7 years NED (stage IV mets to liver and left lung)

scouty
scouty Member Posts: 1,965
My onc and I had some interesting talks about diets, sugar, vit D, and other things but I won’t post it cuz this is a good news thread and I don't want it to turn into one of our "board fights". It was very flattering when he told me that he and some of his colleagues have learned a great deal from me. He also said he really enjoyed reading the copy of “Anticancer” that I had left for him and is passing it around to others.

His displeasure over the leucovorin “shortage” (as well as the other drugs they can’t get) was obvious but as he said there is only so much they can do since the same pharmaceutical companies fund so many of their clinical trials, research, and other studies (it’s a huge comprehensive and teaching cancer center). He shook his head and made the sound he does when he wants to change the subject so I did, but it was obvious that it was tough on them.

I will see him next fall for blood work and then have a colonoscopy and if all goes well, I will not be seeing him again. My surgeon and the chemo nurses have always hugged me when they see me but not my onc. He has always been so stoic but has been loosening up over the years and when he actually hugged me as I was leaving, I teared up as did his PA. Pretty emotional but in a good way!

Nice way to end the week and now I can focus on running in a 5K in 2 weeks and then spending quality time with some awesome semi-colons in Chicago @ CP9 in 4 weeks.

Lisa P.
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Comments

  • PhillieG
    PhillieG Member Posts: 4,866
    That's Wonderful
    Congrats Lisa, I'm so happy to hear your GREAT news!
    Love you
    -p
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    LP
    Count me in as well......bravisimo:)

    What an interesting trio, you, Phil and I make. You with 7-years ned and me and Phil 7-years of getting after it. Such a fascinating dichotomy on the cancer subject.

    Cheers, Lisa - one more year and you're out of the system. Just heartfelt congratulations to you.

    -Craig
  • lisa42
    lisa42 Member Posts: 3,625
    Other Lisa
    Hi Lisa! As always, you've been and are an inspiration to me :)
    I tell people I know about you- how I know someone who was stage IV who has now been cancer free for several years!!
    Glad for your good news & the good visit to the onc :) Interesting that he read the Anticancer book. I have that book too- maybe I'll mention it to my onc.

    Hugs,
    Other Lisa
  • mukamom
    mukamom Member Posts: 402
    lisa42 said:

    Other Lisa
    Hi Lisa! As always, you've been and are an inspiration to me :)
    I tell people I know about you- how I know someone who was stage IV who has now been cancer free for several years!!
    Glad for your good news & the good visit to the onc :) Interesting that he read the Anticancer book. I have that book too- maybe I'll mention it to my onc.

    Hugs,
    Other Lisa

    Pretty dam*n awesome!!
    Hoping you stay NED!!!

    Angela
  • PhillieG
    PhillieG Member Posts: 4,866
    Sundanceh said:

    LP
    Count me in as well......bravisimo:)

    What an interesting trio, you, Phil and I make. You with 7-years ned and me and Phil 7-years of getting after it. Such a fascinating dichotomy on the cancer subject.

    Cheers, Lisa - one more year and you're out of the system. Just heartfelt congratulations to you.

    -Craig

    LOL. To quote Estelle Reiner
    Rob Reiner's Mom in "When Harry Met Sally"

    "I'll have what she's having"

    "
  • ron50
    ron50 Member Posts: 1,723
    ((((((((Lisa))))))))
    Ron.
  • maglets
    maglets Member Posts: 2,576
    ron50 said:

    ((((((((Lisa))))))))
    Ron.

    dearest lisa
    i am so bursting with pride and love for you

    you appear to be ahead of the beast.....whatever you are doing is great.....

    annnnndddd you are so humble....thank you for not starting another fire-storm...

    with all best love

    mags
  • sasjourney
    sasjourney Member Posts: 395
    Lisa
    I could not be more happier for you! I can't even imagine how you must feel. You were so courageous to take a different path and have been so kind to share what you did with us in hopes that it could help us as well. You are amazing!!!

    I would love to know about your conversation with your onc. Anyway you could share that?

    Celebrate, my friend!!!!

    Hugs,
    Sara
  • marqimark
    marqimark Member Posts: 242
    Awesome
    Great news

    Mark
  • idlehunters
    idlehunters Member Posts: 1,787
    marqimark said:

    Awesome
    Great news

    Mark

    Hey Lisa....
    Congrats! That is really inspiration for us all..... Thank you for "paying it forward" ... YOU ROCK!

    Jennie
  • Annabelle41415
    Annabelle41415 Member Posts: 6,715 Member
    Great
    What wonderful news. So glad that things are going so good for you. Keep up your good spirit and posts.

    Kim
  • fedester
    fedester Member Posts: 753
    wow
    great news lisa.
    wishing you all the best in the future.
    you rock girl !!!!!!
    be well
    never,ever give up !!
    bruce
  • 2bhealed
    2bhealed Member Posts: 2,064
    Oh honey!
    Hey y'all! That is the best news a gal could hear today! I am beyond happy for you.

    Your inspiration for all on these boards knows no bounds, and like the other Lisa, I tell your story all the time to anyone who will listen. Your willingness to share your knowledge continuously over the years is so appreciated.

    I am proud to call you friend.

    October, baby. You and me. WOOOHOOO!

    peace, emily
  • plh4gail
    plh4gail Member Posts: 1,238
    Lisa I am soo happy to hear
    Lisa I am soo happy to hear this! What a great thing to hear from your onc. I'm sure it made you feel really good...gave me goosebumps. Now go get running girl!

    huggs, gail
  • buckeye2
    buckeye2 Member Posts: 428
    Your case is inspirational
    Your case is inspirational and a reason for us to have hope. Congratulations! Another Lisa
  • johnnybegood
    johnnybegood Member Posts: 1,117
    buckeye2 said:

    Your case is inspirational
    Your case is inspirational and a reason for us to have hope. Congratulations! Another Lisa

    you go girl
    congrats and keep on doing what your doing.i hope someday i have the courage to step outside the box...Godbless....johnnybegood
  • toyfox
    toyfox Member Posts: 158 Member
    So happy for you
    Love reading your posts....they have been so helpful.
    Linda
  • Erinb
    Erinb Member Posts: 293
    Lisa,
    That's great news.

    Lisa,
    That's great news. Thanks for your continued support on this board. I know how easy it would be for many people to forget this site after such a feat! Good luck with the 5k. Long distance runners are crazy! (just kidding)
    Erin
  • chrissy83
    chrissy83 Member Posts: 17
    Wow scouty,
    Thank you soo

    Wow scouty,

    Thank you soo much for the good news:) I was diagnosed with stage 3c and now it has popped up in my lymph node in my neck so chemo obviously didn't work too well for me even tho it seemed to kick my butt!!!
    So thanks to you you have inspired me to start looking at my diet so I have had my blood chemistry done and on tue I find out what my diet consists of ..All i know is no sugar and carbs :(..
    So thank you !!! You have given me hope Iam 28 years old and I need to hear stories like yours I have 2 babies under 2 so anything I can do to stay alive even a month longer is worth it!!
    You are my inspiration!!!!!

    Chrissy
  • scouty
    scouty Member Posts: 1,965
    PhillieG said:

    LOL. To quote Estelle Reiner
    Rob Reiner's Mom in "When Harry Met Sally"

    "I'll have what she's having"

    "
    Thanks guys
    Like most women Phil, I love that scene.

    Craig, I suspect we will have loads to talk about in Chi-town.

    Lisa P.