The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Low CA125

AnnaD
AnnaD CSN Member Posts: 4
Five years ago I had a complete hysterectomy due to elevated CA125, BRCA1 Mutation and symptoms. I did not have ovarian cancer and my Oncologist feels that I could have been diagnosed with it if we hadn't done the hysterectomy. Years later after no symptoms in regards to this my abdominal has swollen (I look 3-4 months pregnant), constipated and have abdominal discomfort. My abdominal ultrasound came back good as did a colonoscopy, endoscopy and CA125. Is it still possible with these negitive tests to still have developed possibly even a stage 1 peritoneal? Nothing I do, eating less, moving bowels, anything seem to take away the swelling or discomfort. Any thoughts would be appreciated.

Comments

  • Tethys41
    Tethys41 CSN Member Posts: 1,383 Member
    Anything is possible
    Anna,
    I don't know whether your symptoms are related to peritoneal cancer, but it sounds as if something is up. I was diagnosed with stage IIIc ovarian cancer after multiple ultrasounds, physical exams, and a D & C that showed nothing. Depite my negative diagnostics, there was something brewing and the third ultrasound showed that something was terribly wrong. Regardless of the cause of your symptoms, it is worth pursuing it with your doctor until you either find a cause or your symptoms disappear.