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Salagen????

robert77dr's picture
robert77dr
Posts: 54
Joined: Mar 2011

Is there any thing better than Salagen I’m not producing any saliva I have been taking Salagen for 2 ½ mounts and it’s not helping.
I had my throat dilated yesterday and the Doctor said I had a lot of damage to my throat from the radiation and it want help much until I can produce saliva anyone got any suggestions.

RushFan's picture
RushFan
Posts: 223
Joined: Aug 2010

I asked my surgical onc and lead doctor about Salagen...she recommended Evoxac. I have been taking it for several months and it has really helped. Apparently evoxac is newer chemistry...

I have had zero side effects with Evoxac. Apparently Salagen can cause some profuse sweating. Has that been the case with you?

Btw, I'm 16 months post treatment and eating almost anything I want now...still need water with each meal...

Best of luck to you, and all here!
Chuck.

robert77dr's picture
robert77dr
Posts: 54
Joined: Mar 2011

Thanks,
I will call my Doctor about trying Evoxac because the Salagen is not working for me.

Robert

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

I used both of them when I first came out of treatment for about a year, but did not find either one did any good for me. That is when I found the Stoppers 4 and been on it for the last 6 years.

Hope they work for you Robert.
Hondo

robert77dr's picture
robert77dr
Posts: 54
Joined: Mar 2011

I call my Doctor and she called in evoxac when I called my drug store they said thay would have to ordor it and the cost would be $269.00 for a 30 day supply my insurance does not cover it. That price is out of my range as i am on a fixed income. I guess i will make do with no saliva.

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

You got to be kidding me, that is so unreal and for your insurance not to cover it is not right either.

Hondo

sweetblood22's picture
sweetblood22
Posts: 3228
Joined: Jan 2010

Wow! That is craziness. Can you find out if there is a generic for Evoxac? I can't believe they don't cover it. Did they explain why it wasn't covered? Let's see them go without saliva for just one week, and then see if they would want it covered. That sucks.

Robert did you look at the link I provided? Maybe there is something there that can give you some relief? Or I hear people say that acupuncture has helped them. Of course I don't know if that would be covered or how much it is.

Hondo, I just use the link that John sent me. I keep it in my notes, and then I just paste in the website I want to link and then what I want it to read.

robert77dr's picture
robert77dr
Posts: 54
Joined: Mar 2011

There is no generic for it My insurance sucks I am trying to get a 10 day supply to see if it works Hondo said it did not work for him. The Doctor said I need to eat meat I would love to have a griled steake Do you have and recipes for ways to fix meat in a blimder or food prosser that does not look like mush or baby food I think at one time you dent me some limks for useing a juicer or a blinder.
Thanks Robert

sweetblood22's picture
sweetblood22
Posts: 3228
Joined: Jan 2010

Getting a ten day supply or sample to see if it works, is a great idea.

As far as the grilled steak goes, I would love to have one too, but I haven't been able to choke one down, either- even when it was processed in the mini chopper, and looked like baby food. Yes, gross, but I really wanted steak and was desperate. My dog was very happy when I couldn't eat it.

As far as your doctor saying you NEED to eat meat, well, I know we want to, I know I REALLY want to, but you can be healthy and get in enough vitamins and nutrients with out eating lots of, or even no meat. You just have to be smart about combining proteins, and making good choices in what you can eat. I can give you ideas for eating meats, and meats that work for me. I have definitely had to shift my thinking and my way of cooking, and my approach to food. I can eat some meats, but they need to be prepared differently, and it has to be a fatty cut if meat, lean cuts are like sawdust to me however they are prepared. One thing I have found, is keeping the meat juicy is essential. A crock pot is a great way to do that because the meat cooks low and slow. I also only prepare ONE serving of meat at a time in my crock pot or anyway I cook it. Left overs get too dried out, and I cannot eat them, they will just go to waste if I do that, I just cannot swallow them. I went and bought a little crock pot, I think it's a 2 quart, it was only $9.00. It's about two - three servings in one pot, for me. Some meat ideas:

Lamb Chops. (must be the rib cut. Like a rack of lamb, but don't French the bones, because that is the best part, and leave the fat on) Theses are now my 'steak'. I can sear these in a pan, and I can eat them like you would a steak. Takes me 2 and a half hours, but I can get them down. I try and wait for them to be on sale, because they aren't cheap, and I buy them on sale and freeze them.

Chicken thighs. I can even eat these as fried chicken! I had really missed fried chicken. Just have to make sure it's not overcooked! Just until it's 165 degrees. Yes, I have an instant read meat thermometer. I also make chicken thighs in chicken soup and chicken and dumplings (crock pot). I have also cooked it in the oven, again, kept moist and cooked only until just done.

Pork butt. (I get the boneless strips) I cook these in the crock pot, low and slow, kept juicy.

Sausages. I like Johnsonville Brats or a local butcher we have here makes a plain sausage with no fennel or weird black pepper or anything in it. I do sausage and peppers or cassoulets in the crock pot, and it comes out great. For sausage and peppers, I keep my sausage whole, and brown it then put it in the crock pot, I fry the onions in the pan I browned the sausage in, and throw the onions over the sausage, then add sliced bell peppers. Cover with low salt chicken stock and cook on high for three hours. Since I cannot eat bread, sometimes I peel and quarter small potatoes, and put them in the crock pot before I put the sausage in. It's also nice over a short cooked pasta. I don't even miss the bread.

Beef short ribs. I cook these in the crock pot and they are good.

Some pictures of the above foods that I have made:

SEARED LAMB CHOPS RICE WITH PEAS AND SEASONED FLAT BREAD CHIPS

SAUSAGE AND POTATOES

SEARED SCALLOPS WITH VEGGIES AND ORZO

SLOW COOKED PORK RIBS AND BEANS COOKED IN CROCKPOT A D FINISHED WITH A GLAZE UNDER BROILER

SEARED LAMB CHOPS WITH SAUTÉED MUSHROOMS & ONIONS GRAVY MADE FROM PAN DRIPPINGS AND SEASONED FLAT BREAD CHIPS  

FRIED CHICKEN WITH MOZZARELLA AND ROASTED RED PEPPER SALAD  

CUBAN STYLE PORK WITH RICE AND BEANS  

I only eat meat a few times a week. Maybe three? The important thing is to get enough protein and vitamins and this is easy to do, if you make good food choices. I aim for 40-50 g of protein a day.

The rest of the time, I try and eat protein rich foods and combine them well to make complete proteins. Like rice and beans, corn tacos and beans, pasta and cheese, lentils and pasta, beans and vegetables, vegetable pies -like potato with spinach, oatmeal or barley with vegetables, chick peas and Cous Cous. These are great foods for proteins and CHEAP eats. Beans are great for nutrition and are filling and so inexpensive. When you cannot eat a lot of meat, beans should be in your diet, along with dairy (low fat yogurt, cheese, milk), nuts and seeds (almonds, sunflower seeds, sesame seeds peanut or almond butter), and grains (like rice, oats, corn, whole grain pasta, barley...) Eggs, cheddar cheese, dried apricots, almond milk, soy beans, and tofu are additional foods that are good when you can't eat a lot of meat.

I have almost learned to look at meat as a condiment, rather than the main focus of a meal when I do eat it now. For instance, when I was married, and I cooked sausage and peppers, I would eat 3 sausages when I ate my portion. I now eat 1 sausage. I am not going to give up my dream of sitting down and eating a steak some day. I will still try one every few months.

In the meantime, I am thrilled that I eat as well as I do, I am not scrawny anymore, and I don't have a peg tube. Makes me happy.

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

Except for a little Fish now and then and many be a small piece of chicken once in a while I still lean mostly to being a vegetarian. Show me a grass field and I feel like a Bull, lol.

Not sure why but never did like the taste or texture of meat.

Wishing you well on your soon to be steak night.
Hondo

sweetblood22's picture
sweetblood22
Posts: 3228
Joined: Jan 2010

Hope your dilation helps. On your last thread about saliva, some one answered your question about another drug besides salagen. I don't know if you saw it, I don't think you answered them or posted to that thread again. I posted a link to that thread and one with tips for dry mouth.

Click on these:

YOUR THREAD STARTED ON 8/16/11

OTHER TIPS FOR DRY MOUTH

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

You are so cool on how you do that, John has been trying to teach me but I just can’t get it

Stupid me, I guess that part of the brain got fried
Hondo

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