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PET scan

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Hi It's been a year since my last PET scan. It's Wed. with results this Thursday. My mind is imaging all sorts of things. I am pretty upbeat but I am becoming anxious. I hate feeling that way. I am not ready to be sick again. I love feeling good and being normal. Sorry I am rambling. Joanie

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

Sending positive thoughts your way :).

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi Joanie,

First, I love your new picture. You look so happy. What a great smile.

I will be thinking very positive thoughts on Wed and Thur. As you know, my mind has been doing all kinds of crazy things lately. I too hate that feeling.

With your great smile and Jim's great humor, imagine if we could bottle it and sell to the masses.

Anyway, stay strong, keep feeling good and being normal.

Peaceful healing
Lisha

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Hi Lisha
Thanks for you positive thoughts. The hair is defintly the chemo curl. I call it the electrical shock look:) Take care

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Joanie,
Positive good thoughts coming your way. Dang scans always get us so anxious. Glad you get your results the next day and don't have to wait. Love...Sue (FNHL-2-3A-6/10)

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

I think it's so natural to feel that way! Any time I don't feel right I think the worst.... positive thought's on the scan Vinny

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I'll also be thinking about us both. I get my results Thursday too!

Good vibes coming your way!

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Everyone getting scans this week be sure to come here and post the GOOD news! Inquiring minds want to know!!! ha! Good luck to EVERYONE!!!! Much love...Sue (FNHL-2-3A-6/10)

Joanie...Love the new picture...it just showed up on my computer this morning. You look so very happy! Sue

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

We are going to both have good results. We are!

We are! prayers and hugs Beth, Joanie
We are!!

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

We are going to both have good results. We are!

We are! prayers and hugs Beth, Joanie
We are!!

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

Gosh, I'm so crazy ;).

Good luck to everyone! Kick some cancer butt!

catwink22's picture
catwink22
Posts: 281
Joined: Sep 2009

Good Luck everyone!! I go in two weeks for my PET. I always seem to have pain in my hip a month before the scan, but it comes back clear. I had a BMB and a hip biopsy for a spot there, is it possible to have sympathy pains for yourself lol?
Cat

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Hi Cat
I have sympathy stomach pain, etc.etc. I felt great till this week. When was your last PET? I just want it over with and good results so I can celebrate. Let me know when you get your results. I will say prayers for you. I will post on Thursday night. Take care of yourself and that cute grandchild. My son and his wife just got a house in Orinda CA near San Fransisco and are moving there in 6 weeks. We live in Fl(2800 miles away) It makes us very sad but it is a great opportunity for them. I will miss them so much. We will go there and spend a month when we go. Our grandchildren are 9 and 7. Too young to move away from their Mi Mi and Chief:(

cookingirl's picture
cookingirl
Posts: 183
Joined: May 2010

HI JOanie - had your scan marked on my calendar and will be watching Thurs. for your post. Lots of prayers coming your way. Also LOVE your new pic! My hair was cute and curly when it began growing back in last April - now it's straight as a stick again so lucky you!

Sorry about your family moving to San Fran but what a GREAT place to visit! We just returned last night from 10 days in CA - started in Santa Monica where daughter Mary lives and drove up the Big Sur coast. FABULOUS time and good for the soul! Great B&B's, food, Hearst Castle, wine tasting, etc. Now back to real life again with Rituxan treatment next Tuesday. Love, Fran

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Thanks so much Fran for praying for me. I am so happy you had such a wonderful time in CA. I know it was wonderful to leave the past year behind and just be a normal person. We went to a winery this summer too and I enjoyed tasting different wines. My husband was laughing at me because ater 5 tastes I was feeling a little loopy. I am a very cheap date:)
The rituxin treatment is really easy. I do take 1500 mg of Glucosomine which does help the aches and our new tempurpedic was so worth it. My shoulder pain is so much better.
My son and wife are flying now back from San Fran. Took them a week to find a rental. They still own property in Fl. It is a 5 bedroom and they had to pay $3200 a month but there were no places to rent in this area where the schools are the best. This was their only choice. The one they really lked a Dr offered to pay a year in advance.
Take care . So glad you had a great break Love Joanie

catwink22's picture
catwink22
Posts: 281
Joined: Sep 2009

Hi Joanie!
I will look for your post on Friday morning, sending lots of good wishes to you! Isn't it crazy that we have to have a picture tell us that we're doing okay? My last scan was in April, seems sooo long ago. I will have results on the following Tues the 11th, then I start my last Rituxan treatments (relief and disbelief). I'm sad for you to hear your son's family is moving to CA, but this is the age of technology! You can Skype and text and chat or twitter so they won't seem so far away. Not the same as being there I know, but it's the next best thing. I've never been to CA (I'm in CT) so it is a great opportunity for Mi Mi and Chief (luv that, I've never heard that before lol) too. Take care of yourself too!
Cat

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Well, did dentist and labwork yesterday, pet scan done today......Thank God for coffee!!

Man I really hate the headache that comes with my scans. Darn coffee addiction is kicking my butt!

I know I should be grateful, but I admit it...I am scared the transplant didn't work. Whew getting that sentence typed was hard. I know thoughts have the power to either make or break faith. But admitting fully my weakness is hard.

What a day.

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

I would never call you "weak" :).

I'm Off for my neulasta shot... coming down off my prednisone I think
finally - (did I hear a loud crash?) :).

Wishing you the best!

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Thanks Jim I appreciate your faith in me.

Hope your shot goes well and no pain afterwards. I did neupogen shots during my transplant and bruised like crazy although not as much bone pain as what I thought would happen.

Heck, I STILL bruise like a champion. I doubt that will get better but sometimes I look like someone has literally beat the crud out of me.

Take care,
Beth

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Beth if I was a betting woman I would bet anything that your scan will be fine. You went though that ordeal to not EVER have it again. You will be fine. Headache after scan?? I was only in the scan for 12 minutes but I honestly thought they had to evacuate the building and they left me in there. I actually opened my eyes once. It was hard to know what to wear without looking like a freak in Florida. They told me to dress warm and no underwire bra which I had none of. So on a 90 dgress day I show up in jeans, braless, a shirt and a jacket. I am so ready to type REMISSION tomorrow after 3:30. I will be anxious to hear your declaration of REMISSION. Love Joanie

catwink22's picture
catwink22
Posts: 281
Joined: Sep 2009

Hi Beth!
Courage is not weakness, that took a lot for you to state your fear. And it's even harder to see it staring back at you after you've typed the words. Remember there can be no courage unless you're scared. I'm scared too and I think that's part of the journey. It makes us fight and pushes us to endure things we never thought we could. And that cup of coffee definitely helps too!! Hope your day is getting brighter!
Cat

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Yeah my husband did not want to be called grandpa . He picked Chief. He actually suggested I be called Pocahontas. Obviously I thought he was crazy and picked MiMi.

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Cat I love Ct. We spent time in Mystic this summer. I was born in West Springfield Ma so that is close. My picture is from Lock 10 of the Erie Canal. We want to go there on the boat when I retire. I would retire after this year teaching if I wanted to eat beenie weenies three times a week:)

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Cat I love Ct. We spent time in Mystic this summer. I was born in West Springfield Ma so that is close. My picture is from Lock 10 of the Erie Canal. We want to go there on the boat when I retire. I would retire after this year teaching if I wanted to eat beenie weenies three times a week:)

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Cat I love Ct. We spent time in Mystic this summer. I was born in West Springfield Ma so that is close. My picture is from Lock 10 of the Erie Canal. We want to go there on the boat when I retire. I would retire after this year teaching if I wanted to eat beenie weenies three times a week:)

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Warning if you are impatient you get multiple postings:)

catwink22's picture
catwink22
Posts: 281
Joined: Sep 2009

Hi Joanie!
Great comeback! I'm about 5 miles from the MA line not too far from Springfield. I spent my childhood summers in Westbrook so I am very familiar with Mystic, I love the beach! I haven't been very far out of New England so I can't imagine what the Canal must be like, but it looks great from what I can see in your pic and the smile on your face! I think the grandkids might have had a hard time calling you Pocahontas hee hee you would have been called some interesting names! My granddaughter is 5th generation so she has lots of Grandma's, she calls me MeMe. So close our grandma names are! Thanks for the laugh!
Cat

Go_go_Gi_gi
Posts: 84
Joined: Aug 2011

Hi everyone,

Thinking about all of you and praying for all for various issues that have been posted. Beth and Joanie and Cat---May your scans be clear and that you be reassured by the results and your faith. You are all amazing folks; it is a relief and a big support for me to see your stories.
Today was day 1 of 2nd cycle Benda/Rituxan---went well--no adverse effects--a little wobbly with the ativan/benadryl---tomorrow day 2 Bendamustine only--- then a couple of days of steroid ups!!

I'm scheduled for a "staging" f/u PET scan in 2 weeks---to see if any effect of chemo--
s
I can relate to the anxiety surrounding waiting for tests, results: "What's going on in my body!!?" You each show courage by reporting what's really happening. Thanks for sharing your reality, hope and strength. By my faith in God, and with support of family and many friends, and these postings--it's easier to muddle through the days with positive outlook for the future.

I'll be looking for the postings for results tomorrow evening and will continue to pray for each and everyone of you--
Jim hope you're not too sore from your shot!!! Take care --send some more of your fabulous wit our way--

Joanie, I lived in Niskayuna/Schenectady, NY area for 6 years, about 1 mile from lock 7 on the Erie canal--rode my bike along the bike path there frequently---it's a beautiful area. I would love to go on a boat on the canal sometime!!! Hope your dream for that is realized sometime ---dream on girl!!

Hugs and love by grace to all, susan

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Thanks for your well wishes. I pray for good results for you also. I bet that was fun riding your bike along the canal. I always thought it would be less commercial looking. My husband and I have a boat and he really wants to go up the intercoastal waterway. The longest we have been on it was a month. I can't imagine 4 months. I love him dearly but after the 3rd month I might have to push him overboard. As far as your faith , I know HIS strength has gotten me this far on this path and I know HE will be with me the entire journey. Good luck on your treatments. I had RCHOP and started in mar09 and was clear since June09. It is scary because I want the Dr. to say it is still clear so bad. My favorite Bible verse is Trust in the Lord with all your heart and lean not on your own understanding. In all your ways acknowledge him and he will direct your path. I have been saying that a lot in the last day especially in the PET scanner. Joanie

Go_go_Gi_gi
Posts: 84
Joined: Aug 2011

I too would love to do the canal by boat---I can certainly understand the urge to toss him over after 3 months!!! that's close quarters for sure.
I love that verse also--Morning of my 1st chemo with all of its nerves, uncertainties, regarding side effects, etc--diagnosis less than 2 weeks!!! this verse provided: Ps. 138:3 When I called, you answered me; you made me bold and stouthearted. He has been directing my path, including being on this great and supportive site.

Blessings to you, hugs and prayers that the outcome is GREAT!!!
Susan

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

I really appreciate your post and sharing the verse. God always makes somethihg good out of bad. Meeting new friends, appreciating the ones you have more, realizing you are not in control and not needing to be, loving more, not sweating the small stuff and more importantly a closer walk with God. Hugas Joanie

Go_go_Gi_gi
Posts: 84
Joined: Aug 2011

Love your posts, awake post chemo--dexamethasone---The Lord is good to me--encouraging, friends old and new!!! Sleep well--love your good news today!!! Hugs back at you--Susan

joan fay
Posts: 2
Joined: Oct 2011

I was just diagnosed with b cell lymphoma. i have a pet scan next week what shall I expect. I just want to start treatment so I can get better. I am sorry you are anxious I feel in my heart you will be healthy, you look wonderful

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

Hi Joan, I have Diffuse Large B Cell Lymphoma - stage 2 in the
small intestine and mesentary.

Welcome to this site. You'll find wonderful people here and
care and support.

It will help if you provide more information in the "about me" page
so we can reference that and know more about your situation, type of cancer,
where found, staging, etc.

For the PET scan they may or not require you to do a carbohydrate fast
48 hours prior to the scan. You will be given a radioactive dye injection
and a sugary drink to consume before the scan and will have to wait about
an hour before they start the scan.

The scan looks for metabolic activity in the body - where the cancer cells
are ingesting the sugars. The scan detects "hot spots" and shows where
there is cancer cell activity and/or tumors.

If it's your first scan and part of staging, they may do a whole body scan.
It is not an uncomfortable process unless you are disturbed by closed in
spaces. You will have to hold your arms above your head for awhile which
can get tiresome. The technicians are usually very knowledgeable and
will explain things to you.

This is based on my experience. I've had 3 of 4 of them now.

Good luck with everything and big hugs,

Jim

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