7 years NED (stage IV mets to liver and left lung)
scouty
Member Posts: 1,965 Member
My onc and I had some interesting talks about diets, sugar, vit D, and other things but I won’t post it cuz this is a good news thread and I don't want it to turn into one of our "board fights". It was very flattering when he told me that he and some of his colleagues have learned a great deal from me. He also said he really enjoyed reading the copy of “Anticancer” that I had left for him and is passing it around to others.
His displeasure over the leucovorin “shortage” (as well as the other drugs they can’t get) was obvious but as he said there is only so much they can do since the same pharmaceutical companies fund so many of their clinical trials, research, and other studies (it’s a huge comprehensive and teaching cancer center). He shook his head and made the sound he does when he wants to change the subject so I did, but it was obvious that it was tough on them.
I will see him next fall for blood work and then have a colonoscopy and if all goes well, I will not be seeing him again. My surgeon and the chemo nurses have always hugged me when they see me but not my onc. He has always been so stoic but has been loosening up over the years and when he actually hugged me as I was leaving, I teared up as did his PA. Pretty emotional but in a good way!
Nice way to end the week and now I can focus on running in a 5K in 2 weeks and then spending quality time with some awesome semi-colons in Chicago @ CP9 in 4 weeks.
Lisa P.
His displeasure over the leucovorin “shortage” (as well as the other drugs they can’t get) was obvious but as he said there is only so much they can do since the same pharmaceutical companies fund so many of their clinical trials, research, and other studies (it’s a huge comprehensive and teaching cancer center). He shook his head and made the sound he does when he wants to change the subject so I did, but it was obvious that it was tough on them.
I will see him next fall for blood work and then have a colonoscopy and if all goes well, I will not be seeing him again. My surgeon and the chemo nurses have always hugged me when they see me but not my onc. He has always been so stoic but has been loosening up over the years and when he actually hugged me as I was leaving, I teared up as did his PA. Pretty emotional but in a good way!
Nice way to end the week and now I can focus on running in a 5K in 2 weeks and then spending quality time with some awesome semi-colons in Chicago @ CP9 in 4 weeks.
Lisa P.
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Comments
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LP
Count me in as well......bravisimo:)
What an interesting trio, you, Phil and I make. You with 7-years ned and me and Phil 7-years of getting after it. Such a fascinating dichotomy on the cancer subject.
Cheers, Lisa - one more year and you're out of the system. Just heartfelt congratulations to you.
-Craig0 -
Other Lisa
Hi Lisa! As always, you've been and are an inspiration to me
I tell people I know about you- how I know someone who was stage IV who has now been cancer free for several years!!
Glad for your good news & the good visit to the onc Interesting that he read the Anticancer book. I have that book too- maybe I'll mention it to my onc.
Hugs,
Other Lisa0 -
Pretty dam*n awesome!!lisa42 said:Other Lisa
Hi Lisa! As always, you've been and are an inspiration to me
I tell people I know about you- how I know someone who was stage IV who has now been cancer free for several years!!
Glad for your good news & the good visit to the onc Interesting that he read the Anticancer book. I have that book too- maybe I'll mention it to my onc.
Hugs,
Other Lisa
Hoping you stay NED!!!
Angela0 -
LOL. To quote Estelle ReinerSundanceh said:LP
Count me in as well......bravisimo:)
What an interesting trio, you, Phil and I make. You with 7-years ned and me and Phil 7-years of getting after it. Such a fascinating dichotomy on the cancer subject.
Cheers, Lisa - one more year and you're out of the system. Just heartfelt congratulations to you.
-Craig
Rob Reiner's Mom in "When Harry Met Sally""I'll have what she's having"
"0 -
dearest lisaron50 said:((((((((Lisa))))))))
Ron.
i am so bursting with pride and love for you
you appear to be ahead of the beast.....whatever you are doing is great.....
annnnndddd you are so humble....thank you for not starting another fire-storm...
with all best love
mags0 -
Lisa
I could not be more happier for you! I can't even imagine how you must feel. You were so courageous to take a different path and have been so kind to share what you did with us in hopes that it could help us as well. You are amazing!!!
I would love to know about your conversation with your onc. Anyway you could share that?
Celebrate, my friend!!!!
Hugs,
Sara0 -
Hey Lisa....marqimark said:Awesome
Great news
Mark
Congrats! That is really inspiration for us all..... Thank you for "paying it forward" ... YOU ROCK!
Jennie0 -
Great
What wonderful news. So glad that things are going so good for you. Keep up your good spirit and posts.
Kim0 -
Oh honey!
Hey y'all! That is the best news a gal could hear today! I am beyond happy for you.
Your inspiration for all on these boards knows no bounds, and like the other Lisa, I tell your story all the time to anyone who will listen. Your willingness to share your knowledge continuously over the years is so appreciated.
I am proud to call you friend.
October, baby. You and me. WOOOHOOO!
peace, emily0 -
you go girlbuckeye2 said:Your case is inspirational
Your case is inspirational and a reason for us to have hope. Congratulations! Another Lisa
congrats and keep on doing what your doing.i hope someday i have the courage to step outside the box...Godbless....johnnybegood0 -
Wow scouty,
Thank you soo
Wow scouty,
Thank you soo much for the good news:) I was diagnosed with stage 3c and now it has popped up in my lymph node in my neck so chemo obviously didn't work too well for me even tho it seemed to kick my butt!!!
So thanks to you you have inspired me to start looking at my diet so I have had my blood chemistry done and on tue I find out what my diet consists of ..All i know is no sugar and carbs
..
So thank you !!! You have given me hope Iam 28 years old and I need to hear stories like yours I have 2 babies under 2 so anything I can do to stay alive even a month longer is worth it!!
You are my inspiration!!!!!
Chrissy0
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