Scan results

janderson1964
janderson1964 Member Posts: 2,215 Member
in Colorectal Cancer #1
I am a 6 year stage IV survivor. Everytime I have a scan done I have to bug the hell out of the doctors office to get my results. One time a few years ago I went down there in person and read them myself. I had a scan yesterday and I can't evan leave a message with the oncology nurses. It has to go through the triage nurse. Said told me only the doctor can give me the results and he won't be in until Monday. I had a big arguement with her telling her that it was almost always the nurses who gave me the results. I am outraged. It is my life and I am the one that is paying for all of this. I am border line on going ther in person and raising Hell.

Comments

  • janie1
    janie1 Member Posts: 753 Member
    #2
    Scan
    I think you'll be fine. Don't raise "Hell"....it's not worth it. Personally, i never want to talk about scans or the like with anyone BUT the doc. There has just been too many misunderstandings with people pretending they are experts. Really, a wednesday scan, and consult on monday isn't too bad of a wait, compared to what many say their wait has been. I want to congratulate you on 6 yrs. Where have you been? We like to hear all the success stories we can. Enoy the weekend, and do not worry!!
  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #3
    janie1 said:

    Scan
    I think you'll be fine. Don't raise "Hell"....it's not worth it. Personally, i never want to talk about scans or the like with anyone BUT the doc. There has just been too many misunderstandings with people pretending they are experts. Really, a wednesday scan, and consult on monday isn't too bad of a wait, compared to what many say their wait has been. I want to congratulate you on 6 yrs. Where have you been? We like to hear all the success stories we can. Enoy the weekend, and do not worry!!

    THanks for the support. I
    THanks for the support. I have trough 2 liver resections and 22 rounds of chemo. Once I get the scan results I will officaly be NED for over 4 years. I am heavily into exercise and nutrition. I have also been very involved in the Colon Cancer Alliance for the past 5 1/2 years but this is a great forum. I am sorry it took me this long to find it.
  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    #4
    janderson1964 said:

    THanks for the support. I
    THanks for the support. I have trough 2 liver resections and 22 rounds of chemo. Once I get the scan results I will officaly be NED for over 4 years. I am heavily into exercise and nutrition. I have also been very involved in the Colon Cancer Alliance for the past 5 1/2 years but this is a great forum. I am sorry it took me this long to find it.

    Prayers for your Continued Good Health
    Wow, we love to hear good news. You are an inspiration for all of us who are just starting our journey. I know the stress of waiting for those scans. Prayers for your continued good health.
    NB
  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #5
    relaxoutdoors08 said:

    Prayers for your Continued Good Health
    Wow, we love to hear good news. You are an inspiration for all of us who are just starting our journey. I know the stress of waiting for those scans. Prayers for your continued good health.
    NB

    Unfortunately it looks like
    Unfortunately it looks like I will be starting the jouney for the 3rd. time. I got a call from the doctor last night and they found another spot on the right lobe of my liver after 4 years. That pesky right lobe has been giving me heartaches for 6 years now. But I will beat it again.
  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    #6
    janderson1964 said:

    Unfortunately it looks like
    Unfortunately it looks like I will be starting the jouney for the 3rd. time. I got a call from the doctor last night and they found another spot on the right lobe of my liver after 4 years. That pesky right lobe has been giving me heartaches for 6 years now. But I will beat it again.

    So Sorry to hear ...
    I am so sorry to hear you are on the journey again. Prayers for a good response to treatment and prayers for you .... once again direct that fighting spirit, exercise and nutrition at the beast.
    NB
  • fatmomma
    fatmomma Member Posts: 95
    #7
    relaxoutdoors08 said:

    So Sorry to hear ...
    I am so sorry to hear you are on the journey again. Prayers for a good response to treatment and prayers for you .... once again direct that fighting spirit, exercise and nutrition at the beast.
    NB

    Yes
    Yes you will BEAT IT AGAIN!!!
    FM
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #8
    f-- control freaks
    We always get the radiologist's report, CT films, and digital CD copy directly at our scan center, and carry them around to the surgeons, oncologists, 2nd radiologist, etc of our choice. We get the CT referral from a friendly doctor and pay the scan center directly. Insurance may require some kind of prior diagnostic schedule or arrangement.

    I don't beg or bug doctors, I abandon them and find cooperative ones. I am too often game for second, 3rd or 10th opinions, so I don't fool around with "daddy, may I"
  • maglets
    maglets Member Posts: 2,576 Member
    #9
    tanstaafl said:

    f-- control freaks
    We always get the radiologist's report, CT films, and digital CD copy directly at our scan center, and carry them around to the surgeons, oncologists, 2nd radiologist, etc of our choice. We get the CT referral from a friendly doctor and pay the scan center directly. Insurance may require some kind of prior diagnostic schedule or arrangement.

    I don't beg or bug doctors, I abandon them and find cooperative ones. I am too often game for second, 3rd or 10th opinions, so I don't fool around with "daddy, may I"

    oh man
    oh no....I am so sorry you got those liver results....that just stinks....

    you will fight again I just know you will....please let us know when you get a plan.

    mags
  • janie1
    janie1 Member Posts: 753 Member
    #10
    maglets said:

    oh man
    oh no....I am so sorry you got those liver results....that just stinks....

    you will fight again I just know you will....please let us know when you get a plan.

    mags

    Darn
    Sorry. You can knock this one down, too!!
  • Brenda Bricco
    Brenda Bricco Member Posts: 579 Member
    #11
    So sorry to hear this but
    So sorry to hear this but you go get'em. This is the reason why they do the scans, as nerve racking as they are they tell us where to aim our guns. I wish you all the best.
    Brenda
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #12
    Sorry
    Sorry about the news and the scans but you can do this again. The scans are what finds these things. Wishing you the best.

    Kim
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #13
    Annabelle41415 said:

    Sorry
    Sorry about the news and the scans but you can do this again. The scans are what finds these things. Wishing you the best.

    Kim

    Feel sorry for the news but I'm sure you'll beat it again!
    Praying for that!,
    Hugs!
  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #14
    pepebcn said:

    Feel sorry for the news but I'm sure you'll beat it again!
    Praying for that!,
    Hugs!

    Thank you so much everyone
    Thank you so much everyone for all of your support. I have been involved with the Colon Cancer Alliance for over 5 years but just finally signed up to this forum ironically just several hours before I got the bad news. I think God led me here. You are all such warm positive fighters like myself. I just hope I can be of support to you all like you have been to me.

    Jeff
  • maglets
    maglets Member Posts: 2,576 Member
    #15
    janderson1964 said:

    Thank you so much everyone
    Thank you so much everyone for all of your support. I have been involved with the Colon Cancer Alliance for over 5 years but just finally signed up to this forum ironically just several hours before I got the bad news. I think God led me here. You are all such warm positive fighters like myself. I just hope I can be of support to you all like you have been to me.

    Jeff

    jeff
    welcome...it does seem like a strange coincidence that you arrived just when you did....glad you found your way here.

    I keep waiting for my third liver reoccurence....you have a good spirit my friend

    maggie
  • taraHK
    taraHK Member Posts: 1,952 Member
    #16
    back in the saddle
    So sorry to hear you are "back in the saddle again". FYI, I've received those calls 4 times (not including my original diagnosis). You sound like a real trouper, with a great attitude. Please don't hesitate to hang out with us, through good times and bad. This board has been an unbelievable source of inspiration to me for something like 8-9 years. You are welcome. Sending positive vibes +++ as you embark on this next stage of your journey.....

    Tara

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