral from a friendly doctor and pay the scan center directly. Insurance may require some kind of prior diagnostic schedule or arrangement.

I don't beg or bug doctors, I abandon them and find cooperative ones. I am too often game for second, 3rd or 10th opinions, so I don't fool around with "daddy, may I"

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

oh no....I am so sorry you got those liver results....that just stinks....

you will fight again I just know you will....please let us know when you get a plan.

mags

janie1
Posts: 753
Joined: Apr 2011

Sorry. You can knock this one down, too!!

Brenda Bricco
Posts: 579
Joined: Aug 2011

So sorry to hear this but you go get'em. This is the reason why they do the scans, as nerve racking as they are they tell us where to aim our guns. I wish you all the best.
Brenda

Annabelle41415's picture
Annabelle41415
Posts: 6151
Joined: Feb 2009

Sorry about the news and the scans but you can do this again. The scans are what finds these things. Wishing you the best.

Kim

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pepebcn
Posts: 6352
Joined: Aug 2010

Praying for that!,
Hugs!

janderson1964
Posts: 2215
Joined: Oct 2011

Thank you so much everyone for all of your support. I have been involved with the Colon Cancer Alliance for over 5 years but just finally signed up to this forum ironically just several hours before I got the bad news. I think God led me here. You are all such warm positive fighters like myself. I just hope I can be of support to you all like you have been to me.

Jeff

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

welcome...it does seem like a strange coincidence that you arrived just when you did....glad you found your way here.

I keep waiting for my third liver reoccurence....you have a good spirit my friend

maggie

taraHK
Posts: 1961
Joined: Aug 2003

So sorry to hear you are "back in the saddle again". FYI, I've received those calls 4 times (not including my original diagnosis). You sound like a real trouper, with a great attitude. Please don't hesitate to hang out with us, through good times and bad. This board has been an unbelievable source of inspiration to me for something like 8-9 years. You are welcome. Sending positive vibes +++ as you embark on this next stage of your journey.....

Tara

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