NEED ADVICE End of holidays I start tomorrow just AVASTIN as maintenance! Cea rised 0.4 after 2 moth

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pepebcn
pepebcn Member Posts: 6,331 Member
edited October 2011 in Colorectal Cancer #1
but still below 4 . Never had avastin alone ,always with folfiri,what should I expect any secondary effects?.
thanks for you comments!
Hugs!

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  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #2
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    Pepe
    Mine went up a couple of months after treatment ended....slighly up 2 months after that. I'm still sitting at 2.1 so I'm not going to fret about it.

    CEAs rise and fall but if they are not climbing dramatically, then I think it's like any test that we could run on ourselves on any given day of the week, or any given time of the day.

    We're only gripping 'cause we've had cancer. I imagine a non-cancer person might have an interesting reading. I doubt that people who don't have cancer are registering a 0.0

    Only did Avastin with Folfox, this last treatment with Folfiri, we did not do Avastin this time. Not sure why.

    I don't think you will experience any side effects from the infusion. Your blood pressure may go up though. Watch how you are breathing - I mean, if it's difficult. And listen to your heart to see how it's beating.

    Nobody but me has had the issue with Avastin, but I did it for about 8-9 months and walked away from it with a funny heartbeat many times a day. Like you're trying to catch your heart and put it back in a normal rhythm, you know?

    Avastin has been reported to cause congestive heart failure with extended use. The manufacturer does not state what 'extended' tiime that would be.

    -Craig
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #3
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    Sundanceh said:

    Pepe
    Mine went up a couple of months after treatment ended....slighly up 2 months after that. I'm still sitting at 2.1 so I'm not going to fret about it.

    CEAs rise and fall but if they are not climbing dramatically, then I think it's like any test that we could run on ourselves on any given day of the week, or any given time of the day.

    We're only gripping 'cause we've had cancer. I imagine a non-cancer person might have an interesting reading. I doubt that people who don't have cancer are registering a 0.0

    Only did Avastin with Folfox, this last treatment with Folfiri, we did not do Avastin this time. Not sure why.

    I don't think you will experience any side effects from the infusion. Your blood pressure may go up though. Watch how you are breathing - I mean, if it's difficult. And listen to your heart to see how it's beating.

    Nobody but me has had the issue with Avastin, but I did it for about 8-9 months and walked away from it with a funny heartbeat many times a day. Like you're trying to catch your heart and put it back in a normal rhythm, you know?

    Avastin has been reported to cause congestive heart failure with extended use. The manufacturer does not state what 'extended' tiime that would be.

    -Craig

    Thank you mate , I been in avastin with folfiri for 16 rounds
    so I'm aware about hart and stroke problems but never been on avastin alone as maintenance! so don't know what to expect concerning to stomach ,tiredness, and other issues! .
    Take care my friend! ( hope my cea drops next control as well) hugs!
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #4
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    On Avastin
    I've been on Avastin alone for 4 months, (on 12th round this round)nothing to report, best of them all to have, side affects wise, except watch out for high blood pressure, I already had high blood pressure and was on pills for it and still taking them to be sure, also they'll be checking for protein in urine.
    Winter Marie
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #5
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    herdizziness said:

    On Avastin
    I've been on Avastin alone for 4 months, (on 12th round this round)nothing to report, best of them all to have, side affects wise, except watch out for high blood pressure, I already had high blood pressure and was on pills for it and still taking them to be sure, also they'll be checking for protein in urine.
    Winter Marie

    Thank you mates !
    What about my hair ? been completely bald until couple of months ago but I think wasn't caused by avastin but by folfiri!
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #6
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    pepebcn said:

    Thank you mates !
    What about my hair ? been completely bald until couple of months ago but I think wasn't caused by avastin but by folfiri!

    LOL
    It says it can cause hair loss, my onc said it doesn't cause much. I still have my hair.
    Winter Marie
  • taraHK
    taraHK Member Posts: 1,952 Member
    #7
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    Avastin
    I have been lucky with Avastin -- no increase in blood pressure, no other "nasties". To be honest, I noticed no side effects whatsoever -- no hair loss. Good luck, my friend!

    Tara

    ps your CEA is within normal range, right -- hoorah!

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