oral chemo and missed pills HELP
I put hubbys pills back in the cabinet last night and it didn't look right, but really am trying not to be a nag. So I just checked and counted them, there are WAY too many extra. First thought call dr asap. No breath. think. Ask for help from you all.
He is trying really hard but these pills are making him gag up. Better when he takes them with boost as it coats I guess but this is serious business. There should be 27 and there are 19 extras of the larger ones. He was taken all but one of the smaller size pills.
What should I do?
Julie
Comments
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You had it right the first time...call the doc
Hi Julie,
I am with my husband in the hospital he just had his Ivor Lewis, so I have some experience with caregiving. I think everyone would agree with me when I say you should call your doctor now. No need to panic, you can't undone what has happened, only correct it going forward. No one on this board has a medical degree that I am aware of. I truly am thankful to have the friendship and support of these folks, but my husbands doctors info trumps whatever I read online.
Please call your oncologist, and keep taking deep breaths. Hugs,
Niki
Wife of Jeff T2N1M0
IL 9/20110 -
Hi Julie,
I don't have any advice about what to do about missed pills, I would think you'd best wait for replies from others, or call the doc. I would think that it's better that he's not taken enough than if he'd taken too many.
What I wanted to say, however, was that Lee and I find that it's much better if I am the one handling ALL his pills. When he was on chemo, and taking over 30 pills per day, it was very overwhelming for him to get it all sorted out. What I do, is just put his pills in a little dixie cup, and give it to him whenever he's due for pills. No nagging, no fuss...... We caregivers can only imagine the overactive brains our loved ones have, and sometimes remembering dosages and timing is just too much for them to remember. I know that Lee would have forgotten many times if he was not reminded. He's at the point now, where he asks me if it's time to take anything.
Just a suggestion..... works very well for us,
Chantal0 -
also,Daisylin said:Hi Julie,
I don't have any advice about what to do about missed pills, I would think you'd best wait for replies from others, or call the doc. I would think that it's better that he's not taken enough than if he'd taken too many.
What I wanted to say, however, was that Lee and I find that it's much better if I am the one handling ALL his pills. When he was on chemo, and taking over 30 pills per day, it was very overwhelming for him to get it all sorted out. What I do, is just put his pills in a little dixie cup, and give it to him whenever he's due for pills. No nagging, no fuss...... We caregivers can only imagine the overactive brains our loved ones have, and sometimes remembering dosages and timing is just too much for them to remember. I know that Lee would have forgotten many times if he was not reminded. He's at the point now, where he asks me if it's time to take anything.
Just a suggestion..... works very well for us,
Chantal
Should have mentioned, since we share the same oc. Sanitani leaves the office at 4pm, but the triage nurses are usually great at giving advice or sending the information to the on call doctor, who will get back to you almost immediately. Like Niki mentioned, what's done is done, but you should at least let him know what's going on.
Chantal0 -
thanksDaisylin said:Hi Julie,
I don't have any advice about what to do about missed pills, I would think you'd best wait for replies from others, or call the doc. I would think that it's better that he's not taken enough than if he'd taken too many.
What I wanted to say, however, was that Lee and I find that it's much better if I am the one handling ALL his pills. When he was on chemo, and taking over 30 pills per day, it was very overwhelming for him to get it all sorted out. What I do, is just put his pills in a little dixie cup, and give it to him whenever he's due for pills. No nagging, no fuss...... We caregivers can only imagine the overactive brains our loved ones have, and sometimes remembering dosages and timing is just too much for them to remember. I know that Lee would have forgotten many times if he was not reminded. He's at the point now, where he asks me if it's time to take anything.
Just a suggestion..... works very well for us,
Chantal
Thanks Niki and Chantal
He did not make an error with the pills, he just didn't take them as they make him gag and spit up watery phlem (sp?). I do know he is trying, mentioned pic line and he said he would suffer through with the pills. But he isn't taking them. Then whats the point of any of this crap. Guess I need to get him to call the dr or nurse. I dont want to go behind his back, dont want to supervise pill taking, I am at a loss. But the dr does need to know.
So this is the biggest hurdle so far, I know there will be many more.
Appreciate the feedback.
Hugs,
Julie0 -
oh boy,jss2011 said:thanks
Thanks Niki and Chantal
He did not make an error with the pills, he just didn't take them as they make him gag and spit up watery phlem (sp?). I do know he is trying, mentioned pic line and he said he would suffer through with the pills. But he isn't taking them. Then whats the point of any of this crap. Guess I need to get him to call the dr or nurse. I dont want to go behind his back, dont want to supervise pill taking, I am at a loss. But the dr does need to know.
So this is the biggest hurdle so far, I know there will be many more.
Appreciate the feedback.
Hugs,
Julie
Well Julie, I feel for you and your frustration.
Unfortunately, your husband needs to decide, either you and he need to be a team, and take equal parts in participating in his care or let him deal with it as best he can on his own. I know in my case, we work well together, and although sometimes Lee would get grumpy at pill time or at eating time.... REALLY grumpy..... I know it was not focused at me, but at the frustration of everything. In the 7 years we've been together, I've rarely seen him on any prescription medications, and to go from that to cups full of pills every day is hard to process emotionally. I felt like a nag sometimes, but I think that he appreciated the reminders. (even though it drove him nuts at the same time!) The cancer clinic has me down on his chart as someone that they will share information with, so I've called many times on his behalf, and they've always given me the help I asked for, without Lee having to get on the phone. I have never called behind his back, he always seemed to agree with the reasons behind my calls. However, if your husband does not want your help, I guess there is nothing that you can do, save be there to comfort and love him. It's his choice and his cancer, like his decisions or not. He likely feels that he does not want to burden you with his illness. I hope that you can come to a compromise where you feel like you are doing something to help and he feels cared for. I certainly know the frustration of wanting so badly to help, but having nothing to offer but pills and unwanted food.
We are fortunate that Lee was mostly able to swallow his pills, sometimes he vomited after taking them, so I'm sure we lost some there. He did find that after a round or so of chemo, the swallowing did get easier, hopefully this will be the case for him. I would hazard to guess that the doc may want to do the pic line, if the problem continues.
You are right, sadly there will probably be more hurdles ahead, be strong, be well,
Chantal0 -
Does he have a feeding tube?jss2011 said:thanks
Thanks Niki and Chantal
He did not make an error with the pills, he just didn't take them as they make him gag and spit up watery phlem (sp?). I do know he is trying, mentioned pic line and he said he would suffer through with the pills. But he isn't taking them. Then whats the point of any of this crap. Guess I need to get him to call the dr or nurse. I dont want to go behind his back, dont want to supervise pill taking, I am at a loss. But the dr does need to know.
So this is the biggest hurdle so far, I know there will be many more.
Appreciate the feedback.
Hugs,
Julie
I'm not sure what a pic line is...does he have a feeding tube? If so I believe the pills can be crushed and put through there, I don't have any exp. with that but Sherri could advise on that. Is he taking xeloda, are these the pills you are referring to? If so there is 5-fu which is practically the same drug I believe, my husband wore a pack that administered it to him constantly through his port, he hated being hooked to it, but he didn't miss any doses. I would still suggest asking the oncologist. Also I echo Chantal's statement I was my husband's pill counter as well. We had a great pill tray that had all of the days of the weeks, but each day was removable so he could carry it in his pocket. They have so much going on that not having to worry about pills was a help to my husband.
Hugs again,
Niki0 -
NikiNikiMo said:Does he have a feeding tube?
I'm not sure what a pic line is...does he have a feeding tube? If so I believe the pills can be crushed and put through there, I don't have any exp. with that but Sherri could advise on that. Is he taking xeloda, are these the pills you are referring to? If so there is 5-fu which is practically the same drug I believe, my husband wore a pack that administered it to him constantly through his port, he hated being hooked to it, but he didn't miss any doses. I would still suggest asking the oncologist. Also I echo Chantal's statement I was my husband's pill counter as well. We had a great pill tray that had all of the days of the weeks, but each day was removable so he could carry it in his pocket. They have so much going on that not having to worry about pills was a help to my husband.
Hugs again,
Niki
I just posted this and it vanished, so I'll do it again, if it shows up twice, that's why....
pic line = port must be Canada speak vs American speak
Chantal0 -
Well said . .Daisylin said:oh boy,
Well Julie, I feel for you and your frustration.
Unfortunately, your husband needs to decide, either you and he need to be a team, and take equal parts in participating in his care or let him deal with it as best he can on his own. I know in my case, we work well together, and although sometimes Lee would get grumpy at pill time or at eating time.... REALLY grumpy..... I know it was not focused at me, but at the frustration of everything. In the 7 years we've been together, I've rarely seen him on any prescription medications, and to go from that to cups full of pills every day is hard to process emotionally. I felt like a nag sometimes, but I think that he appreciated the reminders. (even though it drove him nuts at the same time!) The cancer clinic has me down on his chart as someone that they will share information with, so I've called many times on his behalf, and they've always given me the help I asked for, without Lee having to get on the phone. I have never called behind his back, he always seemed to agree with the reasons behind my calls. However, if your husband does not want your help, I guess there is nothing that you can do, save be there to comfort and love him. It's his choice and his cancer, like his decisions or not. He likely feels that he does not want to burden you with his illness. I hope that you can come to a compromise where you feel like you are doing something to help and he feels cared for. I certainly know the frustration of wanting so badly to help, but having nothing to offer but pills and unwanted food.
We are fortunate that Lee was mostly able to swallow his pills, sometimes he vomited after taking them, so I'm sure we lost some there. He did find that after a round or so of chemo, the swallowing did get easier, hopefully this will be the case for him. I would hazard to guess that the doc may want to do the pic line, if the problem continues.
You are right, sadly there will probably be more hurdles ahead, be strong, be well,
Chantal
Very well said Chantal, very true and very tactful. You took the words from my heart and mind.
So Julie, ditto to Chantal
Whitney0 -
maybe you won't agree with me
Hi,
Maybe my recommendation is a bit too strong but if it was my mom who was either forgetting or refusing to take the pills, I would overcharge the situation and going forward make sure it was done. I feel like sometimes those I love don't listen to good advice. I'm sure it's hard but it's his life and yours we're talking about. Taking pills might be hard but it could be what saves his life. Sometimes I don't care about being a nag. Whether it's to my parents, husband, or kids. If I know what's best, and if it's of utmost importance, I'll force the issue until I win. Yes I'm a bit of a control freak. But I don't control everything but when it comes to super important items, I don't care if people get mad at me. Right now I'm forcing my dad to take all his vitamins and drink at least 1 ensure a day. His diet consists of Pepsi and some rice with a little vege. I can't deal with 2 parents being sick so I'm asking him to help me by taking care of himself. Same thing with my kids.0 -
This comment has been removed by the Moderatorjss2011 said:thanks
Thanks Niki and Chantal
He did not make an error with the pills, he just didn't take them as they make him gag and spit up watery phlem (sp?). I do know he is trying, mentioned pic line and he said he would suffer through with the pills. But he isn't taking them. Then whats the point of any of this crap. Guess I need to get him to call the dr or nurse. I dont want to go behind his back, dont want to supervise pill taking, I am at a loss. But the dr does need to know.
So this is the biggest hurdle so far, I know there will be many more.
Appreciate the feedback.
Hugs,
Julie0 -
DISAGREE
Julie,
I completely agree with Sherri, and I agree with everything that Chantal and some others have shared
.....BUT.....
I TOTALLY DISAGREE with the idea of calling the doctor.
My advise (and I am NOT a doctor or any expert-this is my opinion, and you know what they say about them...) is to TALK to your husband and ONLY your husband. You simply must have this trust and that connection at any cost. And get behind HIM. If he doesn't WANT to take them, he shouldn't have to, not to please you or his doctor or anyone else.
I hope this isn't offensive to you but I feel as a EC 'survivor' that this is up to ME, and if it is done for ANY other reason, there will be resentment and attitude and problems FAR beyond the number of pills left in a bottle.
THAT is my 2 cents worth. I just had to share it.
I am not doing ANY chemo or radiation. This was my choice. If I had started and hated the pills or the infusion, I would have STOPPED. He may be trying to communicate this and may not be being heard?
I love you both dearly and I want the best. Of course I want him to live, just like you, but the cost must be weighed with the price and pain.
I digress. I think many have said a lot of great things. I just felt the need to say my piece.
With all the best of intentions,
-Eric0 -
missing pills
Hi Judy;
I can relate. I would suggest not letting him see the pills at all, and when it comes time for say, 15 pills, hand him 3, sip some water, chat, no big rush, take 5 min if need be, take 3 more, more sips, etc.. and when he's done just move on without making a big deal about it.
I found that seeing all the pills in a big bottle or spread out really freaked me out, and being handed 15 pills at a time is just too much. breaking them into smaller portions may help.
a stronger drink like juice or iced tea might help too, because the flavour can help overpower the gag reflex.
I also made a point of blowing my nose before eating or pills. With the gag reflex tuned so high, just a few sniffles is all it takes to trigger another vomit.
hope this helps,
Lee0 -
Guess I didn't understand the question...chemosmoker said:DISAGREE
Julie,
I completely agree with Sherri, and I agree with everything that Chantal and some others have shared
.....BUT.....
I TOTALLY DISAGREE with the idea of calling the doctor.
My advise (and I am NOT a doctor or any expert-this is my opinion, and you know what they say about them...) is to TALK to your husband and ONLY your husband. You simply must have this trust and that connection at any cost. And get behind HIM. If he doesn't WANT to take them, he shouldn't have to, not to please you or his doctor or anyone else.
I hope this isn't offensive to you but I feel as a EC 'survivor' that this is up to ME, and if it is done for ANY other reason, there will be resentment and attitude and problems FAR beyond the number of pills left in a bottle.
THAT is my 2 cents worth. I just had to share it.
I am not doing ANY chemo or radiation. This was my choice. If I had started and hated the pills or the infusion, I would have STOPPED. He may be trying to communicate this and may not be being heard?
I love you both dearly and I want the best. Of course I want him to live, just like you, but the cost must be weighed with the price and pain.
I digress. I think many have said a lot of great things. I just felt the need to say my piece.
With all the best of intentions,
-Eric
Eric,
Pretty sure I was the one with the offending advice. I didn't know this was a question of whether her husband wanted to stop chemo or not. I thought the question was, we are in a chemo treatment plan and my husband forgot to take his chemo pills. I really thought there was a concern about having skipped doses of medicine. My husband was in chemo and the pack for his 5-fu didn't arrive on time so he "broke treatment" for a while. I thought the question was similar to that, "Do I panic if we skipped a few doses?". Didn't mean to offend, I was actually taken back when Sherri posted, I hadn't thought of it that way at all.
I also wrote a very long piece about deciding about chemo and whether the caregiver should be involved in that situation, but I deleted it. I then realized my husband doesn't have stage four EC, and since we haven't been in that position I have no right saying what I think about any of this. I will say though that there was a pretty disturbing post about surgery and the cancer coming back, and whether the patient should even have surgery. I can comment on that since my husband and I are in that position. I just have to say that there is also the other side of the argument, the side where the patient is willing to do anything to beat this cancer or put it into remission. I also think there is a third option and that is when the patient that gives it all they have and decide when enough is enough. I think everyone is entitled to their opinion and we don't always have to agree.
Julie,
If I misunderstood the question I apologize. I did not mean for you to call the doctor without speaking to your husband first if it is a question of whether he wants to end treatment. I am running on a small amount of sleep and could have completely misread your question. I am pretty sure I am going to stop posting to the board for awhile, until my husband is feeling stronger. I strongly believe that the decisions about treatment can only be made by your husband and you. I am sorry that this is a frustrating time for you. As a caregiver I completely understand that this is a different journey for you then it is for your husband. I am here if you ever need to vent or just want to speak with someone who understands what it is like to deal with your best friend having cancer. Hugs!
Niki0 -
missed chemo drug?
Are you sure they are chemo drugs he's not taking? Lots of other pills are taken after a chemo infusion that are not chemo drugs, per se. It makes a lot of difference.
I think the doctor should be consulted asap. Missed chemo drugs is not a good thing. If, on the other hand, he's not taking his anti-emetics, or pain meds, or other meds to alleviate the side effects of chemo, then it's probably not such a big deal. But one that needs to be dealt with, noththeless. Other drugs, in liquid form can be prescribed.
If in fact, he's not taking his oral chemo, he can switch to an an infusion.
Besides, oral chemo drugs are not cheap. My co-pay alone is $$300 a month for oral chemo. So no sense throwing money away.
Lu0 -
Gotta Love this group!Callaloo said:missed chemo drug?
Are you sure they are chemo drugs he's not taking? Lots of other pills are taken after a chemo infusion that are not chemo drugs, per se. It makes a lot of difference.
I think the doctor should be consulted asap. Missed chemo drugs is not a good thing. If, on the other hand, he's not taking his anti-emetics, or pain meds, or other meds to alleviate the side effects of chemo, then it's probably not such a big deal. But one that needs to be dealt with, noththeless. Other drugs, in liquid form can be prescribed.
If in fact, he's not taking his oral chemo, he can switch to an an infusion.
Besides, oral chemo drugs are not cheap. My co-pay alone is $$300 a month for oral chemo. So no sense throwing money away.
Lu
It's great to hear from everyone and gain perspective.
Hubby is probably stage 3 as the plan is for surgery following chemo and possible radiation. Will find out more when we have a formal appt with oc. on mon.
I will work on a profile since someone was so nice to post step by step directions (needed).
So we had a short chat about the extra (chemo)pills. He knows he has missed some, he honestly thinks maybe 4 tops, gee how one here and 2 there add up! I am now putting them in a pill container for him and I hope it helps.
Best I can do as our work hrs are different. Plus the fact that he even lost track of missed pills, that is a wake up to him I would think.
No feeding tube yet and no port, so we will see how this goes.
I still think the dr should know about the missed pills. Do we take for a few more days, or stay on track by the stop start date? I want answers from the drs/nurses but it cant be me doing it.
Hugs,
Julie0 -
I think.....jss2011 said:Gotta Love this group!
It's great to hear from everyone and gain perspective.
Hubby is probably stage 3 as the plan is for surgery following chemo and possible radiation. Will find out more when we have a formal appt with oc. on mon.
I will work on a profile since someone was so nice to post step by step directions (needed).
So we had a short chat about the extra (chemo)pills. He knows he has missed some, he honestly thinks maybe 4 tops, gee how one here and 2 there add up! I am now putting them in a pill container for him and I hope it helps.
Best I can do as our work hrs are different. Plus the fact that he even lost track of missed pills, that is a wake up to him I would think.
No feeding tube yet and no port, so we will see how this goes.
I still think the dr should know about the missed pills. Do we take for a few more days, or stay on track by the stop start date? I want answers from the drs/nurses but it cant be me doing it.
Hugs,
Julie
Well folks, I think maybe we all misunderstood the problem. I think it sounds like he WANTS to take the pills, but is having a hard time actually swallowing them.
All of our advice is just that, advice. I don't think anyone needs to feel corrected or unappreciated. We all have different relationships with our spouses, and some of us have taken charge of their treatment, and some have sat in the wings, waiting to help when needed.
Julie, we have spoken about feeding tubes before, and I'll tell you, since we share the same oc, if your husband wants to get one, you may need to push HARD. (and push even HARDER if he puts you off!!!) We had to wait until it's almost too late. I can't state too strongly how very important this is, especially knowing that he can't even swallow his pills. And as someone above posted, Niki, I think, the pills can be crushed up and added to the feeding tube.
I can see his reluctance to get one, as well as the picc line. They are both invasive and not too pretty looking, BUT if it will help him to feel better, it's well worth the discomfort and self consciousness. Also, both can be removed easily at a later time, if and when he's able to swallow.
I do hope that you and hubby can meet somewhere in the middle, with satisfaction for both of you,
Chantal0 -
feeding tubeDaisylin said:I think.....
Well folks, I think maybe we all misunderstood the problem. I think it sounds like he WANTS to take the pills, but is having a hard time actually swallowing them.
All of our advice is just that, advice. I don't think anyone needs to feel corrected or unappreciated. We all have different relationships with our spouses, and some of us have taken charge of their treatment, and some have sat in the wings, waiting to help when needed.
Julie, we have spoken about feeding tubes before, and I'll tell you, since we share the same oc, if your husband wants to get one, you may need to push HARD. (and push even HARDER if he puts you off!!!) We had to wait until it's almost too late. I can't state too strongly how very important this is, especially knowing that he can't even swallow his pills. And as someone above posted, Niki, I think, the pills can be crushed up and added to the feeding tube.
I can see his reluctance to get one, as well as the picc line. They are both invasive and not too pretty looking, BUT if it will help him to feel better, it's well worth the discomfort and self consciousness. Also, both can be removed easily at a later time, if and when he's able to swallow.
I do hope that you and hubby can meet somewhere in the middle, with satisfaction for both of you,
Chantal
.. and I'd be glad to answer any questions he might have about the feeding tube. Utimately I'm glad I got mine, and it saved my life. I was sleeping 18 hours a day just days before the surgery, and felt 50% better and more energetic 2 days after the surgery.
I'd be pleased to speak to him on the phone privately if he'd prefer.
good luck,
Lee0 -
OH MY GOSH!! I AM SO SORRY!!!!NikiMo said:Guess I didn't understand the question...
Eric,
Pretty sure I was the one with the offending advice. I didn't know this was a question of whether her husband wanted to stop chemo or not. I thought the question was, we are in a chemo treatment plan and my husband forgot to take his chemo pills. I really thought there was a concern about having skipped doses of medicine. My husband was in chemo and the pack for his 5-fu didn't arrive on time so he "broke treatment" for a while. I thought the question was similar to that, "Do I panic if we skipped a few doses?". Didn't mean to offend, I was actually taken back when Sherri posted, I hadn't thought of it that way at all.
I also wrote a very long piece about deciding about chemo and whether the caregiver should be involved in that situation, but I deleted it. I then realized my husband doesn't have stage four EC, and since we haven't been in that position I have no right saying what I think about any of this. I will say though that there was a pretty disturbing post about surgery and the cancer coming back, and whether the patient should even have surgery. I can comment on that since my husband and I are in that position. I just have to say that there is also the other side of the argument, the side where the patient is willing to do anything to beat this cancer or put it into remission. I also think there is a third option and that is when the patient that gives it all they have and decide when enough is enough. I think everyone is entitled to their opinion and we don't always have to agree.
Julie,
If I misunderstood the question I apologize. I did not mean for you to call the doctor without speaking to your husband first if it is a question of whether he wants to end treatment. I am running on a small amount of sleep and could have completely misread your question. I am pretty sure I am going to stop posting to the board for awhile, until my husband is feeling stronger. I strongly believe that the decisions about treatment can only be made by your husband and you. I am sorry that this is a frustrating time for you. As a caregiver I completely understand that this is a different journey for you then it is for your husband. I am here if you ever need to vent or just want to speak with someone who understands what it is like to deal with your best friend having cancer. Hugs!
Niki
NIKI and ENTIRE GROUP....
I am SO sorry if I offended ANYONE with ANYTHING I have ever posted or said!
I NEVER mean to do that! I didn't find ANYTHING offending here until I read your post just now, I missed that part I guess, but...
I just thought that there was a problem with his WANTING to skip the pills. I can relate to wanting to STOP a procedure or treatment so I addressed that. I don't think YOU missed anything Niki, I think it was ME!! I think I may have misread the post.
PLEASE do not stop posting, and if EVER there is a disturbing post and you have a comment, DO NOT DELETE your feelings and response. If you think it doesn't go on the board, them PRIVATE MESSAGE whomever wrote the post! I would LOVE to read whatever it was that you wrote about deciding about chemo!!
Also, I am not sure if you mean MY post about the recurrence rate that I posted about the other day or something else? Either way, I cannot apologize for that, as that is just the "William" in me posting the Gods-honest truth and not doing anyone any good if we sugar coat or hide from the reality of this horrible disease.
I don't EVER want to discourage ANYONE from chemotherapy, surgery or anything THEY want to do. If I can, they weren't sure of their decision anyway, BUT, that said, I do not post allot about MY choice to not do any chemo or that I wouldn't have that surgery if I was guaranteed a chance to live. It's just not who I am personally.
Personally, I think YOU can comment on anything you have an opinion or a thought on!!
And PLEASE DO!!
I post about things I haven't experienced, but have thoroughly researched, If I can share honest FACTS, I will, if it might help.
I just feel awful about this if I offended you or anyone!
My apologies.
I LOVE this group and all of you. With ALL we have to deal with, the LAST thing any of us needs is anything else distracting us from our fight with the beast!
All my love, to all,
-Eric0 -
My apologies toochemosmoker said:OH MY GOSH!! I AM SO SORRY!!!!
NIKI and ENTIRE GROUP....
I am SO sorry if I offended ANYONE with ANYTHING I have ever posted or said!
I NEVER mean to do that! I didn't find ANYTHING offending here until I read your post just now, I missed that part I guess, but...
I just thought that there was a problem with his WANTING to skip the pills. I can relate to wanting to STOP a procedure or treatment so I addressed that. I don't think YOU missed anything Niki, I think it was ME!! I think I may have misread the post.
PLEASE do not stop posting, and if EVER there is a disturbing post and you have a comment, DO NOT DELETE your feelings and response. If you think it doesn't go on the board, them PRIVATE MESSAGE whomever wrote the post! I would LOVE to read whatever it was that you wrote about deciding about chemo!!
Also, I am not sure if you mean MY post about the recurrence rate that I posted about the other day or something else? Either way, I cannot apologize for that, as that is just the "William" in me posting the Gods-honest truth and not doing anyone any good if we sugar coat or hide from the reality of this horrible disease.
I don't EVER want to discourage ANYONE from chemotherapy, surgery or anything THEY want to do. If I can, they weren't sure of their decision anyway, BUT, that said, I do not post allot about MY choice to not do any chemo or that I wouldn't have that surgery if I was guaranteed a chance to live. It's just not who I am personally.
Personally, I think YOU can comment on anything you have an opinion or a thought on!!
And PLEASE DO!!
I post about things I haven't experienced, but have thoroughly researched, If I can share honest FACTS, I will, if it might help.
I just feel awful about this if I offended you or anyone!
My apologies.
I LOVE this group and all of you. With ALL we have to deal with, the LAST thing any of us needs is anything else distracting us from our fight with the beast!
All my love, to all,
-Eric
Sorry I was being overly sensitive, I am just tired from going full speed for the last 3-4 months. I was thinking about taking a break from posting because I am hyper aware of being sensitive right now. Everyone has a right to their own opinion. I was referring to your post about the surgery, it was just something I really didn't want to read this week. I have actually read that article before, just didn't have the strength to see it this week. Doesn't mean it shouldn't be posted though, people should be aware going into it.
I had a long talk with my husband today, I needed to make sure he wasn't doing all of this for benefit, too late really if he said something I didn't want to hear. But, he assured me that he is doing this for himself just as much for me and his family. He is well aware that this cancer could come back, but he said he didn't for one minute think about not having this surgery if he was able to.
Eric I am really sorry if I hurt you I didn't mean to do that, I am just too sensitive right now. Julie, I am sorry if I hijacked your post. Chantal gave you really good advice about the feeding tube and pic line.
Niki0
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